Development of a patient-reported outcome measure for upper limb function in Duchenne muscular dystrophy: DMD Upper Limb PROM

Developmental Medicine and Child Neurology

Volumn 59, Issue 2, 2017, Pages 224-231

  Klingels, K ^a,b   Mayhew, A G ^c   Mazzone, E S ^d   Duong, T ^e   Decostre, V ^f   Werlauff, U ^g   Vroom, E ^h   Mercuri, E ^d   Goemans, N M ⁱ   Eagle, M ^j   De Groot, I ^j   Main, M ^j   Messina, S ^j   Campion, G ^j   Servais, L ^j   Van den Hauwe, M ^j   Es, E ^j   Pane, M ^j   Buccella, F ^j   Kuijer, J ^j   Ceradini, F ^j   Henricson, E ^j   McDonald, C ^j   Florence, J ^j   more..

^a UNIVERSITY OF LEUVEN   (Belgium)

^b HASSELT UNIVERSITY   (Belgium)

^c NEWCASTLE UNIVERSITY   (United Kingdom)

^d CATHOLIC UNIVERSITY   (Italy)

^e STANFORD UNIVERSITY SCHOOL OF MEDICINE   (United States)

^f PITIÉ SALPÊTRIÈRE HOSPITAL   (France)

^g The Danish National Rehabilitation Center for Neuromuscular Diseases   (Denmark)

^h Duchenne Parent Project   (Netherlands)

ⁱ UNIVERSITY HOSPITALS LEUVEN   (Belgium)

^j NONE

more..

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CONCEPTUAL FRAMEWORK; DAILY LIFE ACTIVITY; DISEASE COURSE; DUCHENNE MUSCULAR DYSTROPHY; ENVIRONMENT; FOOD; FOOD AND DRUG ADMINISTRATION; HOUSEHOLD; HUMAN; INTERPERSONAL COMMUNICATION; LEISURE; MAJOR CLINICAL STUDY; MALE; OUTCOME ASSESSMENT; PATIENT-REPORTED OUTCOME; PILOT STUDY; PRACTICE GUIDELINE; PRIORITY JOURNAL; PSYCHOMETRY; QUESTIONNAIRE; SELF CARE; SELF REPORT; DISABILITY; FEMALE; PATHOLOGY; PATHOPHYSIOLOGY; PSYCHOLOGY; REPRODUCIBILITY; RETROSPECTIVE STUDY; STATISTICAL MODEL; UPPER LIMB;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; CHILD; DISABILITY EVALUATION; FEMALE; HUMANS; MALE; MODELS, STATISTICAL; MUSCULAR DYSTROPHY, DUCHENNE; PATIENT REPORTED OUTCOME MEASURES; REPRODUCIBILITY OF RESULTS; RETROSPECTIVE STUDIES; SELF CARE; SURVEYS AND QUESTIONNAIRES; UPPER EXTREMITY;

EID: 84989295908     PISSN: 00121622     EISSN: 14698749     Source Type: Journal    
DOI: 10.1111/dmcn.13277     Document Type: Article

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