Depression among low-income female Muslim Uyghur and Kazakh informal caregivers of disabled elders in far western China: Influence on the caregivers' burden and the disabled elders' quality of life

PLoS ONE

Volumn 11, Issue 5, 2016, Pages

  Wang, Meiyan ^a   He, Bin ^a   Wang, Yuhuan ^a   Wu, Fuchen ^a   Chen, Xuefeng ^a   Wang, Wenting ^a   Yang, Xue ^a  

^a SHIHEZI UNIVERSITY   (China)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CAREGIVER; CAREGIVER BURDEN; CHINA; CORRELATION ANALYSIS; CROSS-SECTIONAL STUDY; DAUGHTER; DEMOGRAPHY; DEPRESSION; DISABILITY SEVERITY; DISABLED PERSON; ELDERLY CARE; FEMALE; HEALTH STATUS; HUMAN; INCOME; KATZ INDEX; KAZAKH (PEOPLE); LOWEST INCOME GROUP; MAJOR CLINICAL STUDY; MIDDLE AGED; MINI MENTAL STATE EXAMINATION; MULTIVARIATE LOGISTIC REGRESSION ANALYSIS; MUSLIM; QUALITY OF LIFE; RISK ASSESSMENT; SELF EVALUATION; SELF-RATING DEPRESSION SCALE; SHORT FORM 36; SOCIAL SUPPORT; UNEMPLOYMENT; UYGUR (PEOPLE); ADOLESCENT; AGED; ECONOMICS; ETHNIC GROUP; ISLAM; MALE; MENTAL HEALTH; POVERTY; PREVALENCE; PSYCHOLOGY; RISK FACTOR; VERY ELDERLY; YOUNG ADULT;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; CHINA; CROSS-SECTIONAL STUDIES; DEPRESSION; DISABLED PERSONS; ETHNIC GROUPS; FEMALE; HUMANS; ISLAM; MALE; MENTAL HEALTH; MIDDLE AGED; POVERTY; PREVALENCE; QUALITY OF LIFE; RISK FACTORS; SOCIAL SUPPORT; YOUNG ADULT;

EID: 84971592184     PISSN: None     EISSN: 19326203     Source Type: Journal    
DOI: 10.1371/journal.pone.0156382     Document Type: Article

References (51)

1. Aggar C, Ronaldson S, Cameron ID. Reactions to caregiving during an intervention targeting frailty in community living older people. BMC Geriatrics. 2012; 12: 66. doi: 10.1186/1471-2318-12-66 PMID: 23095644
2. Gratão ACM, Talmelli LFDS, Figueiredo LC, Rosset I, Freitas CP, Rodrigues RAP. Functional dependency of older individuals and caregiver burden. Rev Esc Enferm USP. 2013; 47(1): 137-144. PMID: 23515813
3. Navaie-Waliser M, Feldman PH, Gould DA, Levine C, Kuerbis AN, Donelan K. When the caregiver needs care: the plight of vulnerable caregivers. Am J Public Health. 2002; 92(3): 409-413. PMID: 11867321
4. Carretero S, Garcés J, Ródenas F, Sanjosé V. The informal caregiver's burden of dependent people: theory and empirical review. Arch Geronto Geriatr. 2009; 49(1): 74-79.
5. Arno PS, Levine C, Memmott MM. The economic value of informal caregiving. Health Aff (Millwood). 1999; 18(2): 182-188.
6. Donelan K, Hill CA, Hoffman C, Scoles K, Feldman PH, Levine C, et al. Challenge to care: informal caregivers in a changing health system. Health Aff. 2002; 21(4): 222-231.
7. Hammond T, Weinberg MK, Cummins R A. The dyadic interaction of relationships and disability type on informal carer subjective well-being. Quality of Life Research2014; 23: 1535-1542. PMID: 24235087
8. Hansen T, Slagsvold B, Ingebretsen R. The strains and gains of caregiving: an examination of the effects of providing personal care to a parent on a range of indicators of psychological well-being. Social indicators research. 2013; 114: 323-343.
9. Mittelman MS, Ferris SH, Shulman E, Steinberg G, Ambinder A, Mackell JA, et al. A comprehensive support program: effect on depression in spouse-caregivers of AD patients. Gerontologist. 1995; 35 (6): 792-802. PMID: 8557206
10. Mittelman MS, Roth DL, Coon DW, Haley WE. Sustained benefit of supportive intervention for depressive symptoms in caregivers of patients with Alzheimer's disease. Am J Psychiatry. 2004; 161: 850-856. PMID: 15121650
11. Mittelman MS, Haley WE, Clay OJ, Roth DL. Improving caregiver well-being delays nursing home placement of patients with Alzheimer disease. Neurology. 2006; 67: 1592-1599. PMID: 17101889
12. Ory MG, Hoffman RR, Yee JL, Tennstedt S, Schulz R. Prevalence and impact of caregiving: a detailed comparison between dementia and nondementia caregivers. Gerontologist. 1999; 39: 177-185. PMID: 10224714
13. Robinson A, Lea E. Seeking respite: issues around the use of day respite care for the carers of people with dementia. Ageing and Society. 2011; 32: 196-218.
14. Lopez-Hartmann M, Wens J, Verhoeven V, Remmen R. The effect of caregiver support interventions for informal caregivers of community-dwelling frail elderly: a systematic review. Int J Integr Care. 2012; 12(5): 133.
15. The "twelfth five-year" plan for Chinese aging development. Available: http://www.chinanews.com.
16. The national aging working committee office. Elderly population reached 2.53 million in xinjiang. 2014.6.18.
17. Yang L, Qin JM. Health services survey in Xinjiangin. Xinjiang urumqi Health science and technology press. 2002.
18. Wu FC, Wang YH, Chen XF. The relationship among the knowledge, attitude and practice of the main caregiver on caregiving the Uygur and Kazak's disability elderly. Chinese Journal of gerontology. 2014; 35(6): 3100-3102.
19. Kagotho N, Ssewamala FM. Correlates of Depression among Caregivers of Children Affected by HIV/AIDS in Uganda: Findings from the Suubi-Maka Family Study. AIDS Care. 2012; 24(10): 1226-1232. doi: 10.1080/09540121.2012.658754 PMID: 22375826
20. Pinquare M, Sorensen S. Gender differences in caregiver stressors,social resoures, and health: An updated meta-analysis.Journals of Gerontology: Series B. Psychological science and social science. 2006; 61(1): 33-45.
21. Yee JL, Schulz R. Gender caregivers:A review and analysis. Gerontologist. 2000; 40(2): 147-164.
22. Niu YF. The necessity and importance in accelerating the development of the economic and social for the minority nationality in xinjiang. The communist party of China (yili committee party school journal). 2010; 2: 41-43.
23. WHO. The world health report 2001 - Mental Health: New Understanding, New Hope. Geneva, Switzerland; 2001.
24. Implementing new agricultural security coverage with 4.3 million farmers and herdsmen in xinjiang. Xin hua internet. 11Augst 2014. Available: http://news.xinhuanet.com/politics/2011-12/20/c-111258495.htm.
25. Pinquare M, Sorensen S. Differences between caregivers and noncaregivers in psychological health and physical health. A meta-analysis. Psychology and Aging. 2003; 18: 250-267.
26. Ferrell BR. End-of-life care:How well do we serve our patients?. Nursing. 1998; 28(9): 58-60. PMID: 9775888
27. Ferrans C. Quality of life: Conceptual issues. Seminars in Oncology Nursing. 1990; 6: 248-254. PMID: 2274721
28. Goode KT, Haley WE, Roth DL, Ford GR. Predicting longitudinal changes in caregiver physical and mental health: A stress process model. Health Psychology. 1998; 17: 190-198. PMID: 9548710
29. Schumacher KL, Dodd MJ, Paul SM. The stress process in family caregivers of persons receiving chemotherapy. Research in Nursing & Health. 1993; 16: 395-404.
30. Lawton MP, Brody EM. Assessment of older people:self-maintaining and instrumental activities of daily living. Gerontologist. 1969; 9: 179-186. PMID: 5349366
31. Zung W W. A rating instrument for anxiety disorders. Psychossomatics. 1971; 12 (6): 371-379.
32. Folstein MF, Folstein SE, McHugh PR. A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res. 1975; 12(3): 189-198. PMID: 1202204
33. Liu JW, Li FY, Lian YL. The reliability validation study of Social support rating scale. Journal of Xinjiang Medical University. 2008; 31(1): 1-3.
34. Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: Correlates of feelings of burden. Gerontologist. 1980; 20: 649-655. PMID: 7203086
35. Wang L, Yang XS, Hou Z, Feng QL, Wan-Jing YE. The application and evaluation on the Chinese version of caregiver burden scale. Chinese Journal of public health. 2006; 22: 970-972.
36. Yang XD, Jiang YF. The commonly used assessment tool care burden for carers of patients with cerebral apoplexy. Chinese Journal of nursing. 2007; 42: 271-274.
37. Toonsiri C, Sunsern R, Lawang W. Development of the burden interview for caregivers of patients with chronic illness. Journal of nursing and education. 2011; 4: 62-75.
38. Ware JE, Sherbourne CD. The RAND-36 Short-form Health Status Survey: 1, Conceptual framework and item selection. Medical Care. 1992; 30(6): 473-481.
39. Brazier E, Harper R, Jones NMB, O'Cathain A, Thomas KJ, Usherwood T, et al. Validating the SF-36 health survey questionnaire: new outcome measure for primary care. BMJ. 1992; 305(6846): 160-164. PMID: 1285753
40. Holland JM, Thompson LW, Tzuang M, Gallagher-Thompson D. Psychosocial factors among Chinese American women dementia caregivers and their association with salivary cortisol: Results of an exploratory study. Ageing International. 2010; 35 (2): 109-127.
41. McCallum TJ, Spencer SM, Goins RT. Lost in summation: depression among african american female caregivers and noncaregivers. Journal of cross-cultural gerontology. 2008; 23(1): 77-84. PMID: 17912623
42. Emerson M. Ethno-Religious Conflict in Europe:Typologies of Radicalization among Europe's Muslim Communities Center for European Policy Studies. 2009.
43. Goldberg A. "Islam in Germany", in Hunter Shireen T.(ed.),Islam, Europe's Second Religion:The New Sociol,Cultural,and Political Landscape, Westport, CT: Praeger, 2002; 29-50.
44. Jenkins R, Lewis G, Bebbington P, Brugha T, Farrell M, Gill B, et al. The national psychiatric morbidity surveys of Great Britain: initial findings from the household survey. Psychological Medicine. 1997; 27 (04): 775-789.
45. Gurland B, Wilder DE, Berkman C. Depression and disability in the elderly: Reciprical relations and changes with age. International Journal of Geriatric Psychiatry. 1988; 3: 163-79.
46. Kuscu MK, Dural U, Önen P, Yaşa Y, Yayla M, Basaran G, et al. The association between individual attachment patterns,the perceived social support,and the psychological wellbeing of Turkish informal caregivers. Psychooncology. 2009; 18(9): 927-935. doi: 10.1002/pon.1441 PMID: 19140124
47. Abulaiti AJ, Zhao FL. The study on the relationship between the traditional endowment of the Xinjiang minority nationality culture and the rural social old-age security in Xinjiang. Northwest Population Journal. 2009; 30: 84-88.
48. Wimo A, Jönsson L, Bond J, Prince M, Winblad B, International AD. The worldwide economic impact of dementia 2010. Alzheimers & Dementia. 2013; 9(1): 1-11.
49. Thompson HE Jr, Futterman A, Gallagher-Thompson D, Rose JM, Lovett SB. Social support and caregiving burden in family caregivers of frail elderly. Journal of Gerontology. 1993; 48: 245-254.
50. Xinjiang foreign cultural exchange association making. Cole Croat folk culture. Xinjiang art photography press; 2006.
51. Neri AL, Yassuda MS, Fortes-Burgos ACG, Mantovani EP, Arbex FS, de Souza Torres SV, et al. Relationships between gender,age,family conditions,physical and mental health,and social isolation of elderly caregivers. International Psychogeriatrics. 2012; 24(3): 472-483. doi: 10.1017/S1041610211001700 PMID: 21929829