The quality of Indigenous identification in administrative health data in Australia: Insights from studies using data linkage

BMC Medical Informatics and Decision Making

Volumn 12, Issue 1, 2012, Pages

  Thompson, Sandra C ^a   Woods, John A ^a   Katzenellenbogen, Judith M ^a,b  

^a UNIVERSITY OF WESTERN AUSTRALIA   (Australia)

^b CURTIN UNIVERSITY   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ABORIGINE; AUSTRALIA; EPIDEMIOLOGY; FACTUAL DATABASE; HEALTH SURVEY; HUMAN; METHODOLOGY; QUALITY CONTROL; REVIEW;

BIAS (EPIDEMIOLOGY); DATABASES, FACTUAL; HUMANS; NEW SOUTH WALES; OCEANIC ANCESTRY GROUP; POPULATION SURVEILLANCE; QUALITY CONTROL; WESTERN AUSTRALIA;

MLCS; MLOWN;

EID: 84869075715     PISSN: None     EISSN: 14726947     Source Type: Journal    
DOI: 10.1186/1472-6947-12-133     Document Type: Article

References (39)

1. Identifying indigenous peoples for health research in a global context: a review of perspectives and challenges. Bartlett JG, Madariaga-Vignudo L, O'Neil JD, Kuhnlein HV, Int J Circumpolar Health 2007 66 4 287 307 18018843
2. Australian Institute of Health and Welfare, Australian Health Ministers' Advisory Council, National health information development plan Canberra: AIHW 1995
3. Australian Institute of Health and Welfare, National Advisory Group on Aboriginal and Torres Strait Islander Health Information and Data: strategic plan 2006-2008 Canberra: AIHW 2006
4. Australian Bureau of Statistics, National Aboriginal and Torres Strait Islander Health Survey 2004-2005 Canberra: ABS 2006 22313702
5. Australian Bureau of Statistics, Experimental Life Tables for Aboriginal and Torres Strait Islander Australians, 2005-2007 In Canberra: ABS 2009
6. Australian Bureau of Statistics, Australian Institute of Health and Welfare, The health and welfare of Australia's Aboriginal and Torres Strait Islander peoples Canberra: ABS and AIHW 2010 23266393
7. Burden of disease and injury in Aboriginal and Torres Strait Islander Peoples: the Indigenous health gap. Vos T, Barker B, Begg S, Stanley L, Lopez AD, Int J Epidemiol 2009 38 2 477 479 19155281
8. Australian Bureau of Statistics, Population Characteristics, Aboriginal and Torres Strait Islander Australians, 2006 Canberra: ABS 2010
9. Rudd K, Apology to Australia's Indigenous peoples Canberra: House of Representatives Hansard, Commonwealth of Australia 2008 167 173 http://parlinfo.aph.gov.au/parlInfo/search/display/display.w3p;query= Id%3A%22chamber%2Fhansardr%2F2008-02-13%2F0003%22 (accessed 20 Jun 2012) 21402754
10. Australian Health Ministers' Advisory Council, Aboriginal and Torres Strait Islander Health Performance Framework 2008 Summary Canberra: Australian Health Ministers' Advisory Council 2008
11. Australian Government, Closing the gap on Indigenous disadvantage: the challenge for Australia Canberra: Australian Government 2009
12. Racial and ethnic identification and quality of care: an Australian perspective. Kelaher M, Parry A, Day S, Paradies Y, Anderson I, Med J Aust 2012 196 6 382 10.5694/mja11.10844 22471533
13. Australian Institute of Health and Welfare, National best practice guidelines for collecting Indigenous status in health data sets Canberra: AIHW 2010
14. Australian Bureau of Statistics, Population Distribution, Aboriginal and Torres Strait Islander Australians, 2006 In Canberra: ABS 2007
15. Young MJ, Assessing the quality of identification of Aboriginal and Torres Strait Islander people in Western Australia Hospital Data, 2000 Perth: Department of Health of Western Australia 2001
16. Australian Institute of Health and Welfare, Improving the quality of Indigenous identification in hospital separations data. Health Services Series no. 25 Canberra: AIHW 2005
17. Australian Institute of Health and Welfare, Indigenous identification in hospital separations data-quality report Canberra: AIHW 2010
18. Population-based linkage of health records in Western Australia: development of a health services research linked database. Holman CD, Bass AJ, Rouse IL, Hobbs MS, Aust N Z J Public Health 1999 23 5 453 459 10.1111/j.1467-842X.1999.tb01297.x 10575763 (Pubitemid 29479210)
19. A decade of data linkage in Western Australia: strategic design, applications and benefits of the WA data linkage system. Holman CD, Bass AJ, Rosman DL, Smith MB, Semmens JB, Glasson EJ, Brook EL, Trutwein B, Rouse IL, Watson CR, et al. Aust Health Rev: a publication of the Australian Hospital Association 2008 32 4 766 777 10.1071/AH080766
20. Treatment patterns for cancer in Western Australia: does being Indigenous make a difference? Hall SE, Bulsara CE, Bulsara MK, Leahy TG, Culbong MR, Hendrie D, Holman CDJ, Med J Aust 2004 181 4 191 194 15310252 (Pubitemid 39172935)
21. Use of data linkage to investigate the aetiology of acute lower respiratory infection hospitalisations in children. Moore HC, de Klerk N, Keil AD, Smith DW, Blyth CC, Richmond P, Lehmann D, J Paediatr Child Health 2012 48 6 520 528 10.1111/j.1440-1754.2011.02229.x 22077532
22. PRISMA Group: Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. Moher D, Liberati A, Tetzlaff J, Altman DG, J Clin Epidemiol 2009 62 10 1006 12 10.1016/j.jclinepi.2009.06.005 19631508
23. Measuring the gap: Accuracy of the western Australian hospital morbidity data in the identification of adult urban Aboriginal and Torres Strait Islander people. Bradshaw P, Alfonso H, Finn J, Owens J, Thompson P, Aust N Z J Public Health 2009 33 3 276 279 10.1111/j.1753-6405.2009.00388.x 19630849
24. Improving the accuracy of Aboriginal and non-Aboriginal disease notification rates using data linkage. Mak DB, Watkins RE, BMC Health Serv Res 2008 30 8 118
25. What is the impact of missing Indigenous status on mortality estimates?: an assessment using record linkage in Western Australia. Draper GK, Somerford PJ, Pilkington AG, Thompson SC, Aust NZ J Public Health 2009 33 235 241
26. Under-ascertainment of Aboriginality in records of cardiovascular disease in hospital morbidity and mortality data in Western Australia: a record linkage study. Briffa TG, Sanfilippo FM, Hobbs MST, Ridout S, Katzenellenbogen JM, Thompson PL, Thompson SC, BMC Med Res Methodol 2010 10 111 10.1186/1471-2288-10- 111 21192809
27. Incidence of and case fatality following acute myocardial infarction in Aboriginal and non-Aboriginal Western Australians (2000-2004): a linked data study. Katzenellenbogen JM, Sanfilippo FM, Hobbs MST, Briffa TG, Ridout SC, Knuiman MW, Dimer L, Taylor KP, Thompson PL, Thompson SC, Heart Lung Circ 2010 19 717 725 10.1016/j.hlc.2010.08.009 20864399
28. Using linkage between hospital and ABS mortality data to enhance reporting of deaths among Aboriginal and Torres Strait Islander peoples. Neville SE, Taylor LK, Moore H, Madden R, Ring I, Pulver LJ, Tickle L, Aust N Z J Public Health 2011 35 6 543 548 10.1111/j.1753-6405.2011.00738.x 22151161
29. Mortality after admission for acute myocardial infarction in Aboriginal and non-Aboriginal people in New South Wales, Australia: a multilevel data linkage study. Randall DA, Jorm LR, Lujic S, O'Loughlin AJ, Churches TR, Haines MM, Eades SJ, Leyland AH, BMC Public Health 2012 12 1 281 10.1186/1471-2458-12- 281 22490109
30. Improvement of maternal Aboriginality in NSW birth data. Xu F, Sullivan EA, Madden RC, Black D, Pulver LR, BMC Med Res Methodol 2012 12 8 10.1186/1471-2288-12-8 22289717
31. CHeReL, Centre for Health Record Linkage. The First Three Years 2006-07 TO 2008-09 Sydney: Cancer Institute 2009
32. Aboriginal and Torres Strait Islander health assessments-barriers to improving uptake. Kehoe H, Lovett RW, Aust Fam Physician 2008 37 12 1033 1038 19142280
33. A comparison of doctor and laboratory notifications of gonorrhoea in Western Australia during 1989. Condon R, Roberts M, Rouse I, Sesnan K, Venereology 1992 5 84 86
34. Human Rights and Equal Opportunity Commission (HREOC), Bringing them home: report of the National Inquiry into the Separation of Aboriginal and Torres Strait Islander Children from their Families Sydney: Human Rights and Equal Opportunity Commission 1997 http://www.humanrights.gov.au/social-justice/ bth-report/index.html
35. Australian Institute of Health and Welfare and Australian Bureau of Statistics, National best practice guidelines for data linkage activities relating to Aboriginal and Torres Strait Islander people Canberra: AIHW vol. AIHW Cat. No. IHW 74. 2012
36. Australian Institute of Health and Welfare, An enhanced mortality database for estimating Indigenous life expectancy: A feasibility study Canberra: AIHW vol. Cat. no. IHW 75. 2012
37. Western Australian Cancer and Palliative Care Network, WA Cancer Services Framework Perth: WA Department of Health 2005
38. Flinders Medical Centre, Practical information for country people attending Flinders Medical Centre Adelaide: Government of South Australia 2009
39. Australian Bureau of Statistics, Census of Population and Housing-Counts of Aboriginal and Torres Strait Islander Australians, 2011 Canberra: ABS vol. 2075.0. 2012