-
2
-
-
84894100692
-
Concern about security and privacy, and perceived control over collection and use of health information are related to withholding of health information from healthcare providers
-
Agaku, I.T., Adisa, A.O., Ayo-Yusuf, O.A., Connolly, G.N.: Concern about security and privacy, and perceived control over collection and use of health information are related to withholding of health information from healthcare providers. J. Am. Med. Inform. Assoc. 21, 374–378 (2014)
-
(2014)
J. Am. Med. Inform. Assoc
, vol.21
, pp. 374-378
-
-
Agaku, I.T.1
Adisa, A.O.2
Ayo-Yusuf, O.A.3
Connolly, G.N.4
-
3
-
-
84975788577
-
The growth and gaps of genetic data sharing policies in the united states
-
Arias, J.J., Campbell, E.G.: The growth and gaps of genetic data sharing policies in the united states. J. Law Biosci. 2, 56–58 (2015)
-
(2015)
J. Law Biosci
, vol.2
, pp. 56-58
-
-
Arias, J.J.1
Campbell, E.G.2
-
4
-
-
84865463343
-
-
Accessed 22 June 2015
-
Article 29 Data ProtectionWorking Party: Opinion 15/2011 on the definition of consent. http://ec.europa.eu/justice/policies/privacy/docs/wpdocs/2011/wp187_en.pdf (2011). Accessed 22 June 2015
-
(2011)
: Opinion 15/2011 on the Definition of Consent
-
-
-
5
-
-
84919412943
-
-
Accessed 22 June 2015
-
Article 29 Data Protection Working Party: Opinion 05/2014 on anonymisation techniques. http://ec.europa.eu/justice/data-protection/article-29/documentation/opinionrecommendation/files/2014/wp216_en.pdf (2014). Accessed 22 June 2015
-
(2014)
Opinion 05/2014 on Anonymisation Techniques
-
-
-
8
-
-
33847681822
-
-
Ashgate, Aldershot
-
Beyleveld, D., Townend, D., Rouille-Mirza, S., Wright, J.: The Data Protective Directive and Medical Research Across Europe. Ashgate, Aldershot (2005)
-
(2005)
The Data Protective Directive and Medical Research across Europe
-
-
Beyleveld, D.1
Townend, D.2
Rouille-Mirza, S.3
Wright, J.4
-
11
-
-
84925327959
-
Information concepts in law: Generic dreams and definitional daylight
-
Bygrave, L.A.: Information concepts in law: generic dreams and definitional daylight. Oxf. J. Leg. Stud. 35, 91–120 (2015)
-
(2015)
Oxf. J. Leg. Stud
, vol.35
, pp. 91-120
-
-
Bygrave, L.A.1
-
12
-
-
84957031088
-
-
Accessed 22 June 2015
-
Canada: 1983 privacy act. http://laws-lois.justice.gc.ca/eng/acts/P-21 (1983). Accessed 22 June 2015
-
(1983)
1983 Privacy Act
-
-
-
14
-
-
84878995518
-
-
Accessed 22 June 2015
-
Canadian Institutes of Health Research: Cihr open access policy. http://cihr-irsc.gc.ca/e/46068.html (2013). Accessed 22 June 2015
-
(2013)
Cihr Open Access Policy
-
-
-
16
-
-
84921768941
-
NIH’s genomic data sharing policy: Timing and tradeoffs
-
Contreras, J.L.: NIH’s genomic data sharing policy: timing and tradeoffs. Trends Genet. 31, 55–57 (2015)
-
(2015)
Trends Genet
, vol.31
, pp. 55-57
-
-
Contreras, J.L.1
-
17
-
-
84954530149
-
-
Accessed 22 June 2015
-
Council of Canadian Academies: Accessing health and health-related data in Canada. http://www.scienceadvice.ca/en/assessments/completed/health-data.aspx (2015). Accessed 22 June 2015
-
(2015)
Accessing Health and Health-Related Data in Canada
-
-
-
23
-
-
84926061586
-
A critical appraisal of the article 29 working party opinion 05/2014 on data anonymisation techniques
-
Emam, K.E., Alvarez, C.: A critical appraisal of the article 29 working party opinion 05/2014 on data anonymisation techniques. Int. Data Priv. Law 5, 73–87 (2015)
-
(2015)
Int. Data Priv. Law
, vol.5
, pp. 73-87
-
-
Emam, K.E.1
Alvarez, C.2
-
24
-
-
82555187188
-
A systematic review of re-identification attacks on health data
-
Emam, K.E., Jonker, E., Arbuckle, L., Malin, B.: A systematic review of re-identification attacks on health data. PLoS One 6 (2011)
-
(2011)
Plos One
-
-
Emam, K.E.1
Jonker, E.2
Arbuckle, L.3
Malin, B.4
-
29
-
-
84855479914
-
-
Accessed 22 June 2015
-
European Union: Charter of fundamental rights of the european union. http://eur-lex.europa.eu/LexUriServ/LexUriServ.do?uri=OJ:C:2010:083:0389:0403:en:PDF (2010). Accessed 22 June 2015
-
(2010)
Charter of Fundamental Rights of the European Union
-
-
-
30
-
-
84955326268
-
-
Accessed 22 June 2015
-
Expert Advisory Group on Data Access: Statement for EAGDA funders on re-identification. http://www.wellcome.ac.uk/stellent/groups/corporatesite/@policy_communications/documents/web_document/wtp055972.pdf (2013). Accessed 22 June 2015
-
(2013)
Statement for EAGDA Funders on Re-Identification
-
-
-
31
-
-
80054764111
-
-
Accessed 22 June 2015
-
Genome Canada: Data release and resource sharing. http://genomecanada.ca/medias/PDF/EN/DataReleaseandResourceSharingPolicy.pdf (2008). Accessed 22 June 2015
-
(2008)
Data Release and Resource Sharing
-
-
-
32
-
-
84941699238
-
-
Accessed 22 June 2015
-
Government of Canada: Tri-agency open access policy on publications. http://www.science.gc.ca/default.asp?lang=En&n=F6765465-1 (2015). Accessed 22 June 2015
-
(2015)
Tri-Agency Open Access Policy on Publications
-
-
-
35
-
-
85025834889
-
Global data privacy laws 2015: 109 countries, with european laws now a minority
-
Greenleaf, G.: Global data privacy laws 2015: 109 countries, with european laws now a minority. Priv. Laws Bus. Int. Rep. 133, 18–28 (2015)
-
(2015)
Priv. Laws Bus. Int. Rep
, vol.133
, pp. 18-28
-
-
Greenleaf, G.1
-
36
-
-
84975687679
-
Open consent, biobanking and data protection law: Can open consent be ‘informed’ under the forthcoming data protection regulation?
-
Hallinan, D., Friedewald, M.: Open consent, biobanking and data protection law: can open consent be ‘informed’ under the forthcoming data protection regulation? Life Sci. Soc. Policy 11, 1 (2015)
-
(2015)
Life Sci. Soc. Policy
, vol.11
-
-
Hallinan, D.1
Friedewald, M.2
-
38
-
-
50849101381
-
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density snp genotyping microarrays
-
e1000167
-
Homer, N. et al.: Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density snp genotyping microarrays. PLoS Genet. 4, e1000167 (2008)
-
(2008)
Plos Genet
-
-
Homer, N.1
-
43
-
-
84866100941
-
Questioning the limits of genomic privacy
-
Knoppers, B.M., Dove, E.S., Litton, J.E., Nietfeld, J.J.: Questioning the limits of genomic privacy. Am. J. Hum. Genet. 91, 577–578 (2012)
-
(2012)
Am. J. Hum. Genet
, vol.91
, pp. 577-578
-
-
Knoppers, B.M.1
Dove, E.S.2
Litton, J.E.3
Nietfeld, J.J.4
-
44
-
-
23644446862
-
The babel of genetic data terminology
-
Knoppers, B.M., Saginur, M.: The babel of genetic data terminology. Nat. Biotechnol. 23, 925–927 (2005)
-
(2005)
Nat. Biotechnol
, vol.23
, pp. 925-927
-
-
Knoppers, B.M.1
Saginur, M.2
-
46
-
-
85016024869
-
Towards principles-based approaches to governance of health-related research using personal data
-
Laurie, G., Sethi, N.: Towards principles-based approaches to governance of health-related research using personal data. Eur. J. Risk Regul. 4, 43–57 (2013)
-
(2013)
Eur. J. Risk Regul
, vol.4
, pp. 43-57
-
-
Laurie, G.1
Sethi, N.2
-
48
-
-
84937906357
-
A comparative analysis of the requirements for the use of data in biobanks based in finland, germany, the netherlands, norway and the united kingdom
-
Moraia, L.B. et al.: A comparative analysis of the requirements for the use of data in biobanks based in finland, germany, the netherlands, norway and the united kingdom. Med. Law Int. 14, 187–212 (2014)
-
(2014)
Med. Law Int
, vol.14
, pp. 187-212
-
-
Moraia, L.B.1
-
49
-
-
85032519964
-
-
National Institutes of Health: Policy for genome-wide association studies. http://grants.nih.gov/grants/guide/notice-files/NOT-OD-07-088.html (2007). Accessed 22 June 2015
-
Policy for Genome-Wide Association Studies
-
-
-
51
-
-
84937206753
-
-
Accessed 22 June 2015
-
National Institutes of Health: NIH genomic data sharing policy. http://gds.nih.gov/PDF/NIH_GDS_Policy.pdf (2014). Accessed 22 June 2015
-
(2014)
NIH Genomic Data Sharing Policy
-
-
-
56
-
-
84908688752
-
-
Accessed 22 June 2015
-
OECD: The OECD privacy framework. http://oecd.org/sti/ieconomy/oecd_privacy_framework.pdf (2013). Accessed 22 June 2015
-
(2013)
The OECD Privacy Framework
-
-
-
57
-
-
0037329215
-
Some limits of informed consent
-
O’Neill, O.: Some limits of informed consent. J. Med. Ethics 4 (2003)
-
(2003)
J. Med. Ethics
-
-
O’Neill, O.1
-
59
-
-
84957013968
-
-
LexisNexis Canada, Markham
-
Power, M.: The Law of Privacy. LexisNexis Canada, Markham (2013)
-
(2013)
The Law of Privacy
-
-
Power, M.1
-
60
-
-
34547110384
-
Privacy and e-commerce: A consumer-centric perspective
-
Smith, R., Shao, J.: Privacy and e-commerce: a consumer-centric perspective. Electron. Commer. Res. 7, 89–116 (2007)
-
(2007)
Electron. Commer. Res
, vol.7
, pp. 89-116
-
-
Smith, R.1
Shao, J.2
-
63
-
-
84975797799
-
Privacy law’s midlife crisis: A critical assessment of the second wave of global privacy laws
-
Tene, O.: Privacy law’s midlife crisis: a critical assessment of the second wave of global privacy laws. Ohio State Law J. 74, 1217–1261 (2013)
-
(2013)
Ohio State Law J
, vol.74
, pp. 1217-1261
-
-
Tene, O.1
-
64
-
-
84911868419
-
Data protection as a fundamental right next to privacy? ‘reconstructing’ a not so new right
-
Tzanou, M.: Data protection as a fundamental right next to privacy? ‘reconstructing’ a not so new right. Int. Data Priv. Law 3, 88–99 (2013)
-
(2013)
Int. Data Priv. Law
, vol.3
, pp. 88-99
-
-
Tzanou, M.1
-
65
-
-
0003692925
-
-
United Kingdom: Data protection act 1998. http://legislation.gov.uk/ukpga/1998/29 (1998). Accessed 22 June 2015
-
Data Protection Act 1998
-
-
-
67
-
-
85032534561
-
General assembly resolution 2450 of 19 December 1968
-
United Nations: General assembly resolution 2450 of 19 December 1968. Doc E/CN.4/1025 (1968)
-
(1968)
Doc E/CN.4/1025
-
-
-
68
-
-
85032551462
-
Points for possible inclusion in draft international standards for the protection of the rights of the individual against threats arising from the use of computerized personal data systems
-
United Nations: Points for possible inclusion in draft international standards for the protection of the rights of the individual against threats arising from the use of computerized personal data systems. Doc E/CN.4/1233 (1976)
-
(1976)
Doc E/CN.4/1233
-
-
-
69
-
-
85032543095
-
Guidelines concerning computerized personal data files (UN general assembly resolution 45/95 of 13 December 1990)
-
United Nations: Guidelines concerning computerized personal data files (UN general assembly resolution 45/95 of 13 December 1990). Doc E/CN.4/1990/72 (1990)
-
(1990)
Doc E/CN.4/1990/72
-
-
-
72
-
-
0042181282
-
-
Accessed 22 June 2015
-
United States Department of Commerce: Safe harbor privacy principles. http://www.export.gov/safeharbor/eu/eg_main_018475.asp (2000). Accessed 22 June 2015
-
(2000)
Safe Harbor Privacy Principles
-
-
-
74
-
-
84904038764
-
Protecting personal data in epidemiological research: DataSHIELD and UK law
-
Wallace, S.E., Gaye, A., Shoush, O., Burton, P.R.: Protecting personal data in epidemiological research: DataSHIELD and UK law. Public Health Genomics 17, 149–157 (2014)
-
(2014)
Public Health Genomics
, vol.17
, pp. 149-157
-
-
Wallace, S.E.1
Gaye, A.2
Shoush, O.3
Burton, P.R.4
-
75
-
-
85071229756
-
Transborder data transfers: Concepts, regulatory approaches and new legislative initiatives
-
Weber, R.H.: Transborder data transfers: concepts, regulatory approaches and new legislative initiatives. Int. Data Priv. Law 3, 117–130 (2013)
-
(2013)
Int. Data Priv. Law
, vol.3
, pp. 117-130
-
-
Weber, R.H.1
-
76
-
-
79952592086
-
-
Accessed 22 June 2015
-
Wellcome Trust: Policy on data management and sharing. http://www.wellcome.ac.uk/aboutus/policy/policy-and-position-statements/wtx035043.htm (2010). Accessed 22 June 2015
-
(2010)
Policy on Data Management and Sharing
-
-
|