Validity, reliability and responsiveness to change of the Italian palliative care outcome scale: A multicenter study of advanced cancer patients Cancer palliative care

BMC Palliative Care

Volumn 15, Issue 1, 2016, Pages

  Costantini, Massimo ^a   Rabitti, Elisa ^a   Beccaro, Monica ^b   Fusco, Flavio ^c   Peruselli, Carlo ^d   La Ciura, Pietro ^e   Valle, Alessandro ^f   Suriani, Cinzia ^g   Berardi, Maria Alejandra ^h   Valenti, Danila ⁱ   Mosso, Felicita ^j   Morino, Piero ^k   Zaninetta, Giovanni ^l   Tubere, Giorgio ^m   Piazza, Massimo ⁿ   Sofia, Michele ^c   Di Leo, Silvia ^a   Higginson, Irene J ^o  

^a S MARIA NUOVA HOSPITAL   (Italy)

^b Academy of Sciences of Palliative Medicine   (Italy)

^c ASL3 Genovese   (Italy)

^d Biella Hospital   (Italy)

^e ASL CN1   (Italy)

^f FARO Foundation   (Italy)

^g Fondazione IRCCS National Cancer Institute   (Italy)

^h DEPARTMENT OF MEDICAL ONCOLOGY   (Italy)

ⁱ Azienda USL di Bologna   (Italy)

^j ASL TO4   (Italy)

^k Azienda Sanitaria Italy ^*  (Italy)

^l Laboratory of Neuromuscular Rehabilitation Teresa Camplani Foundation   (Italy)

^m ASL 1 Imperiese   (Italy)

ⁿ Azienda Sanitaria Italy   (Italy)

^o KING'S COLLEGE LONDON   (United Kingdom)

more..

Author keywords

Outcome assessment; Outcome measurement; Outcomes; Palliative care; Palliative care outcome scale; POS

Indexed keywords

ADOLESCENT; ADULT; AGED; BEHAVIOR ASSESSMENT; CLINICAL TRIAL; FEMALE; HUMAN; ITALY; LANGUAGE; MALE; MIDDLE AGED; MULTICENTER STUDY; NEOPLASM; OUTCOME ASSESSMENT; PALLIATIVE THERAPY; PSYCHOLOGY; QUALITY OF LIFE; QUESTIONNAIRE; REPRODUCIBILITY; STANDARDS; VERY ELDERLY;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; BEHAVIOR RATING SCALE; FEMALE; HUMANS; ITALY; LANGUAGE; MALE; MIDDLE AGED; NEOPLASMS; OUTCOME ASSESSMENT (HEALTH CARE); PALLIATIVE CARE; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS; SURVEYS AND QUESTIONNAIRES;

EID: 84959355711     PISSN: None     EISSN: 1472684X     Source Type: Journal    
DOI: 10.1186/s12904-016-0095-6     Document Type: Article

References (34)

1. Kamal AH, Currow DC, Ritchie C, Bull J, Wheeler JL, Abernethy AP. The value of data collection within a palliative care program. Curr Oncol Rep. 2011;13:308-15.
2. Bausewein C, Le Grice C, Simon S, Higginson I, PRISMA. The use of two common palliative outcome measures in clinical care and research: A systematic review of POS and STAS. Palliat Med. 2011;25(4):304-13.
3. Higginson IJ, Carr AJ. Measuring quality of life: Using quality of life measures in the clinical setting. BMJ. 2001;322:1297-300.
4. Lipscomb J, Gotay CC, Snyder CF. Patient-reported outcomes in cancer: A review of recent research and policy initiatives. CA Cancer J Clin. 2007;57:278-300.
5. Gomes B, Higginson IJ. Where people die (1974 - 2030): Past trends, future projections and implications for care. Palliat Med. 2008;22(1):33-41.
6. McPherson CJ, Addington-Hall JM. Judging the quality of care at the end of life: Can proxies provide reliable information? Soc Sci Med. 2003;56:95-109.
7. Harding R, Simon ST, Benalia H, Downing J, Daveson BA, Higginson IJ, et al. The PRISMA Symposium 1: outcome tool use. Disharmony in European outcomes research for palliative and advanced disease care: Too many tools in practice. J Pain Symptom Manage. 2011;42(4):493-500.
8. Bausewein C, Simon ST, Benalia H, Downing J, Mwangi-Powell FN, Daveson BA, et al. Implementing patient reported outcome measures (PROMs) in palliative care - users' cry for help. Health Qual Life Outcomes. 2011;9:27.
9. Dewolf L, Koller M, Velikova G, Johnson C, Scott N, Bottomley A. EORTC quality of life group translation procedure. 3rd ed. Brussels: European Organisation for Research and Treatment of Cancer; 2009.
10. Aspinal F, Hughes R, Higginson I, et al. A user's guide to the palliative care outcome scale. London: Kings College; 2002.
11. Hearn J, Higginson IJ, on behalf of the Palliative Care Audit Project Advisory Group. Development and validation of a core outcome measure for palliative care: The palliative care outcome scale. Qual Health Care. 1999;8(4):219-27.
12. Bausewein C, Fegg M, Radbruch L, Nauck F, von Mackensen S, Borasio GD, et al. Validation and clinical application of the German version of the palliative care outcome scale. J Pain Symptom Manage. 2005;30(1):51-62.
13. Higginson IJ, Simon ST, Benalia H, Downing J, Daveson BA, Harding R, et al. Which questions of two commonly used multidimensional palliative care patient reported outcome measures are most useful? Results from the European and African PRISMA survey. Postgrad Med J. 2012;88:451-7.
14. Palliative Care outcome Scale. A resource for palliative care. Http://pos-pal.org/. Accessed 26 Jan. 2016.
15. Groenvold M, Petersen MA, Aaronson NK, Arraras JI, Blazeby JM, Bottomley A, et al. The development of the EORTC QLQ-C15-PAL: A shortened questionnaire for cancer patients in palliative care. Eur J Cancer. 2006;42(1):55-64.
16. Nunes NA. The quality of life of Brazilian patients in palliative care: Validation of the european organization for research and treatment of cancer quality of life questionnaire core 15 PAL (EORTC QLQ-C15-PAL). Support Care Cancer. 2014;22(6):1595-600.
17. Lien K, Zeng L, Nguyen J, Cramarossa G, Culleton S, Caissie A, et al. Comparison of the EORTC QLQ-C15-PAL and the FACIT-Pal for assessment of quality of life in patients with advanced cancer. Expert Rev Pharmacoecon Outcomes Res. 2011;11(5):541-7.
18. Peterman AH, Fitchett G, Brady MJ, Hernandez L, Cella D. Measuring spiritual well-being in people with cancer: The functional assessment of chronic illness therapy-Spiritual Well-being Scale (FACIT-Sp). Ann Behav Med. 2002;24(1):49-58.
19. Webster K, Cella D, Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) Measurement System: Properties, applications, and interpretation. Health Qual Life Outcomes. 2003;1:79.
20. Munoz AR, Salsman JM, Stein KD, Cella D. Reference values of the Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being: A report from the American Cancer Society's studies of cancer survivors. Cancer. 2015. Doi: 10.1002/cncr.29286.
21. Regnard CFB, Tempest S, Toscani F. Manuale di Medicina Palliativa. Roma: CIC Editore; 2002. P. 190-3.
22. Paiva CE, Barroso EM, Carnesca EC, et al. A critical analysis of test-retest reliability instrument validation studies of cancer patients under palliative care: A systematic review. BMC Med Res Methodol. 2014;14:8.
23. Terwee CB, Bot SD, de Boer MR, van der Windt DA, Knol DL, Dekker J, et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol. 2007;60(1):34-42.
24. Landers R. Computing Intraclass Correlations (ICC) as Estimates of Interrater Reliability in SPSS. Winnower. 2015;2, e143518.81744.
25. Steinhauser KE. "Are you at peace". One item to probe spiritual concerns at the end of life. Arch Int Med. 2006;166:101-5.
26. Harding R, Selman L, Agupio G, Dinat N, Downing J, Gwyther L, et al. Validation of a core outcome measure for palliative care in Africa: The APCA African Palliative Outcome Scale. Health Qual Life Outcomes. 2010;8:10.
27. Cohen J. Statistical power analysis for the behavioral sciences. 2nd ed. Hillsdale: Lawrence Erlbaum; 1988.
28. Temel JS, Greer JA, Muzikansky A, et al. Early palliative care for patients with metastatic Non-small-cell lung cancer. New Engl J Med. 2010;363(8):733-42.
29. Zimmermann C, Swami N, Krzyzanowska M, et al. Early palliative care for patients with advanced cancer: A cluster-randomised controlled trial. Lancet. 2014;383(9930):1721-30.
30. Higginson IJ, Bausewein C, Reilly CC, et al. An integrated palliative and respiratory care service for patients with advanced disease and refractory breathlessness: A randomised controlled trial. Lancet Respir Med. 2014;2(12):979-87.
31. Editorial. A call for equity in the delivery of UK palliative care. Lancet 2015; 385:1478.
32. Sleeman KE, Davies JM, Verne J, Gao W, Higginson IJ. The changing demographics of inpatient hospice death: Population-based cross-sectional study in England, 1993-2012. Palliat Med. 2016;30(1):45-53.
33. Selman L, Speck P, Gysels M, Agupio G, Dinat N, Downing J, et al. 'Peace' and 'life worthwhile' as measures of spiritual well-being in African palliative care: A mixed-methods study. Health Qual Life Outcomes. 2013;11:94.
34. Antunes B, Murtagh F, Bausewein C, Harding R, Higginson IJ, EURO IMPACT. Screening for depression in advanced disease: Psychometric properties, sensitivity, and specificity of two items of the Palliative Care Outcome Scale (POS). J Pain Symptom Manage. 2015;49:277-88.