'My body's falling apart.' Understanding the experiences of patients with advanced multimorbidity to improve care: Serial interviews with patients and carers

BMJ Supportive and Palliative Care

Volumn 6, Issue 1, 2016, Pages 60-65

  Mason, Bruce ^a   Nanton, Veronica ^b   Epiphaniou, Eleni ^c   Murray, Scott A ^a   Donaldson, Anne ^a   Shipman, Cathy ^d   Daveson, Barbara A ^d   Harding, Richard ^d   Higginson, Irene J ^d   Munday, Dan ^b   Barclay, Stephen ^e   Dale, Jeremy ^b   Kendall, Marilyn ^a   Worth, Allison ^a   Boyd, Kirsty ^a  

^a UNIVERSITY OF EDINBURGH   (United Kingdom)

^b UNIVERSITY OF WARWICK   (United Kingdom)

^c QUEEN MARY UNIVERSITY OF LONDON   (United Kingdom)

^d KING'S COLLEGE LONDON   (United Kingdom)

^e UNIVERSITY OF CAMBRIDGE   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

AGED; ATTITUDE TO HEALTH; CAREGIVER; CLINICAL TRIAL; COMORBIDITY; FEMALE; HEALTH CARE DELIVERY; HUMAN; MALE; MIDDLE AGED; MULTICENTER STUDY; PALLIATIVE THERAPY; PSYCHOLOGY; SCOTLAND; SELF CARE; TERMINAL CARE; UTILIZATION; VERY ELDERLY;

AGED; AGED, 80 AND OVER; CAREGIVERS; COMORBIDITY; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH SERVICES ACCESSIBILITY; HUMANS; MALE; MIDDLE AGED; PALLIATIVE CARE; SCOTLAND; SELF CARE; TERMINAL CARE;

EID: 84958751746     PISSN: 2045435X     EISSN: 20454368     Source Type: Journal    
DOI: 10.1136/bmjspcare-2013-000639     Document Type: Article

References (38)

1. Fortin M, Hudon C, Haggerty J, et al. Prevalence estimates of multimorbidity: a comparative study of two sources. BMC Health Serv Res 2010;10:111.
2. Barnett K, Mercer SW, Norbury M, et al. Epidemiology of multimorbidity and implications for health care, research, and medical education: a cross-sectional study. Lancet 2012;380:37-43.
3. France EF, Wyke S, Gunn JM, et al. Multimorbidity in primary care: a systematic review of prospective cohort studies. Br J Gen Pract 2012;62:297-307.
4. Guthrie B, Payne K, Alderson P, et al. Adapting clinical guidelines to take account of multimorbidity. BMJ 2012;345: e6341.
5. Smith SM, Soubhi H, Fortin M, et al. Managing patients with multimorbidity: systematic review of interventions in primary care and community settings. BMJ 2012;345.
6. Haggerty JL. Ordering the chaos for patients with multimorbidity. BMJ 2012;345:e5915.
7. Neuberger J. More care less pathway: a review of the Liverpool Care Pathway. London: Department of Health, 2013.
8. Burge F, Lawson B, Mitchell G. How to move to a palliative approach to care for people with multimorbidity. BMJ 2012;345(sep21 1):e6324-24.
9. Barclay S. Palliative care for non-cancer patients: a UK perspective from primary care. In: Addington-Hall J, Higginson I, eds. Palliative care for non-cancer patients. Oxford: Oxford University Press, 2001:172-88.
10. National End of Life Care Intelligence Network. What do we know now that we didn't know a year ago? New intelligence on end of life care in England. National End of Life Care Intelligence Network, 2012.
11. Jowsey T,McRae I, Gillespie J, et al. Time to care? Health of informal older carers and time spent on health related activities: an Australian survey. BMC Public Health 2013;13:374.
12. Mason B, Epiphaniou E, Nanton V, et al. Coordination of care for individuals with advanced progressive conditions: a multi-site ethnographic and serial interview study. Br J Gen Pract 2013;63:e580-88.
13. Goodwin N, Sonola L, Thiel V, et al. Co-ordinated care for people with complex chronic conditions: key lessons and markers for success. London: The King's Fund, 2013.
14. Mason BL, Donaldson A, Epiphaniou E, et al. Coordination of care for people at risk of dying in the next 12 months: a multi-site prospective study and consensus seeking exercise. London:NIHR Service Delivery and Organisation programme, 2013.
15. Murray SA, Boyd K. Using the 'surprise question' can identify people with advanced heart failure and COPD who would benefit from a palliative care approach. Palliat Med 2011;25:382.
16. Murray SA, Kendall M, Carduff E, et al. Use of serial qualitative interviews to understand patients' evolving experiences and needs. BMJ 2009;339:b3702.
17. Kendall M, Murray SA, Carduff E, et al. Use of multiperspective qualitative interviews to understand patients' and carers' beliefs, experiences, and needs. BMJ 2009;339: b4122.
18. NVivo qualitative data analysis software. QSR International Pty Ltd. Version 9, 2009.
19. Pope C, Ziebland S, Mays N. Analysing qualitative data. BMJ 2000;320:114-16.
20. Pinnock H, Kendall M, Murray SA, et al. Living and dying with severe chronic obstructive pulmonary disease: multi-perspective longitudinal qualitative study. BMJ 2011;342: d142.
21. Boyd KJ, Murray SA, Kendall M, et al. Living with advanced heart failure: a prospective, community based study of patients and their carers. Eur J Heart Fail 2004;6:585-91.
22. Murray SA, Kendall M, Boyd K, et al. Archetypal trajectories of social, psychological, and spiritual wellbeing and distress in family care givers of patients with lung cancer: secondary analysis of serial qualitative interviews. BMJ 2010; 340:c2581.
23. Murray SA, Kendall M, Boyd K, et al. Illness trajectories and palliative care. BMJ 2005;330:1007-11.
24. Murray SA, Boyd K, Kendall M, et al. Dying of lung cancer or cardiac failure: prospective qualitative interview study of patients and their carers in the community. BMJ 2002; 325:929.
25. Zheng L, Finucane AM, Oxenham D, et al. How good is primary care at identifying patients who need palliative care? A mixed methods study. Eur J Palliat Care 2013;20:216-22.
26. Harrison N, Cavers D, Campbell C, et al. Are UK primary care teams formally identifying patients for palliative care before they die? Br J Gen Pract 2012;62:e344-e52.
27. Allmark P. How should public health professionals engage with lay epidemiology? J Med Ethics 2006;32:460-63.
28. Lakoff G, Johnson M. Metaphors we live by. Chicago: University of Chicago Press, 1980.
29. Southall D. The patient's use of metaphor within a palliative care setting: Theory, function and efficacy. A narrative literature review. Palliat Med 2013;27:304-13.
30. Townsend A. Applying Bourdieu's theory to accounts of living with multimorbidity. Chronic Illn 2011;8:89-101.
31. Chochinov HM. Dignity-conserving care-a new model for palliative care. JAMA 2002;287:2253-60.
32. Chochinov HM, Hack T, McClement S, et al. Dignity in the terminally ill: a developing empirical model. Soc Sci Med 2002;54:433-43.
33. Daveson BA, Bausewein C, Murtagh FE, et al. To be involved or not to be involved: A survey of public preferences for self-involvement in decision-making involving mental capacity (competency) within Europe. Palliat Med 2013;27:418-27.
34. Mercer SW, Smith SM, Wyke S, et al. Multimorbidity in primary care: developing the research agenda. Fam Pract 2009;26:79-80.
35. Mercer SW, Gunn J, Bower P, et al. Managing patients with mental and physical multimorbidity. BMJ 2012;345.
36. Roland M, Paddison C. Better management of patients with multimorbidity. BMJ 2013;346:f2510.
37. Stott N, Davis R. The exceptional potential in each primary care consultation. J R Coll Gen Pract 1979;29:201-5.
38. Higginson IJ, Gomes B, Calanzani N, et al. Priorities for treatment, care and information if faced with serious illness: A comparative population-based survey in seven European countries. Palliat Med 2014;28:101-10.