The experience of family carers of people with dementia who are hospitalised

Dementia

Volumn 15, Issue 5, 2016, Pages 1234-1245

  Bloomer, Melissa ^a   Digby, Robin ^a   Tan, Heather ^a   Crawford, Kimberley ^a   Williams, Allison ^a  

^a MONASH UNIVERSITY   (Australia)

Author keywords

carer; dementia; emotional support; family carer; hospital

Indexed keywords

ADULT; AGED; CAREGIVER; DEMENTIA; FEMALE; HOSPITALIZATION; HUMAN; MALE; MIDDLE AGED; PROFESSIONAL-PATIENT RELATIONSHIP; PSYCHOLOGY; QUALITATIVE RESEARCH; SOCIAL SUPPORT; VERY ELDERLY;

ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; DEMENTIA; FEMALE; HOSPITALIZATION; HUMANS; MALE; MIDDLE AGED; PROFESSIONAL-PATIENT RELATIONS; QUALITATIVE RESEARCH; SOCIAL SUPPORT;

EID: 84986301976     PISSN: 14713012     EISSN: 17412684     Source Type: Journal    
DOI: 10.1177/1471301214558308     Document Type: Article

References (21)

1. Alzheimer's Society. (2007). Dementia UK. The full report. Retrieved from www.alzheimers.org.uk. London, UK: Alzheimer's Society
2. Australian Institute of Health and Welfare (2012) Dementia in Australia. Cat. no. AGE 70, Canberra, Australia: AIHW.
3. M.BauerL.FitzgeraldE.HaeslerM.Manfrin (2009) Hospital discharge planning for frail older people and their family. Are we delivering best practice? A review of the evidence. Journal of Clinical Nursing18(18): 2539–2546.
4. L.CaldwellL.-F.LowH.Brodaty (2014) Caregivers' experience of the decision-making process for placing a person with dementia into a nursing home: Comparing caregivers from Chinese ethnic minority with those from English-speaking backgrounds. International Psychogeriatrics26(3): 413–424.
5. L.A.DensonH.R.WinefieldJ.J.Beilby (2013) Discharge-planning for long-term care needs: The values and priorities of older people, their younger relatives and health professionals. Scandinavian Journal of Caring Sciences27(1): 3–12.
6. Dewing, J., & Dijk, S. (2016). What is the current state of care for older people with dementia in general hospitals? A literature review. Dementia (London). 15(1), 106-124
7. R.ElvishS.BurrowR.CawleyK.HarneyP.GrahamM.PillingJ.Keady (2014) ‘Getting to know me': The development and evaluation of a training programme for enhancing skills in the care of people with dementia in general hospital settings. Aging and Mental Health18(4): 481–488.
8. R.ElvishS.-J.LeverJ.JohnstoneR.CawleyJ.Keady (2013) Psychological interventions for carers of people with dementia: A systematic review of quantitative and qualitative evidence. Counselling and Psychotherapy Research13(2): 106–125.
9. J.GalvinB.KuntemeierN.Al-HammadiJ.GerminoM.Murphy-WhiteJ.McGillick (2010) “Dementia-friendly hospitals: Care not crisis”. An educational program designed to improve the care of the hospitalized patient with dementia. Alzheimer Disease and Associated Disorders24(4): 372–379.
10. U.GraneheimB.Lundman (2004) Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today24(2): 105–112.
11. E.GubaY.Lincoln (2011) Paradigmatic controversies, contradictions, and emerging confluences. In: (eds) The Sage handbook of qualitative research, Thousand Oaks, CA: Sage Publications, pp. 191–215.
12. E.HaeslerM.BauerR.Nay (2007) Staff-family relationships in the care of older people: A report on a systematic review. Research in Nursing and Health30(4): 389–398.
13. C.P.HeppenstallS.KeelingH.C.HangerT.J.Wilkinson (2014) Perceived factors which shape decision-making around the time of residential care admission in older adults: A qualitative study. Australasian Journal on Ageing33(1): 9–13.
14. F.JurgensP.ClissettJ.GladmanR.Harwood (2012) Why family carers of people with dementia dissatisfied with general hospital care? A qualitative study. BMC Geriatrics12(1): 57.
15. Y.KimR.Schulz (2008) Family caregivers' strains: Comparative analysis of cancer caregiving with dementia, diabetes, and frail elderly caregiving. Journal of Aging and Health20(5): 483–503.
16. P.LiamputtongD.Ezzy (2005) Qualitative research methods, 2nd edn. South Melbourne, Australia: Oxford University Press.
17. W.NeilP.Bowie (2008) Carer burden in dementia–assessing the impact of behavioural and psychological symptoms via self-report questionnaire. International Journal of Geriatric Psychiatry23(1): 60–64.
18. A.NilssonM.LindkvistB.RasmussenD.Edvardsson (2013a) Measuring levels of person-centredness in acute care of older people with cognitive impairment: Evaluation of the POPAC scale. BMC Health Services Research19(13): 327.
19. A.NilssonB.RasmussenD.Edvardsson (2013b) Falling behind: A substantive theory for care for older people with cognitive impairment in acute settings. Journal of Clinical Nursing22(11–12): 1682–1691.
20. M.PrinceM.PrinaM.GuerchetAlzheimer's Disease International (2013) World Alzheimer report 2013. Journey of Caring. An analysis of long-term care for dementia. Executive Summary, London, UK: Alzheimer's Disease International.
21. D.RoyM.Gillespie (2011) Who cares for the carers? A student's experience of providing carer support and education. British Journal of Nursing20(8): 484–488.