메뉴 건너뛰기




Volumn 7, Issue 3, 2016, Pages 195-202

Community engagement to inform the development of a sickle cell counselor training and certification program in Ghana

(10)  Anie, Kofi A a,k   Treadwell, Marsha J b   Grant, Althea M c   Dennis Antwi, Jemima A d,e   Asafo, Mabel K f   Lamptey, Mary E e,g   Ojodu, Jelili h   Yusuf, Careema h   Otaigbe, Ayo i   Ohene Frempong, Kwaku e,g,j  


Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CERTIFICATION; COMMUNITY CARE; CULTURAL FACTOR; EDUCATION PROGRAM; FAMILY COUNSELING; FEMALE; GENETIC COUNSELING; GHANA; GOVERNMENT; HEALTH PERSONNEL ATTITUDE; HEALTH PROGRAM; HUMAN; LEADERSHIP; MALE; NORMAL HUMAN; PATIENT ADVOCACY; PRIORITY JOURNAL; QUALITATIVE ANALYSIS; RELIGION; SICKLE CELL ANEMIA; SICKLE CELL TRAIT; SOCIAL PSYCHOLOGY; WORKSHOP;

EID: 84964403073     PISSN: 1868310X     EISSN: 18686001     Source Type: Journal    
DOI: 10.1007/s12687-016-0267-3     Document Type: Article
Times cited : (16)

References (28)
  • 1
    • 17244367389 scopus 로고    scopus 로고
    • Campaign to control genetic blood diseases in Bahrain
    • Al AS (2005) Campaign to control genetic blood diseases in Bahrain. Community Genet 8(1):52–55
    • (2005) Community Genet , vol.8 , Issue.1 , pp. 52-55
    • Al, A.S.1
  • 2
    • 84876062205 scopus 로고    scopus 로고
    • Routine paediatric sickle cell disease (SCD) outpatient care in a rural Kenyan hospital: utilization and costs
    • COI: 1:CAS:528:DC%2BC3sXmsVKqtLk%3D, PID: 23593408
    • Amendah DD, Mukamah G, Komba A, Ndila C, Williams TN (2013) Routine paediatric sickle cell disease (SCD) outpatient care in a rural Kenyan hospital: utilization and costs. PLoS One 8:e61130
    • (2013) PLoS One , vol.8 , pp. e61130
    • Amendah, D.D.1    Mukamah, G.2    Komba, A.3    Ndila, C.4    Williams, T.N.5
  • 3
    • 0037296732 scopus 로고    scopus 로고
    • Women with sickle cell trait: reproductive decision-making
    • Asgharian A, Anie KA, Berger M (2003) Women with sickle cell trait: reproductive decision-making. J Reprod Infant Psychol 21(1):23–34
    • (2003) J Reprod Infant Psychol , vol.21 , Issue.1 , pp. 23-34
    • Asgharian, A.1    Anie, K.A.2    Berger, M.3
  • 4
    • 0018944298 scopus 로고
    • Genetic counselling in beta thalassemia in Ferrara
    • COI: 1:STN:280:DyaL3M7hvV2lsw%3D%3D, PID: 7463014
    • Barrai I, Vullo C (1980) Genetic counselling in beta thalassemia in Ferrara. J Genet Hum 28(2):97–104
    • (1980) J Genet Hum , vol.28 , Issue.2 , pp. 97-104
    • Barrai, I.1    Vullo, C.2
  • 5
    • 78049442101 scopus 로고    scopus 로고
    • Prenatal genetic counseling in cross-cultural medicine: a framework for family physicians
    • PID: 20944039
    • Bhogal AK, Brunger F (2010) Prenatal genetic counseling in cross-cultural medicine: a framework for family physicians. Can Fam Physician 56(10):993–999
    • (2010) Can Fam Physician , vol.56 , Issue.10 , pp. 993-999
    • Bhogal, A.K.1    Brunger, F.2
  • 6
    • 84896987384 scopus 로고    scopus 로고
    • Management of sickle cell disease in the community
    • Brousse V, Makali J, Rees DC (2014) Management of sickle cell disease in the community. Br Med J 348:g1765
    • (2014) Br Med J , vol.348 , pp. g1765
    • Brousse, V.1    Makali, J.2    Rees, D.C.3
  • 7
    • 85044805921 scopus 로고    scopus 로고
    • Healthcare provision for sickle cell disease in Ghana: challenges for the African context
    • Dennis-Antwi JA, Dyson S, Ohene-Frempong K (2008) Healthcare provision for sickle cell disease in Ghana: challenges for the African context. Divers Health Soc Care 5:241–254
    • (2008) Divers Health Soc Care , vol.5 , pp. 241-254
    • Dennis-Antwi, J.A.1    Dyson, S.2    Ohene-Frempong, K.3
  • 9
    • 81355163446 scopus 로고    scopus 로고
    • Sickle cell disease in Africa: a neglected cause of early childhood mortality
    • PID: 22099364
    • Grosse SD, Odame I, Atrash HK, Amendah DD, Piel FB et al (2011) Sickle cell disease in Africa: a neglected cause of early childhood mortality. Am J Prev Med 41(6 Suppl 4):S398–S405
    • (2011) Am J Prev Med , vol.41 , pp. S398-S405
    • Grosse, S.D.1    Odame, I.2    Atrash, H.K.3    Amendah, D.D.4    Piel, F.B.5
  • 10
    • 58349116228 scopus 로고    scopus 로고
    • Neonatal haemoglobinopathy screening in Burkina Faso
    • COI: 1:STN:280:DC%2BD1M%2FgslyksA%3D%3D, PID: 19103858
    • Kafando E, Nacoulma E, Ouattara Y et al (2009) Neonatal haemoglobinopathy screening in Burkina Faso. J Clin Pathol 62(1):39–41
    • (2009) J Clin Pathol , vol.62 , Issue.1 , pp. 39-41
    • Kafando, E.1    Nacoulma, E.2    Ouattara, Y.3
  • 11
    • 79961152774 scopus 로고    scopus 로고
    • All her children are born that way”: gendered experiences of stigma in families affected by sickle cell disorder in rural Kenya
    • PID: 21797722
    • Marsh V, Kamuya DM, Malyneux SS (2011) “All her children are born that way”: gendered experiences of stigma in families affected by sickle cell disorder in rural Kenya. Ethn Health 16(4–5):343–359
    • (2011) Ethn Health , vol.16 , Issue.4-5 , pp. 343-359
    • Marsh, V.1    Kamuya, D.M.2    Malyneux, S.S.3
  • 12
    • 84885345351 scopus 로고    scopus 로고
    • Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya
    • PID: 24125465
    • Marsh V, Kombe F, Fitzpatrick R, Williams TN, Parker M, Molyneux S (2013) Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya. BMC Med Ethics 14:41
    • (2013) BMC Med Ethics , vol.14 , pp. 41
    • Marsh, V.1    Kombe, F.2    Fitzpatrick, R.3    Williams, T.N.4    Parker, M.5    Molyneux, S.6
  • 14
    • 84979575244 scopus 로고    scopus 로고
    • Cost-effectiveness of neonatal screening for sickle cell disease in the republic of Angola
    • McGann PT, Santos B, de Oliveira V, Bernardino L, Ware RE, Grosse SD (2013b) Cost-effectiveness of neonatal screening for sickle cell disease in the republic of Angola. Blood 122(21):421
    • (2013) Blood , vol.122 , Issue.21 , pp. 421
    • McGann, P.T.1    Santos, B.2    de Oliveira, V.3    Bernardino, L.4    Ware, R.E.5    Grosse, S.D.6
  • 15
  • 16
    • 44949128064 scopus 로고    scopus 로고
    • Global epidemiology of haemoglobin disorders and derived service indicators
    • PID: 18568278
    • Modell B, Darlison M (2008) Global epidemiology of haemoglobin disorders and derived service indicators. Bull World Health Organ 86(6):480–487
    • (2008) Bull World Health Organ , vol.86 , Issue.6 , pp. 480-487
    • Modell, B.1    Darlison, M.2
  • 17
    • 34848889949 scopus 로고    scopus 로고
    • Neonatal screening for sickle cell disease in Central Africa: a study of 1825 newborns with a new enzyme-linked immunosorbent assay test
    • PID: 17925082
    • Mutesa L, Boemer F, Ngendahayo L et al (2007) Neonatal screening for sickle cell disease in Central Africa: a study of 1825 newborns with a new enzyme-linked immunosorbent assay test. J Med Screen 14(3):113–6
    • (2007) J Med Screen , vol.14 , Issue.3 , pp. 113-116
    • Mutesa, L.1    Boemer, F.2    Ngendahayo, L.3
  • 18
    • 84979625832 scopus 로고    scopus 로고
    • NSGC Code of Ethics. [http://nsgc.org/p/cm/ld/fid=12] Published 2006
    • National Society of Genetic Counselors: NSGC Code of Ethics. [http://nsgc.org/p/cm/ld/fid=12] Published 2006. Accessed February 22, 2016
    • (2016) Accessed February , pp. 22
  • 19
    • 51249095001 scopus 로고    scopus 로고
    • Screening newborns for sickle cell disease in Ghana
    • Ohene-Frempong K, Oduro J, Tetteh H, Nkrumah F (2008) Screening newborns for sickle cell disease in Ghana. Pediatrics 121:S120–S121
    • (2008) Pediatrics , vol.121 , pp. S120-S121
    • Ohene-Frempong, K.1    Oduro, J.2    Tetteh, H.3    Nkrumah, F.4
  • 20
    • 84979589689 scopus 로고    scopus 로고
    • Knowledge and attitude of youth corps members in Lagos to sickle cell disease
    • Olatona FA, Odeyemi KA (2010) Knowledge and attitude of youth corps members in Lagos to sickle cell disease. Trop J Health Sci 17(2):60989
    • (2010) Trop J Health Sci , vol.17 , Issue.2 , pp. 60989
    • Olatona, F.A.1    Odeyemi, K.A.2
  • 21
    • 84922379466 scopus 로고    scopus 로고
    • Effects of health education on knowledge and attitude of youth corps members to sickle cell disease and its screening in Lagos state
    • Olatona FA, Odeyemi KA, Onajole AT, Asuzu MC (2012) Effects of health education on knowledge and attitude of youth corps members to sickle cell disease and its screening in Lagos state. J Community Med Health Educ 2(7):163
    • (2012) J Community Med Health Educ , vol.2 , Issue.7 , pp. 163
    • Olatona, F.A.1    Odeyemi, K.A.2    Onajole, A.T.3    Asuzu, M.C.4
  • 22
    • 84872062977 scopus 로고    scopus 로고
    • Global epidemiology of sickle haemoglobin in neonates: contemporary geostatistical model-based map and population estimates
    • PID: 23103089
    • Piel FB, Patil AP, Howes RE et al (2013) Global epidemiology of sickle haemoglobin in neonates: contemporary geostatistical model-based map and population estimates. Lancet 381(9861):142–151
    • (2013) Lancet , vol.381 , Issue.9861 , pp. 142-151
    • Piel, F.B.1    Patil, A.P.2    Howes, R.E.3
  • 23
    • 58349100878 scopus 로고    scopus 로고
    • Newborn screening for sickle cell disease in the Republic of Benin
    • COI: 1:STN:280:DC%2BD1M%2Fgslyktg%3D%3D, PID: 19103860
    • Rahimy MC, Gangbo A, Ahouignan G, Alihonou E (2009) Newborn screening for sickle cell disease in the Republic of Benin. J Clin Pathol 62(1):46–48
    • (2009) J Clin Pathol , vol.62 , Issue.1 , pp. 46-48
    • Rahimy, M.C.1    Gangbo, A.2    Ahouignan, G.3    Alihonou, E.4
  • 24
    • 84925243688 scopus 로고    scopus 로고
    • Using formative research to develop a counselor training program for newborn screening in Ghana
    • PID: 25193810
    • Treadwell MJ, Anie KA, Grant AM, Ofori-Acquah SF, Ohene-Frempong K (2015) Using formative research to develop a counselor training program for newborn screening in Ghana. J Genet Couns 24(2):267–77
    • (2015) J Genet Couns , vol.24 , Issue.2 , pp. 267-277
    • Treadwell, M.J.1    Anie, K.A.2    Grant, A.M.3    Ofori-Acquah, S.F.4    Ohene-Frempong, K.5
  • 25
    • 58349117668 scopus 로고    scopus 로고
    • Neonatal screening for sickle cell anaemia in the Democratic Republic of the Congo: experience from a pioneer project on 31204 newborns
    • COI: 1:STN:280:DC%2BD1M%2Fgslyksw%3D%3D, PID: 19103857
    • Tshilolo L, Aissi LM, Lukusa D et al (2009) Neonatal screening for sickle cell anaemia in the Democratic Republic of the Congo: experience from a pioneer project on 31204 newborns. J Clin Pathol 62(1):35–38
    • (2009) J Clin Pathol , vol.62 , Issue.1 , pp. 35-38
    • Tshilolo, L.1    Aissi, L.M.2    Lukusa, D.3
  • 26
    • 70049100210 scopus 로고    scopus 로고
    • The role of religious leaders and faith organisations in haemoglobinopathies: a review
    • PID: 19682389
    • Toni-Uebari TK, Inusa BPD (2009) The role of religious leaders and faith organisations in haemoglobinopathies: a review. BMC Blood Disord 9:6. doi:10.1186/1471-2326-9-6
    • (2009) BMC Blood Disord , vol.9 , pp. 6
    • Toni-Uebari, T.K.1    Inusa, B.P.D.2
  • 27
    • 84979614133 scopus 로고    scopus 로고
    • Sixty-third General Assembly, 2008. [www.worldlii.org/int/other/UNGARsn/2008/277.pdf] Published 2009
    • United Nations General Assembly. Recognition of sickle-cell anaemia as a public health problem. Sixty-third General Assembly, 2008. [www.worldlii.org/int/other/UNGARsn/2008/277.pdf] Published 2009. Accessed February 22, 2016
    • (2016) Accessed February , pp. 22
  • 28
    • 84979575217 scopus 로고    scopus 로고
    • Sickle-Cell Anaemia Report by the Secretariat. Fifty Ninth World Health Assembly 2006. [http://apps.who.int/gb/ebwha/pdf_files/WHA59/A59_9-en.pdf] Published 2006
    • World Health Organisation. Sickle-Cell Anaemia Report by the Secretariat. Fifty Ninth World Health Assembly 2006. [http://apps.who.int/gb/ebwha/pdf_files/WHA59/A59_9-en.pdf] Published 2006. Accessed February 22, 2016
    • (2016) Accessed February , pp. 22


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.