Report From The International Society for Nomenclature of Paediatric and Congenital Heart Disease: Creation of a Visual Encyclopedia Illustrating the Terms and Definitions of the International Pediatric and Congenital Cardiac Code

World Journal for Pediatric and Congenital Heart Surgery

Volumn 1, Issue 3, 2010, Pages 300-313

  Giroud, Jorge M ^a   Jacobs, Jeffrey P ^a   Spicer, Diane ^a   Backer, Carl ^b   Martin, Gerard R ^c   Franklin, Rodney C G ^d   Béland, Marie J ^e   Krogmann, Otto N ^f   Aiello, Vera D ^g   Colan, Steven D ^h   Everett, Allen D ⁱ   William Gaynor, J William ^j   Kurosawa, Hiromi ^k   Maruszewski, Bohdan ^l   Stellin, Giovanni ^m   Tchervenkov, Christo I ^e   Walters, Henry L ⁿ   Weinberg, Paul ^j   Anderson, Robert H ^o   Elliott, Martin J ^p  

^a UNIVERSITY OF SOUTH FLORIDA   (United States)

^b CHILDREN'S MEMORIAL HOSPITAL   (United States)

^c CHILDREN'S NATIONAL MEDICAL CENTER   (United States)

^d ROYAL BROMPTON AND HAREFIELD NHS FOUNDATION TRUST   (United Kingdom)

^e MONTREAL CHILDREN S HOSPITAL   (Canada)

^f Heart Center   (Germany)

^g UNIVERSITY OF SÃO PAULO   (Brazil)

^h BOSTON CHILDREN S HOSPITAL   (United States)

ⁱ JOHNS HOPKINS UNIVERSITY   (United States)

^j CHILDREN S HOSPITAL OF PHILADELPHIA   (United States)

^k TOKYO WOMEN'S MEDICAL UNIVERSITY   (Japan)

^l CHILDREN'S MEMORIAL HEALTH INSTITUTE   (Poland)

^m UNIVERSITY OF PADUA MEDICAL SCHOOL   (Italy)

ⁿ WAYNE STATE UNIVERSITY SCHOOL OF MEDICINE   (United States)

^o Medical University of South Carolina   (United States)

^p GREAT ORMOND STREET HOSPITAL   (United Kingdom)

more..

Author keywords

cardiac encyclopedia; cardiac images; cardiac nomenclature; congenital heart disease; databases; International Pediatric and Congenital Cardiac Code; Internet

Indexed keywords

EID: 84990317192     PISSN: 21501351     EISSN: 21500136     Source Type: Journal    
DOI: 10.1177/2150135110379622     Document Type: Review

References (146)

1. Mavroudis C, (Chairman) and Congenital Database Subcommittee: Backer CL Bove E Burke RP Cameron D Drinkwater DC Edwards FH Grover FL Hammon JW Jr Jacobs JP Kron IL Mayer JE Myers JL Ring WS Siewers RD Szarnicki RJ Watson DC Jr. Data analyses of the Society of Thoracic Surgeons National Congenital Cardiac Surgery Database, 1994-1997. Minnetonka, MN: Summit Medical; 1998.
2. Mavroudis C, Gevitz M, Ring WS, McIntosh C Schwartz M. The Society of Thoracic Surgeons National Congenital Cardiac Surgery Database. Ann Thorac Surg. 1999; 68: 601–624.
3. Mavroudis C, Jacobs JP. The International Congenital Heart Surgery Nomenclature and Database Project. Ann Thorac Surg. 2000; 69(Supplement 1):S1–S372.
4. Mavroudis C, Jacobs JP. Congenital Heart Surgery Nomenclature and Database Project: introduction. Ann Thorac Surg. 2000; 69(Supplement 1):
5. Mavroudis C, Jacobs JP. Congenital Heart Surgery Nomenclature and Database Project: overview and minimum dataset. Ann Thorac Surg. 2000; 69(Supplement 1):S2–S17.
6. Jacobs JP, Quintessenza JA, Burke RP Mavroudis C. Congenital Heart Surgery Nomenclature and Database Project: atrial septal defect. Ann Thorac Surg. 2000; 69(Supplement 1):S18–S24.
7. Jacobs JP, Burke RP, Quintessenza JA Mavroudis C. Congenital Heart Surgery Nomenclature and Database Project: ventricular septal defect. Ann Thorac Surg. 2000; 69(Supplement 1):S25–S35.
8. Jacobs JP, Burke RP, Quintessenza JA Mavroudis C. Congenital Heart Surgery Nomenclature and Database Project: atrioventricular canal defect. Ann Thorac Surg. 2000; 69(Supplement 1):S36–S43.
9. Jacobs JP, Quintessenza JA, Gaynor JW, Burke RP Mavroudis C. Congenital Heart Surgery Nomenclature and Database Project: aortopulmonary window. Ann Thorac Surg. 2000; 69(Supplement 1): S44–S49.
10. Jacobs M. Congenital Heart Surgery Nomenclature and Database Project: truncus arteriosus. Ann Thorac Surg. 2000; 69(Supplement 1):S50–S55.
11. Herlong JR, Jaggers JJ, Ungerleider RM. Congenital Heart Surgery Nomenclature and Database Project: pulmonary venous anomalies. Ann Thorac Surg. 2000; 69(Supplement 1):S56–S69.
12. Gaynor JW, Weinberg P, Spray T. Congenital Heart Surgery Nomenclature and Database Project: systemic venous anomalies. Ann Thorac Surg. 2000; 69(Supplement 1):S70–S76.
13. Jacobs M. Congenital Heart Surgery Nomenclature and Database Project: tetralogy of Fallot. Ann Thorac Surg. 2000; 69(Supplement 1): S77–S82.
14. Lacour-Gayet F. Congenital Heart Surgery Nomenclature and Database Project: right ventricular outflow tract obstruction–intact ventricular septum. Ann Thorac Surg. 2000; 69(Supplement 1):S83–S96.
15. Tchervenkov CI, Roy N. Congenital Heart Surgery Nomenclature and Database Project: Pulmonary atresia–ventricular septal defect. Ann Thorac Surg. 2000; 69(Supplement 1):S97–S105.
16. Dearani JA, Danielson GK. Congenital Heart Surgery Nomenclature and Database Project: Ebstein’s anomaly and tricuspid valve disease. Ann Thorac Surg. 2000; 69(Supplement 1):S106–S117.
17. Nguyen KH. Congenital Heart Surgery Nomenclature and Database Project: aortic valve disease. Ann Thorac Surg. 2000; 69(Supplement 1):S118–S131.
18. Mitruka SN, Lamberti JJ. Congenital Heart Surgery Nomenclature and Database Project: mitral valve disease. Ann Thorac Surg. 2000; 69(Supplement 1):S132–S146.
19. Ring WS. Congenital Heart Surgery Nomenclature and Database Project: aortic aneurysm, sinus of Valsalva aneurysm, and aortic dissection. Ann Thorac Surg. 2000; 69(Supplement 1):S147–S163.
20. Myers JL, Mehta SM. Congenital Heart Surgery Nomenclature and Database Project: aortico–left ventricular tunnel. Ann Thorac Surg. 2000; 69(Supplement 1):S164–S169.
21. Tchervenkov CI, Jacobs M, Tahta SA. Congenital Heart Surgery Nomenclature and Database Project: hypoplastic left heart syndrome. Ann Thorac Surg. 2000; 69(Supplement 1):S170–S179.
22. Delius RE. Congenital Heart Surgery Nomenclature and Database Project: pediatric cardiomyopathies and end-stage congenital heart disease. Ann Thorac Surg. 2000; 69(Supplement 1):S180–S190.
23. Myers JL, Mehta SM. Congenital Heart Surgery Nomenclature and Database Project: diseases of the pericardium. Ann Thorac Surg. 2000; 69(Supplement 1):S191–S196.
24. Jacobs M, Mayer JE. Congenital Heart Surgery Nomenclature and Database Project: single ventricle. Ann Thorac Surg. 2000; 69(Supplement 1):S197–S204.
25. Jaggers JJ, Cameron DE, Herlong JR Ungerleider RM. Congenital Heart Surgery Nomenclature and Database Project: transposition of the great arteries. Ann Thorac Surg. 2000; 69(Supplement 1):S205–S235.
26. Wilkinson JL, Cochrane AD, Karl TR. Congenital Heart Surgery Nomenclature and Database Project: corrected (discordant) transposition of the great arteries (and related malformations). Ann Thorac Surg. 2000; 69(Supplement 1):S236–S248.
27. Walters HW, III Mavroudis C Tchervenkov CI Jacobs JP Lacour-Gayet F Jacobs ML. Congenital Heart Surgery Nomenclature and Database Project: double outlet right ventricle. Ann Thorac Surg. 2000; 69(Supplement 1):S249–S263.
28. Tchervenkov CI, Walters HW, III Chu VF. Congenital Heart Surgery Nomenclature and Database Project: double outlet left ventricle. Ann Thorac Surg. 2000; 69(Supplement 1):S264–S269.
29. Dodge-Khatami A Mavroudis C Backer CL. Congenital Heart Surgery Nomenclature and Database Project: anomalies of the coronary arteries. Ann Thorac Surg. 2000; 69(Supplement 1):S270–S297.
30. Backer CL, Mavroudis C. Congenital Heart Surgery Nomenclature and Database Project: patent ductus arteriosus, coarctation of the aorta, and interrupted aortic arch. Ann Thorac Surg. 2000; 69(Supplement 1):S298–S307.
31. Backer CL, Mavroudis C. Congenital Heart Surgery Nomenclature and Database Project: vascular rings, tracheal stenosis, and pectus excavatum. Ann Thorac Surg. 2000; 69(Supplement 1):S308–S318.
32. Deal BJ, Jacobs JP, Mavroudis C. Congenital Heart Surgery Nomenclature and Database Project: arrhythmias. Ann Thorac Surg. 2000; 69(Supplement 1):S319–S331.
33. Rocchini AP. Congenital Heart Surgery Nomenclature and Database Project: therapeutic cardiac catheter interventions. Ann Thorac Surg. 2000; 69(Supplement 1):S332–S342.
34. Gaynor JW, Bridges ND, Spray T. Congenital Heart Surgery Nomenclature and Database Project: end-stage lung disease. Ann Thorac Surg. 2000; 69(Supplement 1):S343–S357.
35. Mehta SM, Myers JL. Congenital Heart Surgery Nomenclature and Database Project: cardiac tumors. Ann Thorac Surg. 2000; 69(Supplement 1):S358–S368.
36. Joffs C, Sade RM. Congenital Heart Surgery Nomenclature and Database Project: palliation, correction, or repair. Ann Thorac Surg. 2000; 69(Supplement 1):S369–S372.
37. Lacour-Gayet F Maruszewski B Mavroudis C Jacobs JP Elliott MJ. Presentation of the International Nomenclature for Congenital Heart Surgery: the long way from nomenclature to collection of validated data at the EACTS. Eur J Cardiothorac Surg. 2000; 18(2):128–135.
38. Jenkins KJ, Gauvreau K, Newburger JW, Spray TL, Moller JH Iezzoni LI. Consensus-based method for risk adjustment for surgery for congenital heart disease. J Thorac Cardiovasc Surg. 2002; 123: 110–118.
39. Mavroudis C, Jacobs JP. Congenital heart disease outcome analysis: methodology and rationale. J Thorac Cardiovasc Surg. 2002; 123(1):6–7.
40. Mavroudis C, Gevitz M, Elliott MJ, Jacobs JP Gold JP. Virtues of a worldwide congenital heart surgery database. Semin Thorac Cardiovasc Surg. 2002; 5(1):126–131.
41. Williams WG, McCrindle BW. Practical experience with databases for congenital heart disease: a registry versus an academic database. Semin Thorac Cardiovasc Surg. 2002; 5(1):132–142.
42. Maruszewski B, Tobota Z. The European Congenital Heart Defects Surgery Database experience: Pediatric European Cardiothoracic Surgical Registry of the European Association for Cardio-Thoracic Surgery. Semin Thorac Cardiovasc Surg. 2002; 5(1):143–147.
43. Lacour-Gayet F. Risk stratification theme for congenital heart surgery. Semin Thorac Cardiovasc Surg. 2002; 5(1):148–152.
44. Jacobs JP. Software development, nomenclature schemes, and mapping strategies for an international pediatric cardiac surgery database system. Semin Thorac Cardiovasc Surg. 2002; 5(1): 153–162.
45. Maruszewski B, Lacour-Gayet F Elliott MJ, et al. Congenital Heart Surgery Nomenclature and Database Project: update and proposed data harvest. Eur J Cardiothorac Surg. 2002; 21(1):47–49.
46. Gaynor JW, Jacobs JP, Jacobs ML, et al. Congenital Heart Surgery Nomenclature and Database Project: update and proposed data harvest. Ann Thorac Surg. 2002; 73(3):1016–1018.
47. Jenkins KJ, Gauvreau K. Center-specific differences in mortality: preliminary analyses using the Risk Adjustment in Congenital Heart Surgery (RACHS-1) method. J Thorac Cardiovasc Surg. 2002; 124: 97–104.
48. Franklin RCG, Jacobs JP, Tchervenkov CI Béland M. Report from the Executive of the International Working Group for Mapping and Coding of Nomenclatures for Paediatric and Congenital Heart Disease: bidirectional crossmap of the Short Lists of the European Paediatric Cardiac Code and the International Congenital Heart Surgery Nomenclature and Database Project. Cardiol Young. 2002; 12(Supplement II):18–22.
49. Franklin RCG, Jacobs JP, Tchervenkov CI Béland M. European Paediatric Cardiac Code Short List crossmapped to STS/EACTS Short List with ICD-9 & ICD-10 crossmapping. Cardiol Young. 2002; 12(Supplement II):23–49.
50. Franklin RCG, Jacobs JP, Tchervenkov CI Béland M. STS/EACTS Short List mapping to European Paediatric Cardiac Code Short List with ICD-9 & ICD-10 crossmapping. Cardiol Young. 2002; 12(Supplement II):50–62.
51. Béland M Jacobs JP Tchervenkov CI Franklin RCG. The International Nomenclature Project for Paediatric and Congenital Heart Disease: report from the Executive of the International Working Group for Mapping and Coding of Nomenclatures for Paediatric and Congenital Heart Disease. Cardiol Young. 2002; 12: 425–430.
52. Franklin RCG, Jacobs JP, Tchervenkov CI Béland M. The International Nomenclature Project for Pediatric and Congenital Heart Disease: bidirectional crossmap of the Short Lists of the European Paediatric Cardiac Code and the International Congenital Heart Surgery Nomenclature and Database Project. Cardiol Young. 2002; 12: 431–435.
53. Kurosawa H, Gaynor JW, Jacobs JP, et al. Congenital Heart Surgery Nomenclature and Database Project: update and proposed data harvest. Jpn J Thorac Cardiovasc Surg. 2002; 50(11):498–501.
54. Allen SW, Gauvreau K, Bloom BT Jenkins KJ. Evidence-based referral results in significantly reduced mortality after congenital heart surgery. Pediatrics. 2003; 112(pt 1):24–28.
55. Jenkins KJ. Risk adjustment for congenital heart surgery: the RACHS-1 method. Semin Thorac Cardiovasc Surg. 2004; 7: 180–184.
56. Lacour-Gayet FG, Clarke D Jacobs JP, et al. The Aristotle Score for Congenital Heart Surgery. Semin Thorac Cardiovasc Surg. 2004; 7: 185–191.
57. Béland MJ, Franklin RCG Jacobs JP, et al. Update from the International Working Group for Mapping and Coding of Nomenclatures for Paediatric and Congenital Heart Disease. Cardiol Young. 2004; 14(2):225–229.
58. Lacour-Gayet FG, Clarke D Jacobs JP, et al. The Aristotle Score: a complexity-adjusted method to evaluate surgical results. Eur J Cardiothorac Surg. 2004; 25(6):911–924.
59. Jacobs JP, Mavroudis C, Jacobs ML, et al. Lessons learned from the data analysis of the second harvest (1998-2001) of the Society of Thoracic Surgeons (STS) Congenital Heart Surgery Database. Eur J Cardiothorac Surg. 2004; 26(1):18–37.
60. Boethig D, Jenkins KJ, Hecker H, Thies WR Breymann T. The RACHS-1 risk categories reflect mortality and length of hospital stay in a large German pediatric cardiac surgery population. Eur J Cardiothorac Surg. 2004; 26: 12–17.
61. Welke KF, Jacobs JP, Jenkins KJ. Evaluation of quality of care for congenital heart disease. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2005; 8: 157–167.
62. Jacobs JP, Elliott MJ, Anderson RH, et al. Creating a database with cardioscopy and intra-operative imaging. Cardiol Young. 2005; 15(Supplement 1):184–189.
63. Jacobs JP, Maruszewski B, Tchervenkov CI, et al. The current status and future directions of efforts to create a global database for the outcomes of therapy for congenital heart disease. Cardiol Young. 2005; 15(Supplement 1):190–198.
64. Jacobs JP, Lacour-Gayet FG Jacobs ML, et al. Initial application in the STS congenital database of complexity adjustment to evaluate surgical case mix and results. Ann Thorac Surg. 2005; 79(5):1635–1649. discussion 1635-1649.
65. Lacour-Gayet F Clarke DR Aristotle Committee. The Aristotle method: a new concept to evaluate quality of care based on complexity. Curr Opin Pediatr. 2005; 17(3):412–417.
66. Lacour-Gayet F Jacobs JP Clarke DR, et al. Performance of surgery for congenital heart disease: shall we wait a generation or look for different statistics? J Thorac Cardiovasc Surg. 2005; 130(1):234–235.
67. Maruszewski B, Lacour-Gayet F Monro JL Keogh BE Tobota Z Kansy A. An attempt at data verification in the EACTS Congenital Database. Eur J Cardiothorac Surg. 2005; 28(3):400–404. discussion 405-406.
68. Jacobs ML. Editorial comment. Eur J Cardiothorac Surg. 2005; 28(3):405–406.
69. Jacobs JP, Maruszewski B, European Association for Cardio-Thoracic Surgery (EACTS), Society of Thoracic Surgeons (STS) Joint Congenital Heart Surgery Nomenclature and Database Committee. Computerized outcomes analysis for congenital heart disease. Curr Opin Pediatr. 2005; 17(5):586–591.
70. Jacobs JP, Jacobs ML, Maruszewski B, et al. Current status of the European Association for Cardio-Thoracic Surgery and the Society of Thoracic Surgeons Congenital Heart Surgery Database. Ann Thorac Surg. 2005; 80(6):2278–2283. discussion 2283-2284.
71. Larsen SH, Pedersen J, Jacobsen J, Johnson SP, Hansen OK Hjortdal V. The RACHS-1 risk categories reflect mortality and length of stay in a Danish population of children operated for congenital heart disease. Eur J Cardiothorac Surg. 2005; 28: 877–881.
72. Miyamoto T, Sinzobahamvya N, Kumpikaite D, et al. Repair of truncus arteriosus and aortic arch interruption: outcome analysis. Ann Thorac Surg. 2005; 79: 2077–2082.
73. Jacobs JP, Franklin RCG, Jacobs ML, et al. Classification of the functionally univentricular heart: unity from mapped codes. Cardiol Young. 2006; 16(Supplement 1):9–21.
74. Jacobs JP, Mavroudis C, Jacobs ML, et al. What is operative mortality? Defining death in a surgical registry database: a report from the STS Congenital Database Task Force and the Joint EACTS-STS Congenital Database Committee. Ann Thorac Surg. 2006; 81(5):1937–1941.
75. Tchervenkov CI, Jacobs JP, Weinberg PM, et al. The nomenclature, definition and classification of hypoplastic left heart syndrome. Cardiol Young. 2006; 16(4):339–368.
76. Jacobs JP, Franklin RCG, Wilkinson JL, et al. The nomenclature, definition and classification of discordant atrioventricular connections. Cardiol Young. 2006; 16(Supplement 3):72–84.
77. Sinzobahamvya N, Photiadis J, Kumpikaite D, et al. Comprehensive Aristotle score: implications for the Norwood procedure. Ann Thorac Surg. 2006; 81: 1794–1800.
78. Atrip JH, Campbell DN, Ivy DD, et al. Birth weight and complexity are significant factors for the management of hypoplastic left heart syndrome. Ann Thorac Surg. 2006; 82: 1252–1257. discussion 1258-1259.
79. Al-Radi OO, Harrell FE Jr Caldarone CA, et al. Case complexity scores in congenital heart surgery: a comparative study of the Aristotle Basic Complexity score and the Risk Adjustment in Congenital Heart Surgery (RACHS-1) system. J Thorac Cardiovasc Surg. 2007; 133: 865–875.
80. Jacobs JP, Mavroudis C, Jacobs ML, et al. Nomenclature and databases—the past, the present, and the future: a primer for the congenital heart surgeon. Pediatr Cardiol. 2007; 28(2): 105–115.
81. Lacour-Gayet F Jacobs ML Jacobs JP Mavroudis C. The need for an objective evaluation of morbidity in congenital heart surgery. Ann Thorac Surg. 2007; 84(1):1–2.
82. Lacour-Gayet FG, Jacobs JP Clarke DR, et al. Evaluation of quality of care in congenital heart surgery: contribution of the Aristotle complexity score. Adv Pediatr. 2007; 54: 67–83.
83. Jacobs JP, Anderson RH, Weinberg P, et al. The nomenclature, definition and classification of cardiac structures in the setting of heterotaxy. Cardiol Young. 2007; 17(Supplement 2):1–28.
84. Jacobs JP, Wernovsky G, Elliott MJ. Analysis of outcomes for congenital cardiac disease: can we do better? Cardiol Young. 2007; 17(Supplement 2):145–158.
85. Jacobs JP, Jacobs ML, Mavroudis C, et al. What is operative morbidity? Defining complications in a surgical registry database: a report from the STS Congenital Database Task Force and the Joint EACTS-STS Congenital Database Committee. Ann Thorac Surg. 2007; 84: 1416–1421.
86. O’Brien SM, Jacobs JP Clarke DR, et al. Accuracy of the Aristotle basic complexity score for classifying the mortality and morbidity potential of congenital heart surgery procedures. Ann Thorac Surg. 2007; 84(6):2027–2037.
87. Derby CD, Kolcz J, Kerins PJ, Duncan DR, Quezada E Pizarro C. Aristotle score predicts outcome in patients requiring extracorporeal circulatory support following repair of congenital heart disease. ASAIO J. 2007; 53: 82–86.
88. Curzon CL, Milford-Beland S Li JS, et al. Cardiac surgery in infants with low birth weight is associated with increased mortality: analysis of the Society of Thoracic Surgeons Congenital Heart Database. J Thorac Cardiovasc Surg. 2008; 135(3): 546–551.
89. Jacobs JP, Haan CK, Edwards FH, et al. Editorial for the Annals of Thoracic Surgery: the rationale for incorporation of HIPAA compliant unique patient, surgeon, and hospital identifier fields in the STS database. Ann Thorac Surg. 2008; 86(3): 695–698.
90. Databases and the assessment of complications associated with the treatment of patients with congenital cardiac disease. Cardiol Young. 2008; 18(Supplement 2):1–530.
91. Jacobs JP. Introduction: databases and the assessment of complications associated with the treatment of patients with congenital cardiac disease. Cardiol Young. 2008; 18(Supplement 2):1–37.
92. Jacobs JP, Jacobs ML, Mavroudis C, et al. Nomenclature and databases for the surgical treatment of congenital cardiac disease-an updated primer and an analysis of opportunities for improvement. Cardiol Young. 2008; 18(Supplement 2):38–62.
93. Tchervenkov CI, Jacobs JP, Bernier P-L, et al. The improvement of care for paediatric and congenital cardiac disease across the world: a challenge for the World Society for Pediatric and Congenital Heart Surgery. Cardiol Young. 2008; 18(Supplement 2):63–69.
94. Franklin RCG, Jacobs JP, Krogmann ON, et al. Nomenclature for congenital and paediatric cardiac disease: Historical perspectives and the International Pediatric and Congenital Cardiac Code. Cardiol Young. 2008; 18(Supplement 2):70–80.
95. Jacobs JP, Benavidez OJ, Bacha EA, Walters HL III Jacobs ML. The nomenclature of safety and quality of care for patients with congenital cardiac disease: a report of the Society of Thoracic Surgeons Congenital Database Taskforce Subcommittee on Patient Safety. Cardiol Young. 2008; 18(Supplement 2):81–91.
96. Strickland MJ, Riehle-Colarusso TJ Jacobs JP, et al. The importance of nomenclature for congenital cardiac disease: implications for research and evaluation. Cardiol Young. 2008; 18(Supplement 2): 92–100.
97. Jacobs ML, Jacobs JP, Franklin RCG, et al. Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease: the perspective of cardiac surgery. Cardiol Young. 2008; 18(Supplement 2):101–115.
98. Jenkins KJ, Beekman RH, III Bergersen LJ, et al. Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease: the perspective of cardiology. Cardiol Young. 2008; 18(Supplement 2):116–123.
99. Vener DF, Jacobs JP, Schindler E, Maruszewski B Andropoulos D. Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease: the perspective of anaesthesia. Cardiol Young. 2008; 18(Supplement 2):124–129.
100. LaRovere JM, Jeffries HE, Sachdeva RC, et al. Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease: the perspective of critical care. Cardiol Young. 2008; 18(Supplement 2):130–136.
101. Welke KF, Karamlou T, Diggs BS. Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease: a comparison of administrative and clinical data. Cardiol Young. 2008; 18(Supplement 2):137–144.
102. O’Brien SM, Gauvreau K. Statistical issues in the analysis and interpretation of outcomes for congenital cardiac surgery. Cardiol Young. 2008; 18(Supplement 2):145–151.
103. Hickey EJ, McCrindle BW, Caldarone CA, Williams WG Blackstone EH. Making sense of congenital cardiac disease with a research database: the Congenital Heart Surgeons’ Society Data Center. Cardiol Young. 2008; 18(Supplement 2):152–162.
104. Jacobs ML, Jacobs JP, Jenkins KJ, Gauvreau K, Clarke DR Lacour-Gayet FL. Stratification of complexity: the risk adjustment for congenital heart surgery—1 method and the Aristotle complexity score—past, present, and future. Cardiol Young. 2008; 18(Supplement 2):163–168.
105. Clarke DR, Lacour-Gayet F Jacobs JP, et al. The assessment of complexity in congenital cardiac surgery based on objective data. Cardiol Young. 2008; 18(Supplement 2):169–176.
106. Clarke DR, Breen LS, Jacobs ML, et al. Verification of data in congenital cardiac surgery. Cardiol Young. 2008; 18(Supplement 2): 177–187.
107. Morales DLS, McClellan AJ, Jacobs JP. Empowering a database with national long-term data about mortality: the use of national death registries. Cardiol Young. 2008; 18(Supplement 2):188–195.
108. Bacha EA, Cooper D, Thiagarajan R, et al. Cardiac complications associated with the treatment of patients with congenital cardiac disease: consensus definitions from the Multi-Societal Database Committee for Pediatric and Congenital Heart Disease. Cardiol Young. 2008; 18(Supplement 2):196–201.
109. Deal BJ, Mavroudis C, Jacobs JP, Gevitz M Backer CL. Arrhythmic complications associated with the treatment of patients with congenital cardiac disease: consensus definitions from the Multi-Societal Database Committee for Pediatric and Congenital Heart Disease. Cardiol Young. 2008; 18(Supplement 2): 202–205.
110. Shann KG, Giacomuzzi CR, Harness L, et al on behalf of the International Consortium for Evidence-Based Perfusion. Complications relating to perfusion and extracorporeal circulation associated with the treatment of patients with congenital cardiac disease: consensus definitions from the Multi-Societal Database Committee for Pediatric and Congenital Heart Disease. Cardiol Young. 2008; 18(Supplement 2):206–214.
111. Cooper DS, Jacobs JP, Chai PJ, et al. Pulmonary complications associated with the treatment of patients with congenital cardiac disease: consensus definitions from the Multi-Societal Database Committee for Pediatric and Congenital Heart Disease. Cardiol Young. 2008; 18(Supplement 2):215–221.
112. Welke KW, Dearani JA, Ghanayem NS Béland MJ Shen I Ebels T. Renal complications associated with the treatment of patients with congenital cardiac disease: consensus definitions from the Multi-Societal Database Committee for Pediatric and Congenital Heart Disease. Cardiol Young. 2008; 18(Supplement 2): 222–225.
113. Checchia PA, Karamlou T, Maruszewski B, Ohye RG, Bronicki R Dodge-Khatami A. Haematological and infectious complications associated with the treatment of patients with congenital cardiac disease: consensus definitions from the Multi-Societal Database Committee for Pediatric and Congenital Heart Disease. Cardiol Young. 2008; 18(Supplement 2): 226–233.
114. Bird GL, Jeffries HE, Licht DJ, et al. Neurological complications associated with the treatment of patients with congenital cardiac disease: consensus definitions from the Multi-Societal Database Committee for Pediatric and Congenital Heart Disease. Cardiol Young. 2008; 18(Supplement 2):234–239.
115. Ghanayem NS, Dearani JA, Welke KF Béland MJ Shen I Ebels T. Gastrointestinal complications associated with the treatment of patients with congenital cardiac disease: consensus definitions from the Multi-Societal Database Committee for Pediatric and Congenital Heart Disease. Cardiol Young. 2008; 18(Supplement 2):240–244.
116. Walters HL, III Jeffries HE Cohen GA Klitzner T. Congenital cardiac surgical complications of the integument, vascular system, vascular-line(s), and wounds: consensus definitions from the Multi-Societal Database Committee for Pediatric and Congenital Heart Disease. Cardiol Young. 2008; 18(Supplement 2):245–255.
117. Dickerson H, Cooper DS, Checchia PA Nelson DP. Endocrinal complications associated with the treatment of patients with congenital cardiac disease: consensus definitions from the Multi-Societal Database Committee for Pediatric and Congenital Heart Disease. Cardiol Young. 2008; 18(Supplement 2):256–264.
118. Jeffries H, Bird G, Law Y, Wernovsky G, Weinberg P, Pizarro C Stellin G. Complications related to the transplantation of thoracic organs: consensus definitions from the Multi-Societal Database Committee for Pediatric and Congenital Heart Disease. Cardiol Young. 2008; 18(Supplement 2):265–270.
119. Vener DV, Tirotta CF, Andropoulos D Barach P. Anaesthetic complications associated with the treatment of patients with congenital cardiac disease: consensus definitions from the Multi-Societal Database Committee for Pediatric and Congenital Heart Disease. Cardiol Young. 2008; 18(Supplement 2):265–270.
120. The Multi-Societal Database Committee for Pediatric and Congenital Heart Disease. Part IV: the dictionary of definitions of complications associated with the treatment of patients with congenital cardiac disease. Cardiol Young. 2008; 18(Supplement 2): 282–530.
121. Tsang VT, Brown KL, Synnergren MJ, et al. Monitoring risk-adjusted outcomes in congenital heart surgery: does the appropriateness of a risk model change with time? Ann Thorac Surg. 2009; 87(2):584–587.
122. Jacobs JP, Shahian DM, Jacobs ML Mavroudis C. Invited commentary of “Monitoring risk-adjusted outcomes in congenital heart surgery: does the appropriateness of a risk model change with time?” by Tsang VT, Brown KL, Synnergren MJ, Kang N, de Leval MR, Gallivan S, Utley M. Ann Thorac Surg. 2009; 87(2):587–588.
123. Jacobs JP, Cerfolio RJ, Sade RM. The ethics of transparency: publication of cardiothoracic surgical outcomes in the lay press. Ann Thorac Surg. 2009; 87(3):679–686.
124. Welke KF, O’Brien SM Peterson ED Ungerleider RM Jacobs ML Jacobs JP. The complex relationship between pediatric cardiac surgical case volumes and mortality rates in a national clinical database. J Thorac Cardiovasc Surg. 2009; 137(5):1133–1140.
125. Dokholyan RS, Muhlbaier LH, Falletta J, et al. Regulatory and ethical considerations for linking clinical and administrative databases. Am Heart J. 2009; 157(6):971–982.
126. Hammill BG, Hernandez AF, Peterson ED, Fonarow GC, Schulman KA Curtis LH. Linking inpatient clinical registry data to Medicare claims data using indirect identifiers. Am Heart J. 2009; 157(6):995–1000.
127. DeCampli WM, Burke RP. Interinstitutional comparison of risk-adjusted mortality and length of stay in congenital heart surgery. Ann Thorac Surg. 2009; 88(1):151–156.
128. Jacobs JP, Quintessenza JA, Burke RP, et al. Regional congenital cardiac surgery of outcomes in Florida using the Society of Thoracic Surgeons Congenital Heart Surgery Database. Cardiol Young. 2009; 19: 360–369.
129. Jacobs JP, Jacobs ML, Lacour-Gayet FG, et al. Stratification of complexity improves the utility and accuracy of outcomes analysis in a Multi-Institutional Congenital Heart Surgery Database: application of the Risk Adjustment in Congenital Heart Surgery (RACHS-1) and Aristotle systems in the Society of Thoracic Surgeons (STS) Congenital Heart Surgery Database. Pediatr Cardiol. 2009; 30(8):1117–1130.
130. O’Brien SM, Clarke DR Jacobs JP, et al. An empirically based tool for analyzing mortality associated with congenital heart surgery. J Thorac Cardiovasc Surg. 2009; 138(5):1139–1153.
131. Johnson JN, Jaggers J, Li S, et al. Center variation and outcomes associated with delayed sternal closure following stage 1 palliation for hypoplastic left heart syndrome. J Thorac Cardiovasc Surg. 2010; 139(5):1205–1210.
132. Barker GM, O’Brien SM Welke KF, et al. Major infection after pediatric cardiac surgery: a risk estimation model. Ann Thorac Surg. 2010; 89(3):843–850.
133. Fudge JC Jr, Li S Jaggers J, et al. Outcomes in patients with Down syndrome undergoing congenital heart surgery: analysis of a national clinical database. Pediatrics. 2010; Jul 12. [Epub ahead of print].
134. Jacobs JP, Jacobs ML, Mavroudis C, et al. Atrioventricular septal defects: lessons learned from the Congenital Heart Surgery Database of the Society of Thoracic Surgeons. World J Pediatr Congenital Heart Surg. 2010; 1(1):68–77.
135. Jacobs JP, Jacobs ML, Mavroudis C Lacour-Gayet FG. Executive Summary: The Society of Thoracic Surgeons Congenital Heart Surgery Database—Second Harvest (1998-2001) Beta Site Test. Durham, NC: The Society of Thoracic Surgeons (STS) and Duke Clinical Research Institute (DCRI), Duke University Medical Center; 2002.
136. Jacobs JP, Jacobs ML, Mavroudis C Lacour-Gayet FG. Executive Summary: The Society of Thoracic Surgeons Congenital Heart Surgery Database—Third Harvest (1998-2002). Durham, NC: The Society of Thoracic Surgeons (STS) and Duke Clinical Research Institute (DCRI), Duke University Medical Center; 2003.
137. Jacobs JP, Jacobs ML, Mavroudis C Lacour-Gayet FG. Executive Summary: The Society of Thoracic Surgeons Congenital Heart Surgery Database—Fourth Harvest (2002-2003). Durham, NC: The Society of Thoracic Surgeons (STS) and Duke Clinical Research Institute (DCRI), Duke University Medical Center; 2004.
138. Jacobs JP, Jacobs ML, Mavroudis C Lacour-Gayet FG. Executive Summary: The Society of Thoracic Surgeons Congenital Heart Surgery Database—Fifth Harvest (2002-2004). Durham, NC: The Society of Thoracic Surgeons (STS) and Duke Clinical Research Institute (DCRI), Duke University Medical Center; 2005.
139. Jacobs JP, Jacobs ML, Mavroudis C Lacour-Gayet FG Tchervenkov CI. Executive Summary: The Society of Thoracic Surgeons Congenital Heart Surgery Database—Sixth Harvest (2002-2005). Durham, NC: The Society of Thoracic Surgeons (STS) and Duke Clinical Research Institute (DCRI), Duke University Medical Center; 2006.
140. Jacobs JP, Jacobs ML, Mavroudis C Lacour-Gayet FG Tchervenkov CI. Executive Summary: The Society of Thoracic Surgeons Congenital Heart Surgery Database—Seventh Harvest (2003-2006). Durham, NC: The Society of Thoracic Surgeons (STS) and Duke Clinical Research Institute (DCRI), Duke University Medical Center; 2007.
141. Jacobs JP, Jacobs ML, Mavroudis C Lacour-Gayet FG Tchervenkov CI. Executive Summary: The Society of Thoracic Surgeons Congenital Heart Surgery Database—Eighth Harvest (January 1, 2004–December 31, 2007). Durham, NC: The Society of Thoracic Surgeons (STS) and Duke Clinical Research Institute (DCRI), Duke University Medical Center; 2008.
142. Jacobs JP, Jacobs ML, Mavroudis C Lacour-Gayet FG Tchervenkov CI. Executive Summary: The Society of Thoracic Surgeons Congenital Heart Surgery Database—Ninth Harvest (July 1, 2004–June 30, 2008). Durham, NC: The Society of Thoracic Surgeons (STS) and Duke Clinical Research Institute (DCRI), Duke University Medical Center; 2008.
143. Jacobs JP, Jacobs ML, Mavroudis C Lacour-Gayet FG Tchervenkov CI. Executive Summary: The Society of Thoracic Surgeons Congenital Heart Surgery Database—Tenth Harvest (January 1, 2005–December 31, 2008). Durham, NC: The Society of Thoracic Surgeons (STS) and Duke Clinical Research Institute (DCRI), Duke University Medical Center; 2009.
144. Jacobs JP, Jacobs ML, Mavroudis C Lacour-Gayet FG Tchervenkov CI. Executive Summary: The Society of Thoracic Surgeons Congenital Heart Surgery Database—Eleventh Harvest (July 1, 2009–June 30, 2009). Durham, NC: The Society of Thoracic Surgeons (STS) and Duke Clinical Research Institute (DCRI), Duke University Medical Center; 2009.
145. Franklin RCG, Anderson RH, Daniels O, et al. Association for European Paediatric Cardiology. The European Paediatric Cardiac Code. Report of the Coding Committee of the Association for European Paediatric Cardiology. Cardiol Young. 2000; 10(Supplement 1):1–146.
146. Constitution of the International Society for Nomenclature of Paediatric and Congenital Heart Disease (ISNPCHD). Revised May 8, 2005. http://ipccc.net. Accessed April 29, 2010.