-
1
-
-
84962545450
-
Individual DNA samples and health information sold by 23andMe
-
Adam S., Friedman J.M. Individual DNA samples and health information sold by 23andMe. Genet. Med. 2015, 10-11. 10.1038/gim.2015.82.
-
(2015)
Genet. Med.
-
-
Adam, S.1
Friedman, J.M.2
-
2
-
-
84872776619
-
23 and Me, We, and You: direct-to-consumer genetics, intellectual property, and informed consent
-
Allyse M. 23 and Me, We, and You: direct-to-consumer genetics, intellectual property, and informed consent. Trends Biotechnol. 2013, 31:68-69. 10.1016/j.tibtech.2012.11.007.
-
(2013)
Trends Biotechnol.
, vol.31
, pp. 68-69
-
-
Allyse, M.1
-
3
-
-
84905925219
-
Informed consent in direct-to-consumer personal genome testing: the outline of a model between specific and generic consent
-
Bunnik E.M., Janssens A.C.J.W., Schermer M.H.N. Informed consent in direct-to-consumer personal genome testing: the outline of a model between specific and generic consent. Bioethics 2014, 28:343-351. 10.1111/bioe.12004.
-
(2014)
Bioethics
, vol.28
, pp. 343-351
-
-
Bunnik, E.M.1
Janssens, A.C.J.W.2
Schermer, M.H.N.3
-
4
-
-
84944160344
-
From the bench to the bedside in the big data age: ethics and practices of consent and privacy for clinical genomics and personalized medicine
-
Chow-White P.A., MacAulay M., Charters A., Chow P. From the bench to the bedside in the big data age: ethics and practices of consent and privacy for clinical genomics and personalized medicine. Ethics Inf. Technol. 2015, 10.1007/s10676-015-9373-x.
-
(2015)
Ethics Inf. Technol.
-
-
Chow-White, P.A.1
MacAulay, M.2
Charters, A.3
Chow, P.4
-
5
-
-
78549241587
-
Statement of the ESHG on direct-to-consumer genetic testing for health-related purposes
-
European Society of Human Genetics Statement of the ESHG on direct-to-consumer genetic testing for health-related purposes. Eur. J. Hum. Genet. 2010, 18:1271-1273. 10.1038/ejhg.2010.129.
-
(2010)
Eur. J. Hum. Genet.
, vol.18
, pp. 1271-1273
-
-
-
6
-
-
84871195411
-
Publics and biobanks: Pan-European diversity and the challenge of responsible innovation
-
Gaskell G., Gottweis H., Starkbaum J., Gerber M.M., Broerse J., Gottweis U., Hobbs A., Helén I., Paschou M., Snell K., Soulier A. Publics and biobanks: Pan-European diversity and the challenge of responsible innovation. Eur. J. Hum. Genet. 2012, 14-20. 10.1038/ejhg.2012.104.
-
(2012)
Eur. J. Hum. Genet.
-
-
Gaskell, G.1
Gottweis, H.2
Starkbaum, J.3
Gerber, M.M.4
Broerse, J.5
Gottweis, U.6
Hobbs, A.7
Helén, I.8
Paschou, M.9
Snell, K.10
Soulier, A.11
-
7
-
-
77954157547
-
Consent and internet-enabled human genomics
-
Gibson G., Copenhaver G.P. Consent and internet-enabled human genomics. PLoS Genet. 2010, 6:1-3. 10.1371/journal.pgen.1000965.
-
(2010)
PLoS Genet.
, vol.6
, pp. 1-3
-
-
Gibson, G.1
Copenhaver, G.P.2
-
8
-
-
84872459720
-
Identifying personal genomes by surname inference
-
Gymrek M., McGuire A.L., Golan D., Halperin E., Erlich Y. Identifying personal genomes by surname inference. Science 2013, 339:321-324. 10.1126/science.1229566.
-
(2013)
Science
, vol.339
, pp. 321-324
-
-
Gymrek, M.1
McGuire, A.L.2
Golan, D.3
Halperin, E.4
Erlich, Y.5
-
9
-
-
77955055658
-
Blurring lines. The research activities of direct-to-consumer genetic testing companies raise questions about consumers as research subjects
-
Howard H.C., Knoppers B.M., Borry P. Blurring lines. The research activities of direct-to-consumer genetic testing companies raise questions about consumers as research subjects. EMBO Rep. 2010, 11:579-582. 10.1038/embor.2010.105.
-
(2010)
EMBO Rep.
, vol.11
, pp. 579-582
-
-
Howard, H.C.1
Knoppers, B.M.2
Borry, P.3
-
10
-
-
84960492894
-
The convergence of direct-to-consumer genetic testing companies and biobanking activities
-
Routledge, New York, 5, M. Wienroth, E. Rodrigues (Eds.)
-
Howard H.C., Sterckx S., Cockbain J., Cambon-Thomsen A., Borry P. The convergence of direct-to-consumer genetic testing companies and biobanking activities. Knowing New Biotechnologies: Social Aspects of Technological Convergence 2015, 59-74. Routledge, New York, 5. M. Wienroth, E. Rodrigues (Eds.).
-
(2015)
Knowing New Biotechnologies: Social Aspects of Technological Convergence
, pp. 59-74
-
-
Howard, H.C.1
Sterckx, S.2
Cockbain, J.3
Cambon-Thomsen, A.4
Borry, P.5
-
12
-
-
84994604244
-
Direct-to-consumer genetic testing
-
John Wiley & Sons, Ltd., Chichester
-
Kalokairinou L., Howard H.C., Borry P. Direct-to-consumer genetic testing. eLS 2014, John Wiley & Sons, Ltd., Chichester. 10.1002/9780470015902.a0025181.
-
(2014)
eLS
-
-
Kalokairinou, L.1
Howard, H.C.2
Borry, P.3
-
13
-
-
84940650144
-
Framework for responsible sharing of genomic and health-related data
-
Knoppers B.M. Framework for responsible sharing of genomic and health-related data. HUGO J. 2014, 8:3. 10.1186/s11568-014-0003-1.
-
(2014)
HUGO J.
, vol.8
, pp. 3
-
-
Knoppers, B.M.1
-
14
-
-
84977949981
-
Do consumers read terms of service agreements when installing software? A two-study empirical analysis
-
Maronick T.J. Do consumers read terms of service agreements when installing software? A two-study empirical analysis. Int. J. Bus. Soc. Res. 2014, 4:137-145.
-
(2014)
Int. J. Bus. Soc. Res.
, vol.4
, pp. 137-145
-
-
Maronick, T.J.1
-
15
-
-
84937906357
-
A comparative analysis of the requirements for the use of data in biobanks based in Finland, Germany, the Netherlands, Norway and the United Kingdom
-
Moraia L.B., Kaye J., Tasse A.M., Knoppers B.M., Mitchell C., Soini S., Hoppe N., Wallace S.E., Oien M. A comparative analysis of the requirements for the use of data in biobanks based in Finland, Germany, the Netherlands, Norway and the United Kingdom. Med. Law Int. 2015, 14:187-212. 10.1177/0968533215571956.
-
(2015)
Med. Law Int.
, vol.14
, pp. 187-212
-
-
Moraia, L.B.1
Kaye, J.2
Tasse, A.M.3
Knoppers, B.M.4
Mitchell, C.5
Soini, S.6
Hoppe, N.7
Wallace, S.E.8
Oien, M.9
-
19
-
-
84893252645
-
The promise of whole-exome sequencing in medical genetics
-
Rabbani B., Tekin M., Mahdieh N. The promise of whole-exome sequencing in medical genetics. J. Hum. Genet. 2014, 59:5-15. 10.1038/jhg.2013.114.
-
(2014)
J. Hum. Genet.
, vol.59
, pp. 5-15
-
-
Rabbani, B.1
Tekin, M.2
Mahdieh, N.3
-
20
-
-
84908010092
-
Consent and confidentiality in clinical genetic practice: guidance on genetic testing and sharing genetic information
-
RCP, RCPath, London
-
Royal College of Physicians, Royal College of Pathologists, British Society of Human Genetics Consent and confidentiality in clinical genetic practice: guidance on genetic testing and sharing genetic information. Report of the Joint Committee on Medical Genetics 2011, RCP, RCPath, London.
-
(2011)
Report of the Joint Committee on Medical Genetics
-
-
-
21
-
-
33644890490
-
-
The Human Tissue Authority Human Tissue Act 2004, http://www.legislation.gov.uk/ukpga/2004/30/pdfs/ukpga_20040030_en.pdf.
-
(2004)
Human Tissue Act
-
-
-
22
-
-
84867209900
-
Customers or research participants?: Guidance for research practices in commercialization of personal genomics
-
Tobin S.L., Cho M.K., Lee S.S.-J., Magnus D.C., Allyse M., Ormond K.E., Garrison N.A. Customers or research participants?: Guidance for research practices in commercialization of personal genomics. Genet. Med. 2012, 14:833-835. 10.1038/gim.2012.64.
-
(2012)
Genet. Med.
, vol.14
, pp. 833-835
-
-
Tobin, S.L.1
Cho, M.K.2
Lee, S.S.-J.3
Magnus, D.C.4
Allyse, M.5
Ormond, K.E.6
Garrison, N.A.7
-
23
-
-
80053312789
-
Closure of population biobanks and direct-to-consumer genetic testing companies
-
Zawati M.H., Borry P., Howard H.C. Closure of population biobanks and direct-to-consumer genetic testing companies. Hum. Genet. 2011, 130:425-432. 10.1007/s00439-011-1019-4.
-
(2011)
Hum. Genet.
, vol.130
, pp. 425-432
-
-
Zawati, M.H.1
Borry, P.2
Howard, H.C.3
-
24
-
-
84960825890
-
-
(accessed 28 October)
-
(accessed 28 October 2015). http://www.forbes.com/sites/matthewherper/2015/10/14/23andme-prepares-a-comeback-raising-115-million-at-a-1-1-billion-valuation/.
-
(2015)
-
-
-
25
-
-
84960825891
-
-
(accessed 18 September
-
(accessed 18 September 2015). http://www.illumina.com/clinical/illumina_clinical_laboratory/how-to-order.html.
-
(2015)
-
-
-
26
-
-
84960825892
-
-
(accessed 16 September)
-
(accessed 16 September 2015). http://www.illumina.com/clinical/illumina_clinical_laboratory/trugenome-clinical-sequencing-services.html.
-
(2015)
-
-
-
27
-
-
84960825893
-
-
(accessed 10 August )
-
(accessed 10 August 2015). http://www.illumina.com/content/dam/illumina-marketing/documents/clinical/forms/form-test-req-predisposition.pdf.
-
(2015)
-
-
-
28
-
-
84960825894
-
-
(accessed 10 August)
-
(accessed 10 August 2015). http://www.inneova.com/contenu.php?page=terms.php.
-
(2015)
-
-
-
29
-
-
84960825895
-
-
(accessed 10 August)
-
(accessed 10 August 2015). http://www.inneova.info/contenu.php?page=disclaimer.php.
-
(2015)
-
-
-
30
-
-
84960825896
-
-
(accessed 16 September)
-
(accessed 16 September 2015). http://www.inneova.com/tout.php.
-
(2015)
-
-
-
31
-
-
84960825897
-
-
(accessed 19 August)
-
(accessed 19 August 2015). http://www.technologyreview.com/news/540711/inside-illuminas-plans-to-lure-consumers-with-an-app-store-for-genomes/.
-
(2015)
-
-
-
32
-
-
84960825898
-
-
(accessed 18 September)
-
(accessed 18 September 2015). https://www.genebygene.com/pages/genetics#how-to-order.
-
(2015)
-
-
-
33
-
-
84960825899
-
-
(accessed 16 September)
-
(accessed 16 September 2015). https://www.genebygene.com/pages/research?goto=whole-exome-with-interpretation#.
-
(2015)
-
-
-
34
-
-
84960825900
-
-
(accessed 18 September)
-
(accessed 18 September 2015). https://www.genebygene.com/pages/research#.
-
(2015)
-
-
-
35
-
-
84960825901
-
-
(accessed 10 August )
-
(accessed 10 August 2015). https://www.genebygene.com/pages/terms.
-
(2015)
-
-
-
36
-
-
84960825902
-
-
(accessed 16 September)
-
/(accessed 16 September 2015). https://www.geneyouin.ca.
-
(2015)
-
-
-
37
-
-
84960825903
-
-
(accessed 18 September)
-
(accessed 18 September 2015). https://www.geneyouin.ca/how-it-works/how-to-order/.
-
(2015)
-
-
-
38
-
-
84960825904
-
-
(accessed 10 August)
-
(accessed 10 August 2015). https://www.geneyouin.ca/informed-consent.
-
(2015)
-
-
-
39
-
-
84960825905
-
-
(accessed 10 August)
-
(accessed 10 August 2015). https://www.geneyouin.ca/terms-conditions/.
-
(2015)
-
-
|