Closure of a human tissue biobank: Individual, institutional, and field expectations during cycles of promise and disappointment

New Genetics and Society

Volumn 34, Issue 4, 2015, Pages 417-436

  Stephens, Neil ^a   Dimond, Rebecca ^a  

^a CARDIFF UNIVERSITY   (United Kingdom)

Author keywords

biobanks; closure; expectations; field; individual; institution; promise

Indexed keywords

ARTICLE; DISAPPOINTMENT; EMOTION; EMPIRICAL RESEARCH; EXPECTATION; EXPERIENCE; FIELD WORK; HEALTH CARE FACILITY; HUMAN; HUMAN TISSUE; HUMAN TISSUE BIOBANK; INSTITUTIONALIZATION; INTERVIEW; NARRATIVE; PRIORITY JOURNAL; QUALITATIVE RESEARCH; RECYCLING; SOCIOLOGY; TISSUE CHARACTERIZATION;

EID: 84948666196     PISSN: 14636778     EISSN: 14699915     Source Type: Journal    
DOI: 10.1080/14636778.2015.1107469     Document Type: Article

References (39)

1. Bakker, S. 2010. "The Car Industry and the Blow-out of the Hydrogen Hype. " Energy Policy 38 (11): 6540-6544.
2. BioInform. 2006. "Resurrecting Ardais Biobanking Technology; Gulfstream Bets on Pure-Play Software Model. " Genomeweb. com. Accessed June 12, 2013. http://www. genomeweb. com/print/ 650373.
3. Brosnan, C., and M. Michael. 2014. "Enacting the 'Neuro' in Practice: Translational Research, Adhesion and the Promise of Porosity. " Social Studies of Science 44 (5): 680-700.
4. Brown, N., and A. Kraft. 2006. "Blood Ties: Banking the Stem Cell Promise. " Technology Analysis and Strategic Management 18 (3): 313-327.
5. Brown, N., and M. Michael. 2003. "A Sociology of Expectations: Retrospecting Prospects and Prospecting Retrospects. " Technology Analysis and Strategic Management 15 (1): 3-18.
6. Brown, N., B. Rappert, and A. Webster. 2000. Contested Futures: A Sociology of Prospective Science and Technology. Aldershot: Ashgate.
7. Cadigan, R. J., E. Juengst, A. Davis, and G. Henderson. 2014. "Underutilization of Specimens in Biobanks: An Ethical as Well as a Practical Concern" Genetics in Medicine 16 (10): 738-740.
8. Cadigan, R. J., D. Lassiter, K. Haldeman, I. Conlon, E. Reavely, and H. Henderson. 2013. "Neglected Ethical Issues in Biobank Management: Results from a U. S. Study. " Life Sciences, Society and Policy 9 (1). http://www. lsspjournal. com/content/9/1/1
9. Caulfield, T., S. Burningham, Y. Joly, Z. Master, M. Shabani, P. Borry, A. Becker, et al. 2014. "A Review of the Key Issues Associated with the Commercialization of Biobanks. " Journal of Law and the Biosciences 1 (1): 94-110.
10. Chang, A. L. 2011. "Biobank Shutdown. " The Straits Times. Accessed June 12, 2013. http://www. healthxchange. com. sg/News/Pages/Biobank-Shutdown. aspx.
11. Chiles, R. 2013. "If They Come, We Will Build It: In Vitro Meat and the Discursive Struggle Over Future Agrofood Expectations. " Agriculture and Human Values 30 (4): 511-523.
12. Coleman, R. A. 2010. "A Human Approach to Drug Development: Opportunities and Limitations. " Alternatives to Laboratory Animals 38 (Supplement 1): 21-25.
13. Dixon-Woods, M., D. Cavers, C. Jackson, B. Young, J. Forester, D. Heney, and K. Pritchard-Jones. 2008. "Tissue Samples as 'Gifts' for Research: A Qualitative Study of Families and Professionals. " Medical Law International 9 (2): 131-150.
14. Hedgecoe, A. 2004. The Politics of Personalised Medicine: Pharmacogenetics in the Clinic. Cambridge: Cambridge University Press.
15. Hedgecoe, A., and Martin, P. 2003. "The Drugs don't Work: Expectations and the Shaping of Pharmacogenetics. " Social Studies of Science 33 (3): 327-364.
16. Jasanoff, S. 2004. "The Idiom of Co-production. " In States of Knowledge: The Co-production of Science and Social Order, edited by S. Jasanoff, 1-13. London: Routledge. Jasanoff, S. 2005. Designs on Nature. Woodstock: Princeton University Press.
17. Johnson, C. Y. 2013. "UMass Stem Cell Lab to Close. " Boston. com. Accessed June 12, 2013. http:// www. boston. com/business/healthcare/articles/2012/06/28/umass-stem-cell-bank-to-close-after- state-funding-runs-out/.
18. Kaye, J. 2011. "From Single Biobanks to International Networks: Developing e-Governance. " Human Genetics 130 (3): 377-382.
19. Kitzinger, J., and C. Williams. 2005. "Forecasting Science Futures: Legitimising Hope and Calming Fears in the Embryo Stem Cell Debate. " Social Science and Medicine 61 (3): 731-740.
20. Koay, P., and R. Sharp. 2014. "Managing Expectational Language: Translational Genetic Professionals Consider the Clinical Potential of Next-generation Sequencing Technologies. " New Genetics and Society 33 (2): 126-148.
21. Lipworth, W., R. Forsyth, and I. Kerridge. 2011. "Tissue Donation to Biobanks: A Review of Sociological Studies. " Sociology of Health and Illness 33 (5): 792-811.
22. Löscha, A. 2006. "Anticipating the Futures of Nanotechnology: Visionary Images as Means of Communication Technology. " Technology Analysis & Strategic Management 18 (3-4): 393-409.
23. Mayrhofer, M., and B. Prainsack. 2009. "Being a Member of the Club: The Transnational (Self-)Governance of Networks of Biobanks. " International Journal of Risk Assessment and Management 9 (12): 64-81.
24. McCook, A. 2011. "Death of a Pathology Centre: Shelved. " Nature 476: 270-272. doi: 10. 1038/ 476270a.
25. Murtagh, M., I. Demir, J. Harris, and P. Burton. 2011. "Realizing the Promise of Population Biobanks: A New Model for Translation. " Human Genetics 130: 333-345.
26. Pickersgill, M. 2011. "'Promising' Therapies: Neuroscience, Clinical Practice, and the Treatment of Psychopathy. " Sociology of Health and Illness 33 (3): 448-464.
27. Pollock, N., and R. Williams. 2010. "The Business of Expectations: How Promissory Organizations Shape Technology and Innovation. " Social Studies of Science 40 (4): 525-548.
28. Seiffert, D. 2013. "SeraCare Sells Biostorage Business, Restructures Business Around Diagnostics. " Boston Business Journal. Accessed June 12, 2013. http://www. bizjournals. com/boston/blog/ bioflash/2013/01/seracare-sells-biostorage-business. html?page=all.
29. Stephens, N., P. Atkinson, and P. Glasner. 2008a. "The UK Stem Cell Bank: Securing the Past, Validating the Present, Protecting the Future. " Science as Culture 17 (1): 43-56.
30. Stephens, N., P. Atkinson, and P. Glasner. 2008b. "The UK Stem Cell Bank as Performative Architecture. " New Genetics and Society 27 (2): 87-99.
31. Stephens, N., P. Atkinson, and P. Glasner. 2011a. "Documenting the Doable and Doing the Documented: Bridging Strategies at the UK Stem Cell Bank. " Social Studies of Science 41 (6): 791-813.
32. Stephens, N., P. Atkinson, and P. Glasner. 2011b. "Internationaliser des standards, metter en banquet avec confiance: La mise en banquet de cellules souches s trois systemes nationaux. " Revue D'anthropologie des Connaissances 5 (2): 260-286.
33. Stephens, N., P. Atkinson, and P. Glasner. 2013. "Institutional Imaginaries of Publics in Stem Cell Banking: The Cases of the UK and Spain. " Science as Culture 22 (4): 497-515.
34. Thrift, N. 2006. "Re-inventing Invention: New Tendencies in Capitalist Commodification. " Economy and Society 35 (2): 279-306.
35. Tupasela, A., and N. Stephens. 2013. "The Boom and Bust Cycle of Biobanking-Thinking Through the Life Cycle of Biobanks. " Croatian Medical Journal 54: 501-503.
36. Tutton, R. 2007. "Banking Expectations: The Promises and Problems of Biobanks. " Personalised Medicine 4 (4): 463-469.
37. Van Lente, H. 1993. Promising Technology: The Dynamics of Expectations in Technological Developments. Amsterdam: Proefschrift.
38. Vaught, J., J. Rogers, T. Carolin, C. Compton. 2011. "Biobankonomics: Developing a Sustainable Business Model Approach for the Formation of a Human Tissue Biobank. " Journal of the National Cancer Institute Monographs 2011 (42): 24-31. doi:10. 1093/jncimonographs/lgr009.
39. Zawati, M., P. Borry, and H. Carmen Howard. 2011. "Closure of Population Biobanks and Direct-To-Consumer Genetic Testing Companies. " Human Genetics 130 (3): 425-432.