Fifteen-year trend in information on the World Wide Web for patients with rheumatoid arthritis: evolving, but opportunities for improvement remain

Rheumatology International

Volumn 36, Issue 9, 2016, Pages 1281-1289

  Castillo Ortiz, Jose Dionisio ^a   de Jesus Valdivia Nuno, Jose ^a   Ramirez Gomez, Andrea ^a   Garagarza Mariscal, Heber ^a   Gallegos Rios, Carlos ^a   Flores Hernandez, Gabriel ^a   Hernandez Sanchez, Luis ^a   Brambila Barba, Victor ^a   Castaneda Sanchez, Jose Juan ^a   Barajas Ochoa, Zalathiel ^a   Suarez Rico, Angel ^a   Sanchez Gonzalez, Jorge Manuel ^b   Ramos Remus, Cesar ^a,b  

^a Unidad de Investigacion en Enfermedades Cronico Degenerativas   (Mexico)

^b UNIVERSIDAD AUTÓNOMA DE GUADALAJARA   (Mexico)

Author keywords

Health literacy; Internet; Patient education; Readability; Rheumatoid arthritis; World Wide Web

Indexed keywords

ADVERTISING; ALTERNATIVE MEDICINE; ARTICLE; CLINICAL AUDIT; COMPARATIVE STUDY; CONTROLLED STUDY; CROSS-SECTIONAL STUDY; HEALTH LITERACY; HUMAN; INTERNET; LEADERSHIP; MEDICAL INFORMATION; PATIENT EDUCATION; PRIORITY JOURNAL; READING; RHEUMATOID ARTHRITIS; SEARCH ENGINE; TOTAL QUALITY MANAGEMENT; UNITED STATES; COMPREHENSION; INFORMATION DISSEMINATION;

ARTHRITIS, RHEUMATOID; COMPREHENSION; HUMANS; INFORMATION DISSEMINATION; INTERNET;

EID: 84974834882     PISSN: 01728172     EISSN: 1437160X     Source Type: Journal    
DOI: 10.1007/s00296-016-3507-2     Document Type: Article

References (39)

1. World Health Organization. Health impact assessment (HIA). www.who.int/hia/evidence/doh/en/. Accessed 9 June 2015
2. Callahan LF, Pincus T (1988) Formal education levels as a significant marker of clinical status in rheumatoid arthritis. Arthritis Rheum 31:1346–1357
3. McMullan M (2006) Patients using the Internet to obtain health information: how this affects the patient-health professional relationship. Patient Educ Couns 63:24–28
4. Ha JF, Longnecker N (2010) Doctor-patient communication: a review. Ochsner J 10:38–43
5. Anderson JG (2004) Consumers of e-health: patterns of use and barriers. Soc Sci Comput Rev 22:242–248
6. Hesse BW, Nelson DE, Kreps GL, Croyle RT, Arora NK, Rimer BK et al (2005) Trust and sources of health information: the impact of the internet and its implications for health care providers: findings from the first Health Information National Trends Survey. Arch Intern Med 165:2618–2624
7. Pew Research Center, Internet Science and Tech. Health fact sheet. www.pewinternet.org/fact-sheets/health-fact-sheet/. Accessed 12 June 2015
8. Wood FB, Lyon B, Schell MB, Kitendaugh P, Cid VH, Siegel ER (2000) Public library consumer health information pilot project: results of a National Library of Medicine evaluation. Bull Med Libr Assoc 88:314–322
9. Gordon MM, Capell HA, Madhok R (2002) The use of the Internet as a resource for health information among patients attending a rheumatology clinic. Rheumatology (Oxford) 41:1402–1405
10. Powell JA, Darvell M, Gray JA (2003) The doctor, the patient and the world-wide web: how the internet is changing healthcare. J R Soc Med 96:74–76
11. Sonnenberg FA (1997) Health information on the internet: opportunities and pitfalls. Arch Intern Med 157:151–152
12. Gagliardi A, Jadad AR (2002) Examination of instruments used to rate quality of health information on the internet: chronicle of a voyage with an unclear destination. BMJ 324:569–573
13. Thompson AE, Graydon SL (2009) Patient-oriented methotrexate information sites on the internet: a review of completeness, accuracy, format, reliability, credibility, and readability. J Rheumatol 36:41–49
14. Klareskog L, Catrina AI, Paget S (2009) Rheumatoid arthritis. Lancet 373:659–672
15. Loza E, Jover JA, Rodriguez-Rodriguez L, Carmona L (2008) Observed and expected frequency of comorbid chronic diseases in rheumatic patients. Ann Rheum Dis 67:418–421
16. Ramos-Remus C, Sierra-Jimenez G, Skeith K, Aceves-Avila FJ, Russell AS, Offer R et al (2007) Latitude gradient influences the age of onset in rheumatoid arthritis patients. Clin Rheumatol 26:1725–1728
17. Suarez-Almazor ME, Kendall CJ, Dorgan M (2001) Surfing the net-information on the World Wide Web for persons with arthritis: patient empowerment or patient deceit? J Rheumatol 28:185–191
18. Culver M, Chadwick A (2005) Internet information on rheumatoid arthritis: an evaluation. Musculoskelet Care 3:33–43
19. Richter JG, Becker A, Koch T, Nixdorf M, Schacher B, Monser R, Specker C, Alten R, Schneider M (2009) Internet use in rheumatology outpatients in 2006: gender less important. Clin Exp Rheumatol 27:15–21
20. Eysenbach G, Powell J, Kuss O, Sa ER (2002) Empirical studies assessing the quality of health information for consumers on the World Wide Web. A systematic review. JAMA 287:2691–2700
21. AIRWeb. Adversarial information retrieval on the Web, annual conference. www.nytimes.com/1996/11/11/business/desperately-seeking-surfers.html. Accessed 20 Dec 2015
22. Fox S (2006) Online health search 2006. Pew Internet and American Life Project, Washington, DC. www.pewinternet.org/~/media//Files/Reports/2006/PIP_Online_Health_2006.pdf. Accessed 20 Dec 2015
23. Redish J (2007) Letting go of the words: Writing Web content that works. Elsevier Inc, San Francisco
24. U.S. Department of Health and Human Services. Why design easy-to use Web sites? Office of disease prevention and health promotion; 2010. Health Literacy Online: a guide to writing and designing easy-to-use health Web sites. http://health.gov/healthliteracyonline/2010/why.htm. Accessed 20 Dec 2015
25. Eysenbach G (2001) Consumer health informatics. BMJ 320:1713–1716
26. Health on the Net Foundation. www.hon.ch/pat.html. Accessed 20 Dec 2015
27. eHealth Code of Ethics. iHealthCoalition.org. http://www.ihealthcoalition.org/ehealth-code-of-ethics/. Accessed 20 Dec 2015
28. U.S. National Library of Medicine. MedlinePlus. www.nlm.nih.gov/medlineplus/healthtopics.html. Accessed 20 Dec 2015
29. Netmarketshare. Market share statistics for Internet Technologies. https://www.netmarketshare.com/search-engine-market-share.aspx?qprid=4&qpcustomd=0. Accessed 20 Dec 2015
30. Privax Limited. https://www.hidemyass.com. Accessed 20 May 2015
31. The DISCERN instrument. www.discern.org.uk/discern_instrument.php. Accessed 10 June 2014
32. Microsoft Corporation (US). https://support.office.com/en-us/article/Test-your-document-s-readability-0adc0e9a-b3fb-4bde-85f4-c9e88926c6aa. Accessed 10 May 2015
33. Cialdini RB (2009) Influence. The psychology of persuasion, 3rd edn. HarperCollins e-books, HarperCollins Publishers Inc., New York
34. Ansani NT, Vogt M, Henderson BA, McKaveney TP, Weber RJ, Smith RB et al (2005) Quality of arthritis information on the internet. Am J Health Syst Pharm 62:1184–1189
35. Crystal D (2003) English as a global language, 2nd edn. Cambridge University Press, Cambridge, p 69
36. Ethnologue: Languages of the World, summary by language size. http://www.ethnologue.com/statistics. Accessed 4 Dec 2015
37. Chitika Insights. The value of Google Results Positioning June 7, 2013. http://chitika.com/google-positioning-value. Accessed 22 Dec 2015
38. Rhee RL, Von Feldt JM, Schumacher HR, Merkel PA (2013) Readability and suitability assessment of patient education materials in rheumatic diseases. Arthritis Care Res (Hoboken) 65:1702–1706
39. Graber MA, Roller CM, Kaeble B (1999) Readability levels of patient education materials on the World Wide Web. J Fam Pract 48:58–61