Pediatric End-of-Life Issues and Palliative Care

Clinical Pediatric Emergency Medicine

Volumn 8, Issue 3, 2007, Pages 212-219

  Michelson, Kelly Nicole ^a,b,c   Steinhorn, David M ^a,b  

^a NORTHWESTERN UNIVERSITY   (United States)

^b CHILDREN'S MEMORIAL HOSPITAL   (United States)

^c NORTHWESTERN UNIVERSITY   (United States)

Author keywords

palliative care; pediatric critical care

Indexed keywords

AMITRIPTYLINE; ANALGESIC AGENT; BENZODIAZEPINE DERIVATIVE; FENTANYL; GABAPENTIN; HYDROMORPHONE; IBUPROFEN; KETOROLAC; METHADONE; MORPHINE; OPIATE; OXYCODONE; PARACETAMOL;

ARTICLE; CANCER PAIN; CANCER PATIENT; CHILD CARE; CHILD DEATH; CHILDHOOD MORTALITY; CHRONIC PAIN; DYING; FAMILY CENTERED CARE; HEALTH CARE QUALITY; HOSPICE CARE; HUMAN; INFANT MORTALITY; MEDICAL DECISION MAKING; MEDICAL EDUCATION; MEDICAL INFORMATION; MEDICOLEGAL ASPECT; NEUROPATHIC PAIN; PAIN; PALLIATIVE THERAPY; PATIENT EDUCATION; PSYCHOSOCIAL CARE; QUALITY OF LIFE; SPIRITUAL CARE; TERMINAL CARE; TERMINAL DISEASE;

EID: 35348906098     PISSN: 15228401     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.cpem.2007.06.006     Document Type: Article

References (44)

1. Arnold R.M. Clinical practice guidelines for quality palliative care (2004), National Consensus Project for Quality Palliative Care, Brooklyn, NY
2. Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy, Institute of Medicine. When children die: improving palliative and end-of-life care for children and their families (2003), The National Academies Press, Washington, DC
3. Field M.J., and Cassel C.K. Approaching death: improving care at the end of life (1997), National Academy Press, Washington, DC
4. Emergency Nurses Association. Position statement: end-of-life care in the emergency department. Available at: http://www.ena.org/about/position/PDFs/End-of-LifeCare.PDF. Accessed March 15, 2007.
5. Feudtner C., and Connor S.R. Epidemiology and health services research. In: Carter B.S., and Levetown M. (Eds). Palliative care for infants, children, and adolescents: a practical handbook (2004), The Johns Hopkins University Press, Baltimore, MD 3-22
6. Hoyert D.L., Heron M.P., Murphy S.L., et al. Deaths: final data for 2003. Natl Vital Stat Rep 54 (2006) 1-120
7. Carter B.S., Howenstein M., Gilmer M.J., et al. Circumstances surrounding the deaths of hospitalized children: opportunities for pediatric palliative care. Pediatrics 114 (2004) e361-e366
8. McCallum D.E., Byrne P., and Bruera E. How children die in hospital. J Pain Symptom Manage 20 (2000) 417-423
9. Hamilton B.E., Minino A.M., Martin J.A., et al. Annual summary of vital statistics: 2005. Pediatrics 119 (2007) 345-360
10. Himelstein B.P., Hilden J.M., Boldt A.M., et al. Pediatric palliative care. N Engl J Med 350 (2004) 1752-1762
11. World Health Organization. WHO definition of palliative care. Available at: http://www.who.int/cancer/palliative/definition/en/. Accessed April 5, 2007.
12. Truog R.D., Cist A.F., Brackett S.E., et al. Recommendations for end-of-life care in the intensive care unit: the Ethics Committee of the Society of Critical Care Medicine. Crit Care Med 29 (2001) 2332-2348
13. American Academy of Pediatrics. Committee on Bioethics and Committee on Hospital Care. Palliative care for children. Pediatrics 106 2 Pt 1 (2000) 351-357
14. Sahler O.J., Frager G., Levetown M., et al. Medical education about end-of-life care in the pediatric setting: principles, challenges, and opportunities. Pediatrics 105 3 Pt 1 (2000) 575-584
15. Himelstein B.P. Palliative care for infants, children, adolescents, and their families. J Palliative Med 9 (2006) 163-181
16. Lunney J.R., Lynn J., Foley D.J., et al. Patterns of functional decline at the end of life. JAMA 289 (2003) 2387-2392
17. National Institutes of Health. State-of-the-science conference statement improving end-of-life care. Available at: http://consensus.nih.gov/2004/2004EndOfLifeCareSOS024PDF.pdf. Accessed April 5, 2007.
18. Center for Applied Ethics. The initiative for pediatric palliative care. Available at: http://www.ippcweb.org/. Accessed April 5, 2007.
19. Truog R.D., Meyer E.C., and Burns J.P. Toward interventions to improve end-of-life care in the pediatric intensive care unit. Crit Care Med 34 11 Suppl (2006) S373-S379
20. Browning D.M., and Solomon M.Z. The initiative for pediatric palliative care: an interdisciplinary educational approach for healthcare professionals. J Pediatr Nurs 20 (2005) 326-334
21. Kreicbergs U., Valdimarsdottir U., Onelov E., et al. Talking about death with children who have severe malignant disease. N Engl J Med 351 (2004) 1175-1186
22. Wolfe J., Grier H.E., Klar N., et al. Symptoms and suffering at the end of life in children with cancer. N Engl J Med 342 (2000) 326-333
23. Supporting kids in pain. Information and support for children, teenagers and parents: complex regional pain syndrome. Available at: http://shsskip.swan.ac.uk/Information/Pain%20Terms.htm. Accessed April 5, 2007.
24. World Health Organization. Pain IAftSo: cancer pain relief and palliative care in children (1998), World Health Organization, Geneva
25. Greco C., and Berde C. Pain management for the hospitalized pediatric patient. Pediatr Clin North Am 52 (2005) 995-1027
26. Berde C.B., and Sethna N.F. Analgesics for the treatment of pain in children. N Engl J Med 347 (2002) 1094-1103
27. Sykes N., and Thorns A. The use of opioids and sedatives at the end of life. Lancet Oncology 4 (2003) 312-318
28. Good P.D., Ravenscroft P.J., and Cavenaugh J. Effects of opioids and sedatives on survival in an Australian inpatient palliative care population. Int J Med 35 (2005) 512-517
29. American Pain Society. Definitions related to the use of opioids for the treatment of pain. Available at: http://www.ampainsoc.org/advocacy/opioids2.htm. Accessed April 5, 2007.
30. Puntillo K., Casella V., and Reid M. Opioid and benzodiazepine tolerance and dependence: application of theory to critical care practice. Heart Lung 26 (1997) 317-324
31. Anghelescu D.L., Oakes L., and Hinds P.S. Palliative care and pediatrics. Anesthesiol Clin 24 (2006) 145-161
32. Kazak A.E., Penati B., Brophy P., et al. Pharmacologic and psychologic interventions for procedural pain. Pediatrics 102 1 Pt 1 (1998) 59-66
33. Robinson M.R., Thiel M.M., Backus M.M., et al. Matters of spirituality at the end of life in the pediatric intensive care unit. Pediatrics 118 (2006) e719-e729
34. Sharman M., Meert K.L., and Sarnaik A.P. What influences parents' decisions to limit or withdraw life support?. Pediatr Crit Care Med 6 (2005) 513-518
35. Davies B., Brenner P., Orloff S., et al. Addressing spirituality in pediatric hospice and palliative care. J Palliat Care 18 (2002) 59-67
36. Frader J., and Michelson K. Ethics in pediatric intensive care. In: Fuhrman B., and Zimmerman J. (Eds). Pediatric critical care. 3rd ed (2006), Elsevier, Philadelphia (Pa) 117-125
37. Buchanan A., and Brock D.W. Deciding for others. Milbank Q 64 Suppl. 2 (1986) 17-94
38. Solomon M.Z., Sellers D.E., Heller K.S., et al. New and lingering controversies in pediatric end-of-life care. Pediatrics 116 (2005) 872-883
39. Burns J.P., and Mitchell C. Is there any consensus about end-of-life care in pediatrics?. Arch Pediatr Adolesc Med 159 (2005) 889-891
40. Baverstock A., and Finlay F. Specialist registrars' emotional responses to a patient's death. Arch Dis Child 91 (2006) 774-776
41. Meier D.E., Back A.L., and Morrison R.S. The inner life of physicians and care of the seriously ill. JAMA 286 (2001) 3007-3014
42. Chan G.K. End-of-life models and emergency department care. Acad Emerg Med 11 (2004) 79-86
43. Chan G.K. End-of-life and palliative care in the emergency department: a call for research, education, policy and improved practice in this frontier area. J Emerg Nurs 32 (2006) 101-103
44. O'Malley P. American Academy of Pediatrics Committee on Pediatric Emergency Medicine. Patient- and family-centered care and the role of the emergency physician providing care to a child in the emergency department. Pediatrics 118 5 (2006) 2242-2246