Patient perspectives on sharing anonymized personal health data using a digital system for dynamic consent and research feedback: A qualitative study

Journal of Medical Internet Research

Volumn 18, Issue 4, 2016, Pages

  Spencer, Karen ^a   Sanders, Caroline ^a   Whitley, Edgar A ^b   Lund, David ^c   Kaye, Jane ^d   Dixon, William Gregory ^a,e  

^a UNIVERSITY OF MANCHESTER   (United Kingdom)

^b UNIVERSITY OF LONDON   (United Kingdom)

^c HW COMMUNICATIONS LTD   (United Kingdom)

^d UNIVERSITY OF OXFORD   (United Kingdom)

^e SALFORD ROYAL NHS FOUNDATION TRUST   (United Kingdom)

Author keywords

Consent; Data sharing; EHealth; Public trust

Indexed keywords

ADULT; AGED; ANONYMIZATION; CONFIDENTIALITY; COOPERATION; ELECTRONIC HEALTH RECORD; FEEDBACK SYSTEM; FEMALE; HUMAN; INFORMATION DISSEMINATION; INFORMATION PROCESSING; INTERVIEW; MALE; MIDDLE AGED; QUALITATIVE RESEARCH; SOCIAL BEHAVIOR; TRUST; YOUNG ADULT;

ADULT; AGED; CONFIDENTIALITY; COOPERATIVE BEHAVIOR; DATA ANONYMIZATION; ELECTRONIC HEALTH RECORDS; FEEDBACK; FEMALE; FOCUS GROUPS; HUMANS; INFORMATION DISSEMINATION; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; QUALITATIVE RESEARCH; SOCIAL RESPONSIBILITY; TRUST; YOUNG ADULT;

EID: 84973303729     PISSN: None     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.5011     Document Type: Review

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