An attempt at data verification in the EACTS Congenital Database

European Journal of Cardio-thoracic Surgery

Volumn 28, Issue 3, 2005, Pages 400-404

  Maruszewski, Bohdan ^a   Lacour Gayet, Francois ^b   Monro, James L ^c   Keogh, Bruce E ^d   Tobota, Zdzislaw ^a   Kansy, Andrzej ^a  

^a CHILDREN'S MEMORIAL HEALTH INSTITUTE   (Poland)

^b UNIVERSITY OF COLORADO   (United States)

^c SOUTHAMPTON GENERAL HOSPITAL   (United Kingdom)

^d UNIVERSITY COLLEGE LONDON HOSPITALS   (United Kingdom)

Author keywords

Congenital heart surgery; Data validation; Data verification; Database; Outcome analysis; Quality of care

Indexed keywords

ACCURACY; BODY WEIGHT; CAUSE OF DEATH; COMPARATIVE STUDY; CONFERENCE PAPER; CONFIDENCE INTERVAL; DATA ANALYSIS; DATA BASE; DEMOGRAPHY; HEALTH CARE QUALITY; HEART SURGERY; HOSPITAL DISCHARGE; HUMAN; MEDICAL INFORMATION; MORTALITY; PRIORITY JOURNAL; STATISTICAL ANALYSIS; STATISTICAL SIGNIFICANCE;

DATA COLLECTION; DATABASES, FACTUAL; EUROPE; HEART DEFECTS, CONGENITAL; HUMANS; INFORMATION STORAGE AND RETRIEVAL; QUALITY CONTROL; REGISTRIES; SOCIETIES, MEDICAL; TREATMENT OUTCOME;

EID: 23844522520     PISSN: 10107940     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ejcts.2005.03.051     Document Type: Conference Paper

References (18)

1. W. Daenen, F. Lacour-Gayet, T. Aberg, J.V. Comas, S.H. Daebritz, R. DiDonato, J.R. Hamilton, H. Lindberg, B. Maruszewski, and J. Monro EACTS congenital heart disease committee. Optimal structure of a congenital heart surgery department in Europe Eur J Cardiothorac Surg 24 3 2003 343 351
2. W.G. Williams, and B.W. McCrindle Practical experience with databases for congenital heart disease: a registry versus an academic database Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu 5 1 2002 132
3. Mavroudis C (Chairman) and Congenital Database Subcommittee: Backer CL, Bove E, Burke RP, Cameron D, Drinkwater DC, Edwards FH, Grover FL, Hammon JW Jr, Jacobs JP, Kron IL, Mayer JE, Myers JL, Ring WS, Siewers RD, Szarnicki RJ, Watson DC Jr. Data Analyses of the Society of Thoracic Surgeons National Congenital Cardiac Surgery Database, 1994-1997. Summit Medical, Minnetonka, MN; September 1998.
4. C. Mavroudis, M. Gevitz, W.S. Rings, C.L. McIntosh, and M. Schwartz The society of thoracic surgeons national congenital heart surgery database: analysis of the first harvest Ann Thorac Surg 68 2 1994-1997 601 624
5. J.P. Jacobs, C. Mavroudis, M.L. Jacobs, F.G. Lacour-Gayet, C.I. Tchervenkov, J.W. Gaynor, D.R. Clarke, T.L. Spray, B. Maruszewski, G. Stellin, M.J. Elliott, R.S. Dokholyan, and E.D. Peterson Lessons learned from the data analysis of the second harvest (1998-2001) of the society of thoracic surgeons (STS) congenital heart surgery database Eur J Cardiothorac Surg 26 1 2004 18 37
6. Jacobs JP, Jacobs ML, Mavroudis C, Lacour-Gayet FG. Executive summary: the society of thoracic surgeons congenital heart surgery database - second harvest - (1998-2001) beta site test. The Society of Thoracic Surgeons (STS) and Duke Clinical Research Institute (DCRI), Duke University Medical Center, Durham, North Carolina, United States; Fall 2002 Harvest.
7. Jacobs JP, Jacobs ML, Mavroudis C, Lacour-Gayet FG. Executive summary: the society of thoracic surgeons congenital heart surgery database - third harvest - (1998-2002). The Society of Thoracic Surgeons (STS) and Duke Clinical Research Institute (DCRI), Duke University Medical Center, Durham, North Carolina, United States; Spring 2003 Harvest.
8. J. Stark, S. Gallivan, J. Lovegrove, J.R.L. Hamilton, J.L. Monro, J.C.S. Pollock, and K.G. Watterson Mortality rates after surgery for congenital heart defects in children and surgeon's performance Lancet 355 9208 2000 948
9. B. Maruszewski, and Z. Tobota The European congenital heart defects surgery database experience: pediatric cardiothoracic surgical registry of the European association for cardio-thoracic surgery. Seminars in thoracic and cardiovascular surgery Pediatr Cardiac Surg Annu 5 1 2002 143 147
10. J.P. Jacobs Software development, nomenclature schemes and mapping strategies and for an international pediatric cardiac surgery database system. Seminars in yhoracic and cardiovascular surgery Pediatr Cardiac Surg Annu 5 1 2002 153 162
11. F. Lacour-Gayet, B. Maruszewski, C. Mavroudis, J.P. Jacobs, and M.J. Elliot Presentation of the international nomenclature for congenital heart surgery. The long way from nomenclature to collection of validated data at the EACTS Eur J Cardiothorac Surg 18 128 2000 35
12. C. Mavroudis, and J.P. Jacobs Congenital heart disease outcome analysis: methodology and rationale J Thorac Cardiovasc Surg 123 1 2002 6 7
13. J.W. Gaynor, J.P. Jacobs, M.L. Jacobs, M.J. Elliot, F. Lacour-Gayet, C.I. Tchervenkov, B. Maruszewski, and C. Mavroudis International congenital heart surgery nomenclature and database project. Congenital heart surgery committees of the society of thoracic surgeons. European association for cardio-thoracic surgery. Congenital heart surgery nomenclature and database project: update and proposed data harvest Ann Thorac Surg 73 3 2002 101
14. B. Maruszewski, F. Lacour-Gayet, M.J. Elliott, J.W. Gaynor, J.P. Jacobs, M.L. Jacobs, C.I. Tchervenkov, H. Kurosawa, and C. Mavroudis International congenital heart surgery nomenclature and database project. Congenital heart surgery committees of the society of thoracic surgeons, European association for cardio-thoracic surgery. Congenital heart surgery nomenclature and database project: update and proposed data harvest Eur J Cardiothorac Surg 21 1 2002
15. J.L. Gibbs, J.L. Monro, D. Cunningham, and A. Rickards Survival after surgery or therapeutic catheterisation for congenital heart disease in children in the United Kingdom: analysis of the central cardiac audit database for 2000-1 Br Med J 328 2004 611
16. Mavroudis C, Jacobs JP, editors. Congenital heart surgery nomenclature and data base project. Ann Thorac Surg. 2000; 69: S1-372.
17. R. Khosla, D.D. Verma, A. Kapur, and S. Khosla Efficient source data verification Indian Journal of Pharmacology 32 2000 180 186
18. WHO guidelines for Good Clinical Practice for Trials on Pharmaceutical Products; 1994.