Report of the GRAPPA-OMERACT psoriatic arthritis working group from the GRAPPA 2015 Annual Meeting

Journal of Rheumatology

Volumn 43, Issue 5, 2016, Pages 965-969

  Orbai, Ana Maria ^a   Mease, Philip J ^b   De Wit, Maarten ^c   Kalyoncu, Umut ^a,d   Campbell, Willemina ^e   Tillett, William ^f   Eder, Lihi ^e   Elmamoun, Musaab ^g   FitzGerald, Oliver ^g   Gladman, Dafna D ^h   Goel, Niti ⁱ   Gossec, Laure ^j,k   Lindsay, Chris A ^l   Steinkoenig, Ingrid ^m   Helliwell, Philip S ⁿ   McHugh, Neil J ^f   Strand, Vibeke ^o   Ogdie, Alexis ^p  

^a JOHNS HOPKINS UNIVERSITY   (United States)

^b UNIVERSITY OF WASHINGTON SCHOOL OF MEDICINE   (United States)

^c VU Medical Centre   (United States)

^d HACETTEPE UNIVERSITY   (Turkey)

^e TORONTO WESTERN HOSPITAL   (Canada)

^f ROYAL NATIONAL HOSPITAL FOR RHEUMATIC DISEASES   (United Kingdom)

^g ST VINCENT S UNIVERSITY HOSPITAL   (Ireland)

^h UNIVERSITY OF TORONTO   (Canada)

ⁱ DUKE UNIVERSITY SCHOOL OF MEDICINE   (United States)

^j SORBONNE UNIVERSITÉ   (France)

^k PITIÉ SALPÊTRIÈRE HOSPITAL   (France)

^l Cleveland Clinic ^*  (United States)

^m LERNER RESEARCH INSTITUTE   (United States)

ⁿ UNIVERSITY OF LEEDS   (United Kingdom)

^o STANFORD UNIVERSITY   (United States)

^p UNIVERSITY OF PENNSYLVANIA   (United States)

more..

Author keywords

Core set; Outcome measures; Psoriatic arthritis

Indexed keywords

CHECKLIST; CLINICAL ASSESSMENT TOOL; CONFERENCE PAPER; CONSENSUS BASED STANDARDS FOR THE SELECTION OF HEALTH MEASUREMENT INSTRUMENTS; CONSENSUS DEVELOPMENT; CONSTRUCT VALIDITY; CONTENT VALIDITY; DELPHI STUDY; EVIDENCE BASED PRACTICE; HEALTH CARE ORGANIZATION; HEALTH CARE PERSONNEL; HUMAN; OUTCOME ASSESSMENT; OUTCOME MEASUREMENT INSTRUMENT ASSESSMENT; PATIENT REPORTED OUTCOMES MEASUREMENT INFORMATION SYSTEM; PRIORITY JOURNAL; PSORIATIC ARTHRITIS; PSORIATIC ARTHRITIS IMPACT OF DISEASE; QUALITATIVE RESEARCH; QUESTIONNAIRE; RHEUMATOLOGY; WORKSHOP; SEVERITY OF ILLNESS INDEX;

ARTHRITIS, PSORIATIC; HUMANS; OUTCOME ASSESSMENT (HEALTH CARE); SEVERITY OF ILLNESS INDEX;

EID: 84969211029     PISSN: 0315162X     EISSN: 14992752     Source Type: Journal    
DOI: 10.3899/jrheum.160116     Document Type: Conference Paper

References (27)

1. Wells G, Beaton DE, Tugwell P, Boers M, Kirwan JR, Bingham CO 3rd, et al. Updating the OMERACT filter: discrimination and feasibility. J Rheumatol 2014;41:1005-10.
2. Boers M, Kirwan JR, Wells G, Beaton D, Gossec L, d'Agostino MA, et al. Developing core outcome measurement sets for clinical trials: OMERACT filter 2.0. J Clin Epidemiol 2014;67:745-53.
3. Gladman DD, Mease PJ, Strand V, Healy P, Helliwell PS, Fitzgerald O, et al. Consensus on a core set of domains for psoriatic arthritis. J Rheumatol 2007;34:1167-70.
4. de Wit M, Campbell W, FitzGerald O, Gladman DD, Helliwell PS, James J, et al. Patient participation in psoriasis and psoriatic arthritis outcome research: a report from the GRAPPA 2013 Annual Meeting. J Rheumatol 2014;41:1206-11.
5. de Wit M, Campbell W, Orbai AM, Tillett W, Fitzgerald O, Gladman DD, et al. Building bridges between researchers and patient research partners: a report from the GRAPPA 2014 Annual Meeting. J Rheumatol 2015;42:1021-6.
6. Tillett W, Eder L, Goel N, De Wit M, Gladman DD, FitzGerald O, et al. Enhanced patient involvement and the need to revise the core set-report from the psoriatic arthritis working group at OMERACT 2014. J Rheumatol 2015;42:2198-203.
7. de Wit M, Kvien T, Gossec L. Patient participation as an integral part of patient reported outcomes development guarantees the representativeness of the patient voice-A case-study from the field of rheumatology. RMD Open 2015;1e000129 (in press).
8. Tillett W, Adebajo A, Brooke M, Campbell W, Coates LC, FitzGerald O, et al. Patient involvement in outcome measures for psoriatic arthritis. Curr Rheumatol Rep 2014;16:418.
9. Gossec L, de Wit M, Kiltz U, Braun J, Kalyoncu U, Scrivo R, et al. A patient-derived and patient-reported outcome measure for assessing psoriatic arthritis: elaboration and preliminary validation of the Psoriatic Arthritis Impact of Disease (PsAID) questionnaire, a 13-country EULAR initiative. Ann Rheum Dis 2014;73:1012-9.
10. Palominos PE, Gaujoux-Viala C, Fautrel B, Dougados M, Gossec L. Clinical outcomes in psoriatic arthritis: A systematic literature review. Arthritis Care Res 2012;64:397-406.
11. Stamm TA, Nell V, Mathis M, Coenen M, Aletaha D, Cieza A, et al. Concepts important to patients with psoriatic arthritis are not adequately covered by standard measures of functioning. Arthritis Rheum 2007;57:487-94.
12. Taylor WJ, Mease PJ, Adebajo A, Nash PJ, Feletar M, Gladman DD. Effect of psoriatic arthritis according to the affected categories of the international classification of functioning, disability and health. J Rheumatol 2010;37:1885-91.
13. Moverley AR, Vinall-Collier KA, Helliwell PS. It's not just the joints, it's the whole thing: qualitative analysis of patients' experience of flare in psoriatic arthritis. Rheumatology 2015;54:1448-53.
14. Mease PJ. Measures of psoriatic arthritis: Tender and Swollen Joint Assessment, Psoriasis Area and Severity Index (PASI), Nail Psoriasis Severity Index (NAPSI), Modified Nail Psoriasis Severity Index (mNAPSI), Mander/Newcastle Enthesitis Index (MEI), Leeds Enthesitis Index (LEI), Spondyloarthritis Research Consortium of Canada (SPARCC), Maastricht Ankylosing Spondylitis Enthesis Score (MASES), Leeds Dactylitis Index (LDI), Patient Global for Psoriatic Arthritis, Dermatology Life Quality Index (DLQI), Psoriatic Arthritis Quality of Life (PsAQOL), Functional Assessment of Chronic Illness Therapy-Fatigue (FACIT-F), Psoriatic Arthritis Response Criteria (PsARC), Psoriatic Arthritis Joint Activity Index (PsAJAI), Disease Activity in Psoriatic Arthritis (DAPSA), and Composite Psoriatic Disease Activity Index (CPDAI). Arthritis Care Res 2011;63 Suppl 11:S64-85.
15. Terwee CB, Mokkink LB, Knol DL, Ostelo RW, Bouter LM, de Vet HC. Rating the methodological quality in systematic reviews of studies on measurement properties: a scoring system for the COSMIN checklist. Qual Life Res 2012;21:651-7.
16. Terwee CB, Jansma EP, Riphagen, II, de Vet HC. Development of a methodological PubMed search filter for finding studies on measurement properties of measurement instruments. Qual Life Res 2009;18:1115-23.
17. Alonso J, Bartlett SJ, Rose M, Aaronson NK, Chaplin JE, Efficace F, et al. The case for an international patient-reported outcomes measurement information system (PROMIS®) initiative. Health Qual Life Outcomes 2013;11:210.
18. Haverman L, Grootenhuis MA, Raat H, van Rossum MA, van Dulmen-den Broeder E, Hoppenbrouwers K, et al. Dutch-Flemish translation of nine pediatric item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS). Qual Life Res 2016;25:761-5.
19. Broderick JE, Schneider S, Junghaenel DU, Schwartz JE, Stone AA. Validity and reliability of patient-reported outcomes measurement information system instruments in osteoarthritis. Arthritis Care Res 2013;65:1625-33.
20. Hung M, Baumhauer JF, Latt LD, Saltzman CL, SooHoo NF, Hunt KJ. Validation of PROMIS (®) Physical Function computerized adaptive tests for orthopaedic foot and ankle outcome research. Clin Orthop Relat Res 2013;471:3466-74.
21. Jensen RE, Potosky AL, Reeve BB, Hahn E, Cella D, Fries J, et al. Validation of the PROMIS physical function measures in a diverse US population-based cohort of cancer patients. Qual Life Res 2015;24:2333-44.
22. Papuga MO, Beck CA, Kates SL, Schwarz EM, Maloney MD. Validation of GAITRite and PROMIS as high-throughput physical function outcome measures following ACL reconstruction. J Orthop Res 2014;32:793-801.
23. Senders A, Hanes D, Bourdette D, Whitham R, Shinto L. Reducing survey burden: feasibility and validity of PROMIS measures in multiple sclerosis. Mult Scler 2014;20:1102-11.
24. Orbai AM, Bartlett SJ, Duncan T, De Leon E, Jones M, Bingham CO 3rd. Multidimensional health related quality of life assessment using PROMIS measures in psoriatic arthritis flares [abstract]. Ann Rheum Dis 2014;73 Suppl2:1048-9.
25. Tillett W, Eder L, Goel N, De Wit M, Ogdie A, Orbai AM, et al. Review of the psoriatic arthritis working group at OMERACT 12: a report from the GRAPPA 2014 annual meeting. J Rheumatol 2015;42:1048-51.
26. Kirwan JR, Minnock P, Adebajo A, Bresnihan B, Choy E, de Wit M, et al. Patient perspective: fatigue as a recommended patient centered outcome measure in rheumatoid arthritis. J Rheumatol 2007;34:1174-7.
27. Bartlett SJ, Hewlett S, Bingham CO 3rd, Woodworth TG, Alten R, Pohl C, et al. Identifying core domains to assess flare in rheumatoid arthritis: an OMERACT international patient and provider combined Delphi consensus. Ann Rheum Dis 2012;71:1855-60.