Psychological interventions for carers of people with dementia: A systematic review of quantitative and qualitative evidence

Counselling and Psychotherapy Research

Volumn 13, Issue 2, 2013, Pages 106-125

  Elvish, Ruth ^a   Lever, Sammi Jo ^a   Johnstone, Jodie ^a   Cawley, Rosanne ^a   Keady, John ^a  

^a UNIVERSITY OF MANCHESTER   (United Kingdom)

Author keywords

carers; counselling; dementia; psychological interventions; supervision; systematic review

Indexed keywords

EID: 84879160377     PISSN: 14733145     EISSN: 17461405     Source Type: Journal    
DOI: 10.1080/14733145.2012.739632     Document Type: Article

References (39)

1. Acton, G.J. and Kang, J. 2001. Interventions to reduce the burden of caregiving for an adult with dementia: A meta-analysis. Research in Nursing and Health, 24: 349 - 360.
2. Alzheimer's Disease International 2009. World Alzheimer Report 2009. London: Alzheimer's Disease International.
3. Alzheimer's Disease International 2011. World Alzheimer Report 2011: The benefits of early diagnosis and intervention. London: Alzheimer's Disease International.
4. Alzheimer's Society 2007. Dementia UK: A report into the prevalence and cost of dementia. London: Alzheimer's Society.
5. *Auclair, U., Epstein, C. and Mittelman, M. 2009. Couples counselling in Alzheimer's disease: Additional clinical findings from a novel intervention study. Clinical Geontologist, 32 (2): 130 - 146.
6. Beck, A.T., Rush, J., Shaw, B. and Emery, G. 1979. Cognitive theory of depression, New York: Guilford.
7. *Belle, S.H., Burgio, L., Burns, R., Coon, D., Czaja, S.J., Gallagher-Thompson, D. and Zhang, S. 2006. Enhancing the quality of life of dementia caregivers from different ethnic or racial groups: A randomized, controlled trial. Annals of Internal Medicine, 145 (10): 727 - 738.
8. Brodaty, H., Green, A. and Koschera, A. 2003. Meta-analysis of psychosocial interventions for people with dementia. Journal of the American Geriatrics Society, 51: 657 - 664.
9. *Burns, A., Mittelman, M., Cole, C., Morris, J., Winter, J., Page, S. and Brodaty, H. 2010. Transcultural influences in dementia care: Observations from a psychosocial intervention study. Dementia and Geriatric Cognitive Disorders, 30: 714 - 423.
10. CASP 2006. 10 questions to help you make sense of qualitative research. Retrieved February 14, 2012, from http://www.sph.nhs.uk/sph-files/casp-appraisal-tools/Qualitative%20Appraisal%20Tool.pdf
11. *Chu, H., Yang, C.Y., Liao, Y.H., Chang, L.I., Chen, C.H., Lin, C.C. and Chou, K.R. 2011. The effects of a support group on dementia caregivers' burden and depression. Journal of Aging and Health, 23 (2): 228 - 241.
12. CONSORT 2010. The consort statement. Retrieved February 14, 2012, from http://www.consort-statement.org/consort-statement/overview0/
13. Department of Health 2009. Living well with dementia: A National Dementia Strategy. London: Department of Health.
14. *Drentea, P., Clay, O.J., Roth, D.L. and Mittelman, S.M. 2006. Predictors of improvement in social support: Five-year effects of a structured intervention for caregivers of spouses with Alzheimer's disease. Social Science & Medicine, 63: 957 - 967.
15. *Farran, C.J., Gilley, D.W., McCann, J.J., Bienias, J.L., Lindeman, D.A. and Evans, D.A. 2007. Efficacy of behavioral interventions for dementia caregivers. Western Journal of Nursing Research, 29 (8): 944 - 960.
16. *Finkel, S., Czaja, S.J., Schulz, R., Martinovich, Z., Harris, C. and Pezzuto, D. 2007. E-Care: A telecommunications technology intervention for family caregivers of dementia patients. American Journal of Geriatric Psychiatry, 15 (5): 443 - 448.
17. Gallagher-Thompson, D. and Coon, D.W. 2007. Evidence-based psychological treatments for distress in family caregivers of older adults. Psychology and Aging, 22 (1): 37 - 51.
18. *Gaugler, J.E., Roth, D.L., Haley, W.E. and Mittelman, M.S. 2008. Can counseling and support reduce burden and depressive symptoms in caregivers of people with Alzheimer's disease during the transition to institutionalization? Results from the New York University Caregiver Intervention Study. Journal of the American Geriatrics Society, 56: 421 - 428.
19. Harris, T.A. 1969. I'm OK, you're OK, New York: Harper Collins.
20. *Hepburn, K.W., Lewis, M., Narayan, S., Center, B., Tornaore, J., Bremer, K.L. and Kirk, L.N. 2005. Partners in caregiving: A psychoeducation program affecting dementia family caregivers' distress and caregiving outlook. Clinical Gerontologist, 29 (1): 53 - 69.
21. Lazarus, R.S. and Folkman, S. 1984. " Coping and adaptation ". In The handbook of behavioral medicine, Edited by: Gentry, W.D. 282 - 235. New York: Guilford.
22. *Lee, C.C., Czaja, S.J. and Schulz, R. 2010. The moderating influence of demographic characteristics, social support, and religious coping on the effectiveness of a multicomponent pyshosocial caregiver intervention in three racial ethnic groups. Journal of Gerontology: Psychological Sciences, 65 (2): 185 - 194.
23. *Mackenzie, J. 2006. Stigma and dementia: East European and South Asian family carers negotiating stigma in the UK. Dementia: the international journal of social research and practice, 5 (2): 233 - 247.
24. *Mittelman, M.S., Brodaty, H., Wallen, A.S. and Burns, A. 2008. A three-country randomized controlled trial of a psychosocial intervention for caregivers combined with pharmacological treatment for patients with Alzheimer disease: Effects on caregiver depression. American Journal of Geriatric Psychiatry, 16 (11): 893 - 904.
25. Mittelman, M.S., Epstein, C. and Pierzchala, A. 2003. Counseling the Alzheimer's caregiver: A resource for health care professionals, Chicago, IL: AMA Press.
26. National Institute for Health and Clinical Excellence/Social Care Institute for Excellence 2006. Dementia: Supporting people with dementia and their carers in health and social care. NICE clinical practice guideline 42. London: National Institute for Health and Clinical Excellence.
27. *Nichols, L.O., Martindale-Adams, J., Burns, R., Graney, M.J. and Zuber, J. 2011. Translation of a dementia caregiver support program in a health care system- REACH VA. Archives of Internal Medicine, 171 (4): 353 - 359.
28. *Perren, S., Schmid, R. and Wettstein, A. 2006. Caregivers' adaptation to change: The impact of increasing impairment of persons suffering from dementia on their caregivers' subjective well-being. Aging & Mental Health, 10 (5): 539 - 548.
29. Pinquart, M. and Sörensen, S. 2006. Helping caregivers of persons with dementia: Which interventions work and how large are their effects?. International Psychogeriatrics, 18 (4): 577 - 595.
30. *Rabinowitz, Y.G., Mausbach, B.T., Coon, D.W., Depp, C., Thompson, L.W. and Gallagher-Thompson, D. 2006. The moderating effect of self-efficacy on intervention response in women family caregivers of older adults with dementia. American Journal of Geriatric Psychiatry, 14: 642 - 649.
31. *Roth, D.L., Mittelman, M.S., Clay, O.J., Madan, A. and Haley, W.E. 2005. Changes in social support as mediators of the impact of a psychosocial intervention for spouse caregivers of persons with Alzheimer's disease. Psychology and Aging, 20 (4): 634 - 644.
32. *Sørensen, L.V., Waldorff, F.B. and Waldermar, G. 2008. Early counselling and support for patients with mild Alzheimer's disease and their caregivers: A qualitative study on outcome. Aging & Mental Health, 12 (4): 444 - 450.
33. *Stern, R.A., D'Ambrosio, L.A., Mohyde, M., Carruth, A., Tracton-Bishop, B., Hunter, J.C., Daneshvar, D.H. and Coughlin, J.F. 2008. At the crossroads: Development and evaluation of a dementia caregiver group intervention to assist in driving cessation. Gerontology & Geriatrics Education, 29 (4): 363 - 382.
34. STROBE 2007. STROBE Statement - Checklist of items that should be included in reports of case-control studies. Retrieved February 14, 2012, from http://www.strobe-statement.org/fileadmin/Strobe/uploads/checklists/STROBE_checklist_v4_case-control.pdf
35. *Ulstein, I.D., Sandvik, L., Wyller, T.B. and Engedal, K. 2007. A one-year randomized controlled psychosocial intervention study among family carers of dementia patients - effects on patients and carers. Dementia and Geriatric Cognitive Disorders, 24: 469 - 475.
36. *Villareal-Reyna, M.A., Salazar-González, Cruz-Quevedo, J.E., Carrillo-Cervantes, A.L., & Champion, J.D. 2010. Outcomes of interventions for Alzheimer's family caregivers in Mexico. Western Journal of Nursing Research, 1 - 18. Retrieved February 14, 2012, from http://wjn.sagepub.com/content/early/2010/11/20/0193945910387283
37. Waldemar, G., Waldorff, F.B., Buss, D.V., Eckermann, A., Keiding, N., Rishøj, S., Siersma, V., Sørensen, J., Sørensen, L.V. and Vogel, A. 2010. The Danish Alzheimer Intervention Study: Rationale, study design and baseline characteristics of the cohort. Methods in Neuroepidemiology, 36: 52 - 61.
38. Winnicott, D.W. 1971. Playing and reality, New York: Basic Books.
39. Zarit, S.H. and Femia, E.E. 2008. A future for family care and dementia intervention research? Challenges and strategies. Aging and Mental Health, 12 (1): 5 - 13.