Taking our time: Chronic illness and time-based objects in families

CSCW 2015 - Proceedings of the 2015 ACM International Conference on Computer-Supported Cooperative Work and Social Computing

Volumn , Issue , 2015, Pages 288-301

  Barbarin, Andrea ^a   Veinot, Tiffany C ^a   Klasnja, Predrag ^a  

^a UNIVERSITY OF MICHIGAN   (United States)

Author keywords

Calendars; Families; Health Informatics; Medication; Patient Portals; Pill Boxes; Qualitative.; Visual Methods

Indexed keywords

COMPUTER SUPPORTED COOPERATIVE WORK; DISEASES; INTERACTIVE COMPUTER SYSTEMS;

CALENDARS; FAMILIES; HEALTH INFORMATICS; MEDICATION; PATIENT PORTAL; PILL BOXES; QUALITATIVE; VISUAL METHODS;

GROUPWARE;

EID: 84968764308     PISSN: None     EISSN: None     Source Type: Conference Proceeding    
DOI: 10.1145/2675133.2675200     Document Type: Conference Paper

References (63)

1. About GlowCap. Vitality. http://www.vitality.net/glowcaps.html.
2. Bardram, J. Designing for the dynamics of cooperative work activities. In Proc. CSCW 1998, ACM Press (1998), 89-98.
3. Bauer, A. M., Thielke, S. M., Katon, W., Unötzer, J. and Areán, P. Aligning health information technologies with effective service delivery models to improve chronic disease care. Preventive Medicine 66, (2014), 167-172.
4. Birth, K. Objects of time: How things shape temporality. Palgrave Macmillan, New York (2012).
5. Blumenthal, D. and Tavenner, M. The "meaningful use" regulation for electronic health records. New England Journal of Medicine 363, 6 (2010), 501-504.
6. Bødker, S. and Grönvall, E. Calendars: Time coordination and overview in families and beyond. In Proc. ECSCW 2013, Springer (2013), 63-81.
7. Borchard, A., Schwappach, D. L., Barbir, A. and Bezzola, P. A systematic review of the effectiveness, compliance, and critical factors for implementation of safety checklists in surgery. Annals of Surgery 256, 6 (2012), 925-933.
8. Bossen, C., Christensen, L. R., Grönvall, E. and Vestergaard, L. S. CareCoor: Augmenting the coordination of cooperative home care work. International Journal of Medical Informatics 82, 5 (2013), e189-e199.
9. Boutwell, A., Silber, S., Nguyen, D., Ryan, L. and Melville, L. Post-Acute care: What does it have to do with me? Current Emergency and Hospital Medicine Reports 2, 1 (2014), 9-15.
10. Browne, J. L., Ventura, A., Mosely, K. and Speight, J. I call it the blame and shame disease: A qualitative study about perceptions of social stigma surrounding type 2 diabetes. BMJ Open 3, 11 (2013).
11. Charmaz, K. Constructing grounded theory: 2nd Edition. SAGE, Los Angeles (2014).
12. Charmaz, K. Good days, bad days: The self in chronic illness and time. Rutgers University Press, New Brunswick (1991).
13. Chenard, C. The impact of stigma on the self-care behaviors of HIV-positive gay men striving for normalcy. Journal of the Association of Nurses in AIDS Care 18, 3 (2007), 23-32.
14. Colineau, N. and Paris, C. Motivating reflection about health within the family: The use of goal setting and tailored feedback. User Modeling and User-Adapted Interaction 21, 4-5 (2011), 341-376.
15. Collier, J. and Collier, M. Visual anthropology: Photography as a research method. University of New Mexico Press, Albuquerque (1986).
16. Corbin, J. and Strauss, A. Managing chronic illness at home: Three lines of work. Qualitative Sociology 8, 3 (1985), 224-247.
17. Crabtree, A., Hemmings, T., Rodden, T. and Mariani, J. Informing the development of calendar systems for domestic use. In Proc. ECSCW 2003, Springer (2003), 119-138.
18. Crabtree, A. and Rodden, T. Domestic routines and design for the home. Computer Supported Cooperative Work 13, 2 (2004), 191-220.
19. Digital Health Feedback System. Proteus Digital Health. http://www.proteus.com/technology/digitalhealth-feedback-system.
20. Dix, A. Computer supported cooperative work: A framework. In D. Rosenberg and C. Hutchison (eds.) Design issues in CSCW, Springer, New York (1994), 9-26.
21. Dourish, P. Where the action is: The foundations of embodied interaction. MIT Press, Cambridge, Mass. (2004).
22. Elliot, K., Neustaedter, C. and Greenberg, S. Time, ownership and awareness: The value of contextual locations in the home. UbiComp 2005: Ubiquitous Computing Lecture Notes in Computer Science 3660, (2005), 251-268.
23. England, K. Home, work and the shifting geographies of care. Ethics, Place & Environment 13, 2 (2010), 131-150.
24. Eschler, J., Kendall, L., OLeary, K., Vizer, L., Lozano, P., McClure, J., Pratt, W. and Ralston, J. Shared calendars for home health management. In Proc. CSCW 2015, ACM Press (2015).
25. Flaherty, M. G. The textures of time: Agency and temporal experience. Temple University Press, Philadelphia (2011).
26. Fox, S. and Jones, S. The social life of health information, 2011. Pew Research Center & California HealthCare Foundation, Washington, DC (2011).
27. Goldzweig, C. L., Orshansky, G., Paige, N. M., Towfigh, A. A., Haggstrom, D. A., Miake-Lye, I., Beroes, J. M. and Shekelle, P. G. Electronic patient portals: Evidence on health outcomes, satisfaction, efficiency, and attitudes: A systematic review. Annals of Internal Medicine 159, 10 (2013), 677-687.
28. Gomes, B., Calanzani, N. and Higginson, I. J. Reversal of the British trends in place of death: Time series analysis 2004-2010. Palliative Medicine 26, 2 (2012), 102-107.
29. Grimes, A. and Brush, A. Life scheduling to support multiple social roles. In Proc. CHI 2008, ACM Press (2008), 821-824.
30. Grimes, A., Tan, D. and Morris, D. Toward technologies that support family reflections on health. In Proc. GROUP 2009, ACM Press (2009), 311-320.
31. Hansen, S. M., Tolle, S. W. and Martin, D. P. Factors associated with lower rates of in-hospital death. Journal of Palliative Medicine 5, 5 (2002), 677-685.
32. Hartel, J. and Thomson, L. Visual approaches and photography for the study of immediate information space. Journal of the American Society for Information Science and Technology 62, 11 (2011), 2214-2224.
33. Haycock-Stuart, E. and Kean, S. Shifting the balance of care? A qualitative study of policy implementation in community nursing. Journal of Nursing Management 21, 6 (2013), 867-877.
34. How to Help the Community and Provide Caregiver Support. Lotsa Helping Hands. http://www.lotsahelpinghands.com/how-it-works/.
35. Jeffries, A. Smart pill bottle measures meds using touchscreen technology. The Verge. http://www.theverge.com/2012/10/8/3473218/smartpill-bottle-Adheretech-capacitance.
36. Jewitt, C. and Van Leeuwen, T. The handbook of visual analysis. SAGE, London (2001).
37. Khan, D. U., Ananthanarayan, S., Le, A. T., Schaefbauer, C. L. and Siek, K. A. Designing mobile snack application for low socioeconomic status families. In Proc. PervasiveHealth 2012, IEEE (2012), 57-64.
38. Klasnja, P., Civan Hartzler, A., Unruh, K. T. and Pratt, W. Blowing in the wind: Unanchored patient information work during cancer care. In Proc. CHI 2010, ACM Press (2010), 193-202.
39. Klasnja, P., Hartzler, A., Powell, C., Phan, G. and Pratt, W. Health weaver mobile: Designing a mobile tool for managing personal health information during cancer care. In Proc. AMIA Symposium 2010, AMIA (2010), 392-396.
40. Klasnja, P., Hartzler, A., Powell, C. and Pratt, W. Supporting cancer patients unanchored health information management with mobile technology. In Proc. AMIA Symposium 2011, AMIA (2011), 732-741.
41. Kramarow, E., Lentzner, H., Rooks, R., Weeks, J. and Saydah, S. Health, United States, 1999 with health and aging chartbook. National Center for Health Statistics, Hyattsville, MD, United States (1999).
42. Lee, M. L. and Dey, A. K. Real-Time feedback for improving medication taking. In Proc. CHI 2014, ACM Press (2014), 2259-2268.
43. Lee, R., Kochman, A. and Sikkema, K. Internalized stigma among people living with HIV-AIDS. AIDS and Behavior 6, 4 (2002), 309-319.
44. McCoy, L. Time, self and the medication day: A closer look at the everyday work of adherence. Sociology of Health & Illness 31, 1 (2009), 128-146.
45. Meeussen, K., Van Den Block, L., Echteld, M. A., Boffin, N., Bilsen, J., Van Casteren, V., Abarshi, E., Donker, G., Onwuteaka-Philipsen, B. and Deliens, L. End-of-Life care and circumstances of death in patients dying as a result of cancer in Belgium and The Netherlands: A retrospective comparative study. Journal of Clinical Oncology 29, 32 (2011), 4327-4334.
46. Moen, A. and Brennan, P. F. Health@ Home: The work of health information management in the household (HIMH): implications for consumer health informatics (CHI) innovations. Journal of the American Medical Informatics Association 12, 6 (2005), 648-656.
47. Neustaedter, C., Brush, A. and Greenberg, S. The calendar is crucial: Coordination and awareness through the family calendar. ACM Transactions on Computer-Human Interaction 16, 1 (2009), Article No. 6.
48. Palen, L. Social, individual and technological issues for groupware calendar systems. In Proc. CHI 1999, ACM Press (1999), 17-24.
49. Parker, K. and Patten, E. The sandwich generation: Rising financial burdens for middle-Aged Americans. Pew Research Center, Washington, DC (2013).
50. Pink, S. Doing visual ethnography: Images, media, and representation in research. SAGE, London (2007).
51. Pratt, W., Unruh, K., Civan, A. and Skeels, M. M. Personal health information management. Communications of the ACM 49, 1 (2006), 51-55.
52. Shekelle, P., Wachter, R., Pronovost, P., Schoelles, K., McDonald, K., Dy, S., Shojania, K., Reston, J., Berger, Z. and Johnsen, B. Evidence report/technology assessment-No. 211: Making health care safer II: An updated critical analysis of the evidence for patient safety practices. Agency for Healthcare Research and Quality, Rockville, MD, United States (2013).
53. Stawarz, K., Cox, A. and Blandford, A. Don't forget your pill!: Designing effective medication reminder apps that support users' daily routines. In Proc. CHI 2014, ACM Press (2014), 2269-2278.
54. Support for Your Health Journey. Caring Bridge. http://www.caringbridge.org.
55. Thayer, A., Bietz, M. J., Derthick, K. and Lee, C. P. I love you, let's share calendars: Calendar sharing as relationship work. In Proc. CSCW 2012, ACM Press (2012), 749-758.
56. Thoits, P. A. Stress, coping, and social support processes: Where are we? What next? Journal of Health and Social Behavior 35, (1995), 53-79.
57. UMLS: RxNorm. U.S. National Library of Medicine. http://www.nlm.nih.gov/research/umls/rxnorm.
58. Veinot, T. "A lot of people didn't have a chance to support us because we never told them" Stigma management, information poverty and HIV/AIDS information/help networks. In Proc. American Society for Information Science and Technology 2009, Wiley (2009), 1-20.
59. Veinot, T. Power to the patient? A critical examination of patient empowerment discourses. In R. M. Harris, C. N. Wathen and S. Wyatt (eds.) Configuring health consumers: Health work and the imperative of personal responsibility, Palgrave Macmillan, New York (2010), 30-41.
60. Veinot, T. C. E., Kim, Y.-M. and Meadowbrooke, C. C. Health information behavior in families: Supportive or irritating? In Proc. American Society for Information Science and Technology 2011, Wiley (2011), 1-10.
61. Wilson, D. M., Truman, C. D., Thomas, R., Fainsinger, R., Kovacs-Burns, K., Froggatt, K. and Justice, C. The rapidly changing location of death in Canada, 1994-2004. Social Science and Medicine 68, 10 (2009), 1752-1758.
62. Wood, W. and Neal, D. T. A new look at habits and the habit-goal interface. Psychological Review 114, 4 (2007), 843-863.
63. Wood, W., Tam, L. and Witt, M. G. Changing circumstances, disrupting habits. Journal of Personality and Social Psychology 88, 6 (2005), 918-933.