Using probabilistic record linkage methods to identify Australian Indigenous women on the Queensland Pap smear register: The national Indigenous cervical screening project

BMJ Open

Volumn 6, Issue 2, 2016, Pages

  Whop, Lisa J ^a   Diaz, Abbey ^a   Baade, Peter ^b   Garvey, Gail ^a   Cunningham, Joan ^a   Brotherton, Julia M L ^c,d   Canfell, Karen ^e,f   Valery, Patricia C ^a,g   O'Connell, Dianne L ^e   Taylor, Catherine ^h   Moore, Suzanne P ^a   Condon, John R ^a  

^a MENZIES SCHOOL OF HEALTH RESEARCH   (Australia)

^b CANCER COUNCIL QUEENSLAND   (Australia)

^c VICTORIAN CYTOLOGY SERVICE   (Australia)

^d UNIVERSITY OF MELBOURNE   (Australia)

^e CANCER RESEARCH DIVISION   (Australia)

^f UNIVERSITY OF SYDNEY   (Australia)

^g QIMR BERGHOFER MEDICAL RESEARCH INSTITUTE   (Australia)

^h QUEENSLAND HEALTH   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ALGORITHM; ARTICLE; CANCER SCREENING; FEMALE; HEALTH PROGRAM; HUMAN; INDIGENOUS AUSTRALIAN; MAJOR CLINICAL STUDY; PAPANICOLAOU TEST; RELIABILITY; UTERINE CERVIX CANCER; AGED; EPIDEMIOLOGY; ETHNOLOGY; FEASIBILITY STUDY; MASS SCREENING; MEDICAL RECORD; MIDDLE AGED; OCEANIC ANCESTRY GROUP; PROCEDURES; QUEENSLAND; REPRODUCIBILITY; STATISTICS AND NUMERICAL DATA; UTERINE CERVICAL NEOPLASMS; YOUNG ADULT;

ADULT; AGED; FEASIBILITY STUDIES; FEMALE; HUMANS; MASS SCREENING; MEDICAL RECORD LINKAGE; MIDDLE AGED; OCEANIC ANCESTRY GROUP; PAPANICOLAOU TEST; QUEENSLAND; REPRODUCIBILITY OF RESULTS; UTERINE CERVICAL NEOPLASMS; YOUNG ADULT;

EID: 84960468458     PISSN: None     EISSN: 20446055     Source Type: Journal    
DOI: 10.1136/bmjopen-2015-009540     Document Type: Article

References (36)

1. Australian Government Department of Health. National Cervical Screening Program. Secondary National Cervical Screening Program 18 November 2013. 2013. http://www.cancerscreening. gov. au/internet/screening/publishing.nsf/Content/cervicalscreening-1
2. Australian Institute of Health and Welfare. Cervical screening in Australia 2012-2013. Cancer series 93 Cat no CAN 91. Canberra: AIHW, 2015.
3. Ferlay J, Soerjomataram I, Dikshit R, et al. Cancer incidence and mortality worldwide: sources, methods and major patterns in GLOBOCAN 2012. Int J Cancer 2015;136:E359-86.
4. Arbyn M, Castellsagué X, de Sanjosé S, et al. Worldwide burden of cervical cancer in 2008. Ann Oncol 2011;22:2675-86.
5. Zhang X, Condon JR, Rumbold AR, et al. Estimating cancer incidence in Indigenous Australians. Aust N Z J Public Health 2011;35:477-85.
6. Binns PL, Condon JR. Participation in cervical screening by Indigenous women in the Northern Territory: a longitudinal study. Med J Aust 2006;185:490-4.
7. Coory MD, Fagan PS, Muller JM, et al. Participation in cervical cancer screening by women in rural and remote Aboriginal and Torres Strait Islander communities in Queensland. Med J Aust 2002;177:544-7.
8. Acumen Alliance. Aboriginal & Torres Strait Islander identifier on pathology forms: feasibility study into increasing the completeness of the Aboriginal and Torres Strait Islander identifier in ACT government registries. Canberra: ACT Health, 2007.
9. Australian Institute of Health and Welfare. The inclusion of Indigenous status on pathology request forms. Cat. no. IHW 103. Canberra: AIHW, 2013.
10. Whop LJ, Cunningham J, Condon JR. How well is The National Cervical Screening Program performing for Indigenous Australian women? Why we don't really know, and what we can and should do about it. Eur J Cancer Care (Engl) 2014;23:716-20.
11. Thompson SC, Woods JA, Katzenellenbogen JM. The quality of indigenous identification in administrative health data in Australia: insights from studies using data linkage. BMC Med Inform Decis Mak 2012;12:133.
12. Queensland Health. Queensland Data Linkage Framework. Brisbane: Queensland Health, 2014.
13. Australian Institute of Health and Welfare and Australian Bureau of Statistics. National best practice guidelines for data linkage activities relating to Aboriginal and Torres Strait Islander people. Cat No IHW 74. Canberra: AIHW, 2012.
14. Australian Institute of Health and Welfare. Indigenous identification in hospital separations data-Quality report. Cat. no. IHW90. Canberra: AIHW, 2013.
15. Australian Institute of Health and Welfare. National summary of the 2001 and 2002 jurisdictional reports against the Aboriginal and Torres Strait Islander health performance indicators. AIHW cat. no. IHW 12. Canberra: AIHW, 2004.
16. Parliamentary Counsel. Public Health Act 2005. Queensland.
17. Cramb SM, Garvey G, Valery PC, et al. The first year counts: cancer survival among Indigenous and non-Indigenous Queenslanders, 1997-2006. Med J Aust 2012;196:270-4.
18. Australian Institute of Health and Welfare. Australian hospital statistics 2011-12. Health services series no. 50. Cat. no. HSE 134. Canberra: AIHW, 2013.
19. Australian Institute of Health and Welfare. National best practice guidelines for collecting Indigenous status in health data sets. Cat. no. IHW 29. Canberra: AIHW, 2010.
20. Kennedy B, Howell S, Breckell C. Indigenous identification in administrative data collections and the implications for reporting Indigenous health status. Brisbane: Health Statistics Centre, Queensland Health, 2009.
21. Australian Bureau of Statistics. Perspectives on Aboriginal and Torres Strait Islander Identification in Selected Data Collection Contexts. Australia: ABS, 2012.
22. Katzenellenbogen JM, Sanfilippo FM, Hobbs MS, et al. Incidence of and case fatality following acute myocardial infarction in Aboriginal and non-Aboriginal Western Australians (2000-2004): a linked data study. Heart Lung Circ 2010;19:717-25.
23. Neville SE, Taylor LK, Moore H, et al. Using linkage between hospital and ABS mortality data to enhance reporting of deaths among Aboriginal and Torres Strait Islander peoples. Aust N Z J Public Health 2011;35:543-8.
24. Australian Institute of Health and Welfare. Rural, regional and remote health, a guide to remoteness classifications. Canberra: AIHW, 2004.
25. Condon JR, Zhang X, Baade P, et al. Cancer survival for Aboriginal and Torres Strait Islander Australians: a national study of survival rates and excess mortality. Popul Health Metr 2014;12:1.
26. Australian Institute of Health and Welfare & Cancer Australia. Cancer in Aboriginal and Torres Strait Islander peoples of Australia: an overview. Cancer series no. 78. Cat. no. CAN 75. Canberra: AIHW, 2013.
27. Holman CD, Bass AJ, Rosman DL, et al. A decade of data linkage in Western Australia: strategic design, applications and benefits of the WA data linkage system. Aust Health Rev 2008;32:766-77.
28. Sorensen HT, Sabroe S, Olsen J. A framework for evaluation of secondary data sources for epidemiological research. Int J Epidemiol 1996;25:435-42.
29. Australian Institute of Health and Welfare. Indigenous identification in hospital separations data-quality report. Health Services Series no 35 Cat no HSE 85. Canberra: AIHW, 2010.
30. Australian Bureau of Statistics. 3238.0-Estimates and projections, Aboriginal and Torres Strait Islander Australians 2001 to 2026. Canberra: ABS, 2014.
31. Australian Institute of Health and Welfare. Admitted patient care 2013-14: Australian hospital statistics. Health services series no. 60. Cat. no. HSE 156. Canberra: AIHW, 2015.
32. Humphrey M. Maternal and Perinatal Mortality and Morbidity in Queensland: Queensland Maternal and Perinatal Quality Council Report 2011. Brisbane: Queensland Health, 2011.
33. Office of Economic and Statistical Research. Census 2011: women in Queensland. Brisbane: Queensland Treasury and Trade, 2012.
34. Victorian Cervical Cytology Registry. Statistical report 2013. Melbourne: Victorian Cervical Cytology Registry, 2013.
35. Cancer Institute NSW. Cervical cancer screening in New South Wales: annual statistical report 2009-2010. Sydney: Cancer Institute NSW, 2013.
36. MSAC (Medical Services Advisory Committee). MSAC application no. 1276: National Cervical Screening Program renewal. Canberra: MSAC, 2014.