Patient perspectives on peer support for adults with type 1 diabetes: A need for diabetes-specific social capital

Patient Preference and Adherence

Volumn 10, Issue , 2016, Pages 1443-1451

  Joensen, Lene E ^a   Filges, Tine ^b   Willaing, Ingrid ^a  

^a STENO DIABETES CENTER   (Denmark)

^b Filges Analysis   (Denmark)

Author keywords

Adult; Diabetes specific loneliness; Diabetes specific social capital; Patient preferences; Peer support; Psychosocial support systems; Type 1 diabetes mellitus

Indexed keywords

ADULT; ARTICLE; CLINICAL ARTICLE; CONTROLLED STUDY; DENMARK; DIABETIC PATIENT; FAMILY LIFE; FEMALE; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; INSULIN PUMP; LONELINESS; MALE; PATIENT ATTITUDE; PEER GROUP; SOCIAL CAPITAL; SOCIAL SUPPORT; TRUST;

EID: 84985034241     PISSN: None     EISSN: 1177889X     Source Type: Journal    
DOI: 10.2147/PPA.S111696     Document Type: Article

References (37)

1. Joensen LE, Tapager I, Willaing I. Diabetes distress in type 1 diabetes-a new measurement fit for purpose. Diabet Med. 2013;30(9):1132-1139.
2. Trief PM, Sandberg JG, Dimmock JA, Forken PJ, Weinstock RS. Personal and relationship challenges of adults with type 1 diabetes: a qualitative focus group study. Diabetes Care. 2013;36(9):2483-2488.
3. Joensen LE, Almdal TP, Willaing I. Type 1 diabetes and living without a partner: psychological and social aspects, self-management behaviour, and glycaemic control. Diabetes Res Clin Pract. 2013;101(3):278-285.
4. Lloyd CE, Wing RR, Orchard TJ, Becker DJ. Psychosocial correlates of glycemic control: the Pittsburgh epidemiology of diabetes complications (EDC) Study. Diabetes Res Clin Pract. 1993;21(2-3):187-195.
5. Kawachi I, Berkman LF. Social ties and mental health. J Urban Health. 2001;78(3):458-467.
6. Kawachi I. Social capital and health. In: Bird C, Conrad P, Fremont AM, Timmermans S, editors. Handbook of Medical Sociology. 6th ed. Nashville, TN: Vanderbilt University Press; 2010:18-32.
7. Berkman LF, Glass T, Brissette I, Seeman TE. From social integration to health: Durkheim in the new millennium. Soc Sci Med. 2000;51(6):843-857.
8. Joensen LE, Almdal TP, Willaing I. Associations between patient characteristics, social relations, diabetes management, quality of life, glycaemic control and emotional burden in type 1 diabetes. Prim Care Diabetes. 2016;10(1):41-50.
9. Heisler M. Different models to mobilize peer support to improve diabetes self-management and clinical outcomes: evidence, logistics, evaluation considerations and needs for future research. Fam Pract. 2010;27(suppl 1):i23-i32.
10. World Health Organization. World Health Report: Peer Support Programs in Diabetes. Geneva: WHO; 2008.
11. van Dam HA, van der Horst FG, Knoops L, Ryckman RM, Crebolder HF, van den Borne BH. Social support in diabetes: a systematic review of controlled intervention studies. Patient Educ Couns. 2005;59(1):1-12.
12. Harkness E, Macdonald W, Valderas J, Coventry P, Gask L, Bower P. Identifying psychosocial interventions that improve both physical and mental health in patients with diabetes: a systematic review and meta-analysis. Diabetes Care. 2010;33(4):926-930.
13. Dale JR, Williams SM, Bowyer V. What is the effect of peer support on diabetes outcomes in adults? A systematic review. Diabet Med. 2012;29(11):1361-1377.
14. Dennis CL. Peer support within a health care context: a concept analysis. Int J Nurs Stud. 2003;40(3):321-332.
15. Peers for Progress (homepage). University of North Carolina at Chapel Hill. Available at http://peersforprogress.org/. Accessed April 29, 2016.
16. Fisher EB, Ayala GX, Ibarra L, et al; Peers for Progress Investigator Group. Contributions of peer support to health, health care, and prevention: papers from peers for progress. Ann Fam Med. 2015;13(suppl 1):S2-S8.
17. Simmons D, Bunn C, Cohn S, Graffy J. What is the idea behind peer-to-peer support in diabetes? Diabetes Manage. 2013;2(1):61-70.
18. Brownson CA, Heisler M. The role of peer support in diabetes care and self-management. Patient. 2009;2(1):5-17.
19. Meyer J. Qualitative research in health care. Using qualitative methods in health related action research. BMJ. 2000;320(7228):178-181.
20. Malterud K. Systematic text condensation: a strategy for qualitative analysis. Scand J Public Health. 2012;40(8):795-805.
21. Putnam RD. Bowling Alone: The Collapse and Revival of American Community. New York, NY: Simon & Schuster; 2000.
22. Peplau L. Loneliness research: basic concepts and findings. In: Sarason I, Sarason B, editors. Social Support: Theory, Research, and Applications. Boston: Martinus Nijhoff Publishers; 1985:269-286.
23. Heisler M, Piette JD. “I help you, and you help me”: facilitated telephone peer support among patients with diabetes. Diabetes Educ. 2005;31(6):869-879.
24. Lasgaard M, Goossens L, Bramsen RH, Trillingsgaard T, Elklit A. Different sources of loneliness are associated with different forms of psychopathology in adolescence. J Res Pers. 2011;45(2):233-237.
25. Polonsky WH, Anderson BJ, Lohrer PA, et al. Assessment of diabetes-related distress. Diabetes Care. 1995;18(6):754-760.
26. Nicolucci A, Kovacs Burns K, Holt RI, et al; DAWN2 Study Group. Diabetes attitudes, wishes and needs second study (DAWN2): cross-national benchmarking of diabetes-related psychosocial outcomes for people with diabetes. Diabet Med. 2013;30(7):767-777.
27. Nieminen T, Martelin T, Koskinen S, Aro H, Alanen E, Hyyppa MT. Social capital as a determinant of self-rated health and psychological well-being. Int J Public Health. 2010;55(6):531-542.
28. Ferlander S. The importance of different forms of social capital for health. Acta Sociol. 2007;50(2):115-128.
29. Murayama H, Fujiwara Y, Kawachi I. Social capital and health: a review of prospective multilevel studies. J Epidemiol. 2012;22(3):179-187.
30. Kawachi I, Kennedy BP, Glass R. Social capital and self-rated health: a contextual analysis. Am J Public Health. 1999;89(8):1187-1193.
31. Kawachi I, Kennedy BP, Lochner K, Prothrow-Stith D. Social capital, income inequality, and mortality. Am J Public Health. 1997;87(9):1491-1498.
32. Long JA, Field S, Armstrong K, Chang VW, Metlay JP. Social capital and glucose control. J Community Health. 2010;35(5):519-526.
33. Farajzadegan Z, Jafari N, Nazer S, Keyvanara M, Zamani A. Social capital-a neglected issue in diabetes control: a cross-sectional survey in Iran. Health Soc Care Community. 2013;21(1):98-103.
34. Patton MQ. Qualitative Research and Evaluation Methods. Thousand Oaks, CA: Sage Publications; 2002.
35. Lavie-Ajayi M. “I didn’t know I was isolated until I wasn’t isolated any more”: the use of groups in qualitative psychology research. Qualitative Inquiry. 2014;20(2):175-182.
36. Kitzinger J. Qualitative research. Introducing focus groups. BMJ. 1995;311(7000):299-302.
37. Kvale S. Interviews-An Introduction to Qualitative Research Interviewing. Thousand Oaks, CA: Sage Publications; 1996.