Care burden and social support levels of caregivers of patients with chronic obstructive pulmonary disease

Holistic Nursing Practice

Volumn 30, Issue 4, 2016, Pages 227-235

  Goris, Songul ^a   Kilic, Zuleyha ^a   Elmali, Ferhan ^b   Tutar, Nuri ^a   Takc, Ozlem ^a  

^a ERCIYES UNIVERSITY   (Turkey)

^b Faculty of Medicine   (Turkey)

Author keywords

Care burden; Caregivers; COPD; Social support

Indexed keywords

ADULT; CAREGIVER; COST OF ILLNESS; FEMALE; HUMAN; MALE; MIDDLE AGED; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; SOCIAL SUPPORT; SOCIOECONOMICS; STATISTICS AND NUMERICAL DATA;

ADULT; CAREGIVERS; COST OF ILLNESS; FEMALE; HUMANS; MALE; MIDDLE AGED; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; SOCIAL SUPPORT; SOCIOECONOMIC FACTORS;

EID: 84976273257     PISSN: 08879311     EISSN: 15505138     Source Type: Journal    
DOI: 10.1097/HNP.0000000000000153     Document Type: Conference Paper

References (53)

1. Global Initiative forChronicObstructive Lung Disease (GOLD). Global strategy for the diagnosis, management and prevention of chronic obstructive lung disease. http://www. goldcopd. org. Published 2014. Accessed August 22, 2014.
2. Mathers CD, Loncar D. Projections of global mortality and burden of disease from 2002 to 2030. PLoS Med. 2006;3:e442.
3. Bentsen SB, Gundersen D, Assmus J, Bringsvor H, Berland A. Multiple symptoms in patients with chronic obstructive pulmonary disease in Norway. Nurs Health Sci. 2013;15:292-299.
4. Miravitlles M. Cough and sputum production as risk factors for poor outcomes in patients with COPD. Respir Med. 2011;105:1118-1128.
5. Lou P, Zhu Y, Chen P, et al. Prevalence and correlations with depression, anxiety, and other features in outpatients with chronic obstructive pulmonary disease in China: A cross-sectional case control study. BMC Pulm Med. 2012;12:2-9.
6. Thakur N, Blanc PD, Julian LJ, et al. COPD and cognitive impairment: The role of hypoxemia and oxygen therapy. Int J Chron Obstruct Pulmon Dis. 2010;7:263-269.
7. Reishtein JL. Relationship between symptoms and functional performance in COPD. Re Nurs Health. 2005;28:39-47.
8. Aknc AÇ, Pnar R. The dependency status of the patients with chronic obstructive pulmonary disease while performing activities of daily living and factors affecting it. J N World Sci Acad. 2011;6:9-18.
9. Takata S, Washio M, Moriwaki A, et al. Burden among caregivers of patients with chronic obstructive pulmonary disease with long-term oxygen therapy. Int Med J. 2008;15:53-57.
10. Gardiner C, Gott M, Payne S, et al. Exploring the care needs of patients with advanced COPD: An overview of the literature. Respir Med. 2010;104:159-165.
11. Kanervisto M, Paavilainen E, Heikkila J. Family dynamics in families of severe COPD patients. J Clin Nurs. 2007;16:1498-1505.
12. Atagün MI, Balaban ÖD, Atagün Z, ElagÖz M, Özpolat AY. Caregiver burden in chronic diseases. Approaches Psychiatry. 2011;3:513-552.
13. Limpawattana P, Theeranut A, Chindaprasirt J, Sawanyawisuth K, Pimporm J. Caregivers burden of older adults with chronic illnesses in the community: A cross-sectional study. J Community Health. 2013;38: 40-45.
14. Yklkan H, Aypak C, Görpelioglu S. Depression, anxiety and quality of life in caregivers of long-term home care patients. Arch Psychiatr Nurs. 2014;28:193-196.
15. Morimoto T, Schreiner AS, Asano H. Caregiver burden and healthrelated quality of life among Japanese stroke caregivers. Age Ageing. 2003;32:218-223.
16. Belasco AG, Sesso R. Burden and quality of life of caregivers for hemodialysis patients. Am J Kidney Dis. 2002;39:805-812.
17. Figueiredo D, Gabriel R, Jácome C, Cruz J, Marques A. Caring for relatives with chronic obstructive pulmonary disease: how does the disease severity impact on family carers AgingMentHealth. 2014;18:385-393.
18. Jácome C, Figueiredo D, Gabriel R, Cruz J, Marques A. Predicting anxiety and depression among family carers of people with chronic obstructive pulmonary disease. Int Psychogeriatr. 2014;26:1191-1199.
19. Booth S, Silvester S, Todd C. Breathlessness in cancer and chronic obstructive pulmonary disease: using a qualitative approach to describe the experience of patients and carers. Palliat Support Care. 2003;1:337-344.
20. Al-Gamal E. Quality of life, anxiety and depression among patients with chronic obstructive pulmonary disease and their spouses. Issues Ment Health Nurs. 2014;35:761-767.
21. Pinto RA, Holanda MA, Medeiros MMC, Mota RMS, Eanes DB. Assessment of the burden of caregiving for patients with chronic obstructive pulmonary disease. Respir Med. 2007;101:2402-2408.
22. Uchino BN. Social support and health: A review of physiological processes potentially underlying links to disease outcomes. J Behav Med. 2006;29:377-387.
23. Hsiao CY, Riper MV. Individual and family adaptation in Taiwanese families of individuals with severe and persistentmental illness (SPMI). Res Nurs Health. 2009;32:307-320.
24. Yadav S. Perceived social support, hope, and quality of life of persons living with HIV/AIDS: A case study from Nepal. Qual Life Res. 2010;19:157-166.
25. Göz F, Karaoz S, Göz M, Ekiz S, Cetin I. Effects of the diabetic patients' perceived social support on their quality-of-life. J Clin Nurs. 2007;16:1353-1360.
26. Shieh SC, Tung HS, Liang SY. Social support as influencing primary family caregiver burden in Taiwanese patients with colorectal cancer. J Nurs Scholars. 2012;44:223-231.
27. Rodakowski J, Skidmore ER, Rogers JC, Schulz R. Role of social support in predicting caregiver burden. Arch Phys Med Rehabil. 2012;93:2229-2236.
28. Yurtsever S, Özge A, Kara A, Yandm A, Kalav S, Yeşil P. The relationship between care burden and social support in Turkish Alzheimer patients' family caregivers: cross-sectional study. J Nurs Educ Pract. 2013;3:1-12.
29. Tel H, Demirkol D, Kara S, Aydn D. Care burden and quality of life among the caregivers of patients with COPD. Turk Thorac J. 2012;13:87-92.
30. Selen F, Hav S. Determining the needs, caregiving burden and associated factors in primary caregivers of patients with chronic obstructive pulmonary diseases. J Res Dev Nurs. 2014;16:12-22.
31. Cain CJ, NewsomeWicksM. Caregiver attributes as correlates of burden in family caregivers coping with chronic obstructive pulmonary disease. J Fam Nurs. 2000;6:46-67.
32. Katz S, Ford AB, Moskowitz RW, Jackson BA, Jaffe MW. Studies of illness in the aged. The Index of ADL: A standardized measure of biological and psychological function. JAMA. 1963;21:185, 914.
33. Karakurt P, Ünsal A. Fatigue, anxiety and depression levels, activities of daily living of patients with chronic obstructive pulmonary disease. Int J Nurs Pract. 2013;19:221-231.
34. Zarit S, Reever K, Bach-Peterson J. Relatives of the impaired elderly: correlates of feeling of burden. Gerontologist. 1980;20:649-655.
35. Inci FH, Erdem M. Validity and reliability of the burden interview and its adaptation to Turkish. J Atatürk Univ Sch Nurs. 2008;11: 85-95.
36. Zimmet GD, Powel SS, Farley GK. The Multidimensional Scale of Perceived Social Support. J Pers Assess. 1988;52:30-41.
37. Eker D, Arkar H. Factorial structure, validity, and reliability of revised form of the Multidimensional Scale of Perceived Social Support. Turk J Psychol. 1995;10:45-55.
38. Sawatzky JE, Fowler-Kerry S. Impact of caregiving: listening to the voice of informal caregivers. J Psychiatr Ment Health Nurs. 2003; 10:277-286.
39. Godoy-Ramrez AM, Pérez-Verdun Má, Doménech-Del Rio A, Prunera-Pardell MJ. Caregiver burden and social support perceived by patients with chronic obstructive pulmonary disease. Rev Calid Asist. 2014;29:320-324.
40. Han Y, Hu D, Liu Y, et al. Coping styles and social support among depressed Chinese family caregivers of patients with esophageal cancer. Eur J Oncol Nurs. 2014;18:571-577.
41. Torti FM, Gwyther LP, Reed SD, Friedman JY, Schulman KA. Amultinational review of recent trends and reports in dementia caregiver burden. Alzheimer Dis Assoc Disord. 2004;18:99-109.
42. Avşar U, Avsar UZ, Cansever Z, et al. Psychological and emotional status, and caregiver burden in caregivers of patients with peritoneal dialysis compared with caregivers of patients with renal transplantation. Transpl Proc. 2013;45:883-886.
43. Gülpak M, Kocäoz S. The care burden and the affecting factors of ndividuals receiving hemodialysis treatment. TAF Prev Med Bull. 2014;13:99-108.
44. Kim Y, Baker F, Spillers RL. Cancer caregivers' quality of life: effects of gender, relationship, and appraisal. J Pain Symptom Manag. 2007;34:294-304.
45. Hsiao CY. Family demands, social support and caregiver burden in Taiwanese family caregivers livingwith mental illness: The role of family caregiver gender. J Clin Nurs. 2010;19:3494-3503.
46. Pinquart M, Sörensen S. Gender differences in caregiver stressors, social resources, and health: An up dated meta-analysis. J Gerontol B Psychol Sci Soc Sci. 2006;61:33-45.
47. Karagözoglu S, Arikan A, Eraydin S. The fatigue and self-care agency levels of the elderly people staying in rest homes and the relation between these two conditions. Arch Gerontol Geriatr. 2012;54: 322-328.
48. Mollaoglu M, Özkan Tuncay F, Kars Fertelli T. Care burden of care givers of stroke patients and related factors. DEUHYO ED. 2011;4:125-130.
49. Choi-Kwon S, Kim HS, Kwon SU, Kim JS. Factors affecting the burden on caregivers of stroke survivors in South Korea. Arch Phys Med Rehabil. 2005;86:1043-1048.
50. Hooley PJ, Butler G, Howlett JG. The relationship of quality of life, depression, and caregiver burden in outpatients with congestive heart failure. Congest Heart Fail. 2005;11:303-310.
51. Ardahan M. Social support and the nursing. J Atatürk Univ Sch Nurs. 2006;9:68-75.
52. Nakken N, Janssen DJA, Esther HA, et al. Informal caregivers of patients with COPD: home sweet home Eur Respir Rev. 2015;24:498-504.
53. Wodskou PM, Høst N, Godtfredsen NS, Frølich A. Aqualitative study of integrated care from the perspectives of patients with chronic obstructive pulmonary disease and their relatives. BMC Health Serv Res. 2014;14: 1-11.