Gender differences in caregiver burden and its determinants in family members of terminally ill cancer patients

Psycho-Oncology

Volumn , Issue , 2016, Pages 808-814

  Schrank, Beate ^a   Ebert Vogel, Alexandra ^a   Amering, Michaela ^a   Masel, Eva K ^a   Neubauer, Marie ^a   Watzke, Herbert ^a   Zehetmayer, Sonja ^a   Schur, Sophie ^a  

^a MEDICAL UNIVERSITY OF VIENNA   (Austria)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ADVANCED CANCER; ARTICLE; CANCER PATIENT; CAREGIVER BURDEN; COPING BEHAVIOR; CROSS-SECTIONAL STUDY; EMOTIONALITY; EMPLOYMENT STATUS; FAMILY ATTITUDE; FEMALE; HEALTH SERVICE; HUMAN; MALE; PALLIATIVE THERAPY; PREDICTION; PSYCHOLOGICAL ASPECT; RISK FACTOR; SEX DIFFERENCE; SOCIAL SUPPORT; TERMINALLY ILL PATIENT;

EID: 84977633377     PISSN: 10579249     EISSN: 10991611     Source Type: Journal    
DOI: 10.1002/pon.4005     Document Type: Article

References (40)

1. Costa-Requena G, Cristofol R, Canete J, et al. Caregivers' morbidity in palliative care unit: predicting by gender, age, burden and self-esteem. Support Care Cancer 2012;20(7):1465–1470.
2. Grov EK, Daahl A, Moum T, et al. Anxiety, depression, and quality of life in caregivers of patients with cancer in late palliative phase. Ann Oncol 2005;16(7):1185–1191.
3. Kim Y, van Ryn M, Jensen RE, et al. Effects of gender and depressive symptoms on quality of life among colorectal and lung cancer patients and their family caregivers. Psycho-Oncology 2015;24(1):95–105.
4. Wadhwa D, Burman D, Swami A, et al. Quality of life and mental health in caregivers of outpatients with advanced cancer. Psycho-Oncology 2013;22(2):403–410.
5. Payne S, Grande G. Towards better support for family carers: a richer understanding. Palliat Med 2013;27(7):579–580.
6. Williams AL, McCorkle R. Cancer family caregivers during the palliative, hospice, and bereavement phases: a review of the descriptive psychosocial literature. Palliat Support Care 2011;9(3):315–325.
7. Ferrell B, Hanson J, Grant M. An overview and evaluation of the oncology family caregiver project: improving quality of life and quality of care for oncology family caregivers. Psycho-Oncology 2013;22(7):1645–1652.
8. Hudson P. Improving support for family carers: key implications for research, policy and practice. Palliat Med 2013;27(7):581–582.
9. Fasse L, Flahault C, Brédart A, et al. Describing and understanding depression in spouses of cancer patients in palliative phase. Psycho-Oncology 2015;24(9):1131–1137.
10. Stenberg U, Ruland CM, Miaskowski C. Review of the literature on the effects of caring for a patient with cancer. Psycho-Oncology 2010;19(10):1013–1025.
11. Hasson-Ohayon I, Goldzweig G, Sela-Oren T, et al. Attachment style, social support and finding meaning among spouses of colorectal cancer patients: gender differences. Palliat Support Care 2013;1–9.
12. Henriksson A, Carlander I, Arestedt K. Feelings of rewards among family caregivers during ongoing palliative care. Palliat Support Care 2013;(16):1–9.
13. Wong WK, Usher J, Perz J. Strength through adversity: bereaved cancer carers' accounts of rewards and personal growth from caring. Palliat Support Care 2009;7(2):187–196.
14. Brazil K, Thabane L, Foster G, et al. Gender differences among Canadian spousal caregivers at the end of life. Health Soc Care Community 2009;17(2):159–166.
15. Mystakidou K, Parpa E, Panagiotou I, et al. Caregivers' anxiety and self-efficacy in palliative care. Eur J Cancer Care (Engl) 2013;22(2):188–195.
16. Burns CM, LeBlanc TW, Abernethy A, et al. Young caregivers in the end-of-life setting: a population-based profile of an emerging group. J Palliat Med 2010;13(10):1225–1235.
17. Mackinnon CJ. Applying feminist, multicultural, and social justice theory to diverse women who function as caregivers in end-of-life and palliative home care. Palliat Support Care 2009;7(4):501–512.
18. Hunt KJ, Shlomo N, Addington-Hall J. End-of-life care and achieving preferences for place of death in England: results of a population-based survey using the VOICES-SF questionnaire. Palliat Med 2014;28(5):412–421.
19. Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist 1980;20(6):649–655.
20. Higginson IJ, Gao W, Jackson D, et al. Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions. J Clin Epidemiol 2010;63(5):535–542.
21. Kristjanson LJ, Atwood J, Degner LF. Validity and reliability of the Family Inventory of Needs (FIN): measuring the care needs of families of advanced cancer patients. J Nurs Meas 1995;3(2):109–126.
22. Schur S, Amering M, Ebert-Vogel A. Validation of the Family Inventory of Needs (FIN) for family caregivers in palliative care. Palliative and Supportive Care 2015;13(3):485–491.
23. Cohan L, Jang KL, Stein MB. Confirmatory factor analysis of a short form of the Coping Inventory for Stressful Situations. J Clin Psychol 2006;62(3):273–283.
24. Schrank B, Woppmann A, Sibitz I, et al. Development and validation of an integrative scale to assess hope. Health Expect 2011;14(4):417–428.
25. Barusch AS, Spaid WM. Gender differences in caregiving: why do wives report greater burden? Gerontologist 1989;29(5):667–676.
26. Gibbons C, Creese J, Tran M, et al. The psychological and health consequences of caring for a spouse with dementia: a critical comparison of husbands and wives. J Women Aging 2014;26(1):3–21.
27. Clayton JM, Hancock K, Parker S, et al. Sustaining hope when communicating with terminally ill patients and their families: a systematic review. Psycho-Oncology 2008;17(7):641–659.
28. Toke Y, Ozcelik H, Cicik A. Examination of the relationship between hopelessness levels and coping strategies among the family caregivers of patients with cancer. Cancer Nurs 2015;38(4):E28–E34.
29. Kang J, Shin DW, Choi JE, et al. Factors associated with positive consequences of serving as a family caregiver for a terminal cancer patient. Psycho-Oncology 2013;22(3):564–571.
30. Kim Y, Baker F, Spillers RL. Cancer caregivers' quality of life: effects of gender, relationship, and appraisal. J Pain Symptom Manage 2007;34(3):294–304.
31. Giesbrecht M, Crooks VA, Williams A, et al. Critically examining diversity in end-of-life family caregiving: implications for equitable caregiver support and Canada's Compassionate Care Benefit. Int J Equity Health 2012;11:65.
32. Flechl B, Ackerl M, Sax C, et al. The caregivers' perspective on the end-of-life phase of glioblastoma patients. J Neurooncol 2013;112(3):403–411.
33. Hudson P, Trauer T, Kelly B, et al. Reducing the psychological distress of family caregivers of home-based palliative care patients: short-term effects from a randomised controlled trial. Psycho-Oncology 2013;22(9):1987–1993.
34. Muder P, Zahrt-Omar CA, Bussmann S, et al. Support for families of patients dying with dementia: a qualitative analysis of bereaved family members' experiences and suggestions. Palliat Support Care 2015;13(3):435–442.
35. Duggleby WD, Degner L, Williams A, et al. Living with hope: initial evaluation of a psychosocial hope intervention for older palliative home care patients. J Pain Symptom Manage 2007;33(3):247–257.
36. Duggleby WD, Williams A, Holstlander L, et al. Hope of rural women caregivers of persons with advanced cancer: guilt, self-efficacy and mental health. Rural Remote Health 2014;14(1):2561.
37. Kim SY, Kim JM, Kim SW, et al. Determinants of a hopeful attitude among family caregivers in a palliative care setting. Gen Hosp Psychiatry 2014;36(2):165–171.
38. Effendy C, Vernooij-Dassen M, Setiyarini S, et al. Family caregivers' involvement in caring for a hospitalized patient with cancer and their quality of life in a country with strong family bonds. Psycho-Oncology 2015;24(5):585–591.
39. Bolier L, Haverman M, Westerhof GJ, et al. Positive psychology interventions: a meta-analysis of randomized controlled studies. BMC Public Health 2013;13:119.40.
40. Schrank B, Brownell T, Jakaite Z, et al. Evaluation of a positive psychotherapy group intervention for people with psychosis: pilot randomised controlled trial. Epidemiol Psychiatr Sci 2015;20:1–12.