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Volumn 32, Issue 1, 2016, Pages 13-24

"A Lot of Things Passed Me by": Rural Stroke Survivors' and Caregivers' Experience of Receiving Education From Health Care Providers

Author keywords

Caregiver; Patient education; Qualitative research; Rural; Stroke

Indexed keywords

ADULT; AGED; CAREGIVER; CEREBROVASCULAR ACCIDENT; EPIDEMIOLOGY; FEMALE; HEALTH EDUCATION; HEALTH PERSONNEL ATTITUDE; HUMAN; KENTUCKY; MALE; PATIENT CARE; PROCEDURES; PSYCHOLOGY; QUALITATIVE RESEARCH; RURAL POPULATION; STATISTICS AND NUMERICAL DATA; STROKE REHABILITATION; UNITED STATES; VERY ELDERLY;

EID: 84953363641     PISSN: 0890765X     EISSN: 17480361     Source Type: Journal    
DOI: 10.1111/jrh.12124     Document Type: Article
Times cited : (39)

References (46)
  • 1
    • 63049133145 scopus 로고    scopus 로고
    • Atlas of stroke hospitalizations among Medicare beneficiaries (Appendix A - State Tables)
    • Accessed December 31, 2012
    • Casper M, Nwaise I, Croft J, Nilasena D. Atlas of stroke hospitalizations among Medicare beneficiaries (Appendix A - State Tables). 2008. Available at: http://www.cdc.gov/dhdsp/atlas/2008_stroke_atlas/docs/2008_Stroke_Atlas_Appendix_A.pdf. Accessed December 31, 2012.
    • (2008)
    • Casper, M.1    Nwaise, I.2    Croft, J.3    Nilasena, D.4
  • 2
    • 84888857677 scopus 로고    scopus 로고
    • Place matters: health disparities in the commonwealth, A report on the Delta and Appalachian Regions of Kentucky
    • Accessed December 15, 2014
    • Walsh S, Christian W, Hopenhayn C. Place matters: health disparities in the commonwealth, A report on the Delta and Appalachian Regions of Kentucky. 2012. Available at: http://www.healthy-ky.org/sites/default/files/BRFSS_Report_6.pdf. Accessed December 15, 2014.
    • (2012)
    • Walsh, S.1    Christian, W.2    Hopenhayn, C.3
  • 3
    • 41849102154 scopus 로고    scopus 로고
    • An analysis of disparities in health status and access to health care in the Appalachian Region
    • Accessed December 15, 2014
    • Halverson J, Ma L, Harner E. An analysis of disparities in health status and access to health care in the Appalachian Region. 2004. Available at: http://www.arc.gov/assets/research_reports/AnalysisofHealthDisparitiesIntroductionExecutiveSummary.pdf. Accessed December 15, 2014.
    • (2004)
    • Halverson, J.1    Ma, L.2    Harner, E.3
  • 5
    • 82155181250 scopus 로고    scopus 로고
    • Lexington, KY: Kentucky Institute of Medicine, Accessed December 15, 2014
    • Kentucky Institute of Medicine. The Health of Kentucky: A County Assessment. Lexington, KY: Kentucky Institute of Medicine; 2007. Available at: http://www.healthy-ky.org/sites/default/files/The%20Health%20of%20Ky.pdf. Accessed December 15, 2014.
    • (2007) The Health of Kentucky: A County Assessment
  • 6
    • 84857500352 scopus 로고    scopus 로고
    • Accessed December 15, 2014
    • Appalachian Community Cancer Network. The Cancer Burden in Appalachia. 2009. Available at: http://www.accnweb.com/docs/2009/CancerBurdenAppalachia2009.pdf. Accessed December 15, 2014.
    • (2009) The Cancer Burden in Appalachia
  • 7
    • 34047176346 scopus 로고    scopus 로고
    • Appalachia: where place matters in health
    • Behringer B, Friedell GH. Appalachia: where place matters in health. Prev Chronic Dis. 2006;3(4):A113.
    • (2006) Prev Chronic Dis , vol.3 , Issue.4 , pp. A113
    • Behringer, B.1    Friedell, G.H.2
  • 9
    • 69849108251 scopus 로고    scopus 로고
    • Health literacy skills in rural and urban populations
    • Zahnd W, Scaife S, Francis M. Health literacy skills in rural and urban populations. Am J Health Behav. 2009;33(5):550-557.
    • (2009) Am J Health Behav , vol.33 , Issue.5 , pp. 550-557
    • Zahnd, W.1    Scaife, S.2    Francis, M.3
  • 10
    • 77954656145 scopus 로고    scopus 로고
    • Carer experiences of life after stroke-a qualitative analysis
    • Bulley C, Shiels J, Wilkie K, Salisbury L. Carer experiences of life after stroke-a qualitative analysis. Disabil Rehabil. 2010;32(17):1406-1413.
    • (2010) Disabil Rehabil , vol.32 , Issue.17 , pp. 1406-1413
    • Bulley, C.1    Shiels, J.2    Wilkie, K.3    Salisbury, L.4
  • 11
    • 84892801197 scopus 로고    scopus 로고
    • Information provision for stroke patients and their caregivers
    • Forster A, Brown L, Smith J, et al. Information provision for stroke patients and their caregivers. Coch Datab Syst Rev. 2012;(11):1-129.
    • (2012) Coch Datab Syst Rev , Issue.11 , pp. 1-129
    • Forster, A.1    Brown, L.2    Smith, J.3
  • 12
    • 29944438130 scopus 로고    scopus 로고
    • Management of adult stroke rehabilitation care: a clinical practice guideline
    • Duncan PW, Zorowitz R, Bates B, et al. Management of adult stroke rehabilitation care: a clinical practice guideline. Stroke. 2005;36(9):e100-e143.
    • (2005) Stroke , vol.36 , Issue.9 , pp. e100-e143
    • Duncan, P.W.1    Zorowitz, R.2    Bates, B.3
  • 13
    • 84953363723 scopus 로고    scopus 로고
    • Accessed March 17
    • National Clinical Guideline for Stroke. Available at: http://www.rcplondon.ac.uk/resources/stroke-guidelines. Accessed March 17, 2012.
    • (2012)
  • 14
    • 27744452998 scopus 로고    scopus 로고
    • Information needs of patients and carers following stroke
    • Garrett D, Cowdell F. Information needs of patients and carers following stroke. Nursing Older People. 2005;17:14-16.
    • (2005) Nursing Older People , vol.17 , pp. 14-16
    • Garrett, D.1    Cowdell, F.2
  • 15
    • 80052275814 scopus 로고    scopus 로고
    • Educational needs of patients with a stroke and their caregivers: a systematic review of the literature
    • Hafsteinsdottir T, Vergunst M, Lindeman E, Schuurmans M. Educational needs of patients with a stroke and their caregivers: a systematic review of the literature. Patient Educ Counsel. 2011;85:14-25.
    • (2011) Patient Educ Counsel , vol.85 , pp. 14-25
    • Hafsteinsdottir, T.1    Vergunst, M.2    Lindeman, E.3    Schuurmans, M.4
  • 16
    • 84884990405 scopus 로고    scopus 로고
    • "Living with a ball and chain": the lived experience of stroke for individuals and their caregivers in rural Appalachian Kentucky
    • Danzl M, Hunter E, Campbell S, et al. "Living with a ball and chain": the lived experience of stroke for individuals and their caregivers in rural Appalachian Kentucky. J Rural Health. 2013;29(4):368-382.
    • (2013) J Rural Health , vol.29 , Issue.4 , pp. 368-382
    • Danzl, M.1    Hunter, E.2    Campbell, S.3
  • 17
    • 0034241415 scopus 로고    scopus 로고
    • Whatever happened to qualitative description?
    • Sandelowski M. Whatever happened to qualitative description? Res Nurs Health. 2000;23(4):334-340.
    • (2000) Res Nurs Health , vol.23 , Issue.4 , pp. 334-340
    • Sandelowski, M.1
  • 18
    • 54049151996 scopus 로고    scopus 로고
    • Researching collaboratively: implications for qualitative research and researchers
    • Cheek J. Researching collaboratively: implications for qualitative research and researchers. Qual Health Res. 2008;18(11):1599-1603.
    • (2008) Qual Health Res , vol.18 , Issue.11 , pp. 1599-1603
    • Cheek, J.1
  • 19
    • 84953350214 scopus 로고    scopus 로고
    • Accessed November 28, 2012
    • Rural-Urban Continuum Codes. 2003. Available at: http://www.ers.usda.gov/data-products/rural-urban-continuum-codes.aspx. Accessed November 28, 2012.
    • (2003)
  • 20
    • 84953357304 scopus 로고    scopus 로고
    • Accessed November 20, 2012
    • County economic status and distressed areas in the Appalachian region, Fiscal Year 2011. 2010. Available at: http://www.arc.gov/appalachian_region/CountyEconomicStatusandDistressedAreasinAppalachia.asp. Accessed November 20, 2012.
    • (2010)
  • 21
    • 33645454591 scopus 로고    scopus 로고
    • The qualitative research interview
    • Dicicco-Bloom B, Crabtree BF. The qualitative research interview. Med Educ. 2006;40(4):314-321.
    • (2006) Med Educ , vol.40 , Issue.4 , pp. 314-321
    • Dicicco-Bloom, B.1    Crabtree, B.F.2
  • 22
    • 40949147823 scopus 로고    scopus 로고
    • The qualitative content analysis process
    • Elo S, Kyngas H. The qualitative content analysis process. J Adv Nurs. 2008;62(1):107-115.
    • (2008) J Adv Nurs , vol.62 , Issue.1 , pp. 107-115
    • Elo, S.1    Kyngas, H.2
  • 25
    • 84877087267 scopus 로고    scopus 로고
    • Best practices for stroke patient and family education in the acute care setting: a literature review
    • Cameron V. Best practices for stroke patient and family education in the acute care setting: a literature review. Medsurg Nurs. 2013;22(1):51-55.
    • (2013) Medsurg Nurs , vol.22 , Issue.1 , pp. 51-55
    • Cameron, V.1
  • 26
    • 46249125391 scopus 로고    scopus 로고
    • Metaphors in qualitative research: shedding light or casting shadows?
    • Carpenter J. Metaphors in qualitative research: shedding light or casting shadows? Res Nurs Health. 2008;31(3):274-282.
    • (2008) Res Nurs Health , vol.31 , Issue.3 , pp. 274-282
    • Carpenter, J.1
  • 27
    • 77953592447 scopus 로고    scopus 로고
    • Stroke patients' and carers' perception of barriers to accessing stroke information
    • Eames S, Hoffman T, Worrall L, Read S. Stroke patients' and carers' perception of barriers to accessing stroke information. Topics Stroke Rehab. 2010;17(2):69-78.
    • (2010) Topics Stroke Rehab , vol.17 , Issue.2 , pp. 69-78
    • Eames, S.1    Hoffman, T.2    Worrall, L.3    Read, S.4
  • 28
    • 79960017290 scopus 로고    scopus 로고
    • Delivery styles and formats for different stroke information topics: patient and carer preferences
    • Eames S, Hoffmann T, Worrall L, Read S. Delivery styles and formats for different stroke information topics: patient and carer preferences. Patient Educ Counsel. 2011;84:e18-e23.
    • (2011) Patient Educ Counsel , vol.84 , pp. e18-e23
    • Eames, S.1    Hoffmann, T.2    Worrall, L.3    Read, S.4
  • 29
    • 66849109177 scopus 로고    scopus 로고
    • Informal primary carers of stroke survivors living at home-challenges, satisfactions and coping: a systematic review of qualitative studies
    • Greenwood N, Mackenzie A, Cloud G, Wilson N. Informal primary carers of stroke survivors living at home-challenges, satisfactions and coping: a systematic review of qualitative studies. Disability Rehab. 2009;31(5):337-351.
    • (2009) Disability Rehab , vol.31 , Issue.5 , pp. 337-351
    • Greenwood, N.1    Mackenzie, A.2    Cloud, G.3    Wilson, N.4
  • 30
    • 33646451238 scopus 로고    scopus 로고
    • Stroke caregiving: difficult times, resource use, and needs during the first 2 years
    • King R, Semik P. Stroke caregiving: difficult times, resource use, and needs during the first 2 years. J Gerontologic Nurs. 2006;32(4):37-44.
    • (2006) J Gerontologic Nurs , vol.32 , Issue.4 , pp. 37-44
    • King, R.1    Semik, P.2
  • 31
    • 84872692562 scopus 로고    scopus 로고
    • Stroke family caregivers' support needs change across the care continuum: a qualitative study using the timing it right framework
    • Cameron J, Naglie G, Silver F, Gignac M. Stroke family caregivers' support needs change across the care continuum: a qualitative study using the timing it right framework. Disab Rehab. 2013;35(4):315-324.
    • (2013) Disab Rehab , vol.35 , Issue.4 , pp. 315-324
    • Cameron, J.1    Naglie, G.2    Silver, F.3    Gignac, M.4
  • 32
    • 84923772787 scopus 로고    scopus 로고
    • Implementation of an evidence-based education practice change for patients with cancer
    • Portz D, Johnston M. Implementation of an evidence-based education practice change for patients with cancer. Clin J Oncol Nurs. 2014;18:36-40.
    • (2014) Clin J Oncol Nurs , vol.18 , pp. 36-40
    • Portz, D.1    Johnston, M.2
  • 33
    • 84892398310 scopus 로고    scopus 로고
    • Improving stroke education performance measures scores: the impact of a stroke nurse coordinator
    • Malfitano J TB, Piper E, Burlingame P, D'Angelo E. Improving stroke education performance measures scores: the impact of a stroke nurse coordinator. J Neurosci Nurs. 2013;45(6):332-337.
    • (2013) J Neurosci Nurs , vol.45 , Issue.6 , pp. 332-337
    • Malfitano, J.T.1    Piper, E.2    Burlingame, P.3    D'Angelo, E.4
  • 34
    • 33947605582 scopus 로고    scopus 로고
    • The CareFile Project: a feasibility study to examine the effects of an individualized information booklet on patients after stroke
    • Lowe D, Sharma A, Leathley M. The CareFile Project: a feasibility study to examine the effects of an individualized information booklet on patients after stroke. Age Ageing. 2007;36:83-89.
    • (2007) Age Ageing , vol.36 , pp. 83-89
    • Lowe, D.1    Sharma, A.2    Leathley, M.3
  • 35
    • 34250643986 scopus 로고    scopus 로고
    • Randomised trial of a computer-generated tailored written education package for patients following stroke
    • Hoffman T, McKenna K, Worrall L, Read S. Randomised trial of a computer-generated tailored written education package for patients following stroke. Age Ageing. 2007;36:280-286.
    • (2007) Age Ageing , vol.36 , pp. 280-286
    • Hoffman, T.1    McKenna, K.2    Worrall, L.3    Read, S.4
  • 36
    • 79959825380 scopus 로고    scopus 로고
    • Providing information to stroke survivors: lessons from a failed randomised controlled trial
    • O'Connell B, Hawkins M, Botti M, Buchbinder R, Baker L. Providing information to stroke survivors: lessons from a failed randomised controlled trial. J Austr Rehab Nurses' Assoc. 2009;12(3):4-10.
    • (2009) J Austr Rehab Nurses' Assoc , vol.12 , Issue.3 , pp. 4-10
    • O'Connell, B.1    Hawkins, M.2    Botti, M.3    Buchbinder, R.4    Baker, L.5
  • 37
    • 33344460871 scopus 로고    scopus 로고
    • Analysis of stroke patients' and carers' reading ability and the content and design of written materials: recommendations for improving written stroke information
    • Hoffman T, McKenna K. Analysis of stroke patients' and carers' reading ability and the content and design of written materials: recommendations for improving written stroke information. Patient Educ Counsel. 2006;60:286-293.
    • (2006) Patient Educ Counsel , vol.60 , pp. 286-293
    • Hoffman, T.1    McKenna, K.2
  • 38
    • 79960998481 scopus 로고    scopus 로고
    • Aphasia friendly written health information: content and design characteristics
    • Rose T, Worrall L, Hickson L, Hoffman T. Aphasia friendly written health information: content and design characteristics. Int J Speech-Lang Pathol. 2011;13(4):335-347.
    • (2011) Int J Speech-Lang Pathol , vol.13 , Issue.4 , pp. 335-347
    • Rose, T.1    Worrall, L.2    Hickson, L.3    Hoffman, T.4
  • 39
    • 84953367210 scopus 로고    scopus 로고
    • Giving hope: a guidebook for caregivers of veterans with stroke
    • Accessed April 22, 2013
    • Rittman M. Giving hope: a guidebook for caregivers of veterans with stroke. 2007. Available at: http://www.queri.research.va.gov/tools/stroke-quality/patient-edu.cfm. Accessed April 22, 2013.
    • (2007)
    • Rittman, M.1
  • 40
    • 77956773185 scopus 로고    scopus 로고
    • Information needs after stroke: What to include and how to structure it on a website
    • Kerr J, Hilari K, Litosseliti L. Information needs after stroke: What to include and how to structure it on a website. Aphasiology. 2010;24:1170-1196.
    • (2010) Aphasiology , vol.24 , pp. 1170-1196
    • Kerr, J.1    Hilari, K.2    Litosseliti, L.3
  • 41
    • 43749110115 scopus 로고    scopus 로고
    • Creation and pilot testing of StrokEngine: a stroke rehabilitation intervention website for clinicians and families
    • Korner-Bitensky N, Roy M, Teasell R, et al. Creation and pilot testing of StrokEngine: a stroke rehabilitation intervention website for clinicians and families. J Rehab Med. 2008;40(5):329-333.
    • (2008) J Rehab Med , vol.40 , Issue.5 , pp. 329-333
    • Korner-Bitensky, N.1    Roy, M.2    Teasell, R.3
  • 42
    • 54349117998 scopus 로고    scopus 로고
    • Stroke rehabilitation information for clients and families: assessing the quality of the StrokEngine-Family website
    • Rochette A, Korner-Bitensky N, Tremblay V, Kloda L. Stroke rehabilitation information for clients and families: assessing the quality of the StrokEngine-Family website. Disab Rehab. 2008;30(19):1506-1512.
    • (2008) Disab Rehab , vol.30 , Issue.19 , pp. 1506-1512
    • Rochette, A.1    Korner-Bitensky, N.2    Tremblay, V.3    Kloda, L.4
  • 43
    • 84908572289 scopus 로고    scopus 로고
    • Providing dietary advice for people with type 2 diabetes
    • Bussell G. Providing dietary advice for people with type 2 diabetes. J Commun Nurs. 2014;28(5):60-68.
    • (2014) J Commun Nurs , vol.28 , Issue.5 , pp. 60-68
    • Bussell, G.1
  • 44
    • 37149038841 scopus 로고    scopus 로고
    • Developing a stroke intervention program: what do people at risk of stroke want?
    • Sullivan K, White K, Young R, Scott C, Mulgrew K. Developing a stroke intervention program: what do people at risk of stroke want? Patient Educ Counsel. 2008;70:126-134.
    • (2008) Patient Educ Counsel , vol.70 , pp. 126-134
    • Sullivan, K.1    White, K.2    Young, R.3    Scott, C.4    Mulgrew, K.5
  • 45
    • 78651473701 scopus 로고    scopus 로고
    • Stroke caregivers: pressing problems reported during the first months of caregiving
    • King RB, Ainsworth CR, Ronen M, Hartke RJ. Stroke caregivers: pressing problems reported during the first months of caregiving. J Neurosci Nurs. 2010;42(6):302-311.
    • (2010) J Neurosci Nurs , vol.42 , Issue.6 , pp. 302-311
    • King, R.B.1    Ainsworth, C.R.2    Ronen, M.3    Hartke, R.J.4
  • 46
    • 0024197720 scopus 로고
    • An ecological perspective on health promotion programs
    • McLeroy KR, Bibeau D, Steckler A, Glanz K. An ecological perspective on health promotion programs. Health Educ Q. 1988;15(4):351-377.
    • (1988) Health Educ Q , vol.15 , Issue.4 , pp. 351-377
    • McLeroy, K.R.1    Bibeau, D.2    Steckler, A.3    Glanz, K.4


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