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Volumn 43, Issue 3, 2016, Pages 360-392

Developing a Public Interest Mandate for the Governance and Use of Administrative Data in the United Kingdom

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EID: 84983087827     PISSN: 0263323X     EISSN: 14676478     Source Type: Journal    
DOI: 10.1111/j.1467-6478.2016.00759.x     Document Type: Article
Times cited : (13)

References (86)
  • 2
    • 84983072711 scopus 로고    scopus 로고
    • Data for the Public Good: Challenges and Barriers in the Context of Cities
    • both, eds. J. Lane et al
    • Goerge, ‘Data for the Public Good: Challenges and Barriers in the Context of Cities’, both in Privacy, Big Data, and the Public Good: Frameworks for Engagement, eds. J. Lane et al. (2014)
    • (2014) Privacy, Big Data, and the Public Good: Frameworks for Engagement
    • Goerge1
  • 3
    • 84983746515 scopus 로고    scopus 로고
    • The Emerging Role of Big Data in Key Development Issues: Opportunities, Challenges, and Concerns
    • N. Kshetri, ‘The Emerging Role of Big Data in Key Development Issues: Opportunities, Challenges, and Concerns’ (2014) 1 Big Data & Society, at
    • (2014) Big Data & Society , pp. 1
    • Kshetri, N.1
  • 8
    • 84927613037 scopus 로고    scopus 로고
    • Administrative Data Research Network (ADRN), ‘About Us’ (2015), at
    • (2015) About Us
  • 15
    • 84983073712 scopus 로고    scopus 로고
  • 19
    • 77957594024 scopus 로고    scopus 로고
    • Broken Promises of Privacy: Responding to the Surprising Failure of Anonymization
    • P. Ohm, ‘Broken Promises of Privacy: Responding to the Surprising Failure of Anonymization’ (2009) 57 UCLA Law Rev. 1701
    • (2009) UCLA Law Rev. , vol.57 , pp. 1701
    • Ohm, P.1
  • 22
    • 84963992724 scopus 로고    scopus 로고
    • The Proposed Data Protection Regulation and Its Potential Impact on Social Sciences Research in the UK
    • L. Stevens, ‘The Proposed Data Protection Regulation and Its Potential Impact on Social Sciences Research in the UK’ (2015) 1 European Data Protection Law Rev. 100.
    • (2015) European Data Protection Law Rev. , vol.1 , pp. 100
    • Stevens, L.1
  • 24
    • 84855303844 scopus 로고    scopus 로고
    • The PII Problem: Privacy and a New Concept of Personally Identifiable Information
    • P. Schwartz and D. Solove, ‘The PII Problem: Privacy and a New Concept of Personally Identifiable Information’ (2011) 86 New York University Law Rev. 1814
    • (2011) New York University Law Rev. , vol.86 , pp. 1814
    • Schwartz, P.1    Solove, D.2
  • 25
    • 84872459720 scopus 로고    scopus 로고
    • Identifying Personal Genomes by Surname Inference
    • M. Gymrek et al., ‘Identifying Personal Genomes by Surname Inference’ (2013) 339 Science 321, at
    • (2013) Science , vol.339 , pp. 321
    • Gymrek, M.1
  • 26
    • 84983049411 scopus 로고    scopus 로고
    • A trusted third party is an organisation with secure facilities for matching data’: ADRN, ‘Trusted Third Parties
    • ‘A trusted third party is an organisation with secure facilities for matching data’: ADRN, ‘Trusted Third Parties’, at Wellcome Trust
    • Wellcome Trust
  • 35
    • 84925957965 scopus 로고    scopus 로고
    • The Social Licence for Research: Why Care.data Ran into Trouble
    • P. Carter et al., ‘The Social Licence for Research: Why Care.data Ran into Trouble’ (2015) 41 J. of Medical Ethics, at .
    • (2015) J. of Medical Ethics , pp. 41
    • Carter, P.1
  • 36
  • 38
    • 84900838941 scopus 로고    scopus 로고
    • Delivering Proportionate Governance in the Era of eHealth: Making Linkage and Privacy Work Together
    • N. Sethi and G. Laurie, ‘Delivering Proportionate Governance in the Era of eHealth: Making Linkage and Privacy Work Together’ (2013) 13 Medical Law International 168, at .
    • (2013) Medical Law International
    • Sethi, N.1    Laurie, G.2
  • 39
    • 84983069092 scopus 로고    scopus 로고
    • Public responses to the Scottish health informatics programme: Preferences and concerns around the use of personal medical records in research
    • M. Aitken et al., ‘Public responses to the Scottish health informatics programme: preferences and concerns around the use of personal medical records in research’ (2011) 65 J. of Epidemiology and Community Health A27
    • (2011) J. of Epidemiology and Community Health , vol.65 , pp. A27
    • Aitken, M.1
  • 44
    • 84983061175 scopus 로고    scopus 로고
    • ‘ScottisH Informatics Programme (SHIP)', at .
  • 45
    • 84983061163 scopus 로고    scopus 로고
    • Principles versus Rules
    • R. Jackson, ‘Principles versus Rules’ (2004) 61 Internal Auditor 58
    • (2004) Internal Auditor , vol.61 , pp. 58
    • Jackson, R.1
  • 46
    • 33750332996 scopus 로고    scopus 로고
    • Striking a Balance Between Rules and Principles-Based Approaches for Effective Governance: A Risks-Based Approach
    • S. Arjoon, ‘Striking a Balance Between Rules and Principles-Based Approaches for Effective Governance: A Risks-Based Approach’ (2006) 68 J. of Business Ethics 53, at
    • (2006) J. of Business Ethics , vol.68 , pp. 53
    • Arjoon, S.1
  • 51
    • 14644404979 scopus 로고    scopus 로고
    • Over-Regulation of Clinical Research: A Threat to Public Health
    • C. Warlow, ‘Over-Regulation of Clinical Research: A Threat to Public Health’ (2005) 5 Clinical Medicine 33
    • (2005) Clinical Medicine , vol.5 , pp. 33
    • Warlow, C.1
  • 52
    • 31344458742 scopus 로고    scopus 로고
    • Consent, Confidentiality, and the Data Protection Act
    • A. Iversen et al., ‘Consent, Confidentiality, and the Data Protection Act’ (2006) 332 British Medical J. 165
    • (2006) British Medical J. , vol.332 , pp. 165
    • Iversen, A.1
  • 53
    • 84983064147 scopus 로고    scopus 로고
    • Bureaucracy Stifles Medical Research in Britain: A Tale of Three Trials
    • H. Snooks et al., ‘Bureaucracy Stifles Medical Research in Britain: A Tale of Three Trials’ (2012) 12 BMC Medical Research Methodology 1
    • (2012) BMC Medical Research Methodology , vol.12 , pp. 1
    • Snooks, H.1
  • 54
    • 84892148591 scopus 로고    scopus 로고
    • Increasing Value and Reducing Waste in Biomedical Research Regulation and Management
    • R. Al-Shahi Salman et al., ‘Increasing Value and Reducing Waste in Biomedical Research Regulation and Management’ (2014) 383 Lancet 176
    • (2014) Lancet , vol.383 , pp. 176
    • Al-Shahi Salman, R.1
  • 62
    • 31344434709 scopus 로고    scopus 로고
    • Using Personal Health Information in Medical Research: Overzealous Interpretation of UK Laws Is Stifling Epidemiological Research
    • T. Walley, ‘Using Personal Health Information in Medical Research: Overzealous Interpretation of UK Laws Is Stifling Epidemiological Research’ (2006) 332 Brit. Medical J. 130, at
    • (2006) Brit. Medical J. , vol.332 , pp. 130
    • Walley, T.1
  • 63
    • 84866636462 scopus 로고    scopus 로고
    • Procedure versus Process: Ethical Paradigms and the Conduct of Qualitative Research
    • K. Pollock, ‘Procedure versus Process: Ethical Paradigms and the Conduct of Qualitative Research’ (2012) 13 BMC Medical Ethics 1
    • (2012) BMC Medical Ethics , vol.13 , pp. 1
    • Pollock, K.1
  • 64
    • 84908159546 scopus 로고    scopus 로고
    • How Should We Regulate Risk in Biomedical Research?: An Ethical Analysis of Recent Policy Proposals and Initiatives
    • A. Rid, ‘How Should We Regulate Risk in Biomedical Research?: An Ethical Analysis of Recent Policy Proposals and Initiatives’ (2014) 117 Health Policy 409
    • (2014) Health Policy , vol.117 , pp. 409
    • Rid, A.1
  • 67
    • 34248667900 scopus 로고    scopus 로고
    • Legal and Ethical Considera-tions in Processing Patient-Identifiable Data without Patient Consent: Lessons Learnt from Developing a Disease Register
    • C. Haynes et al., ‘Legal and Ethical Considera-tions in Processing Patient-Identifiable Data without Patient Consent: Lessons Learnt from Developing a Disease Register’ (2007) 33 J. of Medical Ethics 302, at
    • (2007) J. of Medical Ethics , vol.33 , pp. 302
    • Haynes, C.1
  • 71
    • 84983072736 scopus 로고    scopus 로고
    • GPs Prepare to Contact Patients Individually as Care.data Is Relaunched in Some Areas
    • A. Matthews-King, ‘GPs Prepare to Contact Patients Individually as Care.data Is Relaunched in Some Areas’ Pulse (2015), at
    • (2015) Pulse
    • Matthews-King, A.1
  • 74
    • 85016024869 scopus 로고    scopus 로고
    • Towards Principles-Based Approaches to Governance of Health-Related Research Using Personal Data
    • G. Laurie and N. Sethi, ‘Towards Principles-Based Approaches to Governance of Health-Related Research Using Personal Data’ (2013) 4 European J. of Risk Regulation 43, at .
    • (2013) European J. of Risk Regulation , vol.4 , pp. 43
    • Laurie, G.1    Sethi, N.2
  • 75
    • 79957803224 scopus 로고    scopus 로고
    • Health Research, Data Protection, and the Public Interest in Notification
    • M. Taylor, ‘Health Research, Data Protection, and the Public Interest in Notification’ (2011) 19 Medical Law Rev. 267.
    • (2011) Medical Law Rev. , vol.19 , pp. 267
    • Taylor, M.1
  • 82
    • 53149130992 scopus 로고    scopus 로고
    • Information-Sharing and Confidentiality in Social Policy: Regulating Multi-Agency Working
    • C. Bellamy et al., ‘Information-Sharing and Confidentiality in Social Policy: Regulating Multi-Agency Working’ (2008) 86 Public Administration 737, at
    • (2008) Public Administration , vol.86 , pp. 737
    • Bellamy, C.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.