Better the donor you know? A qualitative study of renal patients' views on 'altruistic' live-donor kidney transplantation

Social Science and Medicine

Volumn 150, Issue , 2016, Pages 104-111

  Bailey, Phillippa K ^a   Ben Shlomo, Yoav ^a   de Salis, Isabel ^a   Tomson, Charles ^b   Owen Smith, Amanda ^a  

^a UNIVERSITY OF BRISTOL   (United Kingdom)

^b FREEMAN HOSPITAL   (United Kingdom)

Author keywords

Altruistic; Gift exchange; Living kidney donation; Non directed; Non directed 'altruistic'; Qualitative research

Indexed keywords

ALTRUISM; MEDICINE; QUALITATIVE ANALYSIS; RESEARCH;

CLINICAL ARTICLE; DNA TRANSCRIPTION; DRAWING; FEAR; GENETIC TRANSCRIPTION; GROUNDED THEORY; HUMAN; INTERMETHOD COMPARISON; KIDNEY GRAFT; KIDNEY TRANSPLANTATION; QUALITATIVE RESEARCH; RECIPIENT; SEMI STRUCTURED INTERVIEW; THEORETICAL MODEL; ADULT; AGED; ALTRUISM; DONOR SELECTION; FEMALE; LIVING DONOR; MALE; MIDDLE AGED; MORTALITY; PROCEDURES; STANDARDS; SUPPLY AND DISTRIBUTION; TRANSPLANTATION; TRENDS; UNITED KINGDOM; VERY ELDERLY;

UNITED KINGDOM;

ADULT; AGED; AGED, 80 AND OVER; ALTRUISM; DONOR SELECTION; FEMALE; HUMANS; KIDNEY TRANSPLANTATION; LIVING DONORS; MALE; MIDDLE AGED; QUALITATIVE RESEARCH; TISSUE AND ORGAN PROCUREMENT; UNITED KINGDOM;

EID: 84952312377     PISSN: 02779536     EISSN: 18735347     Source Type: Journal    
DOI: 10.1016/j.socscimed.2015.12.041     Document Type: Article

References (65)

1. Annema C., Op den Dries S., van den Berg A., Ranchor A., Porte R.J. Opinions of Dutch liver transplant recipients on anonymity of organ donation and direct contact with the donors family. Transplantation 2015, 99:879-884.
2. Beidel D. Psychological factors in organ transplantation. Clin. Psychol. Rev. 1987, 7:677-694.
3. Belk R. How perceptions of the body influence organ donation and transplantation: me and thee versus mine and thine. Psychological Research on Organ Donation 1990, 139-149. American Psychological Association, Washington, D.C. J. Shanteau, R. Harris (Eds.).
4. Blyth E., Kramer W., Schneider J. Perspectives, experiences, and choices of parents of children conceived following oocyte donation. Reprod. Biomed. Online 2013, 26:179-188.
5. Briar S. Welfare from below: recipient's view of the public welfare system. The Law of the Poor 1966, 46-61. Chandler, San Francisco. J. tenBroek (Ed.).
6. Bunzel B., Schmidl-Mohl B., Grundböck A., Wollenek G. Does changing the heart mean changing personality? A retrospective inquiry on 47 heart transplant patients. Qual. Life Res. 1992, 1:251-256.
7. Cecka J. Living donor transplants. Clin. Transpl. 1995, 363-377.
8. Cecka J. The OPTN/UNOS renal transplant registry. Clin. Transpl. 2005, 1-16.
9. Challenor J., Watts J. 'It seemed churlish not to': how living non-directed kidney donors construct their altruism. Health Lond. 2013, 18:388-405.
10. Clark M. Reactions to aid in communal and exchange relationships. Recipient Reactions to Aid 1983, vol. 1. Academic Press, New York. J. Fisher, A. Nadler, B. DePaulo (Eds.).
11. Clarke A., Mitchell A., Abraham C. Understanding donation experiences of unspecified (altruistic) kidney donors. Br. J. Health Psychol. 2014, 19:393-408.
12. Davison S., Kromm S., Currie G. Patient and health professional preferences for organ allocation and procurement, end-of-life care and organization of care for patients with chronic kidney disease using a discrete choice experiment. Nephrol. Dial. Transpl. 2010, 25:2334-2341.
13. Dixon A. Motivation and Confidence: What Does It Take to Change Behaviour? 2008, The Kings Fund Retrieved from:. http://www.kingsfund.org.uk/sites/files/kf/field/field_document/motivation-confidence-health-behavious-kicking-bad-habits-supporting-papers-anna-dixon.pdf.
14. Dor F., Massey E., Frunza M., Johnson R., Lennerling A., Lovén C., et al. New classification of ELPAT for living organ donation. Transplantation 2011, 91:935-938.
15. Featherstone M. The body in consumer culture. Theory, Cult. Soc. 1982, 1:18-33.
16. Featherstone M., Turner B. Body and society. An introduction. Body Soc. 1995, 1:1-12.
17. Fennell M. Depression, low self-esteem and mindfulness. Behav. Res. Ther. 2004, 42:1053-1067.
18. Fisher J., DePaulo B., Nadler A. Extending altruism beyond the altruistic act: the mixed effects of aid on the help recipient. Altruism and Helping Behavior 1981, Erlbaum, Hillsdale, NJ. J. Rushton, R. Sorrentino (Eds.).
19. Fox R., Swazey J. The Courage to Fail: A Social View of Organ Transplants and Dialysis 1978, University of Chicago Press, Chicago.
20. Franklin P., Crombie A. Live related renal transplantation: psychological, social and cultural issues. Transplantation 2003, 76:1247-1252.
21. Frith L., Sawyer N., Kramer W. Forming a family with sperm donation: a survey of 244 non-biological parents. Reprod. Biomed. Online 2012, 24:709-718.
22. Gergen K., Gergen M. Foreign aid that works. Psychol. Today 1974, 8:54-58.
23. Give a Kidney - One's Enough - Registered charity in England and Wales (1143576). (2015). Organization website: . http://www.giveakidney.org.
24. Glaser B., Strauss A. The Discovery of Grounded Theory 1967, Aldine, Chicago, IL.
25. Goodwin L. Do the Poor Want to Work? A Social Psychological Study of Work Orientations 1972, The Brookings Institution, Washington, D.C.
26. Gordon E. Patients' decisions for treatment of end-stage renal disease and their implications for access to transplantation. Soc. Sci. Med. 2001, 53:971-987.
27. Gouldner A. The norm of reciprocity: a preliminary statement. Am. Sociol. Rev. 1960, 25:161-178.
28. Hanson C., Chadban S., Chapman J., Craig J., Wong G., Ralph A., et al. The expectations and attitudes of patients with chronic kidney disease toward living kidney donor transplantation: a thematic synthesis of qualitative studies. Transplantation 2015, 99:540-544.
29. Hood B., Gjersoe N., Donnelly K., Byers A., Itakura S. Moral contagion attitudes towards potential organ transplants in British and Japanese adults. J. Cogn. Cult. 2011, 11:269-286.
30. Human Tissue Authority, UK Guidance to Transplant Teams and Independent Assessors 2015, Retrieved from:. https://www.hta.gov.uk/sites/default/files/Guidance:to_Transplant_Teams_and_Independent_Assessors%20(1)_0.pdf.
31. Keinan G. Effects of stress and tolerance of ambiguity on magical thinking. J. Personal. Soc. Psychol. 1994, 67:48-55.
32. Kranenburg L., Zuidema W., Weimar W., Ijzermans J., Passchier J., Hilhorst M., et al. Postmortal or living related donor: preferences of kidney patients. Transpl. Int. 2005, 18:519-523.
33. Lamanna M. Giving and getting: altruism and exchange in transplantation. J. Med. Humanit 1997, 18:169-192.
34. Landolt M., Henderson A., Gourlay W., McDonald M., Soos J., Barrable W., et al. They talk the talk: surveying attitudes and judging behavior about living anonymous kidney donation. Transplantation 2003, 76:1437-1444.
35. Laupacis A., Keown P., Pus N., Krueger H., Ferguson B., Wong C., et al. A study of the quality of life and cost-utility of renal transplantation. Kidney Int. 1996, 50:235-242.
36. Mai F. Graft and donor denial in heart transplant recipients. Am. J. Psychiatry 1986, 143:1159-1161.
37. Maple H., Chilcot J., Burnapp L., Gibbs P., Santhouse A., Norton S., et al. Motivations, outcomes, and characteristics of unspecified (nondirected altruistic) kidney donors in the United Kingdom. Transplantation 2014, 98:1182-1189.
38. Mauss, M. (1954[1925]) The gift: Forms and functions of exchanges in archaic societies. Glencoe, IL: The Free Press.
39. Mazaris E., Warrens A., Smith G., Tekkis P., Papalois V. Live kidney donation: attitudes towards donor approach, motives and factors promoting donation. Nephrol. Dial. Transpl. 2012, 27:2517-2525.
40. Medin D., Ortony A. Psychological essentialism. Similarity and Analogical Reasoning 1989, 179-195. Cambridge University Press, Cambridge. S. Vosniadou, A. Ortony (Eds.).
41. Melcher M., Veale J., Javaid B., Leeser D., Davis C., Hil G., et al. Kidney transplant chains amplify benefit of nondirected donors. JAMA Surg. 2013, 148:165-169.
42. Miles M., Huberman A.A. Qualitative Data Analysis 1984, SAGE, London.
43. Morse J. Data were saturated. Qual. Health Res. 2015, 25:587-588.
44. NHS Blood and Transplant Statistics and Clinical Audit: NHS Blood and Transplant Organ 2014, Donation and Transplantation Activity Report 2013/14 Retrieved from:. http://www.organdonation.nhs.uk/statistics/transplant_activity_report/current_activity_reports/ukt/activity_report_2013_14.pdf.
45. Noble M., Wright G., Smith G., Dibben C. Measuring multiple deprivation at the small-area level. Environ. Plan. 2006, A38:169.
46. Nolan M., Walton-Moss B., Taylor L., Dane K. Living kidney donor decision making: state of the science and directions for future research. Prog. Transpl. 2004, 14:201-209.
47. Payne R., Abel G. UK indices of multiple deprivation - a way to make comparisons across constituent countries easier. Health Stat. Quart. 2012, 53:22.
48. Pearsall P., Schwartz G., Russek L. Changes in heart transplant recipients that parallel the personalities of their donors. Integr. Med. 2000, 2:65-72.
49. Sanner M. Exchanging spare parts or becoming a new person? People's attitudes toward receiving and donating organs. Soc. Sci. Med. 2001, 52:1491-1499.
50. Sanner M. Transplant recipients' conceptions of three key phenomena in transplantation: the organ donation, the organ donor, and the organ transplant. Clin. Transpl. 2003, 17:391-400.
51. Sawyer N., Blyth E., Kramer W., Frith L. A survey of 1700 women who formed their families using donor spermatozoa. Reprod. Biomed. Online 2013, 27:436-447.
52. Schweda M., Wöhlke S., Schicktanz S. Understanding public skepticism toward organ donation and its commercialization: the important role of reciprocity. Transpl. Proc. 2009, 41:2509-2511.
53. Sharif A. Unspecified kidney donation - a review of principles, practice and potential. Transplantation 2013, 95:1425-1430.
54. Sharp L. Organ transplantation as a transformative experience: anthropological insights into the restructuring of the self. Med. Anthropol. Q. 1995, 9:357-389.
55. Siminoff L., Chillag K. The fallacy of the "gift of life". Hastings Cent. Rep. 1999, 29:34-41.
56. Simmons R., Klein Marine S., Simmons R. Gift of Life: the Effect of Organ Transplantation on Individual, Family, and Societal Dynamics 1987, Transaction Books, New York.
57. Spital A. Public attitudes toward kidney donation by friends and altruistic strangers in the United States. Transplantation 2001, 71:1961-1964.
58. Tong A., Sainsbury P., Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int. J. Qual. Health Care 2007, 19:349-357.
59. Tong A., Winkelmayer W., Craig J. Qualitative research in CKD: an overview of methods and applications. Am. J. Kidney Dis. 2014, 64:338-346.
60. Vamos M. Organ transplantation and magical thinking. Aust. N. Z. J. Psychiatry 2010, 44:883-887.
61. Waite P., McManus F., Shafran R. Cognitive behaviour therapy for low self-esteem: a preliminary randomized controlled trial in a primary care setting. J. Behav. Ther. Exp. Psychiatry 2012, 43:1049-1057.
62. Walster E., Berscheid E., Walster W. New directions in equity research. J. Personal. Soc. Psychol. 1973, 25:151-176.
63. Walster E., Walster W., Berscheid E. Equity: Theory & Research 1978, Allyn & Bacon, Inc.
64. Waterman A., Stanley S., Covelli T., Hazel E., Hong B., Brennan D. Living donation decision making: recipients' concerns and educational needs. Prog. Transpl. 2006, 16:17-23.
65. Williams S. Modern medicine and the "uncertain body": from corporeality to hyperreality?. Soc. Sci. Med. 1997, 45:1041-1049.