Transitioning From Pediatric to Adult Health Care: Dropping Off the Face of the Earth

American Journal of Lifestyle Medicine

Volumn 5, Issue 1, 2011, Pages 85-91

  Harris, Michael A ^a   Freeman, Kurt A ^a   Duke, Danny C ^a  

^a OREGON HEALTH AND SCIENCE UNIVERSITY   (United States)

Author keywords

health care systems; pediatric; transition; young adult

Indexed keywords

EID: 84990348109     PISSN: 15598276     EISSN: None     Source Type: Journal    
DOI: 10.1177/1559827610378343     Document Type: Review

References (50)

1. Newacheck PW, Taylor WR Childhood chronic illness: prevalence, severity, and impact. Am J Public Health. 1994; 82: 364-371.
2. Bryden KS, Peveler RC, Stein A., Neil A., Mayou RA, Unger DB The clinical and psychological course of diabetes from adolescence to young adulthood: a longitudinal cohort study. Diabetes Care. 2001; 24: 1536-1540.
3. Bryden KS, Dunger DB, Mayou RA, Peveler RC, Neil AW Poor prognosis of young adults with type 1 diabetes. Diabetes Care. 2003; 26: 1052-1057.
4. Arnett JJ Emerging adulthood: a theory of development from the late teens through the twenties. Am Psychol. 2000; 55: 469-480.
5. Arnett JJ Young peoples conceptions of the transition to adulthood. Youth Soc. 1997; 29: 1-23.
6. Arnett JJ Learning to stand alone: the contemporary American transition to adulthood in cultural and historical context. Human Dev. 1998; 41: 295-315.
7. Greene AL, Wheatley SM, Aldava JF IV. Stages on life-s way: adolescents- implicit theories on the life course. J Adolesc Res. 1992; 7: 364-381.
8. Wolpert H., Anderson BJ, Weissberg-Benchell J. Transitions in Care: Meeting the Challenges of Type 1 Diabetes in Young Adults. Alexandria, VA: American Diabetes Association; 2009.
9. Stam H., Hartman EE, Deurloo JA, Groothoff J., Grootenhuis MA Young adult patients with a history of pediatric disease: impact on course of life and transition into adulthood. J Adolesc Health. 2006; 39: 4-13.
10. Carson AR, Hieber KV Adult pediatric patients. Am J Nurs. 2001; 101: 46-55.
11. Frank M. Factors associated with non-compliance with a medical follow-up regimen after discharge from a pediatric clinic. Can J Adolesc Med Health. 1996; 20: 13-20.
12. Reid GJ, Irvine MJ, McGrindle BW, et al. Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects. Pediatrics. 2004; 113: 197-205.
13. Yu JW, Adams SH, Burns J., Brindis CD, Irwin CE Use of mental health counseling as adolescents become young adults. J Adolesc Health. 2008; 43: 268-276.
14. Pacaud P., Yale J. Exploring a black hole: transition from paediatric to adult care services for youth with diabetes. Paediatr Child Health. 2005; 10: 31-34.
15. Van Welleghem N., MacDonald CA, Dean HJ Evaluation of a systems navigator model for transition from pediatric to adult care for young adults with type 1 diabetes. Diabetes Care. 2008; 31: 1529-1530.
16. Kipps S., Bahu T., Ong K., et al. Current methods of transfer of young people with type 1 to adult services. Diabetes Med. 2002; 19: 649-654.
17. Boyle M., Farukhi Z., Nosky ML Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views. Pediatr Pulmonol. 2001; 32: 428-436.
18. Flume PA, Taylor LA, Anderson DL, Gray S., Turner D. Transition programs in cystic fibrosis centers: perceptions of team members. Pediatr Pulmonol. 2004; 37: 4-12.
19. Anderson DL, Flume PA, Hardy KK, Gray S. Transition programs in cystic fibrosis centers: perceptions of patients. Pediatr Pulmonol. 2002; 33: 327-331.
20. North American Society for Pediatric Gastroenterology, Hepatology and Nutrition. Transition of the patient with inflammatory bowel disease from pediatric to adult care. J Pediatr Gastroenterol Nutr. 2002; 34: 245-248.
21. Reid GJ, Irvine MJ, McGrindle BW, et al. Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects. Pediatrics. 2004; 113: 197-205.
22. Kim V., O-Connell, Babcock C. HIV and AIDS: the transition from pediatric to adult care. Physician Assist. 2002; 26: 12-17.
23. Telfair J., Alexander LR, Loosier PS, Alleman-Velez PL, Simmons J. Providers- perspectives and beliefs regarding transition to adult care for adolescents with sickle cell disease. J Health Care Poor Underserved. 2004; 15: 443-461.
24. Carson A., Voorhees Hieber K. Adult pediatric patients. Am J Nurs. 2001; 101: 46-55.
25. Geenen SJ, Powers LE, Sells W. Understanding the role of health care providers during the transition of adolescents with disabilities and special health care needs. J Adolesc Health. 2003; 32: 225-233.
26. Blum RW Introduction: improving transition for adolescents with special health care needs from pediatric to adult-centered health care. Pediatrics. 2002; 110: 1301-1303.
27. Fox A. Physicians as barriers to successful transition care. Int J Adolesc Med Health. 2002; 14: 3-7.
28. Anderson BJ, Wolpert HA A developmental perspective on the challenges of diabetes education and care during the young adult period. Patient Educ Couns. 2004; 53: 347-352.
29. Rosen D. Between two world: bridging the cultures of child health and adult medicine. J Adolesc Health. 1995; 17: 10-16.
30. Wolpert H., Anderson BJ Young adults with diabetes: need for a new treatment paradigm. Diabetes Care. 2001; 24: 1513-1514.
31. Wysocki T., Hough BS, Ward KM, Green LB Diabetes mellitus in the transition to adulthood: adjustment, self-care, and health care status. J Dev Behav Pediatr. 1992;13: 194-201.
32. Baldassano R., Ferry G., Griffiths A., et al. Transition of the patient with inflammatory bowel disease from pediatric to adult care: recommendations of the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition. J Pediatr Gastroenterol Nutr. 2002; 34: 245-247.
33. Shidlow DV Transition in cystic fibrosis: much ado about nothing. Pediatr Pulmonol. 2002; 33: 325-326.
34. Sawyer SM, Blair S., Bowes G. Chronic illness in adolescents: transfer of transition to adult services? J Paediatr Child Health. 1997; 33: 88-90.
35. Anderson RM Patient empowerment and the traditional medical model: a case of irreconcilable differences? Diabetes Care. 1995; 18: 412-415.
36. McDonagh JE Growing up and moving on: transition from pediatric to adult health care. Pediatr Transplant. 2005; 9: 364-372.
37. Visentin K., Koch T., Kralik D. Adolescents with type 1 diabetes: transition between diabetes services. J Clin Nurs. 2006;15: 761-769.
38. Busse FP, Hiermann P., Galler A., et al. Evaluation of patients- opinion on metabolic control after transfer of young adults with type 1 diabetes from a pediatric clinic to adult care. Horm Res. 2007; 67: 132-138.
39. Weisberg-Benchell J., Wolpert H., Anderson, BJ Transitioning from pediatric to adult care: a new approach to the post-adolescent young person with type 1 diabetes. Diabetes Care. 2007; 30: 2441-2446.
40. White PH Access to health care: health insurance considerations for young adults with special health care needs/disabilities. Pediatrics. 2002; 110: 1328-1335.
41. Rowland D. (Henry J. Kaiser Family Foundation). The new challenge of the uninsured: Coverage in the current economy. Testimony to the subcommittee on Health, Committee on Energy and Commerce, US House of Representatives. February 28, 2002.
42. Rosen D. Between two worlds: bridging the cultures of child health and adult medicine. J Adolesc Health. 1995; 1: 10-16.
43. Reis J., Gibson R. Health care transition: destinations unknown. Pediatrics. 2002; 110: 1307-1314.
44. Pacaud D., Yale J., Stephure D., Trussell R., Davies D. Problems in transition from pediatric care to adult care for individuals with diabetes. Can J Diabetes. 2005; 29: 13-18.
45. Kollipara S., Kaufman F. Transition of diabetes care from pediatrics to adulthood. Sch Nurs News. 2008; 25: 27-29.
46. Rosen DS, Blum RW, Britto M., Sawyer SM, Siegel DM; Society for Adolescent Medicine. Transition to adult health care for adolescents and young adults with chronic conditions: position paper of the Society for Adolescent medicine. J Adolesc Health. 2003; 33: 209-311.
47. Shidlow DV, Fiel SB Life beyond pediatrics. Med Clin North Am. 1990; 74: 1113-1120.
48. Scal P. Transition for youth with chronic conditions: primary care physicians- approaches. Pediatrics. 2002; 110: 1315-1321.
49. Society of Adolescent Medicine. Summary of conference recommendations. J Adolesc Health. 2005; 17: 4-13.
50. Reis JG, Gibson RW, Walker LR Health care transition: youth family, and provider perspectives. Pediatrics. 2005; 115: 112-120.