Informal Caregiving and Subjective Well-Being: Evidence of a Population-Based Longitudinal Study of Older Adults in Germany

Journal of the American Medical Directors Association

Volumn 17, Issue 4, 2016, Pages 300-305

  Hajek, André ^a   König, Hans Helmut ^a  

^a UNIVERSITY MEDICAL CENTER HAMBURG EPPENDORF   (Germany)

Author keywords

Health related quality of life; Informal caregiving; Life satisfaction; Mental health; Positive and negative affect; Subjective well being

Indexed keywords

ADULT; AGING; CAREGIVER; CENTER FOR EPIDEMIOLOGICAL STUDIES DEPRESSION SCALE; FEMALE; GERMANY; HUMAN; HUMAN EXPERIMENT; LIFE SATISFACTION; LONGITUDINAL STUDY; MALE; MENTAL HEALTH; POSITIVE AND NEGATIVE AFFECT SCHEDULE; QUANTITATIVE STUDY; SATISFACTION WITH LIFE SCALE; SELF CONCEPT; SHORT FORM 36; WELLBEING; AGED; DEMOGRAPHY; MIDDLE AGED; PSYCHOLOGICAL RATING SCALE; PSYCHOLOGY; QUALITY OF LIFE; SATISFACTION; VERY ELDERLY;

ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; DEMOGRAPHY; FEMALE; GERMANY; HUMANS; LONGITUDINAL STUDIES; MALE; MENTAL HEALTH; MIDDLE AGED; PERSONAL SATISFACTION; PSYCHIATRIC STATUS RATING SCALES; QUALITY OF LIFE;

EID: 84950256052     PISSN: 15258610     EISSN: 15389375     Source Type: Journal    
DOI: 10.1016/j.jamda.2015.10.015     Document Type: Article

References (57)

1. Diener E. Subjective well-being. Psychol Bull 1984, 95:542-575.
2. Busseri M.A., Sadava S.W. A review of the tripartite structure of subjective well-being: Implications for conceptualization, operationalization, analysis, and synthesis. Pers Soc Psychol Rev 2011, 15:290-314.
3. Luhmann M., Hofmann W., Eid M., Lucas R.E. Subjective well-being and adaptation to life events: A meta-analysis. J Pers Soc Psychol 2012, 102:592-615.
4. Eid M., Diener E. Global judgments of subjective well-being: Situational variability and long-term stability. Soc Ind Res 2004, 65:245-277.
5. Kahneman D., Deaton A. High income improves evaluation of life but not emotional well-being. Proc Natl Acad Sci U S A 2010, 107:16489-16493.
6. Tian-hui C., Lu L. A systematic review: How to choose appropriate health-related quality of life (HRQOL) measures in routine general practice?. J Zhejiang Univ Sci B 2005, 6:936-940.
7. Wilson I.B., Cleary P.D. Linking clinical variables with health-related quality of life: A conceptual model of patient outcomes. JAMA 1995, 273:59-65.
8. Bleijlevens M.H., Stolt M., Stephan A., et al. Changes in caregiver burden and health-related quality of life of informal caregivers of older people with Dementia: Evidence from the European RightTimePlaceCare prospective cohort study. J Adv Nurs 2015, 71:1378-1391.
9. Brodaty H., Donkin M. Family caregivers of people with dementia. Dialogues Clin Neurosci 2009, 11:217.
10. Markowitz J.S., Gutterman E.M., Sadik K., Papadopoulos G. Health-related quality of life for caregivers of patients with Alzheimer disease. Alzheimer Dis Assoc Disord 2003, 17:209-214.
11. Gilleard C., Gilleard E., Gledhill K., Whittick J. Caring for the elderly mentally infirm at home: A survey of the supporters. J Epidemiol Community Health 1984, 38:319-325.
12. Schulz R., O'Brien A.T., Bookwala J., Fleissner K. Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes. Gerontologist 1995, 35:771-791.
13. Neugaard B., Andresen E., McKune S.L., Jamoom E.W. Health-related quality of life in a national sample of caregivers: Findings from the behavioral risk factor surveillance system. J Happiness Stud 2008, 9:559-575.
14. Maslach C., Schaufeli W.B., Leiter M.P. Job burnout. Annu Rev Psychol 2001, 52:397-422.
15. Cooper C., Selwood A., Blanchard M., et al. The determinants of family carers' abusive behaviour to people with dementia: Results of the CARD study. J Affect Disord 2010, 121:136-142.
16. Folkman S. Stress, Appraisal, and Coping 1984, Springer Publishing Company LLC, New York, NY.
17. Haley W.E. Family caregivers of elderly patients with cancer: Understanding and minimizing the burden of care. J Support Oncol 2003, 1:25-29.
18. Gottlieb B.H., Rooney J. Coping effectiveness: Determinants and relevance to the mental health and affect of family caregivers of persons with dementia. Aging Ment Health 2004, 8:364-373.
19. Bandura A. Self-efficacy: Toward a unifying theory of behavioral change. Psychol Rev 1977, 84:191.
20. Cheng S.-T., Lam L.C.W., Kwok T., et al. Self-efficacy is associated with less burden and more gains from behavioral problems of Alzheimer's disease in Hong Kong Chinese caregivers. Gerontologist 2013, 53:71-80.
21. Nogales-González C., Romero-Moreno R., Losada A., et al. Moderating effect of self-efficacy on the relation between behavior problems in persons with dementia and the distress they cause in caregivers. Aging Ment Health 2015, 19:1022-1030.
22. Rabinowitz Y.G., Mausbach B.T., Gallagher-Thompson D. Self-efficacy as a moderator of the relationship between care recipient memory and behavioral problems and caregiver depression in female dementia caregivers. Alzheimer Dis Assoc Disord 2009, 23:389-394.
23. George N.R., Steffen A. Physical and mental health correlates of self-efficacy in dementia family caregivers. J Women Aging 2014, 26:319-331.
24. Romero-Moreno R., Losada A., Mausbach B., et al. Analysis of the moderating effect of self-efficacy domains in different points of the dementia caregiving process. Aging Ment Health 2011, 15:221-231.
25. Engstler H., Motel-Klingebiel A. Datengrundlagen und Methoden des deutschen Alterssurveys (DEAS). Altern im Wandel. Befunde des Deutschen Alterssurveys (DEAS) 2010, 34-60. Verlag W. Kohlhammer, Stuttgart. A. Motel-Klingebiel, S. Wurm, C. Tesch-Römer (Eds.).
26. Ware J.E., Sherbourne C.D. The MOS 36-item short-form health survey (SF-36): I. Conceptual framework and item selection. Med Care 1992, 30:473-483.
27. Radloff L.S. The CES-D scale: A self-report depression scale for research in the general population. Appl Psychol Meas 1977, 1:385-401.
28. Pavot W., Diener E. Review of the satisfaction with life scale. Psychol Assess 1993, 5:164.
29. Watson D., Clark L.A., Tellegen A. Development and validation of brief measures of positive and negative affect: The PANAS scales. J Pers Soc Psychol 1988, 54:1063.
30. Snyder C.R., Harris C., Anderson J.R., et al. The will and the ways: Development and validation of an individual-differences measure of hope. J Pers Soc Psychol 1991, 60:570.
31. König H.-H., Bernert S., Angermeyer M.C., et al. Comparison of population health status in six European countries: Results of a representative survey using the EQ-5D questionnaire. Med Care 2009, 47:255-261.
32. Chiu H.C., Chen C.M., Huang C.J., Mau L.W. Depressive symptoms, chronic medical conditions and functional status: A comparison of urban and rural elders in Taiwan. Int J Geriatr Psychiatry 2005, 20:635-644.
33. Charlson M., Szatrowski T.P., Peterson J., Gold J. Validation of a combined comorbidity index. J Clin Epidemiol 1994, 47:1245-1251.
34. International Standard Classification of Education 1997, United Nations Educational, Scientific, and Cultural Organization, ISCED, Paris, France, Re-edition ed2006.
35. Ferrer-i-Carbonell A., Frijters P. How important is methodology for the estimates of the determinants of happiness?. Econ J 2004, 114:641-659.
36. Cameron A.C., Trivedi P.K. Microeconometrics: Methods and applications 2005, Cambridge University Press, New York.
37. Stock J.H., Watson M.W. Heteroskedasticity: Robust standard errors for fixed effects panel data regression. Econometrica 2008, 76:155-174.
38. Romero-Moreno R., Márquez-González M., Mausbach B.T., Losada A. Variables modulating depression in dementia caregivers: A longitudinal study. Int Psychogeriatr 2012, 24:1316-1324.
39. Smith G.R., Williamson G.M., Miller L.S., Schulz R. Depression and quality of informal care: A longitudinal investigation of caregiving stressors. Psychol Aging 2011, 26:584.
40. Márquez-González M., Losada A., López J., Peñacoba C. Reliability and validity of the Spanish version of the revised scale for caregiving self-efficacy. Clin Gerontol 2009, 32:347-357.
41. Steffen A.M., McKibbin C., Zeiss A.M., et al. The revised scale for caregiving self-efficacy reliability and validity studies. J Gerontol B Psychol Sci Soc Sci 2002, 57:P74-P86.
42. Chun M., Knight B., Youn G. Differences in stress and coping models of emotional distress among Korean, Korean-American and White-American caregivers. Aging Ment Health 2007, 11:20-29.
43. Eisele M., Kaduszkiewicz H., König H., et al. Determinants of health-related quality of life in older primary care patients: Results of the longitudinal observational AgeCoDe study. Br J Gen Pract 2015, 65:e716-e723.
44. Zhang J.X., Walker J.D., Wodchis W.P., et al. Measuring health status and decline in at-risk seniors residing in the community using the Health Utilities Index Mark 2. Qual Life Res 2006, 15:1415-1426.
45. Clark A.E., Georgellis Y. Back to baseline in Britain: Adaptation in the British household panel survey. Economica 2013, 80:496-512.
46. Schiel S., Dickmann C., Aust F. Methodenbericht Deutscher Alterssurvey (DEAS): 4. Befragungswelle. Panelbefragung 2011.
47. Moore R.C., Harmell A.L., Chattillion E., et al. Bonn PEAR model and sleep outcomes in dementia caregivers: Influence of activity restriction and pleasant events on sleep disturbances. Int Psychogeriatr 2011, 23:1462-1469.
48. Amirkhanyan A.A., Wolf D.A. Parent care and the stress process: Findings from panel data. J Gerontol B Psychol Sci Soc Sci 2006, 61:S248-S255.
49. Zarit S.H., Gaugler J.E., Jarrott S.E. Useful services for families: Research findings and directions. Int J Geriatr Psychiatry 1999, 14:165-178.
50. Hankey G.J. Informal care giving for disabled stroke survivors: Training the care giver benefits the patient, the care giver, and the community. BMJ 2004, 328:1085.
51. Kuhn D., Fulton B.R. Efficacy of an educational program for relatives of persons in the early stages of Alzheimer's disease. J Gerontol Soc Work 2004, 42:109-130.
52. Sörensen S., Pinquart M., Duberstein P. How effective are interventions with caregivers? An updated meta-analysis. Gerontologist 2002, 42:356-372.
53. Corcoran M.A., Gitlin L.N. Dementia management: An occupational therapy home-based intervention for caregivers. Am J Occup Ther 1992, 46:801-808.
54. Gitlin L.N., Corcoran M., Winter L., et al. A randomized, controlled trial of a home environmental intervention effect on efficacy and upset in caregivers and on daily function of persons with dementia. Gerontologist 2001, 41:4-14.
55. Gitlin L.N., Corcoran M., Winter L., et al. Predicting participation and adherence to a home environmental intervention among family caregivers of persons with dementia. Family Relations 1999, 48:363-372.
56. Saad K., Hartman J., Ballard C., et al. Coping by the carers of dementia sufferers. Age Ageing 1995, 24:495-498.
57. Schulz R., Hebert R.S., Dew M.A., et al. Patient suffering and caregiver compassion: New opportunities for research, practice, and policy. Gerontologist 2007, 47:4-13.