Providing palliative care for cardiovascular disease from a perspective of sociocultural diversity: A global view

Current Opinion in Supportive and Palliative Care

Volumn 10, Issue 1, 2016, Pages 11-17

  Davidson, Patricia M ^a,b   Phillips, Jane L ^a,b   Dennison Himmelfarb, Cheryl ^a,b   Thompson, Sandra C ^c   Luckett, Tim ^b   Currow, David C ^d  

^a JOHNS HOPKINS UNIVERSITY SCHOOL OF NURSING   (United States)

^b UNIVERSITY OF TECHNOLOGY SYDNEY   (Australia)

^c UNIVERSITY OF WESTERN AUSTRALIA   (Australia)

^d FLINDERS UNIVERSITY   (Australia)

Author keywords

cardiovascular; cultural competence; culture; palliative care; social ecological model

Indexed keywords

ATTITUDE TO HEALTH; CARDIOVASCULAR DISEASE; CULTURAL COMPETENCE; ETHNOLOGY; HEALTH DISPARITY; HUMAN; ORGANIZATION AND MANAGEMENT; PALLIATIVE THERAPY; SOCIAL DETERMINANTS OF HEALTH; SOCIAL ENVIRONMENT;

CARDIOVASCULAR DISEASES; CULTURAL COMPETENCY; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH STATUS DISPARITIES; HUMANS; PALLIATIVE CARE; SOCIAL DETERMINANTS OF HEALTH; SOCIAL ENVIRONMENT;

EID: 84957620950     PISSN: 17514258     EISSN: 17514266     Source Type: Journal    
DOI: 10.1097/SPC.0000000000000188     Document Type: Review

References (68)

1. World Health Organization. Cardiovascular diseases. 2015. http:// www. who. int/topics/cardiovascular-diseases/en/. [Accessed 11 November 2015]
2. Jaarsma T, Beattie JM, Ryder M, et al. Palliative care in heart failure: a position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology. Eur J Heart Fail 2009; 11:433-443.
3. National Heart Foundation and Cardiac Society of Australia and New Zealand. Guidelines for the prevention, detection and management of chronic heart failure in Australia. 2011. https://mjainsight. com. Au/system/files/issues/ 194-08-180411/kru11483-fm. pdf. [Accessed 11 November 2015]
4. Jessup M, Abraham WT, Casey DE, et al. 2009 focused update: ACCF/AHA Guidelines for the Diagnosis and Management of Heart Failure in Adults: a report of the American College of Cardiology Foundation/American Heart Association Task Force on Practice Guidelines: developed in collaboration with the International Society for Heart and Lung Transplantation. Circulation 2009; 119:1977-2016.
5. Dickstein K, Cohen-Solal A, Filippatos G, et al. ESC guidelines for the diagnosis and treatment of acute and chronic heart failure 2008: the Task Force for the diagnosis and treatment of acute and chronic heart failure 2008 of the European Society of Cardiology. Developed in collaboration with the Heart Failure Association of the ESC (HFA) and endorsed by the European Society of Intensive Care Medicine (ESICM). Eur J Heart Fail 2008; 10:933-989.
6. Davidson PM, Macdonald P, Ang E, et al. A case for consideration of cultural diversity in heart failure management-Part 1: rationale for the DISCOVER Study. Contemporary Nurse 2004; 17:204-210.
7. Gavazzi A, De Maria R, Manzoli L, et al. Palliative needs for heart failure or chronic obstructive pulmonary disease: results of a multicenter observational registry. Int J Cardiol 2015; 184:552-558.
8. Campbell RT, Jackson CE, Wright A, et al. Palliative care needs in patients hospitalized with heart failure (PCHF) study: rationale and design. ESC Heart Failure 2015; 2:25-36.
9. Sidebottom AC, Jorgenson A, Richards H, et al. Inpatient palliative care for patients with acute heart failure: outcomes from a randomized trial. J Palliative Med 2015; 18:134-142.
10. Denvir M, Murray S, Boyd K. Future care planning: a first step to palliative care for all patients with advanced heart disease. Heart 2015. doi:10. 1136/ heartjnl-2014-306724.
11. Sepú lveda C, Marlin A, Yoshida T, Ullrich A. Palliative care: the World Health Organization's global perspective. J Pain Symptom Manage 2002; 24:91-96.
12. Dumanovsky T, Augustin R, Rogers M, et al. The growth of palliative care in US hospitals: a status report. J Palliative Med 2015; Epub ahead of print. doi:10. 1089/jpm. 2015. 0351.
13. Patel K, Rushefsky ME. Healthcare in America: Separate and Unequal. Routledge; 2015.
14. Lu Y, Qin L. Healthy migrant and salmon bias hypotheses: a study of health and internal migration in china. Social Sci Med 2014; 102:41-48.
15. Shishehgar S, Gholizadeh L, DiGiacomo M, Davidson PM. The impact of migration on the health status of Iranians: an integrative literature review. BMC Int Health Hum Rights 2015; 15:20.
16. Al Abed NA, Davidson PM, Hickman LD. Healthcare needs of older Arab migrants: a systematic review. J Clin Nurs 2014; 23:1770-1784.
17. Szczepura A. Access to healthcare for ethnic minority populations. Postgraduate Med J 2005; 81:141-147.
18. Todd J, Baldwin CM. Palliative care and culture: an optimistic view. J Multicultural Nursing Health; Summer 2006; 12 (2):28.
19. Levesque J-F, Harris MF, Russell G. Patient-centred access to healthcare: conceptualising access at the interface of health systems and populations. Int J Equity Health 2013; 12:18.
20. Lee JJ, Long AC, Curtis JR, Engelberg RA. The influence of race/ethnicity and education on family ratings of the quality of dying in the ICU. J Pain Symptom Manage 2015. doi:10. 1016/j. jpainsymman. 2015. 08. 008.
21. Hegarty M, Currow D, Parker D, et al. Palliative care in undergraduate curricula: results of a national scoping study. Focus on Health Professional Education 2010; 12:97-109.
22. Waller A, Girgis A, Johnson C, et al. Facilitating needs based cancer care for people with a chronic disease: evaluation of an intervention using a multicentre interrupted time series design. BMC Palliative Care 2010; 9:2.
23. Crawley L, Koffman J. Ethnic and cultural aspects of palliative care. Oxford Textbook of Palliative Medicine; Cherny N, Fallon NM, Kaasa S, Portenoy RK, Currow DC, eds. 2015; 84-92.
24. ChengHWB, Li CW, Chan KY, et al. Bringing palliative care into geriatrics in a Chinese culture society: results of a collaborative model between palliative medicine and geriatrics unit in Hong Kong. J Am Geriatr Soc 2014; 62:779-781.
25. Andrew EVW, Cohen J, Evans N, et al. Social-cultural factors in end-of-life care in Belgium: a scoping of the research literature. Palliative Med 2013; 27:131-143.
26. Shahid S, Finn L, Bessarab D, Thompson SC. Understanding, beliefs and perspectives of Aboriginal people in Western Australia about cancer and its impact on access to cancer services. BMC Health Serv Res 2009; 9:132.
27. Crawley L, Payne R, Bolden J, et al. Palliative and end-of-life care in the African American community. JAMA 2000; 284:2518-2521.
28. Brown A, O'Shea RL, Mott K, et al. Essential service standards for equitable national cardiovascular care for Aboriginal and Torres Strait Islander people. Heart Lung Circulation 2015; 24:126-141.
29. Oetzel JG, Simpson M, Berryman K, Reddy R. Differences in ideal communication behaviours during end-of-life care for Ma ori carers/patients and palliative care workers. Palliative Med 2015. doi: 10. 1177/ 0269216315583619.
30. Anderson LM, Scrimshaw SC, Fullilove MT, et al. Culturally competent healthcare systems: a systematic review. Am J Prev Med 2003; 24:68-79.
31. Gysels M, Evans N, Men aca A, et al. Culture is a priority for research in end-oflife care in Europe: a research agenda. J Pain Symptom Manage 2012; 44:285-294.
32. Davidson PM, Macdonald P, Moser DK, et al. Cultural diversity in heart failure management: findings from the DISCOVER study (Part 2). Contemporary Nurse 2007; 25:50-62.
33. Olarte JMN, Guillén DG. Cultural issues and ethical dilemmas in palliative and end-of-life care in Spain. Cancer Control 2001; 8:46-54.
34. Nielsen LS, Angus JE, Howell D, et al. Patient-centered care or cultural competence: negotiating palliative care at home for Chinese Canadian immigrants. Am J Hosp Palliative Med 2015; 32:372-379.
35. McNamara B, Martin K, Waddell C, Yuen K. Palliative care in a multicultural society: perceptions of healthcare professionals. Palliative Med 1997; 11:359-367.
36. Campinha-Bacote J. The process of cultural competence in the delivery of healthcare services: a model of care. J Transcult Nurs 2002; 13:181-184.
37. Bronfenbrenner U. The ecology of human development: experiments by nature and design. Harvard University Press; 2009.
38. Gibbs J, McCoy A, Gibbs L, et al. Living with and dying from heart failure: the role of palliative care. Heart 2002; 88:ii36-ii39.
39. Clayton JM, Butow PN, Tattersall MH, et al. Randomized controlled trial of a prompt list to help advanced cancer patients and their caregivers to askquestions about prognosis and end-of-life care. J Clin Oncol 2007; 25:715-723.
40. Holland JC, Kelly BJ, Weinberger MI. Why psychosocial care is difficult to integrate into routine cancer care: stigma is the elephant in the room. J National Comprehensive Cancer Network 2010; 8:362-366.
41. Ben-Arye E, Israely P, Baruch E, Dagash J. Integrating family medicine and complementary medicine in cancer care: a cross-cultural perspective. Patient Education Counseling 2014; 97:135-139.
42. Deek H, Noureddine S, Newton PJ, et al. A family-focused intervention for heart failure self-care: conceptual underpinnings of a culturally appropriate intervention. J Adv Nurs 2015; DOI: 10. 1111/jan. 12768.
43. Back MF, Huak CY. Family centred decision making and nondisclosure of diagnosis in a South East Asian oncology practice. Psycho-Oncology 2005; 14:1052-1059.
44. Daly J, Davidson P, Chang E, et al. Cultural aspects of adjustment to coronary heart disease in Chinese-Australians: a review of the literature. J Adv Nurs 2002; 39:391-399.
45. Baker AE, Procter NG, Ferguson MS. Engaging with culturally and linguistically diverse communities to reduce the impact of depression and anxiety: a narrative review. Health Social Care in the Community 2015. doi: 10. 1111/ hsc. 12241.
46. Sampson R, Cooper J, Barbour R, et al. Patients' perspectives on the medical primary-secondary care interface: systematic review and synthesis of qualitative research. BMJ Open 2015; 5:e008708.
47. Kirchhoff KT, Hammes BJ, Kehl KA, Briggs LA, Brown RL. Effect of a diseasespecific advance care planning intervention on end-of-life care. J Am Geriatr Soc 2012; 58:1233-1240.
48. Luckett T, Bhattarai P, Phillips J, et al. Advance care planning in 21st century Australia: a systematic review and appraisal of online advance care directive templates against National Framework criteria. Aust Health Rev 2015; 39:552-560.
49. Bullock K. Promoting advance directives among African Americans: a faithbased model. J Palliative Med 2006; 9:183-195.
50. Allen LA, Stevenson LW, Grady KL, et al. Decision making in advanced heart failure a scientific statement from the American Heart Association. Circulation 2012; 125:1928-1952.
51. Treloar C, Gray R, Brener L, et al. I can't do this, it's too much': building social inclusion in cancer diagnosis and treatment experiences of Aboriginal people, their carers and health workers. Int J Public Health 2014; 59:373-379.
52. Detering K, Sutton E, Fraser S, et al. Feasibility and acceptability of advance care planning in elderly Italian and Greek speaking patients as compared to English-speaking patients: an Australian cross-sectional study. BMJ Open 2015; 5:e008800.
53. Downing J, Grant L, Leng M, Namukwaya E. Understanding models of palliative care delivery in Sub-Saharan Africa: learning from program in Kenya and Malawi. J Pain Symptom Manage 2015. doi:10. 1016/j. jpainsymman. 2015. 03. 017.
54. Lewis JM, DiGiacomo M, Luckett T, et al. A social capital framework for palliative care: supporting health and well being for people with life-limiting illness and their carers through social relations and networks. J Pain Symptom Manage 2013; 45:92-103.
55. Hotson K, Macdonald S, Martin B. Understanding death and dying in select first nations communities in northern Manitoba: issues of culture and remote service delivery in palliative care. Int J Circumpolar Health 2004; 63:25-38.
56. McNamara B, Rosenwax L. Factors affecting place of death in Western Australia. Health Place 2007; 13:356-367.
57. Venkatasalu MR, Seymour JE, Arthur A. Dying at home: a qualitative study of the perspectives of older South Asians living in the United Kingdom. Palliative Med 2014; 28:264-272.
58. Sinclair C, Smith J, Toussaint Y, Auret K. Discussing dying in the diaspora: attitudes towards advance care planning among first generation Dutch and Italian migrants in rural Australia. Soc Sci Med 2014; 101:86-93.
59. Fischer SM, Sauaia A, Kutner JS. Patient navigation: a culturally competent strategy to address disparities in palliative care. J Palliative Med 2007; 10:1023-1028.
60. McGrath PD, Patton MAS, Ogilvie KF, Rayner RD. The case for Aboriginal Health Workers in palliative care. Aust Health Rev 2007; 31:430-439.
61. Lewis JM, DiGiacomo M, Currow DC, Davidson PM. Dying in the margins: understanding palliative care and socioeconomic deprivation in the developed world. J Pain Symptom Manage 2011; 42:105-118.
62. Currow DC, Agar M, Sanderson C, Abernethy AP. Populations who die without specialist palliative care: does lower uptake equate with unmet need? Palliative Med 2008; 22:43-50.
63. Callaway M, Foley KM, De Lima L, et al. Funding for palliative care programs in developing countries. J Pain Symptom Manag 2007; 33: 509-513.
64. Campion EW, Kelley AS, Morrison RS. Palliative care for the seriously ill. N Engl J Med 2015; 373:747-755.
65. Gysels M. Cultural issues in palliative care for older people. Van den Block L, Albers G, Martins Pereira S, Onwuteaka-Philipsen B, Pasman R, Deliens L, editors. Palliative Care for Older People: A Public Health Perspective; 2015. pp. 156-159.
66. Hunt SA, Abraham WT, Chin MH, et al. ACC/AHA 2005 guideline update for the diagnosis and management of chronic heart failure in the adult a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (Writing Committee to Update the 2001 Guidelines for the Evaluation and Management of Heart Failure): developed in collaboration with the American College of Chest Physicians and the International Society for Heart and Lung Transplantation: endorsed by the Heart Rhythm Society. Circulation 2005; 112:e154-e235.
67. Page K, Marwick TH, Lee R, et al. A systematic approach to chronic heart failure care: a consensus statement. Med J Australia 2014; 201: 146-150.
68. Quill TE, Abernethy AP. Generalist plus specialist palliative care: creating a more sustainable model. N Engl J Med 2013; 368:1173-1175.