Feasibility and acceptability of a decision aid designed for people facing advanced or terminal illness: A pilot randomized trial

Health Expectations

Volumn 17, Issue 1, 2014, Pages 49-59

  Matlock, Dan D ^a   Keech, Tarah A E ^a   Mckenzie, Marlene B ^a   Bronsert, Michael R ^a   Nowels, Carolyn T ^a   Kutner, Jean S ^a  

^a UNIVERSITY OF COLORADO SCHOOL OF MEDICINE   (United States)

Author keywords

Decision aid; End of life; Palliative care; Randomized trial

Indexed keywords

ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; DECISION AID; DECISION MAKING; DECISION SUPPORT SYSTEM; END-OF-LIFE; FEMALE; HUMAN; MALE; METHODOLOGY; MIDDLE AGED; PALLIATIVE THERAPY; PATIENT PARTICIPATION; PILOT STUDY; RANDOMIZED CONTROLLED TRIAL; RANDOMIZED TRIAL; SOCIOECONOMICS;

DECISION AID; END-OF-LIFE; PALLIATIVE CARE; RANDOMIZED TRIAL;

ADULT; AGED; CHOICE BEHAVIOR; DECISION MAKING; DECISION SUPPORT TECHNIQUES; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MALE; MIDDLE AGED; PALLIATIVE CARE; PATIENT PARTICIPATION; PILOT PROJECTS; SOCIOECONOMIC FACTORS;

EID: 84892450955     PISSN: 13696513     EISSN: 13697625     Source Type: Journal    
DOI: 10.1111/j.1369-7625.2011.00732.x     Document Type: Article

References (27)

1. Sudore RL, Fried TR. Redefining theplanning in advance care planning: preparing for end-of-life decision making. Annals of Internal Medicine, 2010; 153: 256-261.
2. Goldstein NE, Back AL, Morrison RS. Titrating guidance: a model to guide physicians in assisting patients and family members who are facing complex decisions. Archives of Internal Medicine, 2008; 168: 1733-1739.
3. Apatira L, Boyd EA, Malvar G et al. Hope, truth, and preparing for death: perspectives of surrogate decision makers. Annals of Internal Medicine, 2008; 149: 861-868.
4. Fried TR, O'Leary JR. Using the experiences of bereaved caregivers to inform patient- and caregiver-centered advance care planning. Journal of General Internal Medicine, 2008; 23: 1602-1607.
5. Singer PA, Martin DK, Kelner M. Quality end-of-life care. The Journal of the American Medical Association, 1999; 281: 163-168.
6. Back AL, Arnold RM. Discussing prognosis: "how much do you want to know?" talking to patients who are prepared for explicit information. Journal of Clinical Oncology, 2006; 24: 4209-4213.
7. Mattimore TJ, Wenger NS, Desbiens NA et al. Surrogate and physician understanding of patients' preferences for living permanently in a nursing home. Journal of the American Geriatrics Society, 1997; 45: 818-824.
8. Pritchard RS, Fisher ES, Teno JM et al. Influence of patient preferences and local health system characteristics on the place of death. SUPPORT Investigators. Study to understand prognoses and preferences for risks and outcomes of treatment. [see comment]. Journal of the American Geriatrics Society, 1998; 46: 1242-1250.
9. Matlock DD, Nowels CT, Bekelman DB. Patient perspectives on decision making in heart failure. Journal of Cardiac Failure, 2010; 16: 823-826.
10. Say R, Murtagh M, Thomson R. Patients' preference for involvement in medical decision making: a narrative review. [Review] [57 refs]. Patient Education and Counseling, 2006; 60: 102-114.
11. O'Connor AM, Bennett CL, Stacey D, Barry M, Col NF, Eden KB, et al.Decision aids for people facing health treatment or screening decisions. Cochrane Database of Systematic Reviews, 2009, Art. No.: CD001431. DOI: 10.1002/14651858.cd001431. pub2.
12. Degner LF, Sloan JA, Venkatesh P. The control preferences scale. Canadian Journal of Nursing Research, 1997; 29: 21-43.
13. O'Connor AM. Validation of a decisional conflict scale. Medical Decision Making, 1995; 15: 25-30.
14. Glasgow RE, McKay HG, Piette JD, Reynolds KD. The RE-AIM framework for evaluating interventions: what can it tell us about approaches to chronic illness management?Patient Education and Counseling, 2001; 44: 119-127.
15. Barry MJ, Fowler FJ Jr, Mulley AG Jr, Henderson JV Jr, Wennberg JE. Patient reactions to a program designed to facilitate patient participation in treatment decisions for benign prostatic hyperplasia. Medical Care, 1995; 33: 771-782.
16. ATLAS-ti [computer program]. Version 6.0. Berlin, Germany, 2010.
17. Thomas DR. A general inductive approach for analyzing qualitative evaluation data. American Journal of Evaluation, 2006; 27: 237-246.
18. Patton MQ. Qualitative Evaluation and Research Methods. Newbury Park, CA: Sage Publications, 1990.
19. Mitchell SL, Tetroe J, O'Connor AM. A decision aid for long-term tube feeding in cognitively impaired older persons. Journal of the American Geriatrics Society, 2001; 49: 313-316.
20. Christopher F, Deborah P, Jeannette S, Daren H. Development and use of a decision aid for communication with hospitalized patients about cardiopulmonary resuscitation preference. Patient Education and Counseling, 2010; 79: 130-133. Ref Type: Abstract.
21. Wilson KG, Aaron SD, Vandemheen KL et al. Evaluation of a decision aid for making choices about intubation and mechanical ventilation in chronic obstructive pulmonary disease. Patient Education and Counseling, 2005; 57: 88-95.
22. University of Ottawa A-Z Inventory of Decision Aids. http://decisionaid.ohri.ca/azinvent.php, accessed 1 September 2011.
23. El-Jawahri A, Podgurski LM, Eichler AF et al. Use of video to facilitate end-of-life with discussions patients with cancer: a randomized controlled trial. Journal of Clinical Oncology, 2010; 28: 305-310.
24. Volandes AE, Paasche-Orlow MK, Barry MJ et al. Video decision support tool for advance care planning in dementia: randomised controlled trial. British Medical Journal, 2009; 338: b2159.
25. Volandes AE, Ariza M, Abbo ED, Paasche-Orlow M. Overcoming educational barriers for advance care planning in Latinos with video images. Journal of Palliative Medicine, 2008; 11: 700-706.
26. O'Connor AM, Stacey D, Légaré F. Coaching to support patients in making decisions. BMJ, 2008; 336: 228-229.
27. Fairclough DL. Patient reported outcomes as endpoints in medical research. [Review] [73 refs]. Statistical Methods in Medical Research, 2004; 13: 115-138.