Barriers and facilitators of the transition to adulthood for foster youth with autism spectrum disorder: Perspectives of service providers in Illinois

Children and Youth Services Review

Volumn 60, Issue , 2016, Pages 119-128

  Havlicek, Judy ^a   Bilaver, Lucy ^b   Beldon, Marissa ^b  

^a UNIVERSITY OF ILLINOIS AT URBANA CHAMPAIGN   (United States)

^b NORTHERN ILLINOIS UNIVERSITY   (United States)

Author keywords

Focus groups; Foster youth with autism; Inter agency collaboration; Service provider perspectives; Transition to adulthood

Indexed keywords

EID: 84949210669     PISSN: 01907409     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.childyouth.2015.11.025     Document Type: Article

References (58)

1. Ahrens K.R., Garrison M.M., Courtney M.E. Health outcomes in young adults from foster care and economically diverse backgrounds. Pediatrics 2014, 134(6):1067-1074.
2. American Psychiatric Association Diagnostic and statistical manual of mental disorders 2013, Author, Washington, DC. 5th ed.
3. Anderson K.A., Shattuck P.T., Cooper B.P., Roux A.M., Wagner M. Prevalence and correlates of postsecondary residential status among young adults with an autism spectrum disorder. Autism: The International Journal of Research and Practice 2014, 18(5):562-570.
4. Bai Y., Wells R., Hillemeier M.M. Coordination between child welfare agencies and mental health service providers, children's service use, and outcomes. Child Abuse & Neglect 2009, 33(6):372-381.
5. Barbour R. Doing focus groups 2008, Sage Publications Ltd., Thousand Oaks, CA.
6. Barth R.P. On their own: The experiences of youth after foster care. Child and Adolescent Social Work Journal 1990, 7(5):419-440.
7. Bilaver L.A., Havlicek J. Foster children with autism spectrum disorder: Prevalence, length of stay, and placement patterns. Journal of Public Child Welfare 2013, 7(5):496-519.
8. Blakeslee J.E., Del Quest A., Powers J., Powers L.E., Geenen S., Nelson M., McHugh E. Reaching everyone: Promoting the inclusion of youth with disabilities in evaluating foster care outcomes. Children and Youth Services Review 2013, 35(11):1801-1808.
9. Centers for Disease Control and Prevention Prevalence of autism spectrum disorder among children aged 8years - Autism and developmental disabilities monitoring network, 11 sites, United States, 2010. Morbidity and Mortality Weekly Report. Surveillance Summaries (Washington, D.C.: 2002) 2014, 63(2):1-21.
10. Charmaz K. Constructing grounded theory: A practical guide through qualitative analysis 2006, Sage Publications Ltd., Thousand Oaks, CA.
11. Courtney M.E. The difficult transition to adulthood for foster youth in the U.S.: Implications for the state as corporate parent. Social Policy Report 2009, 23(1):1-20.
12. Cusick G.R., Havlicek J.R., Courtney M.E. Risk for arrest: The role of social bonds in protecting foster youth making the transition to adulthood. American Journal of Orthopsychiatry 2012, 82(1):19-31.
13. Dworsky A. The economic self-sufficiency of Wisconsin's former foster youth. Children and Youth Services Review 2005, 27(10):1085-1118.
14. Dworsky A., Courtney M.E. Homelessness and the transition from foster care to adulthood. Child Welfare 2009, 88(4):23-56.
15. Dworsky A., Courtney M.E. The risk of teenage pregnancy among transitioning foster youth: Implications for extending state care beyond age 18. Children and Youth Services Review 2010, 32(10):1351-1356.
16. Dworsky A., Napalitano L., Courtney M.E. Homelessness during the transition from foster care to adulthood. American Journal of Public Health 2013, 103(Supplement 2):S318-S323.
17. Eaves L.C., Ho H.H. Young adult outcome of autism spectrum disorders. Journal of Autism and Developmental Disorders 2008, 38(4):739-747.
18. Fowler P.J., Toro P.A., Miles B.W. Pathways to and from homelessness and associated psychosocial outcomes among adolescents leaving the foster care system. American Journal of Public Health 2009, 99(8):1453.
19. Geenen S., Powers L.E. Are we ignoring youths with disabilities in foster care? An examination of their school performance. Social Work 2006, 51(3):233-241.
20. Geenen S.J., Powers L.E. Transition planning for foster youth. Journal for Vocational Special Needs Education 2006, 28(2):4-15.
21. Glisson C., Hemmelgarn A. The effects of organizational climate and interorganizational coordination on the quality and outcomes of children's service systems. Child Abuse & Neglect 1998, 22(5):401-421.
22. Hill K. Individuals with Disabilities Act of 2004 and the John H. Chafee Foster Care Independence Act of 1999: What are the policy implications for youth with disabilities transitioning from foster care?. Child Welfare 2009, 88(2):5-23.
23. Hill K.M. The prevalence of youth with disabilities among older youth in out-of-home placement: An analysis of state administrative data. Child Welfare 2012, 91(4):61-84.
24. Hill K., Lightfoot E., Kimball E. Foster care transition services for youth with disabilities: Findings from a survey of county service providers. Child Welfare 2010, 89(6):63-81.
25. Jaudes P.K., Bilaver L.A., Goergia G.M., Masterson J., Cantania C. Improving access to care for foster care children: The Illinois model. Child Welfare 2004, 83(3):215-238.
26. Jaudes P.K., the Council on Foster Care, Adoption, and Kinship care, Committee on Early Childhood Health care of youth aging out of foster care. Pediatrics 2012, 1030:1170-1173.
27. Johnson L.J., Zorn D., Tam B.K.Y., Lamontagne M., Johnson S.A. Stakeholders' views of factors that impact successful interagency collaboration. Exceptional Children 2003, 69(2):195-209.
28. Knutson J.F., Johnson C.R., Sullivan P.M. Disciplinary choices of mothers of deaf children and mothers of normally hearing children. Child Abuse & Neglect 2004, 28(9):925-937.
29. Krueger R.A. Analyzing & reporting focus group results: Focus group kit 6 1998, Sage Publications, Thousand Oaks, CA.
30. Levy S.E., Giarelli E., Lee L.C., Schieve L.A., Kirby R.S., Cunniff C., Rice C.E. Autism spectrum disorder and co-occurring developmental, psychiatric, and medical conditions among children in multiple populations of the United States. Journal of Developmental and Behavioral Pediatrics 2010, 31(4):267-275.
31. Lightfoot E.B., LaLiberte T.L. Approaches to child protection case management for cases involving people with disabilities. Child Abuse & Neglect 2006, 30(4):381-391.
32. Lincoln Y.S., Guba E.G. Naturalistic inquiry. Thousand Oaks 1985, Sage Publications, Inc., CA.
33. Malterud K. Qualitative research: standards, challenges, and guidelines. The Lancet 2001, 358:483-488.
34. Manders J.E., Stoneman Z. Children with disabilities in the child protective services system: An analog study of investigation and case management. Child Abuse & Neglect 2009, 33(4):229-237.
35. McMillen J.C., Zima B.T., Scott L.D., Auslander W.F., Munson M.R., Ollie M.T., Spitznagel E.L. Prevalence of psychiatric disorders among older youths in the foster care system. Journal of the American Academy of Child and Adolescent Psychiatry 2005, 44(1):88-95.
36. Miles M.B., Huberman A.M. Qualitative data analysis 1994, Sage Publications, Inc., Thousand oaks, CA.
37. Morgan D.L. Focus group as qualitative research 1997, Sage, Inc., Thousand Oaks, CA. 2nd ed.
38. Orelove F.P., Hollahan D.J., Myles K.T. Maltreatment of children with disabilities: Training needs for a collaborative response. Child Abuse & Neglect 2000, 24(2):185-194.
39. Orsmond G.I., Shattuck P.T., Cooper B.P., Sterzing P.R., Anderson K.A. Social participation among young adults with an autism spectrum disorder. Journal of Autism and Developmental Disorders 2013, 43(11):2710-2719.
40. Osgood D.W., Foster E.M., Courtney M.E. Vulnerable populations and the transition to adulthood. The Future of Children 2010, 20(1):209-229.
41. Padgett D.K. Quantitative methods in social work research: Challenges and rewards 2008, Sage Publications, Inc., Thousand Oaks, CA. 2nd ed.
42. Pecora P.J., Casey Family Programs Improving family foster care: Findings from the northwest foster care alumni study 2005, Casey Family Programs, Seattle, WA.
43. Pecora P.J., Jensen P.S., Romanelli L.H., Jackson L.J., Ortiz A. Mental health services for children placed in foster care: An overview of current challenges. Child Welfare 2009, 88(1):5-26.
44. Roux A.M., Shattuck P.T., Cooper B.P., Anderson K.A., Wagner M., Narendorf S.C. Postsecondary employment experiences among young adults with an autism spectrum disorder. Journal of the American Academy of Child and Adolescent Psychiatry 2013, 52(9):931-939.
45. Shannon P., Agorastou M. Identifying children with developmental disabilities receiving child protection services: A national survey of child welfare administrators. Families in Society: The Journal of Contemporary Social Services 2006, 87(3):351-357.
46. Shannon P., Tappan C. A qualitative analysis of child protective services practice with children with developmental disabilities. Children and Youth Services Review 2011, 33(9):1469-1475.
47. Shannon P., Tappan C. Identification and assessment of children with developmental disabilities in child welfare. Social Work 2011, 56(4):297-305.
48. Shattuck P.T., Roux A.M., Hudson L.E., Taylor J.L., Maenner M.J., Trani J.F. Services for adults with an autism spectrum disorder. Canadian Journal of Psychiatry 2012, 57(5):284-291.
49. Shattuck P.T., Wagner M., Narendorf S., Sterzing P., Hensley M. Post-high school service use among young adults with an autism spectrum disorder. Archives of Pediatrics and Adolescent Medicine 2011, 165(2):141-146.
50. Simonoff E., Pickles A., Charman T., Chandler S., Loucas T., Baird G. Psychiatric disorders in children with autism spectrum disorders: Prevalence, comorbidity, and associated factors in a population-derived sample. Journal of the American Academy of Child and Adolescent Psychiatry 2008, 47(8):921-929.
51. Smith B.D., Mogro-Wilson C. Inter-agency collaboration: Policy and practice in child welfare and substance abuse treatment. Administration in Social Work 2008, 32(2):5-24.
52. Stahmer A.C., Sutton D.T., Fox L., Leslie L.K. State Part C agency practices and the Child Abuse Prevention and Treatment Act (CAPTA). Topics in Early Childhood Special Education 2008, 28:99-108.
53. Stewart D. Transition to adult services for young people with disabilities: Current evidence to guide future research. Developmental Medicine and Child Neurology 2009, 51(s4):169-173.
54. Stroul B., Friedman R.M. A system of care for children and adolescents with severe emotional disturbances 1986, Georgetown University Center for Child Development, National Technical Assistance for Children's Mental Health, Washington, D.C.
55. Sullivan P.M., Knutson J.F. Maltreatment and disabilities: A population-based epidemiological study. Child Abuse & Neglect 2000, 24(10):1257-1273.
56. U.S.Department of Health and Human Services The AFCARS report: Preliminary estimates as of July 2015. Report No. 22 2015, Administration for Children and Families, U.S. Children's Bureau, Washington, D.C.
57. U.S.Government Accountability Office Students with disabilities: Better federal coordination could lessen challenges in the transition from high school. Report no. GAO-12-594 2012, U.S. Government Accountability Office, Washington, D.C.
58. Ziviani J., Darlington Y., Feeney R., Meredith P., Head B. Children with disabilities in out-of-home care: Perspectives on organizational collaborations. Children and Youth Services Review 2013, 35(5):797-805.