Experience of stigma in private life of relatives of people diagnosed with schizophrenia in the Republic of Belarus

Social Psychiatry and Psychiatric Epidemiology

Volumn 51, Issue 5, 2016, Pages 757-765

  Krupchanka, D ^a,c   Kruk, N ^b   Murray, J ^c   Davey, S ^c   Bezborodovs, N ^d   Winkler, P ^a,c   Bukelskis, L ^e   Sartorius, N ^f  

^a NATIONAL INSTITUTE OF MENTAL HEALTH   (Czech Republic)

^b GRODNO STATE MEDICAL UNIVERSITY   (Belarus)

^c KING'S COLLEGE LONDON   (United Kingdom)

^d CHILDREN'S CLINICAL UNIVERSITY HOSPITAL   (Latvia)

^e VILNIUS UNIVERSITY   (Lithuania)

^f Association for the Improvement of Mental Health Programmes   (Switzerland)

Author keywords

Courtesy stigma; Family studies; Qualitative approach

Indexed keywords

EID: 84957936301     PISSN: 09337954     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00127-016-1190-y     Document Type: Article

References (51)

1. Sartorius N, Schulze H (2005) Reducing the stigma of mental illness: a report from a Global Association. Cambridge University Press, New York
2. Thornicroft G, Brohan E, Rose D et al (2009) Global pattern of experienced and anticipated discrimination against people with schizophrenia: a cross-sectional survey. Lancet 373:408–415
3. Corrigan PW, Miller FE (2004) Shame, blame, and contamination: a review of the impact of mental illness stigma on family members. J Ment Heal 13:537–548
4. Angermeyer MC, Schulze B, Dietrich S (2003) Courtesy stigma—a focus group study of relatives of schizophrenia patients. Soc Psychiatry Psychiatr Epidemiol 38:593–602
5. Mehta SI, Farina A (1988) Associative stigma: perceptions of the difficulties of college-aged children of stigmatized fathers. J Soc Clin Psychol 7:192–202
6. Ostman M (2002) Stigma by association: psychological factors in relatives of people with mental illness. Br J Psychiatry 181:494–498
7. Phelan JC, Bromet EJ, Link BG (1998) Psychiatric illness and family stigma. Schizophr Bull 24:115–126
8. Kadri Nadia, Manoudi Fatiha, Soumia Berrada DM (2004) Stigma impact on Moroccan families of patients with schizophrenia. Can J Psychiatry 49:625–629
9. Shibre T, Negash A, Kullgren G et al (2001) Perception of stigma among family members of individuals with schizophrenia and major affective disorders in rural Ethiopia. Soc Psychiatry Psychiatr Epidemiol 36:299–303
10. Koschorke M, Padmavati R, Kumar S et al (2014) Experiences of stigma and discrimination of people with schizophrenia in India. Soc Sci Med 123C:149–159
11. Catthoor K, Schrijvers D, Hutsebaut J et al (2015) Associative stigma in family members of psychotic patients in Flanders: an exploratory study. World J psychiatry 5:118–125. doi:10.5498/wjp.v5.i1.118
12. Buizza C, Schulze B, Bertocchi E et al (2007) The stigma of schizophrenia from patients’ and relatives’ view: a pilot study in an Italian rehabilitation residential care unit. Clin Pract Epidemiol Ment Health 3:23
13. Larson JE, Corrigan P (2008) The stigma of families with mental illness. Acad Psychiatry 32:87–91
14. Struening EL, Perlick DA, Link BG et al (2001) Stigma as a barrier to recovery: the extent to which caregivers believe most people devalue consumers and their families. Psychiatr Serv 52:1633–1638
15. González-Torres MA, Oraa R, Arístegui M et al (2007) Stigma and discrimination towards people with schizophrenia and their family members. A qualitative study with focus groups. Soc Psychiatry Psychiatr Epidemiol 42:14–23
16. Gaebel W, Zäske H, Baumann AE et al (2008) Evaluation of the German WPA “program against stigma and discrimination because of schizophrenia–open the doors”: results from representative telephone surveys before and after three years of antistigma interventions. Schizophr Res 98:184–193
17. Henderson C, Thornicroft G (2013) Evaluation of the time to change programme in England 2008–2011. Br J Psychiatry Suppl 55:s45–s48
18. Stuart H, Arboleda-Florez J, Sartorius N (2012) Paradigms lost: fighting stigma and the lessons learned. Oxford University Press, New York
19. Corrigan P, Michaels PJ, Morris S (2015) Do the effects of antistigma programs persist over time? Findings from a meta-analysis. Psychiatr Serv 66:543–546
20. Yang LH, Chen F, Sia KJ et al (2014) “What matters most:” a cultural mechanism moderating structural vulnerability and moral experience of mental illness stigma. Soc Sci Med 103:84–93
21. Evans-Lacko S, Courtin E, Fiorillo A et al (2014) The state of the art in European research on reducing social exclusion and stigma related to mental health: a systematic mapping of the literature. Eur Psychiatry 29:381–389
22. Dlouhy M (2014) Mental health policy in Eastern Europe: a comparative analysis of seven mental health systems. BMC Health Serv Res 14:42
23. Mundt AP, Frančišković T, Gurovich I et al (2012) Changes in the provision of institutionalized mental health care in post-communist countries. PLoS ONE 7:e38490
24. Goffman E (1969) Stigma: notes on the management of spoiled identity. Postgrad Med J 45:642
25. Scheff TJ (1975) Labeling madness. Prentice-Hall, Englewood Cliffs
26. Erickson CD (2006) On the stigma of mental illness: practical strategies for research and social change. Psychiatr Serv 57:1048
27. Corrigan PW, Rao D (2012) On the self-stigma of mental illness: stages, disclosure, and strategies for change. Can J Psychiatry 57:464–469
28. Link BG, Phelan JC (2001) Conceptualizing stigma. Annu Rev Sociol 27:363–385
29. Stevenson A (2010) Oxford dictionary of English, 3rd edn. Oxford University Press, Oxford
30. Dicicco-Bloom B, Crabtree BF (2006) The qualitative research interview. Med Educ 40:314–321
31. Braun V, Clarke V (2006) Using thematic analysis in psychology. Qual Res Psychol 3(2):77–101
32. Angermeyer MC, Beck M, Dietrich S, Holzinger A (2004) The stigma of mental illness: patients’ anticipations and experiences. Int J Soc Psychiatry 50:153–162
33. Wahl OF, Harman CR (1989) Family Views of Stigma. Schizophr Bull 15:131–139
34. Zou H, Li Z, Arthur D, Wang H (2014) Self-management in Chinese people with schizophrenia and their caregivers: a qualitative study on facilitators and barriers. Int J Ment Health Nurs 23:355–363
35. World Values Survey (2014) Home > Data & Documentations > Online Analysis. http://www.worldvaluessurvey.org/WVSOnline.jsp. Accessed 27 Jan 2016
36. Birchwood M, Cochrane R (1990) Families coping with schizophrenia: coping styles, their origins and correlates. Psychol Med 20:857–865
37. Barrowclough C, Parle M (1997) Appraisal, psychological adjustment and expressed emotion in relatives of patients suffering from schizophrenia. Br J Psychiatry 171:26–30
38. Scazufca M, Kuipers E (1999) Coping strategies in relatives of people with schizophrenia before and after psychiatric admission. Br J Psychiatry 174:154–158
39. Pharoah F, Mari J, Rathbone J, Wong W (2010) Family intervention for schizophrenia. Cochrane Database Syst Rev (12):CD000088
40. Hanzawa S, Bae J-K, Tanaka H et al (2010) Personal stigma and coping strategies in families of patients with schizophrenia: comparison between Japan and Korea. Asia Pac Psychiatry 2:105–113
41. Scazufca M, Kuipers E (1996) Links between expressed emotion and burden of care in relatives of patients with schizophrenia. Br J Psychiatry 168:580–587
42. Kuipers E, Bebbington P, Dunn G et al (2006) Influence of carer expressed emotion and affect on relapse in non-affective psychosis. Br J Psychiatry 188:173–179
43. Raune D, Kuipers E, Bebbington PE (2004) Expressed emotion at first-episode psychosis: investigating a carer appraisal model. Br J Psychiatry 184:321–326
44. Kuipers E, Onwumere J, Bebbington P (2010) Cognitive model of caregiving in psychosis. Br J Psychiatry 196:259–265
45. Golubeva N, Naudts K, Gibbs A et al (2006) Psychiatry in the Republic of Belarus. Int Psychiatry 3(3):11–13
46. Thompson JW (1994) Trends in the development of psychiatric services, 1844–1994. Hosp Comm Psychiatry 45:987–992
47. Accordino MP, Porter DF, Morse T (2001) Deinstitutionalization of persons with severe mental illness: context and consequences. J Rehabil 67:16
48. Curson DA, Pantelis C, Ward J, Barnes TR (1992) Institutionalism and schizophrenia 30 years on. Clinical poverty and the social environment in three British mental hospitals in 1960 compared with a fourth in 1990. Br J Psychiatry 160:230–241 (discussion 241–243)
49. Thornicroft G, Brohan E, Kassam A, Lewis-Holmes E (2008) Reducing stigma and discrimination: candidate interventions. Int J Ment Health Syst 2:3
50. Perlick DA, Nelson AH, Mattias K et al (2011) In our own voice-family companion: reducing self-stigma of family members of persons with serious mental illness. Psychiatr Serv 62:1456–1462
51. Van der Sanden RLM, Stutterheim SE, Pryor JB et al (2014) Coping with stigma by association and family burden among family members of people with mental illness. J Nerv Ment Dis 202(10):710–717