The use of telephone in genetic counseling versus in-person counseling: A randomized study on counselees' outcome

Familial Cancer

Volumn 11, Issue 3, 2012, Pages 371-379

  Platten, Ulla ^a   Rantala, Johanna ^b   Lindblom, Annika ^b   Brandberg, Yvonne ^b   Lindgren, Gunilla ^b   Arver, Brita ^b  

^a KAROLINSKA UNIVERSITY HOSPITAL   (Sweden)

^b KAROLINSKA INSTITUTE   (Sweden)

Author keywords

Cancer worry; Hereditary cancer; Oncogenetic in person counseling; Oncogenetic nurse; Oncogenetic telephone counseling

Indexed keywords

ADULT; AGED; ARTICLE; CANCER EPIDEMIOLOGY; CANCER PREVENTION; CONTROLLED STUDY; EXPECTATION; FAMILIAL CANCER; FEMALE; GENETIC COUNSELING; HUMAN; INTERMETHOD COMPARISON; MAJOR CLINICAL STUDY; MALE; MEDICAL INFORMATION; NURSE; ONCOLOGY; PATIENT SATISFACTION; PEDIGREE; PERSONAL EXPERIENCE; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; SHORT FORM 36; TELECONSULTATION; TELEPHONE;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; FEMALE; GENETIC COUNSELING; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; PATIENT SATISFACTION; PEDIGREE; QUALITY OF LIFE; QUESTIONNAIRES; SWEDEN; TELEPHONE; YOUNG ADULT;

EID: 84870438738     PISSN: 13899600     EISSN: 15737292     Source Type: Journal    
DOI: 10.1007/s10689-012-9522-x     Document Type: Article

References (18)

1. Bleiker EMA, Aaronson NK, Menko FH et al (1997) Genetic counseling for hereditary cancer: a pilot study on experiences of patients and family members. Patient Educ Couns 32:107-116
2. Nordin K, Liden A, Hansson M et al (2002) Coping style, psychological distress, risk perception, and satisfaction in subjects attending genetic counselling for hereditary cancer. J Med Genet 39:689-694
3. Bjorvatn C, Eide GE, Hanestad BR et al (2007) Risk perception, worry and satisfaction related to genetic counseling for hereditary cancer. J Genet Counsel 16:211-222
4. Davey A, Rostant K, Harrop K et al (2005) Evaluating genetic counseling: client expectations, psychological adjustment and satisfaction with service. J Genet Counsel 14:197-206
5. Pieterse AH, Ausems M, Van Dulmen AM et al (2005) Initial cancer genetic counseling consultation: change in counselees' cognitions and anxiety, and association with addressing their needs and preferences. Am J Med Genet Part A 137A:27-35
6. Poeterse A, Van Dulmen S, Ausems M et al (2005) QUOTEgene (ca): development of a counselee-centered instrument to measure needs and preferences in genetic counseling for hereditary cancer. Psycho-Oncology 14:361-375
7. Wang VO (2000) What is and is not telephone counseling? J Genet Counsel 9:73-82
8. Ormond KE, Haun J, Cook L, Duquette D, Ludowese C, Matthews AL (2000) Recommendations for telephone counseling. J Genet Counsel 9:63-71
9. Sangha KK, Dircks A, Langlois S (2001) Assessment of the effectiveness of genetic counselling by telephone compared to a clinic visit. Am J Hum Genet 69:377-377
10. DeMarco TA, Smith KL, Nusbaum RH et al (2007) Practical aspects of delivering hereditary cancer risk counseling. Semin Oncol 34:369-378
11. Peshkin BN, Demarco TA, Graves KD et al (2008) Telephone genetic counseling for high-risk women undergoing BRCA1 and BRCA2 testing: rationale and development of a randomized controlled trial. Genet Test 12:37-52
12. Zilliacus EM, Meiser B, Lobb EA et al (2010) Women's experience of telehealth cancer genetic counseling. J Genet Counsel 19:463-472
13. Jenkins J, Calzone KA, Dimond E et al (2007) Randomized comparison of phone versus in-person BRCA1/2 predisposition genetic test result disclosure counseling. Genet Med 9:487-495
14. Baumanis L, Evans JP, Callanan N et al (2009) Telephoned BRCA1/2 Genetic Test Results: Prevalence, Practice, and Patient Satisfaction. J Genet Counsel 18:447-463
15. Helmes AW, Culver JO, Bowen DJ (2006) Results of a randomized study of telephone versus in-person breast cancer risk counseling. Patient Educ Couns 64:96-103
16. Rantala J, Platten U, Lindgren G et al (2009) Risk perception after genetic counseling in patients with increased risk of cancer. Hereditary Cancer in Clinical Practice 7
17. Sullivan M, Karlsson J (1994) Svensk manual och tolkningsguide (Swedish manual and interpretation guide). International Quality of Life Assessment (IQOLA) Project 2000
18. Arver BHA, Platten U, Lindblom A, Brandberg Y (2004) Evaluation of psychosocial effects of pre-symptomatic testing for breast/ovarian and colon cancer predisposing genes: a 12-month follow-up. Fam Cancer 3:109-116