Social media use in research: Engaging communities in cohort studies to support recruitment and retention

JMIR Research Protocols

Volumn 4, Issue 3, 2015, Pages

  Farina Henry, Eva ^a   Waterston, Leo B ^a   Blaisdell, Laura L ^a  

^a Maine Medical Center Research Institute   (United States)

Author keywords

Community outreach; Longitudinal studies; Pilot project; Social media

Indexed keywords

EID: 84983691818     PISSN: None     EISSN: 19290748     Source Type: Journal    
DOI: 10.2196/resprot.4260     Document Type: Article

References (25)

1. Warren CM, Knight R, Holl JL, Gupta RS. Using videovoice methods to enhance community outreach and engagement for the National Children's Study. Health Promot Pract 2014 May; 15(3):383-394. [doi: 10.1177/1524839913503470] [Medline: 24127300]
2. Baker D, Park C, Sweeney C, McCormack L, Durkin M, Brenner R, et al. Recruitment of women in the National Children's Study Initial Vanguard Study. Am J Epidemiol 2014 Jun 1; 179(11):1366-1374. [doi: 10.1093/aje/kwu062] [Medline: 24793429]
3. O'Hara BJ, Phongsavan P, Gebel K, Banovic D, Buffett KM, Bauman AE. Longer term impact of the mass media campaign to promote the Get Healthy Information and Coaching Service®: Increasing the saliency of a new public health program. Health Promot Pract 2014 Nov; 15(6):828-838. [doi: 10.1177/1524839914524774] [Medline: 24662895]
4. Dawber TR, Meadors GF, Moore Jr FE. Epidemiological approaches to heart disease: The Framingham Study. Am J Public Health Nations Health 1951 Mar; 41(3):279-281. [Medline: 14819398]
5. Feinlieb M. The Framingham Study: Sample Selection, Follow-up and Methods of Analyses. National Cancer Institute Monograph 1985; 67:59-64.
6. Gordon T, William B. The Framingham Study: Introduction and General Background. In: Gordon WBKaT, editor. The Framingham study: An epidemiological investigation of cardiovascular disease. Bethesda: U.S. Dept. of Health, Education, and Welfare, National Institutes of Health; 1968.
7. Sapienza JN, Corbie-Smith G, Keim S, Fleischman AR. Community engagement in epidemiological research. Ambul Pediatr 2007; 7(3):247-252 [FREE Full text] [doi: 10.1016/j.ambp.2007.01.004] [Medline: 17512886]
8. Leng HK. Methodological issues in using data from social networking sites. Cyberpsychol Behav Soc Netw 2013 Sep; 16(9):686-689. [doi: 10.1089/cyber.2012.0355] [Medline: 23679568]
9. Faden VB, Day NL, Windle M, Windle R, Grube JW, Molina Brooke S G, et al. Collecting longitudinal data through childhood, adolescence, and young adulthood: Methodological challenges. Alcohol Clin Exp Res 2004 Feb; 28(2):330-340 [FREE Full text] [Medline: 15112941]
10. Harris ML, Herbert D, Loxton D, Dobson A, Wigginton B, Lucke JC. Recruiting young women for health surveys: Traditional random sampling methods are not cost-effective. Aust N Z J Public Health 2014 Oct; 38(5):495. [doi: 10.1111/1753-6405.12281] [Medline: 25269982]
11. Leonard A, Hutchesson M, Patterson A, Chalmers K, Collins C. Recruitment and retention of young women into nutrition research studies: Practical considerations. Trials 2014; 15:23 [FREE Full text] [doi: 10.1186/1745-6215-15-23] [Medline: 24433229]
12. Alshaikh F, Ramzan F, Rawaf S, Majeed A. Social network sites as a mode to collect health data: A systematic review. J Med Internet Res 2014; 16(7):e171 [FREE Full text] [doi: 10.2196/jmir.3050] [Medline: 25048247]
13. Fenner Y, Garland SM, Moore EE, Jayasinghe Y, Fletcher A, Tabrizi SN, et al. Web-based recruiting for health research using a social networking site: An exploratory study. J Med Internet Res 2012; 14(1):e20 [FREE Full text] [doi: 10.2196/jmir.1978] [Medline: 22297093]
14. Mychasiuk R, Benzies K. Facebook: An effective tool for participant retention in longitudinal research. Child Care Health Dev 2012 Sep; 38(5):753-756. [doi: 10.1111/j.1365-2214.2011.01326.x] [Medline: 21985571]
15. Mishra GD, Hockey R, Powers J, Loxton D, Tooth L, Rowlands I, et al. Recruitment via the Internet and social networking sites: The 1989-1995 cohort of the Australian Longitudinal Study on Women's Health. J Med Internet Res 2014; 16(12):e279 [FREE Full text] [doi: 10.2196/jmir.3788] [Medline: 25514159]
16. Gearhart C. IRB Review of the Use of Social Media in Research. Monitor 2012; 26(5):39-42 [FREE Full text]
17. Maine Study Center, National Children's Study. The Maine Study Center of the National Children's Study Social Media Plan. National Children's Study 2011 May 31 protocol submitted to the Program Office of the National Children's Study at the National Institutes of Health.
18. Baekdal T. www.baekdal.com. Facebook EdgeRank, Promoted Posts, And The ConnectionURL: http://www.baekdal.com/insights/facebook-edgerank-promoted-posts-and-the-connection/[accessed 2015-01-12] [WebCite Cache ID 6VWw5FBVG]
19. Taylor D. www.thenextweb.com. Everything you need to know about Facebook's EdgerankURL: http://thenextweb.com/socialmedia/2011/05/09/everything-you-need-to-know-about-facebooks-edgerank/[accessed 2015-01-23] [WebCite Cache ID 6VnV8zW91]
20. www.socialbakers.com. New EdgeRank Score BreakdownURL: https://www.socialbakers.com/edgerankchecker/blog/2011/12/new-edgerank-score-breakdown/[accessed 2015-05-06] [WebCite Cache ID 6YKOkDeNp]
21. Dull C. http://blog.case.org. Building a Community with SuperfansURL: http://blog.case.org/2011/09/21/building-a-community-with-superfans/[accessed 2015-01-12] [WebCite Cache ID 6VWwWZQrk]
22. Smith M. www.socialmediaexaminer.com. How to Measure Your Social Media EngagementURL: http://www. socialmediaexaminer.com/how-to-measure-your-facebook-engagement/[accessed 2015-01-12] [WebCite Cache ID 6VWyisUJB]
23. Hussain A. http://blog.hubspot.com. How to Analyze Facebook Insights to Improve Your Content StrategyURL: http://blog.hubspot.com/blog/tabid/6307/bid/31965/How-to-Analyze-Facebook-Insights-to-Improve-Your-Content-Strategy-With-Video.aspx [accessed 2015-01-12] [WebCite Cache ID 6VWxEmIBS]
24. Powers P. http://patrickpowers.net. How to Measure the Engagement Rates of Facebook ContentURL: http://patrickpowers. net/2011/11/how-to-measure-the-engagement-rates-of-facebook-content/[accessed 2015-01-12] [WebCite Cache ID 6VX0JpQqq]
25. http://www.nichd.nih.gov. National Children's Study Privacy and Disclaimer NoticeURL: http://www. nationalchildrensstudy.gov/participants/Pages/privacy.aspx [accessed 2015-01-12] [WebCite Cache ID 6VX3QOgiq]