Measuring the Social Impact of Burns on Survivors

Journal of Burn Care and Research

Volumn 38, Issue 1, 2017, Pages e377-e383

  Marino, Molly ^a   Soley Bori, Marina ^a   Jette, Alan M ^a   Slavin, Mary D ^a   Ryan, Colleen M ^b,c,d   Schneider, Jeffrey C ^c,e   Acton, Amy ^f   Amaya, Flor ^a   Rossi, Melinda ^a   Soria Saucedo, Rene ^a   Resnik, Linda ^g,h   Kazis, Lewis E ^a  

^a BOSTON UNIVERSITY SCHOOL OF PUBLIC HEALTH   (United States)

^b MASSACHUSETTS GENERAL HOSPITAL   (United States)

^c HARVARD MEDICAL SCHOOL   (United States)

^d SHRINERS HOSPITALS FOR CHILDREN   (United States)

^e and Red Sox Foundation and Massachusetts General Hospital Home Base Program   (United States)

^f Phoenix Society for Burn Survivors   (United States)

^g PROVIDENCE VETERANS AFFAIRS MEDICAL CENTER   (United States)

^h BROWN UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; BURN; CAREGIVER; CLOTHING; CONCEPTUAL FRAMEWORK; FAMILY; FEMALE; GROUNDED THEORY; HUMAN; LEISURE; MAJOR CLINICAL STUDY; MALE; RECREATION; SEXUAL FUNCTION; SOCIAL ASPECT; SOCIAL INTERACTION; SOCIAL PARTICIPATION; SURVIVOR; WORK; MIDDLE AGED; PSYCHOLOGY; QUALITY OF LIFE; SELF CONCEPT; SELF REPORT; SOCIAL BEHAVIOR; YOUNG ADULT;

ADULT; AGED; BURNS; CLOTHING; FEMALE; HUMANS; MALE; MIDDLE AGED; QUALITY OF LIFE; SELF CONCEPT; SELF REPORT; SOCIAL BEHAVIOR; SURVIVORS; YOUNG ADULT;

EID: 84977100257     PISSN: 1559047X     EISSN: 15590488     Source Type: Journal    
DOI: 10.1097/BCR.0000000000000398     Document Type: Article

References (41)

1. Esselman PC, Ptacek JT, Kowalske K, Cromes GF, deLateur BJ, Engrav LH. Community integration after burn injuries. J Burn Care Rehabil 2001;22:221-7
2. Blakeney P, Partridge J, Rumsey N. Community integration. J Burn Care Res 2007;28:598-601
3. Brych SB, Engrav LH, Rivara FP, et al. Time off work and return to work rates after burns: systematic review of the literature and a large two-center series. J Burn Care Rehabil 2001;22:401-5
4. Blades BC, Jones C, Munster AM. Quality of life after major burns. J Trauma 1979;19:556-8
5. Andreasen NJ, Norris AS. Long-term adjustment and adaptation mechanisms in severely burned adults. J Nerv Ment Dis 1972;154:352-62
6. Ryan CM, Schneider JC, Kazis LE, et al; Multi-Center Benchmarking Study Group. Benchmarks for multidimensional recovery after burn injury in young adults: the development, validation, and testing of the American Burn Association/Shriners Hospitals for Children young adult burn outcome questionnaire. J Burn Care Res 2013;34:e121-42
7. Marino M, Soley-Bori M, Jette A, et al. Development of a conceptual framework to measure the social impact of burns. J Burn Care Res. In press
8. DeWalt DA, Rothrock N, Yount S, Stone AA; PROMIS Cooperative Group. Evaluation of item candidates: the PROMIS qualitative item review. Med Care 2007;45(5 Suppl 1):S12-21
9. Pope C, Ziebland S, Mays N. Qualitative research in health care. Analysing qualitative data. BMJ 2000;320:114-6
10. Denzin NK, Lincoln YS. Handbook of qualitative research. Thousand Oaks, CA: Sage Publications Inc.; 1994
11. Brod M, Tesler LE, Christensen TL. Qualitative research and content validity: developing best practices based on science and experience. Qual Life Res 2009;18:1263-78
12. Lasch KE, Marquis P, Vigneux M, et al. PRO development: rigorous qualitative research as the crucial foundation. Qual Life Res 2010;19:1087-96
13. Knafl K, Deatrick J, Gallo A, et al. The analysis and interpretation of cognitive interviews for instrument development. Res Nurs Health 2007;30:224-34
14. Lawrence JW, Fauerbach JA, Heinberg LJ, Doctor M, Thombs BD. The reliability and validity of the Perceived Stigmatization Questionnaire (PSQ) and the Social Comfort Questionnaire (SCQ) among an adult burn survivor sample. Psychol Assess 2006;18:106-11
15. Lawrence JW, Rosenberg L, Rimmer RB, Thombs BD, Fauerbach JA. Perceived stigmatization and social comfort: validating the constructs and their measurement among pediatric burn survivors. Rehabil Psychol 2010;55:360-71
16. Lawrence JW, Heinberg L, Roca R, Munster A, Spence R, Fauerbach JA. Development and validation of the Satisfaction With Appearance Scale: assessing body image among burninjured patients. Psychol Assess 1998;10:64-70
17. Wiltz K. Sexuality After Burn Injury. Dissertation, Maimonides University. 2006; available from http://www.esextherapy. com/dissertations/Karen%20A%20Wiltz%20Sexuality%20 After%20Burn%20Injury.pdf
18. Spanier GB. Measuring dyadic adjustment: new scales for assessing the quality of marriage and similar dyads. J Marriage Fam 1976;38:15-28
19. Rosen R, Brown C, Heiman J, et al. The Female Sexual Function Index (FSFI): a multidimensional self-report instrument for the assessment of female sexual function. J Sex Marital Ther 2000;26:191-208
20. Rosen RC, Riley A, Wagner G, Osterloh IH, Kirkpatrick J, Mishra A. The international index of erectile function (IIEF): a multidimensional scale for assessment of erectile dysfunction. Urology 1997;49:822-30
21. Blades B, Mellis N, Munster AM. A burn specific health scale. J Trauma 1982;22:872-5
22. Hudson WW. Index of sexual satisfaction. Tallahassee, FL: WALMYR Publishing Co.; 1970
23. Schmidt N, Sermat V. Measuring loneliness in different relationships. J Pers Soc Psychol 1983;44:1038-47
24. Cash TF, Fleming EC. The impact of body image experiences: development of the body image quality of life inventory. Int J Eat Disord 2002;31:455-60
25. Gershon RC, Lai JS, Bode R, et al. Neuro-QOL: quality of life item banks for adults with neurological disorders: item development and calibrations based upon clinical and general population testing. Qual Life Res 2012;21:475-86
26. Cella D, Nowinski C, Peterman A, et al. The neurology quality-of-life measurement initiative. Arch Phys Med Rehabil 2011;92(10 Suppl):S28-36
27. Downey G, Feldman SI. Implications of rejection sensitivity for intimate relationships. J Pers Soc Psychol 1996;70:1327-43
28. Willebrand M, Kildal M, Ekselius L, Gerdin B, Andersson G. Development of the coping with burns questionnaire. Pers Indiv Differ 2001;30:1059-72
29. Wilhelm K, Parker G. The development of a measure of intimate bonds. Psychol Med 1988;18:225-34
30. Descutner CJ, Thelen MH. Development and validation of a fear-of-intimacy scale. Psychol Assess 1991;3:218
31. Gershon R, Rothrock NE, Hanrahan RT, Jansky LJ, Harniss M, Riley W. The development of a clinical outcomes survey research application: assessment Center. Qual Life Res 2010;19:677-85
32. Jansky LJ, Huang JC. A mlti-method approach to assess usability and acceptability: a case study of the Patient-Reported Outcomes Measurement System (PROMIS) workshop. Soc Sci Comput Rev 2009;27:262-70
33. Schmidt N, Sermat V. Measuring loneliness in different relationships. J Pers Soc Psychol 1983;44:1038-47
34. Lumenta DB, Kamolz LP, Frey M. Adult burn patients with more than 60% TBSA involved-Meek and other techniques to overcome restricted skin harvest availability\-The Viennese Concept. J Burn Care Res 2009;30:231-42
35. Evans DR, Levy LM, Pilgrim AE, Potts SM, Albert WG. The Community Alcohol Use Scale: a scale for use in prevention programs. Am J Community Psychol 1985;13:715-31
36. Lord FM. Applications of item response theory to practical testing problems. New York, NY: Routledge; 1980
37. Hambleton R, Pitoniak MJ, Pashler H, editors. Testing and measurement. Advances in item response theory and selected testing practices. New York: John Wiley &Sons; 2002
38. Norris JM. Computer-adaptive testing: a primer. Lang Learn Tech 2001;5:23-7
39. Wright BD, Masters G. Rating scale analysis [Internet]. Chicago: Mesa Press; 1982
40. Warm T. Weighted likelihood estimation of ability in item response theory. Psychometrika 1989;54:427-50
41. Wang S, Wang T. Precision of warm's weighted likelihood estimates for a polytomous model in computerized adaptive testing. Appl Psychol Meas 2001;25:317-31