Promoting perioperative advance care planning: A systematic review of advance care planning decision AIDS

Journal of Comparative Effectiveness Research

Volumn 4, Issue 6, 2015, Pages 615-650

  Aslakson, Rebecca A ^a   Schuster, Anne L R ^b   Reardon, Jessica ^a   Lynch, Thomas ^a   Suarez Cuervo, Catalina ^b   Miller, Judith A ^c   Moldovan, Rita ^a   Johnston, Fabian ^d   Anton, Blair ^e   Weiss, Matthew ^e   Bridges, John F P ^b  

^a JOHNS HOPKINS HOSPITAL   (United States)

^b JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

^c Architecture by Design   (United States)

^d MEDICAL COLLEGE OF WISCONSIN   (United States)

^e JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

advance care planning; decision support techniques; decision making; patient centered care; perioperative care

Indexed keywords

AMYOTROPHIC LATERAL SCLEROSIS; AUDIO RECORDING; CHRONIC OBSTRUCTIVE LUNG DISEASE; DEMENTIA; HEALTH CARE PLANNING; HEALTH PROMOTION; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; MALIGNANT NEOPLASTIC DISEASE; MEDICAL DECISION MAKING; PALLIATIVE THERAPY; PATIENT CARE; PATIENT COMFORT; PATIENT SAFETY; PERIOPERATIVE PERIOD; PRIORITY JOURNAL; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL (TOPIC); REVIEW; SURGICAL PATIENT; SYSTEMATIC REVIEW; VIDEORECORDING; WEB BROWSER; ADVANCE CARE PLANNING; DECISION SUPPORT SYSTEM;

ADVANCE CARE PLANNING; DECISION SUPPORT TECHNIQUES; HUMANS; PATIENT-CENTERED CARE; PERIOPERATIVE CARE;

EID: 84948685129     PISSN: 20426305     EISSN: 20426313     Source Type: Journal    
DOI: 10.2217/cer.15.43     Document Type: Review

References (103)

1. Boyd O, Jackson N. How is risk defined in high-risk surgical patient management Crit. Care 9, 390-396 (2005).
2. Kozower BD, Sheng S, O'Brien SM et al. STS database risk models: predictors of mortality and major morbidity for lung cancer resection. Ann. Thorac. Surg. 90, 875-881 (2010).
3. Schwarze ML, Shen Y, Hemmerich J, Dale W. Age-related trends in utilization and outcome of open and endovascular repair for abdominal aortic aneurysm in the United States, 2001-2006. J. Vasc. Surg. 50, 722-729.e2 (2009).
4. Finlayson E, Fan Z, Birkmeyer JD. Outcomes in octogenarians undergoing high-risk cancer operation: a national study. J. Am. Coll. Surg. 205, 729-734 (2007).
5. Carroll JE, Smith JK, Simons JP et al. Redefining mortality after pancreatic cancer resection. J. Gastrointest. Surg. 14, 1701-1708 (2010).
6. McPhee JT, Hill JS, Whalen GF et al. Perioperative mortality for pancreatectomy: a national perspective. Ann. Surg. 246, 246-253 (2007).
7. Eppsteiner RW, Csikesz NG, McPhee JT, Tseng JF, Shah SA. Surgeon volume impacts hospital mortality for pancreatic resection. Ann. Surg. 249, 635-640 (2009).
8. Ragulin-Coyne E, Carroll JE, Smith JK et al. Perioperative mortality after pancreatectomy: a risk score to aid decisionmaking. Surgery 152, S120-S127 (2012).
9. Caprini JA, Arcelus JI, Hasty JH, Tamhane AC, Fabrega F. Clinical assessment of venous thromboembolic risk in surgical patients. Semin. Thromb. Hemost. 17(Suppl. 3), 304-312 (1991).
10. Goldman L, Caldera DL, Nussbaum SR et al. Multifactorial index of cardiac risk in noncardiac surgical procedures. N. Engl. J. Med. 297, 845-850 (1977).
11. Nelson JE, Tandon N, Mercado AF et al. Brain dysfunction: another burden for the chronically critically ill. Arch. Intern. Med. 166, 1993-1999 (2006).
12. Prendergast TJ, Luce JM. Increasing incidence of withholding and withdrawal of life support from the critically ill. Am. J. Respir. Crit. Care Med. 155, 15-20 (1997).
13. Silveira MJ, Kim SY, Langa KM. Advance directives and outcomes of surrogate decision making before death. N. Engl. J. Med. 362, 1211-1218 (2010).
14. Stacey D, Legare F, Col NF et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst. Rev. 1, CD001431 (2014).
15. Butler M, Ratner E, McCreedy E, Shippee N, Kane R. Decisions aids for advance care planning: an overview of the science. Ann. Intern. Med. 161, 408-418 (2014).
16. Schwarze ML, Bradley CT, Brasel KJ. Surgical "buy-in": the contractual relationship between surgeons and patients that influences decisions regarding life-supporting therapy. Crit. Care Med. 38, 843-848 (2010).
17. Schwarze ML, Redmann AJ, Alexander GC, Brasel KJ. Surgeons expect patients to buy-in to postoperative life support preoperatively: results of a national survey. Crit. Care Med. 41, 1-8 (2013).
18. Sudore RL, Fried TR. Redefining the "planning" in advance care planning: preparing for end-of-life decision making. Ann. Intern. Med. 153, 256-261 (2010).
19. Campbell LA, Kisely SR. Advance treatment directives for people with severe mental illness. Cochrane Database Syst. Rev. 1, CD005963 (2009).
20. Dening KH, Jones L, Sampson EL. Advance care planning for people with dementia: a review. Int. Psychogeriatr. 23, 1535-1551 (2011).
21. Robinson L, Dickinson C, Rousseau N et al. A systematic review of the effectiveness of advance care planning interventions for people with cognitive impairment and dementia. Age Ageing 41, 263-269 (2012).
22. Ramsaroop SD, Reid MC, Adelman RD. Completing an advance directive in the primary care setting: what do we need for success J. Am. Geriatr. Soc. 55, 277-283 (2007).
23. Sechaud L, Goulet C, Morin D, Mazzocato C. Advance care planning for institutionalised older people: an integrative review of the literature. Int. J. Older People Nurs. 9, 159-168 (2014).
24. Abba K, Byrne P, Horton S, Lloyd-Williams M. Interventions to encourage discussion of end-of-life preferences between members of the general population and the people closest to them-a systematic literature review. BMC Palliat. Care 12, 40 (2013).
25. Bravo G, Dubois MF, Wagneur B. Assessing the effectiveness of interventions to promote advance directives among older adults: a systematic review and multi-level analysis. Soc. Sci. Med. 67, 1122-1132 (2008).
26. Durbin CR, Fish AF, Bachman JA, Smith KV. Systematic review of educational interventions for improving advance directive completion. J. Nurs. Scholarsh. 42, 234-241 (2010).
27. Patel RV, Sinuff T, Cook DJ. Influencing advance directive completion rates in non-terminally ill patients: a systematic review. J. Crit. Care 19, 1-9 (2004).
28. Lorenz KA, Lynn J, Dy SM et al. Evidence for improving palliative care at the end of life: a systematic review. Ann. Intern. Med. 148, 147-159 (2008).
29. Aslakson RA, Schuster AL, Miller J, Weiss M, Volandes AE, Bridges JF. An environmental scan of advance care planning decision aids for patients undergoing major surgery: a study protocol. Patient 7, 207-217 (2014).
30. Preferred reporting items for systematic reviews and metaanalysis. www.prisma-statement.org
31. Aslakson R, Reardon J, Schuster A et al. Utilizing advance care planning to empower patients and families: a systematic review as part of an environmental scan. PROSPERO 2013: CRD42013005399 https://www.crd.york.ac.uk
32. Butler K. What broke my father's heart. New York Times Magazine 18 June 2010.
33. Belanger S. Check your advance directive at the door: transplantation and the obligation to live. Am. J. Bioeth. 10, 65-66 (2010).
34. Tulsky JA. Beyond advance directives: importance of communication skills at the end of life. JAMA 294, 359-365 (2005).
35. Larochelle MR, Rodriguez KL, Arnold RM, Barnato AE. Hospital staff attributions of the causes of physician variation in end-of-life treatment intensity. Palliat. Med. 23, 460-470 (2009).
36. Cassell J, Buchman TG, Streat S, Stewart RM. Surgeons, intensivists, and the covenant of care: administrative models and values affecting care at the end of life-updated. Crit. Care Med. 31, 1551-1559 (2003).
37. Buchman TG. Surgeons and their patients near the end of life. Crit. Care Med. 38, 995-996 (2010).
38. Cassell J. Life and Death in Intensive Care. Temple University Press, Philadelphia (2005).
39. Buchman TG, Cassell J, Ray SE, Wax ML. Who should manage the dying patient Rescue, shame, and the surgical ICU dilemma. J. Am. Coll. Surg. 194, 665-673 (2002).
40. Schuster A, Aslakson R, Bridges J. Creating an advancecare-planning decision aid for high-risk surgery: a qualitative study. BMC Pall Care 13, 32 (2014).
41. Higgins J, Green S (Eds). Cochrane Handbook for Systematic Reviews of Interventions Version. 5.1.0. The Cochrane Collaboration (2011). https://www.cochrane-handbook.org
42. Berkman ND, Lohr KN, Ansari M et al. Grading the Strength of a Body of Evidence When Assessing Health Care Interventions for the Effective Health Care Program of the Agency for Healthcare Research and Quality: An Update. Methods Guide for Comparative Effectiveness Reviews (Prepared by the RTI-UNC Evidence-based Practice Center under Contract No. 290-2007-10056-I). AHRQ Publication No. 13(14)-EHC130-EF. Agency for Healthcare Research and Quality, MD, USA (2013).
43. Kinter ET, Schmeding A, Rudolph I, dosReis S, Bridges JFP. Identifying patient-relevant endpoints among individuals with schizophrenia: an application of patient-centered health technology assessment. Int. J. Technol. Assess. Health Care 25, 35-41 (2009).
44. Mitchell I, Schuster A, Lynch T, Smith K, Bridges J, Aslakson A. Why don't end-of-life conversations go viral A review of videos on YouTube. BMJ Support Palliat. Care doi:10.1136/bmjspcare-2014-000805, (2015) (Epub ahead of print).
45. Atkins D, Best D, Briss PA et al. Grading quality of evidence and strength of recommendations. BMJ 328, 1490 (2004).
46. El-Jawahri A, Podgurski LM, Eichler AF et al. Use of video to facilitate end-of-life discussions with patients with cancer: a randomized controlled trial. J. Clin. Oncol. 28, 305-310 (2010).
47. Volandes AE, Brandeis GH, Davis AD et al. A randomized controlled trial of a goals-of-care video for elderly patients admitted to skilled nursing facilities. J. Palliat. Med. 15, 805-811 (2012).
48. Volandes AE, Levin TT, Slovin S et al. Augmenting advance care planning in poor prognosis cancer with a video decision aid: a preintervention-postintervention study. Cancer 118, 4331-4338 (2012).
49. Volandes AE, Ferguson LA, Davis AD et al. Assessing endof-life preferences for advanced dementia in rural patients using an educational video: a randomized controlled trial. J. Palliat. Med. 14, 169-177 (2011).
50. Volandes AE, Mitchell SL, Gillick MR et al. Using video images to improve the accuracy of surrogate decisionmaking: a randomized controlled trial. J. Am. Med. Dir. Assoc. 10, 575-580 (2009).
51. Volandes AE, Paasche-Orlow MK, Barry MJ et al. Video decision support tool for advance care planning in dementia: randomised controlled trial. BMJ 338, b2159 (2009).
52. Volandes AE, Lehmann LS, Cook EF et al. Using video images of dementia in advance care planning. Arch. Intern. Med. 167, 828-833 (2007).
53. Volandes AE, Ariza M, Abbo ED, Paasche-Orlow M. Overcoming educational barriers for advance care planning in Latinos with video images. J. Palliat. Med. 11, 700-706 (2008).
54. Volandes AE, Barry MJ, Chang Y, Paasche-Orlow MK. Improving decision making at the end of life with video images. Med. Decis. Making 30, 29-34 (2010).
55. Volandes AE, Paasche-Orlow MK, Mitchell SL et al. Randomized controlled trial of a video decision support tool for cardiopulmonary resuscitation decision making in advanced cancer. J. Clin. Oncol. 31, 380-386 (2013).
56. Epstein AS, Volandes AE, Chen LY et al. A randomized controlled trial of a cardiopulmonary resuscitation video in advance care planning for progressive pancreas and hepatobiliary cancer patients. J. Palliat. Med. 16, 623-631 (2013).
57. McCannon JB, O'Donnell WJ, Thompson BT et al. Augmenting communication and decision making in the intensive care unit with a cardiopulmonary resuscitation video decision support tool: a temporal intervention study. J. Palliat. Med. 15, 1382-1387 (2012).
58. Hickey DP, Shriner CJ, Perry SE. Patients' initiation of advance care planning discussions with their family physician. Fam. Med. 37, 536 (2005).
59. Siegert EA, Clipp EC, Mulhausen P, Kochersberger G. Impact of advance directive videotape on patient comprehension and treatment preferences. Arch. Fam. Med. 5, 207-212 (1996).
60. Einterz SF, Gilliam MSW, Lin FC, McBride JM, Hanson LC. Development and testing of a decision aid on goals of care for advanced dementia. J. Am. Med. Dir. Assoc. 15, 251-255 (2014).
61. Anderson JP, Kaplan RM, Schneiderman LJ. Effects of offering advance directives on quality adjusted life expectancy and psychological well-being among ill adults. J. Clin. Epidemiol. 47, 761-772 (1994).
62. Barrio-Cantalejo IM, Molina-Ruiz A, Simon-Lorda P et al. Advance directives and proxies' predictions about patients' treatment preferences. Nurs. Ethics. 16, 93-109 (2009).
63. Ditto PH, Danks JH, Smucker WD et al. Advance directives as acts of communication: a randomized controlled trial. Arch. Intern. Med. 161, 421-430 (2001).
64. Kolarik RC, Arnold RM, Fischer GS, Hanusa BH. Advance care planning: a comparison of values statements and treatment preferences. J. Gen. Intern. Med. 17, 618-624 (2002).
65. Singer PA, Thiel EC, Salit I et al. The HIV-specific advance directive. J. Gen. Intern. Med. 12, 729-735 (1997).
66. Sudore RL, Landefeld CS, Barnes DE et al. An advance directive redesigned to meet the literacy level of most adults: a randomized trial. Patient Educ. Couns. 69, 165-195 (2007).
67. Molloy D, Guyatt G, Goerre R et al. A comprehensive health-care directive for competent and incompetent residents of a home for the aged. Ann. R. Coll. Physicians Surg. Can. 30, 339-345 (1997).
68. Richter KP, Langel S, Fawcett SB et al. Promoting the use of advance directives: an empirical study. Arch. Fam. Med. 4, 609-615 (1995).
69. Wissow LS, Belote A, Kramer W et al. Promoting advance directives among elderly primary care patients. J. Gen. Intern. Med. 19, 944-951 (2004).
70. Pearlman RA, Starks H, Cain KC, Cole WG. Improvements in advance care planning in the veterans affairs system: results of a multifaceted intervention. Arch. Intern. Med. 165, 667-674 (2005).
71. Dales RE, O'Connor A, Hebert P, Sullivan K, McKim D, Llewellyn-Thomas H. Intubation and mechanical ventilation for COPD: development of an instrument to elicit patient preferences. Chest 116, 792-800 (1999).
72. Mitchell SL, Tetroe J, O'Connor AM. A decision aid for long-term tube feeding in cognitively impaired older persons. J. Am. Geriatr. Soc. 49, 313-316 (2001).
73. Wilson KG, Aaron SD, Vandemheen KL et al. Evaluation of a decision aid for making choices about intubation and mechanical ventilation in chronic obstructive pulmonary disease. Patient Educ. Couns. 57, 88-95 (2005).
74. Sudore RL, Knight SJ, McMahan RD et al. A novel website to prepare diverse older adults for decision making and advance care planning: a pilot study. J. Pain Symptom Manage. 47, 674-686 (2014).
75. Vogel RI, Petzel SV, Cragg J et al. Development and pilot of an advance care planning website for women with ovarian cancer: a randomized controlled trial. Gynecol. Oncol. 131, 430-436 (2013).
76. Hossler C, Levi BH, Simmons Z, Green MJ. Advance care planning for patients with ALS: feasibility of an interactive computer program. Amyotroph. Lateral Scler. 12, 172-177 (2011).
77. Landry FJ, Kroenke K, Lucas C, Reeder J. Increasing the use of advance directives in medical outpatients. J. Gen. Intern. Med. 12, 412-415 (1997).
78. Matsui M. Effectiveness of end-of-life education among community-dwelling older adults. Nurs. Ethics 17, 363-372 (2010).
79. Heffner JE, Fahy B, Hilling L, Barbieri C. Outcomes of advance directive education of pulmonary rehabilitation patients. Am. J. Respir. Crit. Care Med. 155, 1055-1059 (1997).
80. Hinderer KA, Lee MC. Assessing a nurse-led advance directive and advance care planning seminar. Appl. Nurs. Res. 27, 84-86 (2014).
81. Brown JB, Beck A, Boles M, Barrett P. Practical methods to increase use of advance medical directives. J. Gen. Intern. Med. 14, 21-26 (1999).
82. Singer PA, Thiel EC, Naylor CD et al. Life-sustaining treatment preferences of hemodialysis patients: implications for advance directives. J. Am. Soc. Nephrol. 6, 1410-1417 (1995).
83. Yamada R, Galecki AT, Goold SD, Hogikyan RV. A multimedia intervention on cardiopulmonary resuscitation and advance directives. J. Gen. Intern. Med. 14, 559-563 (1999).
84. Matlock DD, Keech TAE, McKenzie MB, Bronsort MR, Nowels CT, Kutner JS. Feasibility and acceptability of a decision aid designed for people facing advanced or terminal illness: a pilot randomized trial. Health Expect. 17, 49-59 (2014).
85. Politi M, Adsul P, Kuzemchak M, Zeuner R, Frosch D. Clinicians' perceptions of digital vs. paper-based decision support interventions. J. Eval. Clin. Pract. 21, 175-79 (2015).
86. Halley M, Rendle K, Gillespie K, Stanley K, Frosch D. An exploratory mixed-methods crossover study comparing DVD-vs. Web-based patient decision support in three conditions: the importance of patient perspectives. Health Expect. doi:10.1111/hex.12273 (2014) (Epub ahead of print).
87. Nelson JE, Mercado AF, Camhi SL et al. Communication about chronic critical illness. Arch. Intern. Med. 167, 2509-2515 (2007).
88. [No authors listed]. A controlled trial to improve care for seriously ill hospitalized patients. The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). The SUPPORT principal investigators. JAMA 274, 1591-1598 (1995).
89. Hofmann JC, Wenger NS, Davis RB et al. Patient preferences for communication with physicians about end-of-life decisions. SUPPORT investigators. study to understand prognoses and preference for outcomes and risks of treatment. Ann. Intern. Med. 127, 1-12 (1997).
90. Covinsky KE, Fuller JD, Yaffe K et al. Communication and decision-making in seriously ill patients: findings of the SUPPORT project. the study to understand prognoses and preferences for outcomes and risks of treatments. J. Am. Geriatr. Soc. 48(Suppl. 5), S187-S193 (2000).
91. Roter DL, Larson S, Fischer GS, Arnold RM, Tulsky JA. Experts practice what they preach: a descriptive study of best and normative practices in end-of-life discussions. Arch. Intern. Med. 160, 3477-3485 (2000).
92. Pecanac K, Kehler J, Brasel K et al. It's big surgery: preoperative expressions of risk, responsibility, and commitment to treatment after high-risk operations. Ann. Surg. 259, 458-463 (2014).
93. Truog RD, Waisel DB, Burns JP. Do-not-resuscitate orders in the surgical setting. Lancet 365, 733-735 (2005).
94. Guarisco KK. Managing do-not-resuscitate orders in the perianesthesia period. J. Perianesth. Nurs. 19, 300-307 (2004).
95. Waisel DB, Burns JP, Johnson JA, Hardart GE, Truog RD. Guidelines for perioperative do-not-resuscitate policies. J. Clin. Anesth. 14, 467-473 (2002).
96. Elwyn G, O'Connor AM, Bennett C et al. Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi). PLoS ONE 4, e4705 (2009).
97. Gawande A. Being Mortal: Illness, Medicine and What Matters in the End. Metropolitan Books, Henry Holt and Company, USA (2014).
98. Volandes AE. The Conversation: A Revolutionary Plan for End-of-Life Care. Bloomsbury, NY, USA (2015).
99. Chast R. Can't We Talk about Something More Pleasant Bloomsbury, NY, USA (2014).
100. The New York Times. The New Old Age: Caring and Coping (2015). http://newoldage.blogs.nytimes.com/-r=0
101. Dying Matters. Dying matters national coalition led by National Council for Palliative Care. www.dyingmatters.org
102. National Healthcare Decisions Day. www.nhdd.org
103. Speak Up Campaign. www.advancecareplanning.cae