Parents' experiences of caring for preterm infants after discharge from Neonatal Intensive Care Unit: A meta-synthesis of the literature

Journal of Neonatal Nursing

Volumn 22, Issue 1, 2016, Pages 27-51

  Adama, Esther Abena ^a   Bayes, Sara ^a   Sundin, Deborah ^a  

^a EDITH COWAN UNIVERSITY   (Australia)

Author keywords

Caring; Experiences; Literature review; Neonatal intensive care unit; Parents; Patient discharge; Preterm infants

Indexed keywords

EID: 84952975615     PISSN: 13551841     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jnn.2015.07.006     Document Type: Article

References (30)

1. Aagaard H., Hall E.O. Mothers' experiences of having a preterm infant in the neonatal care unit: a meta-synthesis. J. Pediatr. Nurs. 2008, 23(3):e26-e36.
2. Beck S., Wojdyla D., Say L., Betran A.P., Merialdi M., Requejo J.H., Rubens C., Menon R., Van Look P.F.A. The worldwide incidence of preterm birth: a systematic review of maternal mortality and morbidity. Bull. World Health Organ. 2010, 88(1):31-38.
3. Blencowe H., Cousens S., Oestergaard M.Z., Chou D., Moller A.-B., Narwal R., Adler A., Vera Garcia C., Rohde S., Say L. National, regional, and worldwide estimates of preterm birth rates in the year 2010 with time trends since 1990 for selected countries: a systematic analysis and implications. The Lancet 2012, 379(9832):2162-2172.
4. Brussoni M., Olsen L. The perils of overprotective parenting: fathers' perspectives explored. Child Care Health Dev. 2013, 39(2):237-245.
5. Crowther M.A., Cook D.J. Trials and tribulations of systematic reviews and meta-analyses. ASH Educ. Progr. Book 2007, 2007(1):493-497.
6. de Oliveira Dornasbach J., Barbosa de Freitas H.M., Santini Costenaro R.G., Filipin Rangel R., Zamberlan C., Ilha S. Neonatal intensive care: feeling of parents after discharge of the child. J. Nurs. UFPE On Line 2014, 8(8):2660-2666. 10.5205/01012007.
7. Engmann C. Improving neonatal mortality in sub-Saharan Africa: any cause for optimism[quest]. J. Perinatol. 2011, 31(12):745-748.
8. Flacking R., Ewald U., Starrin B. "I wanted to do a good job": experiences of 'becoming a mother' and breastfeeding in mothers of very preterm infants after discharge from a neonatal unit. Soc. Sci. Med. 2007, 64(12):2405-2416.
9. Giorgi A. Phenomenology and Psychological Research 1985, Duquesne University Press, Pittsburgh, Philadelphia.
10. Giorgi A. The theory, practice, and evaluation of the phenomenological method as a qualitative research procedure. J. Phenomenol. Psychol. 1997, 28(2):235-260.
11. Goto A., Nguyen Q.V., Van Nguyen T.T., Pham N.M., Chung T.M.T., Trinh H.P., Yabe J., Sasaki H., Yasumura S. Associations of psychosocial factors with maternal confidence among Japanese and Vietnamese mothers. J. Child Fam. Stud. 2010, 19(1):118-127.
12. Griffin J.B., Pickler R.H. Hospital-to-home transition of mothers of preterm infants. MCN Am. J. Matern. Child Nurs. 2011, 36(4):252-257.
13. Holditch-Davis D., Miles M.S. Mothers' stories about their experiences in the neonatal intensive care unit. Neonatal Netw. J. Neonatal Nurs. 2000, 19(3):13-21.
14. Jackson K., Ternestedt B.M., Schollin J. From alienation to familiarity: experiences of mothers and fathers of preterm infants. J. Adv. Nurs. 2003, 43(2):120-129.
15. Joanna Briggs Institute Joanna Briggs Institute Reviewers' Manual 2011, [Internet], Joanna Briggs Institute, Adelaide, SA, [cited 2013 Aug 10].
16. Lee T.Y., Lee T.T., Kuo S. The experiences of mothers in breastfeeding their very low birth weight infants. J. Adv. Nurs. 2009, 65(12):2523-2531.
17. Lee T.Y., Lin H.R., Huang T.H., Hsu C.H., Bartlett R. Assuring the integrity of the family: being the father of a very low birth weight infant. J. Clin. Nurs. 2009, 18(4):512-519.
18. Lindberg B., Axelsson K., Öhrling K. Adjusting to being a father to an infant born prematurely: experiences from Swedish fathers. Scand. J. Caring Sci. 2008, 22(1):79-85.
19. Lindberg B., Öhrling K. Experiences of having a prematurely born infant from the perspective of mothers in northern Sweden. Int. J. Circumpolar Health 2008, 67(5).
20. Miles M.S., Holditch-Davis D. Compensatory parenting: how mothers describe parenting their 3-year-old, prematurely born children. J. Pediatr. Nurs. 1995, 10(4):243-253.
21. Murdoch M.R., Franck L.S. Gaining confidence and perspective: a phenomenological study of mothers' lived experiences caring for infants at home after neonatal unit discharge. J. Adv. Nurs. 2012, 68(9):2008-2020.
22. Nicolaou M., Rosewell R., Marlow N., Glazebrook C. Mothers' experiences of interacting with their premature infants. J. Reprod. Infant Psychol. 2009, 27(2):182-194.
23. Nyström K., Axelsson K. Mothers' experience of being separated from their newborns. J. Obstet. Gynecol. Neonatal Nurs. 2002, 31(3):275-282.
24. Obeidat H.M., Bond E.A., Callister L.C. The parental experience of having an infant in the newborn intensive care unit. J. Perinat. Educ. 2009, 18(3):23.
25. Phillips-Pula L., Pickler R., McGrath J.M., Brown L.F., Dusing S.C. Caring for a preterm infant at home: a mother's perspective. J. Perinatal Neonatal Nurs. 2013, 27(4):335-344.
26. Reyna B.A., Pickler R.H., Thompson A. A descriptive study of mothers' experiences feeding their preterm infants after discharge. Adv. Neonatal Care (Elsevier Science) 2006, 6(6):333-340.
27. Sackett D.L., Rosenberg W., Gray J., Haynes R.B., Richardson W.S. Evidence based medicine: what it is and what it isn't. BMJ 1996, 312(7023):71-72.
28. Sankey J.-J., Brennan S. Living with difference: caring for a premature baby at home. Collegian 2001, 8(2):10-18.
29. Souza N.L.d., Pinheiro-Fernandes A.C., Clara-Costa Í.d.C., Cruz-Enders B., Carvalho J.B.L.d., Silva M.d.L.C.d. Domestic maternal experience with preterm newborn children. Rev. Salud Pública 2010, 12(3):356-367.
30. Swartz M.K. Parenting preterm infants: a meta-synthesis. MCN Am. J. Matern. Child Nurs. 2005, 30(2):115-120.