Telemedicine uptake among Genetics Professionals in Europe: Room for expansion

European Journal of Human Genetics

Volumn 24, Issue 2, 2016, Pages 157-163

  Otten, Ellen ^a   Birnie, Erwin ^a   Lucassen, Anneke M ^a,b,c   Ranchor, Adelita V ^a   Van Langen, Irene M ^a  

^a UNIVERSITY MEDICAL CENTER GRONINGEN   (Netherlands)

^b Wessex Clinical Genetics Service   (United Kingdom)

^c UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; EUROPE; GENETIC COUNSELING; GENETIC SCREENING; GENETIC SERVICE; HEALTH CARE AVAILABILITY; HEALTH CARE FACILITY; HEALTH CARE PERSONNEL; HUMAN; NEWBORN SCREENING; PATIENT COUNSELING; PHYSICIAN; PRACTICE GUIDELINE; PRIORITY JOURNAL; PROFESSIONAL KNOWLEDGE; PUBLIC HOSPITAL; QUESTIONNAIRE; TELEGENETICS; TELEMEDICINE; VIDEOCONFERENCING; WESTERN EUROPE; WESTERN EUROPEAN; ECONOMICS; TRENDS;

EUROPE; GENETIC COUNSELING; HUMANS; SURVEYS AND QUESTIONNAIRES; TELEMEDICINE; VIDEOCONFERENCING;

EID: 84954387698     PISSN: 10184813     EISSN: 14765438     Source Type: Journal    
DOI: 10.1038/ejhg.2015.83     Document Type: Article

References (25)

1. Wade VA, Karnon J, Elshaug AG, Hiller JE: A systematic review of economic analyses of telehealth services using real time video communication. BMC Health Serv Res 2010; 10: 233.
2. Dellifraine JL, Dansky KH: Home-based telehealth: a review and meta analysis. J Telemed Telecare 2008; 14: 62-66.
3. Myers KM, Valentine JM, Melzer SM: Child and adolescent telepsychiatry: utilization and satisfaction. Telemed J E Health 2008; 14: 131-137.
4. Mehrota A, Paone S, Martich GD, Albert SM, Shevchik GJ: Characteristics of patients who seek care via evisits instead of office visits. Telemed J E Health 2013; 19: 1-5.
5. Merell RC: Editorial:Telemedicine for vulnerable populations. Telemed J E Health 2014; 20: 885-886.
6. Gray J, Brain K, Iredale R, Alderman J, France E, Hughes H: A pilot study of Telegenetics. J Telemed Telecare 2001; 7(suppl 2): 68-70.
7. Iredale R, Gray J, Murtagh G: Telegenetics: a pilot study of video-mediated genetic consultations in Wales. Int J Med Market 2002; 2: 130-135.
8. Coelho JJ, Arnold A, Nayler J, Tischkowitz M, MacKay J: An assessment of the efficacy of cancer genetic counselling using real-time videoconferencing technology (telemedicine) compared to face-to-face consultations. Eur J Cancer 2005; 41: 2257-2261.
9. d'Agincourt-Canning L, McGillivray B, Panabaker K et al: Evaluation of genetic counseling for hereditary cancer by videoconference in British Columbia. BC Med J 2008; 50: 554-559.
10. Zilliacus E, Meiser B, Lobb E, Dudding TE, Barlow-Stewart K, Tucker K: The virtual consultation: practitionars' experiences of genetic counseling by videoconferencing in Australia. Telemed J E Health 2010; 16: 350-357.
11. Hilgart JS, Hayward JA, Coles B, Iredale R: Telegenetics: a systematic review of telemedicine in genetics services. Genet Med 2012; 14: 765-776.
12. Aronson SJ, Clark EH, Varugheese M, Baxter S, Babb LJ, Rehm HL: Communicating new knowledge on previously reported genetic variants. Genet Med 2012; 14: 713-719.
13. Hunt K: Individualizing the Informed Consent Process for Whole Genome Squencing: A Patient Directed Approach [Dissertation]. Arizona: Arizona State University. 2013.
14. Hopper B, Buckman M, Edwards M: Evaluation of satisfaction of parents with the use of videoconferencing for a pediatric genetic consultation. Twin Res Human Genet 2011; 14: 343-346.
15. Elliott AM, Mhanni AA, Marles SL et al: Trends in Telehealth versus on-site clinical genetics appointments in Manitoba: a comparative study. J Genet Couns 2012; 21: 337-344.
16. Lea DH, Johnson JL, Ellingwood S, Allan W, Patel A, Smith R: Telegenetics in Maine: successful clinical and educational service delivery model developed from a 3-year pilot project. Genet Med 2005; 7: 21-27.
17. Stalker HJ, Wilson R, McCune H, Gonzalez J, Moffett M, Zori RT: Telegenetic medicine: improved access to services in an underserved area. J Telemed Telecare 2006; 12: 182-185.
18. Gardner MR, Jenkins SM, O'Neil DA, Wood DL, Spurrier BR, Pruthi S: Perceptions of video-based appointments from the patient's home: a patient survey. Telemed J E Health 2014; 21: 281-285.
19. Bradbury AR, Patrick-Miller L, Fetzer D et al: Genetic counselor opinions of, and experiences with telephone communication of BRCA1/2 test results. Clin Genet 2011; 79: 125-131.
20. Madlensky L: Is it time to embrace telephone genetic counseling in the oncology setting? J Clin Oncol 2014; 32: 611-612.
21. Platten U, Rantala J, Lindblom A, Brandberg Y, Lindgren G: The use of telephone in genetic counseling versus in-person counseling: a randomized study on counselees' outcome. Fam Cancer 2012; 11: 371-379.
22. Sutphen R, Davila B, Shappell H et al: Real world experience with cancer genetic counseling via telephone. Fam Cancer 2010; 9: 681-689.
23. Whitten P, Love B: Patient and provider satisfaction with the use of telemedicine: overview and rationale for cautious enthusiasm. J Postgrad Med 2005; 51: 294-300.
24. Grigsby B, Brega AAG, Bennett RE et al: The slow pace of interactive video Telemedicine adoption: the perspective of Telemedicine program administrators on physician participation. Telemed J E Health 2007; 3: 645-656.
25. Barton PL, Brega AG, Devore PA et al: Specialist physicians' knowledge and beliefs about Telemedicine: a comparison of users and nonusers of the technology. Telemed J E Health 2007; 13: 487-499.