Heterotaxy: Lessons Learned About Patterns of Practice and Outcomes From the Congenital Heart Surgery Database of the Society of Thoracic Surgeons

World Journal for Pediatric and Congenital Heart Surgery

Volumn 2, Issue 2, 2011, Pages 278-286

  Jacobs, Jeffrey Phillip ^a   Pasquali, Sara K ^b   Morales, David L S ^c   Jacobs, Marshall Lewis ^d   Mavroudis, Constantine ^d   Chai, Paul Jubeong ^a   Tchervenkov, Christo I ^e   Lacour Gayet, Francois G ^f   Walters, Hal ^g   Quintessenza, James Anthony ^a  

^a UNIVERSITY OF SOUTH FLORIDA   (United States)

^b DUKE UNIVERSITY MEDICAL CENTER   (United States)

^c TEXAS CHILDREN S HOSPITAL   (United States)

^d CASE WESTERN RESERVE UNIVERSITY   (United States)

^e MONTREAL CHILDREN S HOSPITAL   (Canada)

^f CHILDREN S HOSPITAL AT MONTEFIORE   (United States)

^g WAYNE STATE UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

asplenia; cardiac surgery; congenital heart disease; database; heterotaxy syndrome; isomerism; outcomes; polysplenia; results of treatment

Indexed keywords

EID: 84990366456     PISSN: 21501351     EISSN: 21500136     Source Type: Journal    
DOI: 10.1177/2150135110397670     Document Type: Review

References (24)

1. Jacobs JP Jacobs ML Mavroudis C Lacour-Gayet FG Tchervenkov CI. Executive Summary: The Society of Thoracic Surgeons Congenital Heart Surgery Database—Twelfth Harvest—(January 1, 2006–December 31, 2009). Durham, NC: Society of Thoracic Surgeons (STS) and Duke Clinical Research Institute (DCRI), Duke University Medical Center; 2010.
2. Jacobs ML Jacobs JP Franklin RCG, et al. Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease—the perspective of cardiac surgery. Cardiol Young. 2008; 18((Supplement 2)):101–115.
3. Jacobs JP Maruszewski B Kurosawa H, et al. Congenital heart surgery databases around the world: do we need a global database?. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2010; 13: 3–19.
4. Jacobs JP Anderson RH Weinberg P, et al. The nomenclature, definition and classification of cardiac structures in the setting of heterotaxy. Cardiol Young. 2007; 17(Supplement 2):1–28.
5. Jacobs JP Jacobs ML Mavroudis C, et al. Atrioventricular septal defects: lessons learned about patterns of practice and outcomes from the Congenital Heart Surgery Database of the Society of Thoracic Surgeons. World Journal for Pediatric and Congenital Heart Surgery. 2010; 1: 68–77.
6. Jacobs JP Jacobs ML Mavroudis C, et al. Transposition of the great arteries: lessons learned about patterns of practice and outcomes from the Congenital Heart Surgery Database of the Society of Thoracic Surgeons. World Journal for Pediatric and Congenital Heart Surgery. 2011; 2: 19–31.
7. Franklin RCG Jacobs JP Krogmann ON, et al. Nomenclature for congenital and paediatric cardiac disease: historical perspectives and the International Pediatric and Congenital Cardiac Code. Cardiol Young. 2008; 18((Supplement 2):70–80.
8. Mavroudis C, Jacobs JP, eds. International Congenital Heart Surgery Nomenclature and Database Project. Ann Thorac Surg. 2000; 69(Supplement 1):1–372.
9. STS Congenital Heart Surgery Database data specifications version 3.0. http://www.sts.org/documents/pdf/CongenitalDataSpecificationsV3_0_20090904.pdf. Accessed December 26, 2009.
10. Jacobs M Mayer JE. Congenital heart surgery nomenclature and database project: single ventricle. Ann Thorac Surg. 2000(suppl):S197–S204.
11. Jacobs ML Mavroudis C Jacobs JP Tchervenkov CI Pelletier GJ., Report of the 2005 STS Congenital Heart Surgery Practice and Manpower Survey: a report from the STS Workforce on Congenital Heart Surgery. Ann Thorac Surg. 2006; 82: 1152–1158; 1159e1–5.
12. Jacobs JP Franklin RCG Jacobs ML, et al. Classification of the functionally univentricular heart: unity from mapped codes. Cardiol Young. 2006; 16((Supplement 1)):9–21.
13. O’Brien SM Clarke DR Jacobs JP, et al. An empirically based tool for analyzing mortality associated with congenital heart surgery. J Thorac Cardiovasc Surg. 2009; 138: 1139–1153.
14. Morales DL Braud BE Booth JH, et al. Heterotaxy patients with total anomalous pulmonary venous return: improving surgical results. Ann Thorac Surg. 2006; 82: 1621–1627.
15. Jacobs ML., Complications associated with heterotaxy syndrome in Fontan patients. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2002; 5: 25–35.
16. Jacobs JP Asante-Korang A O’Brien SM, et al. Lessons learned from 119 consecutive cardiac transplants for pediatric and congenital heart disease. Ann Thorac Surg. In press.
17. Artrip JH Sauer H Campbell DN, et al. Biventricular repair in double outlet right ventricle: surgical results based on the STS-EACTS International Nomenclature classification. Eur J Cardiothorac Surg. 2006; 29: 545–550.
18. Lacour-Gayet F., Intracardiac repair of double outlet right ventricle. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2008; 39–43.
19. Jacobs JP Haan CK Edwards FH, et al. The rationale for incorporation of HIPAA compliant unique patient, surgeon, and hospital identifier fields in the STS database. Ann Thorac Surg. 2008; 86: 695–698.
20. Jacobs JP Jacobs ML Mavroudis C, et al. Nomenclature and databases for the surgical treatment of congenital cardiac disease—an updated primer and an analysis of opportunities for improvement. Cardiol Young. 2008; 18(Supplement 2):38–62.
21. Dokholyan RS Muhlbaier LH Falletta J, et al. Regulatory and ethical considerations for linking clinical and administrative databases. Am Heart J. 2009; 157: 971–982.
22. Jacobs JP Edwards FH Shahian DM, et al. Successful linking of the Society of Thoracic Surgeons Adult Cardiac Surgery Database to Centers for Medicare and Medicaid Services Medicare data. Ann Thorac Surg. 2010; 90: 1150–1157.
23. Pasquali SK Jacobs JP Shook GJ, et al. Linking clinical registry data with administrative data using indirect identifiers: implementation and validation in the congenital heart surgery population. Am Heart J. 2010;160:1099-1104;
24. Jacobs JP Edwards FH Shahian DM, et al. Successful linking of the STS database to social security data to compare survival at hospital discharge to the survival at one year after cardiac surgery. Ann Thorac Surg. Accepted for publication. In Press.