Common Components of Efficacious In-Home End-of-Life Care Programs: A Review of Systematic Reviews

Journal of the American Geriatrics Society

Volumn 64, Issue 3, 2016, Pages 632-639

  Bainbridge, Daryl ^a   Seow, Hsien ^a,b   Sussman, Jonathan ^a,b  

^a MCMASTER UNIVERSITY   (Canada)

^b Escarpment Cancer Research Institute   (Canada)

Author keywords

end of life; homecare; outcomes; palliative care

Indexed keywords

CINAHL; COCHRANE LIBRARY; COST CONTROL; COST EFFECTIVENESS ANALYSIS; DATA BASE; HEALTH CARE PERSONNEL; HEALTH PROGRAM; HOLISTIC CARE; HOME CARE; HUMAN; PAIN; PALLIATIVE THERAPY; PSYCHOSOCIAL CARE; QUANTITATIVE STUDY; RANDOMIZED CONTROLLED TRIAL (TOPIC); REVIEW; SYMPTOM; SYSTEMATIC REVIEW; TERMINAL CARE; AGED; LITERATURE; OUTCOME ASSESSMENT; STANDARDS;

AGED; HOME CARE SERVICES; HUMANS; PATIENT OUTCOME ASSESSMENT; REVIEW LITERATURE AS TOPIC; TERMINAL CARE;

EID: 84961793456     PISSN: 00028614     EISSN: 15325415     Source Type: Journal    
DOI: 10.1111/jgs.14025     Document Type: Review

References (63)

1. Genet N, Boerma WG, Kringos DS, et al., Home care in Europe: A systematic literature review. BMC Health Serv Res 2011; 11: 207.
2. Shaw KL, Clifford C, Thomas K, et al., Review: Improving end-of-life care: A critical review of the gold standards framework in primary care. Palliat Med 2010; 24: 317-329.
3. Davies E, Higginson IJ, eds. Palliative Care. The Solid Facts. Denmark: WHO, 2004 [on-line]. Available at http://www.euro.who.int/-data/assets/pdf-file/0003/98418/E82931.pdf Accessed November 1, 2014.
4. Watson M, Lucas C, Hoy A, et al., Oxford Handbook of Palliative Care. New York: Oxford University Press, 2005.
5. Fassbender K, Fainsinger RL, Carson M, et al., Cost trajectories at the end of life: The Canadian experience. J Pain Symptom Manage 2009; 38: 75-80.
6. Zhang B, Wright AA, Huskamp HA, et al., Health care costs in the last week of life: Associations with end-of-life conversations. Arch Intern Med 2009; 169: 480-488.
7. Goldsmith B, Dietrich J, Du Q, et al., Variability in access to hospital palliative care in the United States. J Palliat Med 2008; 11: 1094-1102.
8. Gomes B, Higginson IJ, Calanzani N, et al., Preferences for place of death if faced with advanced cancer: A population survey in England, Flanders, Germany, Italy, the Netherlands. Portugal and Spain. Ann Oncol 2012; 23: 2006-2015.
9. Higginson IJ, Evans CJ,. What is the evidence that palliative care teams improve outcomes for cancer patients and their families? Cancer J 2010; 16: 423-435.
10. Thome B, Dykes AK, Hallberg IR,. Home care with regard to definition, care recipients, content and outcome: Systematic literature review. J Clin Nurs 2003; 12: 860-872.
11. Tarricone R, Tsouros A, eds. Home Care in Europe. Copenhagen, Denmark: World Health Organization, 2008.
12. Development of National Indicators and Reports for Home Care: Phase 2 Final Project Report. Ottawa, ON: Canadian Institute for Health Information, 2004.
13. End of Life Care Strategy: Promoting High Quality Care for All Adults at the End of Life. London, UK: Department of Health, 2008.
14. National EOL Framework Forum. Health System Reform and Care at the End of Life: A Guidance Document. Canberra, Australia: Palliative Care Australia, 2010.
15. Ferris FD, Balfour HM, Bowen K, et al., A Model to Guide Hospice Palliative Care: Based on National Principles and Norms of Practice. Ottawa, ON: Canadian Hospice Palliative Care Association, 2004.
16. National Consensus Project for Quality Palliative Care Clinical Practice Guidelines for Quality Palliative Care, 3rd Edition 2013. National Consensus Project [on-line]. Available at http://www.nationalconsensusproject.org/Guidelines-Download2.aspx Accessed November 1, 2014.
17. Gomes B, Calanzani N, Higginson IJ,. Benefits and costs of home palliative care compared with usual care for patients with advanced illness and their family caregivers. JAMA 2014; 311: 1060-1061.
18. Brumley R, Enguidanos S, Jamison P, et al., Increased satisfaction with care and lower costs: Results of a randomized trial of in-home palliative care. J Am Geriatr Soc 2007; 55: 993-1000.
19. Candy B, Holman A, Leurent B, et al., Hospice care delivered at home, in nursing homes and in dedicated hospice facilities: A systematic review of quantitative and qualitative evidence. Int J Nurs Stud 2011; 48: 121-133.
20. Luckett T, Davidson PM, Lam L, et al., Do community specialist palliative care services that provide home nursing increase rates of home death for people with life-limiting illnesses? A systematic review and meta-analysis of comparative studies. J Pain Symptom Manage 2013; 45: 279-297.
21. Smith S, Brick A, O'Hara S, et al., Evidence on the cost and cost-effectiveness of palliative care: A literature review. Palliat Med 2014; 28: 130-150.
22. Von Roenn JH, Temel J,. The integration of palliative care and oncology: The evidence. Oncology 2011; 25: 1258-1264.
23. Gomes B, Calanzani N, Curiale V, et al., Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers. Cochrane Database Syst Rev 2013; 6: CD007760.
24. Higginson IJ, Finlay IG, Goodwin DM, et al., Is there evidence that palliative care teams alter end-of-life experiences of patients and their caregivers? J Pain Symptom Manage 2003; 25: 150-168.
25. McWhinney IR, Bass MJ, Donner A,. Evaluation of a palliative care service: Problems and pitfalls. BMJ 1994; 309: 1340-1342.
26. Chan R, Webster J,. End-of-life care pathways for improving outcomes in caring for the dying. Cochrane Database Syst Rev 2013; 11: CD008006.
27. Dy SM, Shugarman LR, Lorenz KA, et al., A systematic review of satisfaction with care at the end of life. J Am Geriatr Soc 2008; 56: 124-129.
28. Evans R, Stone D, Elwyn G,. Organizing palliative care for rural populations: A systematic review of the evidence. Fam Pract 2003; 20: 304-310.
29. Garcia-Perez L, Linertova R, Martin-Olivera R, et al., A systematic review of specialised palliative care for terminal patients: Which model is better? Palliat Med 2009; 23: 17-22.
30. Harding R, Higginson IJ,. What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. Palliat Med 2003; 17: 63-74.
31. Harding R, Karus D, Easterbrook P, et al., Does palliative care improve outcomes for patients with HIV/AIDS? A systematic review of the evidence. Sex Transm Infect 2005; 81: 5-14.
32. Harding R, List S, Epiphaniou E, et al., How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness. Palliat Med 2012; 26: 7-22.
33. Lorenz KA, Lynn J, Dy SM, et al., Evidence for improving palliative care at the end of life: A systematic review. Ann Intern Med 2008; 148: 147-159.
34. Shepperd S, Wee B, Straus SE,. Hospital at home: Home-based end of life care. Cochrane Database Syst Rev 2011; 6: CD009231.
35. Thomas RE, Wilson D, Sheps S,. A literature review of randomized controlled trials of the organization of care at the end of life. Can J Aging 2006; 25: 271-293.
36. Zimmermann C, Riechelmann R, Krzyzanowska M, et al., Effectiveness of specialized palliative care: A systematic review. JAMA 2008; 299: 1698-1709.
37. Cassel JB, Kerr K, Pantilat S, et al., Palliative care consultation and hospital length of stay. J Palliat Med 2010; 13: 761-767.
38. El-Jawahri A, Greer JA, Temel JS,. Does palliative care improve outcomes for patients with incurable illness? A review of the evidence. J Support Oncol 2011; 9: 87-94.
39. Addington-Hall JM, MacDonald LD, Anderson HR, et al., Randomised controlled trial of effects of coordinating care for terminally ill cancer patients. BMJ 1992; 305: 1317-1322.
40. Aiken LS, Butner J, Lockhart CA, et al., Outcome evaluation of a randomized trial of the PhoenixCare intervention: Program of case management and coordinated care for the seriously chronically ill. J Palliat Med 2006; 9: 111-126.
41. Bakitas M, Lyons KD, Hegel MT, et al., Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: The Project ENABLE II randomized controlled trial. JAMA 2009; 302: 741-749.
42. Cummings JE, Hughes SL, Weaver FM, et al., Cost-effectiveness of Veterans Administration hospital-based home care. A randomized clinical trial. Arch Intern Med 1990; 150: 1274-1280.
43. Higginson IJ, McCrone P, Hart SR, et al., Is short-term palliative care cost-effective in multiple sclerosis? A randomized phase II trial. J Pain Symptom Manage 2009; 38: 816-826.
44. Hughes SL, Cummings J, Weaver F, et al., A randomized trial of the cost effectiveness of VA hospital-based home care for the terminally ill. Health Serv Res 1992; 26: 801-817.
45. Hughes SL, Weaver FM, Giobbie-Hurder A, et al., Effectiveness of team-managed home-based primary care: A randomized multicenter trial. JAMA 2000; 284: 2877-2885.
46. McCorkle R, Benoliel JQ, Donaldson G, et al., A randomized clinical trial of home nursing care for lung cancer patients. Cancer 1989; 64: 1375-1382.
47. Raftery JP, Addington-Hall JM, MacDonald LD, et al., A randomized controlled trial of the cost-effectiveness of a district co-ordinating service for terminally ill cancer patients. Palliat Med 1996; 10: 151-161.
48. Ringdal GI, Jordhoy MS, Kaasa S,. Family satisfaction with end-of-life care for cancer patients in a cluster randomized trial. J Pain Symptom Manage 2002; 24: 53-63.
49. Zimmer JG, Groth-Juncker A, McCusker J,. Effects of a physician-led home care team on terminal care. J Am Geriatr Soc 1984; 32: 288-292.
50. Zimmer JG, Groth-Juncker A, McCusker J,. A randomized controlled study of a home health care team. Am J Public Health 1985; 75: 134-141.
51. Dessloch A, Maiworm M, Florin I, et al., Hospital care versus home nursing: On the quality of life of terminal tumor patients. Psychother Psychosom Med Psychol 1992; 42: 424-429.
52. Kodner DL,. All together now: A conceptual exploration of integrated care. Healthc Q 2009; 13: 6-15.
53. Bloom BS, Kissick PD,. Home and hospital cost of terminal illness. Med Care 1980; 18: 560-564.
54. Koffman J, Higginson I, Naysmith A,. Hospice at home-a new service for patients with advanced HIV/AIDS: A pilot evaluation of referrals and outcomes. Br J Gen Pract 1996; 46: 539-540.
55. Kusajima E, Kawa M, Miyashita M, et al., Prospective evaluation of transition to specialized home palliative care in Japan. Am J Hosp Palliat Care 2009; 26: 172-179.
56. Mercadante S, Fulfaro F, Casuccio A,. The impact of home palliative care on symptoms in advanced cancer patients. Support Care Cancer 2000; 8: 307-310.
57. Miccinesi G, Crocetti E, Morino P, et al., Palliative home care reduces time spent in hospital wards: A population-based study in the Tuscany region. Italy. Cancer Causes Control 2003; 14: 971-977.
58. Serra-Prat M, Gallo P, Picaza JM,. Home palliative care as a cost-saving alternative: Evidence from Catalonia. Palliat Med 2001; 15: 271-278.
59. Sessa C, Roggero E, Pampallona S, et al., The last 3 months of life of cancer patients: Medical aspects and role of home-care services in southern Switzerland. Support Care Cancer 1996; 4: 180-185.
60. Shnoor Y, Szlaifer M, Aoberman AS, et al., The cost of home hospice care for terminal patients in Israel. Am J Hosp Palliat Care 2007; 24: 284-290.
61. Singer Y, Bachner YG, Shvartzman P, et al., Home death-the caregivers' experiences. J Pain Symptom Manage 2005; 30: 70-74.
62. Tamir O, Singer Y, Shvartzman P,. Taking care of terminally-ill patients at home-the economic perspective revisited. Palliat Med 2007; 21: 537-541.
63. Robinson-White S, Conroy B, Slavish KH, et al., Patient navigation in breast cancer: A systematic review. Cancer Nurs 2010; 33: 127-140.