-
1
-
-
33847711906
-
Cystic fibrosis mortality and survival in the UK: 1947-2003
-
Dodge JA, Lewis PA, Stanton M, Wilsher J. Cystic fibrosis mortality and survival in the UK: 1947-2003. Eur Respir J. 2007;29(3):522-526.
-
(2007)
Eur Respir J.
, vol.29
, Issue.3
, pp. 522-526
-
-
Dodge, J.A.1
Lewis, P.A.2
Stanton, M.3
Wilsher, J.4
-
2
-
-
84926095568
-
Cystic fibrosis foundation patient registry
-
Bethesda, MD: Cystic Fibrosis Foundation
-
Cystic Fibrosis Foundation Patient Registry. 2010 Annual Data Report. Bethesda, MD: Cystic Fibrosis Foundation; 2011.
-
(2011)
2010 Annual Data Report
-
-
-
3
-
-
84943778887
-
Cystic fibrosis foundation patient registry
-
Bethesda, MD: Cystic Fibrosis Foundation
-
Cystic Fibrosis Foundation Patient Registry. 2012 Annual Data Report. Bethesda, MD: Cystic Fibrosis Foundation; 2013.
-
(2013)
2012 Annual Data Report
-
-
-
4
-
-
0032513942
-
Clinical outcome in relation to care in centres specialising in cystic fibrosis: Cross sectional study
-
Mahadeva R, Webb K, Westerbeek RC, et al. Clinical outcome in relation to care in centres specialising in cystic fibrosis: cross sectional study. BMJ. 1998;316(7147):1771-1775.
-
(1998)
BMJ
, vol.316
, Issue.7147
, pp. 1771-1775
-
-
Mahadeva, R.1
Webb, K.2
Westerbeek, R.C.3
-
5
-
-
57649176886
-
Early referral to cystic fibrosis specialist centre impacts on respiratory outcome
-
Lebecque P, Leonard A, De Boeck K, et al. Early referral to cystic fibrosis specialist centre impacts on respiratory outcome. J Cyst Fibros. 2009;8(1):26-30.
-
(2009)
J Cyst Fibros
, vol.8
, Issue.1
, pp. 26-30
-
-
Lebecque, P.1
Leonard, A.2
De Boeck, K.3
-
6
-
-
0024231185
-
Cystic fibrosis in Denmark 1945 to 1985. An analysis of incidence, mortality and influence of centralized treatment on survival
-
Nielsen OH, Thomsen BL, Green A, Andersen PK, Hauge M, Schiøtz PO. Cystic fibrosis in Denmark 1945 to 1985. An analysis of incidence, mortality and influence of centralized treatment on survival. Acta Paediatr Scand. 1988;77(6): 836-841.
-
(1988)
Acta Paediatr Scand.
, vol.77
, Issue.6
, pp. 836-841
-
-
Nielsen, O.H.1
Thomsen, B.L.2
Green, A.3
Andersen, P.K.4
Hauge, M.5
Schiøtz, P.O.6
-
7
-
-
84857433891
-
Association between socioeconomic status, sex, and age at death from cystic fibrosis in England and Wales (1959 to 2008): Cross sectional study
-
Barr HL, Britton J, Smyth AR, Fogarty AW. Association between socioeconomic status, sex, and age at death from cystic fibrosis in England and Wales (1959 to 2008): cross sectional study. BMJ. 2011;343:d4662.
-
(2011)
BMJ
, vol.343
, pp. d4662
-
-
Barr, H.L.1
Britton, J.2
Smyth, A.R.3
Fogarty, A.W.4
-
8
-
-
0034987271
-
The association of socioeconomic status with outcomes in cystic fibrosis patients in the United States
-
Schechter MS, Shelton BJ, Margolis PA, Fitzsimmons SC. The association of socioeconomic status with outcomes in cystic fibrosis patients in the United States. Am J Respir Crit Care Med. 2001;163(6):1331-1337.
-
(2001)
Am J Respir Crit Care Med.
, vol.163
, Issue.6
, pp. 1331-1337
-
-
Schechter, M.S.1
Shelton, B.J.2
Margolis, P.A.3
Fitzsimmons, S.C.4
-
9
-
-
33646364039
-
Satisfaction with care and ease of using health care services among parents of children with special health care needs: The roles of race/ethnicity, insurance, language, and adequacy of family-centered care
-
Ngui EM, Flores G. Satisfaction with care and ease of using health care services among parents of children with special health care needs: the roles of race/ethnicity, insurance, language, and adequacy of family-centered care. Pediatrics. 2006;117(4):1184-1196.
-
(2006)
Pediatrics
, vol.117
, Issue.4
, pp. 1184-1196
-
-
Ngui, E.M.1
Flores, G.2
-
10
-
-
34547682082
-
Language barriers to prescriptions for patients with limited english proficiency: A survey of pharmacies
-
Bradshaw M, Tomany-Korman S, Flores G. Language barriers to prescriptions for patients with limited English proficiency: a survey of pharmacies. Pediatrics. 2007;120(2): e225-e235.
-
(2007)
Pediatrics
, vol.120
, Issue.2
, pp. e225-e235
-
-
Bradshaw, M.1
Tomany-Korman, S.2
Flores, G.3
-
11
-
-
22844440312
-
Limited english proficiency, primary language at home, and disparities in Children's health care: How language barriers are measured matters
-
Flores G, Abreu M, Tomany-Korman SC. Limited English proficiency, primary language at home, and disparities in children's health care: how language barriers are measured matters. Public Health Rep. 2005;120(4):418-430.
-
(2005)
Public Health Rep.
, vol.120
, Issue.4
, pp. 418-430
-
-
Flores, G.1
Abreu, M.2
Tomany-Korman, S.C.3
-
12
-
-
67349253536
-
The role of parent health literacy among urban children with persistent asthma
-
Shone LP, Conn KM, Sanders L, Halterman JS. The role of parent health literacy among urban children with persistent asthma. Patient Educ Couns. 2009;75(3):368-375.
-
(2009)
Patient Educ Couns
, vol.75
, Issue.3
, pp. 368-375
-
-
Shone, L.P.1
Conn, K.M.2
Sanders, L.3
Halterman, J.S.4
-
13
-
-
20844447877
-
Diagnostic testing by CFTR gene mutation analysis in a large group of hispanics: Novel mutations and assessment of a population-specific mutation spectrum
-
Schrijver I, Ramalingam S, Sankaran R, et al. Diagnostic testing by CFTR gene mutation analysis in a large group of Hispanics: novel mutations and assessment of a population-specific mutation spectrum. J Mol Diagn. 2005;7(2):289-299.
-
(2005)
J Mol Diagn.
, vol.7
, Issue.2
, pp. 289-299
-
-
Schrijver, I.1
Ramalingam, S.2
Sankaran, R.3
-
15
-
-
0027395872
-
The changing epidemiology of cystic fibrosis
-
Fitz Simmons SC. The changing epidemiology of cystic fibrosis. J Pediatr. 1993;122(1):1-9.
-
(1993)
J Pediatr.
, vol.122
, Issue.1
, pp. 1-9
-
-
Fitz Simmons, S.C.1
-
16
-
-
0020585150
-
Changes in the normal maximal expiratory flow-volume curve with growth and aging
-
Knudson RJ, Lebowitz MD, Holberg CJ, Burrows B. Changes in the normal maximal expiratory flow-volume curve with growth and aging. Am Rev Respir Dis. 1983;127(6):725-734.
-
(1983)
Am Rev Respir Dis.
, vol.127
, Issue.6
, pp. 725-734
-
-
Knudson, R.J.1
Lebowitz, M.D.2
Holberg, C.J.3
Burrows, B.4
-
17
-
-
0025772863
-
Methodology for generating continuous prediction equations for pulmonary function measures
-
Sherrill DL, Lebowitz MD, Knudson RJ, Burrows B. Methodology for generating continuous prediction equations for pulmonary function measures. Comput Biomed Res. 1991;24(3):249-260.
-
(1991)
Comput Biomed Res.
, vol.24
, Issue.3
, pp. 249-260
-
-
Sherrill, D.L.1
Lebowitz, M.D.2
Knudson, R.J.3
Burrows, B.4
-
18
-
-
27144525477
-
Birth prevalence and survival in cystic fibrosis: A national cohort study in the netherlands
-
Slieker MG, Uiterwaal CS, Sinaasappel M, Heijerman HG, van der Laag J, van der Ent CK. Birth prevalence and survival in cystic fibrosis: a national cohort study in the Netherlands. Chest. 2005;128(4): 2309-2315.
-
(2005)
Chest
, vol.128
, Issue.4
, pp. 2309-2315
-
-
Slieker, M.G.1
Uiterwaal, C.S.2
Sinaasappel, M.3
Heijerman, H.G.4
Van Der-Laag, J.5
Van Der-Ent, C.K.6
-
19
-
-
0036163928
-
Case-mix adjustment for evaluation of mortality in cystic fibrosis
-
O'Connor GT, Quinton HB, Kahn R, et al; Northern New England Cystic Fibrosis Consortium. Case-mix adjustment for evaluation of mortality in cystic fibrosis. Pediatr Pulmonol. 2002;33(2):99-105.
-
(2002)
Pediatr Pulmonol.
, vol.33
, Issue.2
, pp. 99-105
-
-
O'Connor, G.T.1
Quinton, H.B.2
Kahn, R.3
-
20
-
-
0026520359
-
Prediction of mortality in patients with cystic fibrosis
-
Kerem E, Reisman J, Corey M, Canny GJ, Levison H. Prediction of mortality in patients with cystic fibrosis. N Engl J Med. 1992;326(18):1187-1191.
-
(1992)
N Engl J Med.
, vol.326
, Issue.18
, pp. 1187-1191
-
-
Kerem, E.1
Reisman, J.2
Corey, M.3
Canny, G.J.4
Levison, H.5
-
21
-
-
0038663174
-
Effect of genotype on phenotype and mortality in cystic fibrosis: A retrospective cohort study
-
McKone EF, Emerson SS, Edwards KL, Aitken ML. Effect of genotype on phenotype and mortality in cystic fibrosis: a retrospective cohort study. Lancet. 2003;361(9370):1671-1676.
-
(2003)
Lancet
, vol.361
, Issue.9370
, pp. 1671-1676
-
-
McKone, E.F.1
Emerson, S.S.2
Edwards, K.L.3
Aitken, M.L.4
-
22
-
-
34249864458
-
Predictors of mortality in adults with cystic fibrosis
-
Courtney JM, Bradley J, Mccaughan J, et al. Predictors of mortality in adults with cystic fibrosis. Pediatr Pulmonol. 2007;42(6):525-532.
-
(2007)
Pediatr Pulmonol.
, vol.42
, Issue.6
, pp. 525-532
-
-
Courtney, J.M.1
Bradley, J.2
Mccaughan, J.3
-
23
-
-
0036159537
-
Outcome of burkholderia cepacia colonisation in an adult cystic fibrosis centre
-
Ledson MJ, Gallagher MJ, Jackson M, Hart CA, Walshaw MJ. Outcome of Burkholderia cepacia colonisation in an adult cystic fibrosis centre. Thorax. 2002;57(2):142-145.
-
(2002)
Thorax
, vol.57
, Issue.2
, pp. 142-145
-
-
Ledson, M.J.1
Gallagher, M.J.2
Jackson, M.3
Hart, C.A.4
Walshaw, M.J.5
-
24
-
-
24144434990
-
Diabetes is associated with dramatically decreased survival in female but not male subjects with cystic fibrosis
-
Milla CE, Billings J, Moran A. Diabetes is associated with dramatically decreased survival in female but not male subjects with cystic fibrosis. Diabetes Care. 2005;28(9):2141-2144.
-
(2005)
Diabetes Care
, vol.28
, Issue.9
, pp. 2141-2144
-
-
Milla, C.E.1
Billings, J.2
Moran, A.3
-
25
-
-
0027162649
-
Molecular mechanisms of CFTR chloride channel dysfunction in cystic fibrosis
-
Welsh MJ, Smith AE. Molecular mechanisms of CFTR chloride channel dysfunction in cystic fibrosis. Cell. 1993;73(7):1251-1254.
-
(1993)
Cell
, vol.73
, Issue.7
, pp. 1251-1254
-
-
Welsh, M.J.1
Smith, A.E.2
-
26
-
-
0035002870
-
Clinical outcome after early pseudomonas aeruginosa infection in cystic fibrosis
-
Nixon GM, Armstrong DS, Carzino R, et al. Clinical outcome after early Pseudomonas aeruginosa infection in cystic fibrosis. J Pediatr. 2001;138(5): 699-704.
-
(2001)
J Pediatr.
, vol.138
, Issue.5
, pp. 699-704
-
-
Nixon, G.M.1
Armstrong, D.S.2
Carzino, R.3
-
27
-
-
12844270608
-
Longitudinal development of mucoid pseudomonas aeruginosa infection and lung disease progression in children with cystic fibrosis
-
Li Z, Kosorok MR, Farrell PM, et al. Longitudinal development of mucoid Pseudomonas aeruginosa infection and lung disease progression in children with cystic fibrosis. JAMA. 2005;293(5): 581-588.
-
(2005)
JAMA
, vol.293
, Issue.5
, pp. 581-588
-
-
Li, Z.1
Kosorok, M.R.2
Farrell, P.M.3
-
29
-
-
77449133012
-
Cystic fibrosis foundation evidence-based guidelines for management of infants with cystic fibrosis
-
Borowitz D, Robinson KA, Rosenfeld M, et al; Cystic Fibrosis Foundation. Cystic Fibrosis Foundation evidence-based guidelines for management of infants with cystic fibrosis. J Pediatr. 2009;155(Suppl 6): S73-S93.
-
(2009)
J Pediatr.
, vol.155
, pp. S73-S93
-
-
Borowitz, D.1
Robinson, K.A.2
Rosenfeld, M.3
-
30
-
-
20044373435
-
Standards of care for patients with cystic fibrosis: A european consensus
-
Kerem E, Conway S, Elborn S, Heijerman H; Consensus Committee. Standards of care for patients with cystic fibrosis: a European consensus. J Cyst Fibros. 2005;4(1):7-26.
-
(2005)
J Cyst Fibros.
, vol.4
, Issue.1
, pp. 7-26
-
-
Kerem, E.1
Conway, S.2
Elborn, S.3
Heijerman, H.4
-
31
-
-
84885022205
-
Defining the disease liability of variants in the cystic fibrosis transmembrane conductance regulator gene
-
Sosnay PR, Siklosi KR, Van Goor F, et al. Defining the disease liability of variants in the cystic fibrosis transmembrane conductance regulator gene. Nat Genet. 2013;45(10):1160-1167.
-
(2013)
Nat Genet.
, vol.45
, Issue.10
, pp. 1160-1167
-
-
Sosnay, P.R.1
Siklosi, K.R.2
Van Goor, F.3
-
33
-
-
78650855491
-
Broadening the focus: The need to address the social determinants of health
-
Braveman PA, Egerter SA, Mockenhaupt RE. Broadening the focus: the need to address the social determinants of health. Am J Prev Med. 2011;40(suppl 1):S4-S18.
-
(2011)
Am J Prev Med.
, vol.40
, pp. S4-S18
-
-
Braveman, P.A.1
Egerter, S.A.2
Mockenhaupt, R.E.3
-
34
-
-
78549279173
-
Effect of VX-770 in persons with cystic fibrosis and the G551D-CFTR mutation
-
Accurso FJ, Rowe SM, Clancy JP, et al. Effect of VX-770 in persons with cystic fibrosis and the G551D-CFTR mutation. N Engl J Med. 2010;363(21): 1991-2003.
-
(2010)
N Engl J Med.
, vol.363
, Issue.21
, pp. 1991-2003
-
-
Accurso, F.J.1
Rowe, S.M.2
Clancy, J.P.3
-
35
-
-
84880046700
-
The effect of social deprivation on clinical outcomes and the use of treatments in the UK cystic fibrosis population: A longitudinal study
-
Taylor-Robinson DC, Smyth RL, Diggle PJ, Whitehead M. The effect of social deprivation on clinical outcomes and the use of treatments in the UK cystic fibrosis population: a longitudinal study. Lancet Respir Med. 2013;1(2):121-128.
-
(2013)
Lancet Respir Med.
, vol.1
, Issue.2
, pp. 121-128
-
-
Taylor-Robinson, D.C.1
Smyth, R.L.2
Diggle, P.J.3
Whitehead, M.4
-
36
-
-
0030895685
-
The effects of poverty on child health and development
-
Aber JL, Bennett NG, Conley DC, Li J. The effects of poverty on child health and development. Annu Rev Public Health. 1997;18(1):463-483.
-
(1997)
Annu Rev Public Health
, vol.18
, Issue.1
, pp. 463-483
-
-
Aber, J.L.1
Bennett, N.G.2
Conley, D.C.3
Li, J.4
-
38
-
-
67249097873
-
Increased prevalence of risk factors for morbidity and mortality in the US hispanic CF population
-
Watts KD, Seshadri R, Sullivan C, McColley SA. Increased prevalence of risk factors for morbidity and mortality in the US Hispanic CF population. Pediatr Pulmonol. 2009;44(6):594-601.
-
(2009)
Pediatr Pulmonol.
, vol.44
, Issue.6
, pp. 594-601
-
-
Watts, K.D.1
Seshadri, R.2
Sullivan, C.3
McColley, S.A.4
-
39
-
-
79957946294
-
Managing cystic fibrosis: Strategies that increase life expectancy and improve quality of life
-
Cohen-Cymberknoh M, Shoseyov D, Kerem E. Managing cystic fibrosis: strategies that increase life expectancy and improve quality of life. Am J Respir Crit Care Med. 2011;183(11):1463-1471.
-
(2011)
Am J Respir Crit Care Med.
, vol.183
, Issue.11
, pp. 1463-1471
-
-
Cohen-Cymberknoh, M.1
Shoseyov, D.2
Kerem, E.3
-
40
-
-
79951478072
-
Origins of outcome disparities in pediatric respiratory disease
-
Watts KD, Schechter MS. Origins of outcome disparities in pediatric respiratory disease. Pediatr Ann. 2010;39(12):793-798.
-
(2010)
Pediatr Ann.
, vol.39
, Issue.12
, pp. 793-798
-
-
Watts, K.D.1
Schechter, M.S.2
-
41
-
-
40349085758
-
Assessment of parental understanding by pediatric residents during counseling after newborn genetic screening
-
Farrell MH, Kuruvilla P. Assessment of parental understanding by pediatric residents during counseling after newborn genetic screening. Arch Pediatr Adolesc Med. 2008;162(3):199-204.
-
(2008)
Arch Pediatr Adolesc Med.
, vol.162
, Issue.3
, pp. 199-204
-
-
Farrell, M.H.1
Kuruvilla, P.2
-
42
-
-
84863528173
-
Race, ethnicity and health: The costs and benefits of conceptualising racism and ethnicity
-
Bradby H. Race, ethnicity and health: the costs and benefits of conceptualising racism and ethnicity. Soc Sci Med. 2012;75(6):955-958.
-
(2012)
Soc Sci Med.
, vol.75
, Issue.6
, pp. 955-958
-
-
Bradby, H.1
-
43
-
-
61649128430
-
"Race" and "ethnicity" in biomedical research: How do scientists construct and explain differences in health?
-
Lee C. "Race" and "ethnicity" in biomedical research: how do scientists construct and explain differences in health? Soc Sci Med. 2009;68(6):1183-1190.
-
(2009)
Soc Sci Med.
, vol.68
, Issue.6
, pp. 1183-1190
-
-
Lee, C.1
-
44
-
-
0033427989
-
Using ethnicity as a classification variable in health research: Perpetuating the myth of biological determinism, serving socio-political agendas, or making valuable contributions to medical sciences?
-
Anand SS. Using ethnicity as a classification variable in health research: perpetuating the myth of biological determinism, serving socio-political agendas, or making valuable contributions to medical sciences? Ethn Health. 1999;4(4):241-244.
-
(1999)
Ethn Health
, vol.4
, Issue.4
, pp. 241-244
-
-
Anand, S.S.1
-
45
-
-
2342641494
-
Genetics, race, ethnicity, and health
-
Pearce N, Foliaki S, Sporle A, Cunningham C. Genetics, race, ethnicity, and health. BMJ. 2004;328(7447): 1070-1072.
-
(2004)
BMJ
, vol.328
, Issue.7447
, pp. 1070-1072
-
-
Pearce, N.1
Foliaki, S.2
Sporle, A.3
Cunningham, C.4
|