-
1
-
-
43449104732
-
Conducting a meta-ethnography of qualitative literature: lessons learnt
-
Atkins, S., Lewin, S., Smith, H., Engel, M., Fretheim, A. and Volmink, J. (2008) Conducting a meta-ethnography of qualitative literature: lessons learnt, BMC Medical Research Methodology, 8, 1, 21-31.
-
(2008)
BMC Medical Research Methodology
, vol.8
, Issue.1
, pp. 21-31
-
-
Atkins, S.1
Lewin, S.2
Smith, H.3
Engel, M.4
Fretheim, A.5
Volmink, J.6
-
2
-
-
33646134715
-
Informed consent and the shaping of British and US population-based genetic research
-
In Guston, D. and Sarawitz, D. (eds) Madison, WI: University of Wisconsin Press
-
Barr, M. (2004) Informed consent and the shaping of British and US population-based genetic research. In Guston, D. and Sarawitz, D. (eds) Shaping Science & Technology Policy: The New Generation of Research. Madison, WI: University of Wisconsin Press
-
(2004)
Shaping Science & Technology Policy: The New Generation of Research
-
-
Barr, M.1
-
4
-
-
15344347619
-
Research with stored biological samples: what do research participants want?
-
Chen, D.T., Rosenstein, D.L., Muthappan, P., Hilsenbeck, S.G., Miller, F.G., Emanuel, E.J. and Wendler, D. (2005) Research with stored biological samples: what do research participants want? Archives of Internal Medicine, 165, 6, 652-5.
-
(2005)
Archives of Internal Medicine
, vol.165
, Issue.6
, pp. 652-655
-
-
Chen, D.T.1
Rosenstein, D.L.2
Muthappan, P.3
Hilsenbeck, S.G.4
Miller, F.G.5
Emanuel, E.J.6
Wendler, D.7
-
5
-
-
85045165492
-
Human tissue and 'the public': the case of childhood cancer tumour banking
-
Dixon-Woods, M., Wilson, D., Jackson, C.J., Cavers, D. and Pritchard-Jones, K. (2008) Human tissue and 'the public': the case of childhood cancer tumour banking, BioSocieties, 3, 1, 57-80.
-
(2008)
BioSocieties
, vol.3
, Issue.1
, pp. 57-80
-
-
Dixon-Woods, M.1
Wilson, D.2
Jackson, C.J.3
Cavers, D.4
Pritchard-Jones, K.5
-
6
-
-
2442426381
-
Field of genes: the politics of science and identity in the Estonian genome project
-
Fletcher, A.L. (2004) Field of genes: the politics of science and identity in the Estonian genome project, New Genetics and Society, 23, 1, 3-14.
-
(2004)
New Genetics and Society
, vol.23
, Issue.1
, pp. 3-14
-
-
Fletcher, A.L.1
-
7
-
-
1542343842
-
The Human Tissue Bill: criminal sanctions linked to opaque legislation threaten research
-
Furness, P. (2004) The Human Tissue Bill: criminal sanctions linked to opaque legislation threaten research, British Medical Journal, 328, 7439, 533-4.
-
(2004)
British Medical Journal
, vol.328
, Issue.7439
, pp. 533-534
-
-
Furness, P.1
-
9
-
-
46049085015
-
Generation Scotland: consulting publics and specialists at an early stage in a genetic database's development
-
Haddow, G., Cunningham-Burley, S., Bruce, A. and Parry, S. (2008) Generation Scotland: consulting publics and specialists at an early stage in a genetic database's development, Critical Public Health, 18, 2, 139-49.
-
(2008)
Critical Public Health
, vol.18
, Issue.2
, pp. 139-149
-
-
Haddow, G.1
Cunningham-Burley, S.2
Bruce, A.3
Parry, S.4
-
10
-
-
33344475590
-
Should donors be allowed to give broad consent to future biobank research?
-
Hansson, M.G., Dillner, J., Bartram, C.R., Carlson, J.A. and Helgesson, G. (2006) Should donors be allowed to give broad consent to future biobank research? Lancet Oncology, 7, 3, 266-9.
-
(2006)
Lancet Oncology
, vol.7
, Issue.3
, pp. 266-269
-
-
Hansson, M.G.1
Dillner, J.2
Bartram, C.R.3
Carlson, J.A.4
Helgesson, G.5
-
11
-
-
85044891113
-
Person, patent and property: a critique of the commodification hypothesis
-
Hoeyer, K. (2007) Person, patent and property: a critique of the commodification hypothesis, BioSocieties, 2, 3, 327-48.
-
(2007)
BioSocieties
, vol.2
, Issue.3
, pp. 327-348
-
-
Hoeyer, K.1
-
12
-
-
33646155336
-
Motivating donors to genetic research? Anthropological reasons to rethink the role of informed consent
-
Hoeyer, K. and Lynöe, N. (2006) Motivating donors to genetic research? Anthropological reasons to rethink the role of informed consent, Medicine, Health Care and Philosophy, 9, 1, 13-23.
-
(2006)
Medicine, Health Care and Philosophy
, vol.9
, Issue.1
, pp. 13-23
-
-
Hoeyer, K.1
Lynöe, N.2
-
13
-
-
0042629790
-
Why surgical patients do not donate tissue for commercial research: review of records
-
Jack, A.L. and Womack, C. (2003) Why surgical patients do not donate tissue for commercial research: review of records, British Medical Journal, 327, 7409, 262.
-
(2003)
British Medical Journal
, vol.327
, Issue.7409
, pp. 262
-
-
Jack, A.L.1
Womack, C.2
-
14
-
-
38949115732
-
Empirical data about women's attitudes toward a biobank focused on pregnancy outcomes
-
Joseph, J.W., Neidich, A.B., Ober, C. and Ross, L.F. (2008) Empirical data about women's attitudes toward a biobank focused on pregnancy outcomes, American Journal of Medical Genetics. Part A, 146, 3, 305-11.
-
(2008)
American Journal of Medical Genetics. Part A
, vol.146
, Issue.3
, pp. 305-311
-
-
Joseph, J.W.1
Neidich, A.B.2
Ober, C.3
Ross, L.F.4
-
15
-
-
33646164690
-
Views of female breast cancer patients who donated biologic samples regarding storage and use of samples for genetic research
-
Kaphingst, K., Janoff, J., Harris, L. and Emmons, K. (2006) Views of female breast cancer patients who donated biologic samples regarding storage and use of samples for genetic research, Clinical Genetics, 69, 5, 393-8.
-
(2006)
Clinical Genetics
, vol.69
, Issue.5
, pp. 393-398
-
-
Kaphingst, K.1
Janoff, J.2
Harris, L.3
Emmons, K.4
-
16
-
-
84908973845
-
Informed consent: the case of genetic research in population collections
-
In Tutton, R. and Corrigan, O. (eds) London: Routledge.
-
Kaye, J. (2004) Informed consent: the case of genetic research in population collections. In Tutton, R. and Corrigan, O. (eds) Genetic Databases: Socio-ethical Issues in the Collection and Use of DNA. London: Routledge.
-
(2004)
Genetic Databases: Socio-ethical Issues in the Collection and Use of DNA
-
-
Kaye, J.1
-
17
-
-
33748207767
-
Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think?
-
Kettis-Lindblad, A., Ring, L., Viberth, E. and Hansson, M.G. (2006) Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think? The European Journal of Public Health, 16, 4, 433-40.
-
(2006)
The European Journal of Public Health
, vol.16
, Issue.4
, pp. 433-440
-
-
Kettis-Lindblad, A.1
Ring, L.2
Viberth, E.3
Hansson, M.G.4
-
18
-
-
70449730610
-
The role of empirical research in bioethics
-
Kon, A.A. (2009) The role of empirical research in bioethics, The American Journal of Bioethics, 9, 6, 59-65.
-
(2009)
The American Journal of Bioethics
, vol.9
, Issue.6
, pp. 59-65
-
-
Kon, A.A.1
-
19
-
-
84865943891
-
Dangerous intersections: new proposals to protect genetic privacy may collide with the public interest in fostering medical research
-
Korn, D. (1996) Dangerous intersections: new proposals to protect genetic privacy may collide with the public interest in fostering medical research, Issues in Science and Technology, 13, 1, 55-62.
-
(1996)
Issues in Science and Technology
, vol.13
, Issue.1
, pp. 55-62
-
-
Korn, D.1
-
20
-
-
50049103675
-
Qualitative research - an introduction to reading and appraising qualitative research
-
Kuper, A., Reeves, S. and Levinson, W. (2008) Qualitative research - an introduction to reading and appraising qualitative research, British Medical Journal, 337, 7666, 404-7.
-
(2008)
British Medical Journal
, vol.337
, Issue.7666
, pp. 404-407
-
-
Kuper, A.1
Reeves, S.2
Levinson, W.3
-
21
-
-
33344459501
-
Consent in crisis: the need to reconceptualize consent to tissue banking research
-
Lipworth, W., Ankeny, R. and Kerridge, I. (2006) Consent in crisis: the need to reconceptualize consent to tissue banking research, Internal Medicine Journal, 36, 2, 124-8.
-
(2006)
Internal Medicine Journal
, vol.36
, Issue.2
, pp. 124-128
-
-
Lipworth, W.1
Ankeny, R.2
Kerridge, I.3
-
22
-
-
0003899640
-
-
2nd Edition. London: Sage Publications.
-
Mason, J. (2002) Qualitative Researching, 2nd Edition. London: Sage Publications.
-
(2002)
Qualitative Researching
-
-
Mason, J.1
-
23
-
-
0002281578
-
A category of the human mind: the notion of person, the notion of self
-
1938]) In Carrithers, M., Collins, A. and Lukes, S. (eds) Cambridge: Cambridge University Press.
-
Mauss, M. (1985 [1938]) A category of the human mind: the notion of person, the notion of self. In Carrithers, M., Collins, A. and Lukes, S. (eds) The Category of the Human Person: Anthropology, Philosophy, History. Cambridge: Cambridge University Press.
-
(1985)
The Category of the Human Person: Anthropology, Philosophy, History
-
-
Mauss, M.1
-
25
-
-
0041805504
-
Consent for genetic research in a general population: the NHANES experience
-
McQuillan, G.M., Porter, K.S., Agelli, M. and Kington, R. (2003) Consent for genetic research in a general population: the NHANES experience, Genetics in Medicine, 5, 1, 35-42.
-
(2003)
Genetics in Medicine
, vol.5
, Issue.1
, pp. 35-42
-
-
McQuillan, G.M.1
Porter, K.S.2
Agelli, M.3
Kington, R.4
-
26
-
-
38949138577
-
Empirical data about women's attitudes towards a hypothetical pediatric biobank
-
Neidich, A.B., Joseph, J.W., Ober, C. and Ross, L.F. (2008) Empirical data about women's attitudes towards a hypothetical pediatric biobank, American Journal of Medical Genetics. Part A, 146, 3, 297-304.
-
(2008)
American Journal of Medical Genetics. Part A
, vol.146
, Issue.3
, pp. 297-304
-
-
Neidich, A.B.1
Joseph, J.W.2
Ober, C.3
Ross, L.F.4
-
27
-
-
33646163023
-
Human tissue samples and ethics - attitudes of the general public in Sweden to biobank research
-
Nilstun, T. and Hermerén, G. (2006) Human tissue samples and ethics - attitudes of the general public in Sweden to biobank research, Medicine, Health Care and Philosophy, 9, 1, 81-6.
-
(2006)
Medicine, Health Care and Philosophy
, vol.9
, Issue.1
, pp. 81-86
-
-
Nilstun, T.1
Hermerén, G.2
-
28
-
-
85044912449
-
The political economy of hope: patients' organizations, science and biovalue
-
Novas, C. (2006) The political economy of hope: patients' organizations, science and biovalue, BioSocieties, 1, 3, 289-306.
-
(2006)
BioSocieties
, vol.1
, Issue.3
, pp. 289-306
-
-
Novas, C.1
-
30
-
-
0038574236
-
-
People Science and Policy Ltd London: Medical Research Council and Wellcome Trust.
-
People Science and Policy Ltd (2002) Biobank UK: A Question of Trust. London: Medical Research Council and Wellcome Trust.
-
(2002)
Biobank UK: A Question of Trust
-
-
-
31
-
-
79951840172
-
The ethics of expectations: biobanks and the promise of personalised medicine
-
Petersen, A. (2009) The ethics of expectations: biobanks and the promise of personalised medicine, Monash Bioethics Review, 28, 1, 1-12.
-
(2009)
Monash Bioethics Review
, vol.28
, Issue.1
, pp. 1-12
-
-
Petersen, A.1
-
32
-
-
0004283428
-
-
Oxford: Oxford University Press.
-
Power, M. (1997) The Audit Society. Oxford: Oxford University Press.
-
(1997)
The Audit Society
-
-
Power, M.1
-
36
-
-
32044451167
-
Biological citizenship
-
In Ong, A. and Collier, S. (eds) Malden, MA: Blackwell.
-
Rose, N. and Novas, C. (2005) Biological citizenship. In Ong, A. and Collier, S. (eds) Global Assemblages: Technology, Politics and Ethics as Anthropological Problems. Malden, MA: Blackwell.
-
(2005)
Global Assemblages: Technology, Politics and Ethics as Anthropological Problems
-
-
Rose, N.1
Novas, C.2
-
38
-
-
0037151917
-
No consent should be needed for using leftover body material for scientific purposes
-
Savulescu, J. (2002) No consent should be needed for using leftover body material for scientific purposes, British Medical Journal, 325, 7365, 648-51.
-
(2002)
British Medical Journal
, vol.325
, Issue.7365
, pp. 648-651
-
-
Savulescu, J.1
-
39
-
-
84992806404
-
Bodies for sale - whole or in parts
-
Scheper-Hughes, N. (2001) Bodies for sale - whole or in parts, Body & Society, 7, 1, 1-8.
-
(2001)
Body & Society
, vol.7
, Issue.1
, pp. 1-8
-
-
Scheper-Hughes, N.1
-
42
-
-
84970642045
-
Institutional ecology, 'translations' and boundary objects: amateurs and professionals in Berkeley's museum of vertebrate zoology 1907-39
-
Star, S. and Griesemer, J. (1988) Institutional ecology, 'translations' and boundary objects: amateurs and professionals in Berkeley's museum of vertebrate zoology 1907-39, Social Studies of Science, 19, 3, 387-420.
-
(1988)
Social Studies of Science
, vol.19
, Issue.3
, pp. 387-420
-
-
Star, S.1
Griesemer, J.2
-
43
-
-
0037151930
-
Informed consent for genetic research on blood stored for more than a decade: a population based study
-
Stegmayr, B. and Asplund, K. (2002) Informed consent for genetic research on blood stored for more than a decade: a population based study, British Medical Journal, 325, 7365, 634-5.
-
(2002)
British Medical Journal
, vol.325
, Issue.7365
, pp. 634-635
-
-
Stegmayr, B.1
Asplund, K.2
-
44
-
-
47749126232
-
Methods for the thematic synthesis of qualitative research in systematic reviews
-
Thomas, J. and Harden, A. (2008) Methods for the thematic synthesis of qualitative research in systematic reviews, BMC Medical Research Methodology, 8, 1, 45.
-
(2008)
BMC Medical Research Methodology
, vol.8
, Issue.1
, pp. 45
-
-
Thomas, J.1
Harden, A.2
-
46
-
-
67649827909
-
Research understanding, attitude and awareness towards biobanking: a survey among Italian twin participants to a genetic epidemiological study
-
Toccaceli, V., Fagnani, C., Nisticò, L., D'Ippolito, C., et al. (2009) Research understanding, attitude and awareness towards biobanking: a survey among Italian twin participants to a genetic epidemiological study, BMC Medical Ethics, 10, 1, 4.
-
(2009)
BMC Medical Ethics
, vol.10
, Issue.1
, pp. 4
-
-
Toccaceli, V.1
Fagnani, C.2
Nisticò, L.3
D'Ippolito, C.4
-
47
-
-
58849142053
-
Public attitudes to the storage of blood left over from routine general practice tests and its use in research
-
Treweek, S., Doney, A. and Leiman, D. (2009) Public attitudes to the storage of blood left over from routine general practice tests and its use in research, Journal of Health Services Research & Policy, 14, 1, 13-19.
-
(2009)
Journal of Health Services Research & Policy
, vol.14
, Issue.1
, pp. 13-19
-
-
Treweek, S.1
Doney, A.2
Leiman, D.3
-
48
-
-
84909082887
-
Person, property and gift: exploring languages of tissue donation to biomedical research
-
In Tutton, R. and Corrigan, O. (eds) London: Routledge.
-
Tutton, R. (2004) Person, property and gift: exploring languages of tissue donation to biomedical research. In Tutton, R. and Corrigan, O. (eds) Genetic Databases: Socio-ethical Issues in the Collection and Use of DNA. London: Routledge.
-
(2004)
Genetic Databases: Socio-ethical Issues in the Collection and Use of DNA
-
-
Tutton, R.1
-
49
-
-
0037151917
-
No consent should be needed for using leftover body material for scientific purposes
-
van Diest, P.J. and Savulescu, J. (2002) No consent should be needed for using leftover body material for scientific purposes, British Medical Journal, 325, 7365, 648-51.
-
(2002)
British Medical Journal
, vol.325
, Issue.7365
, pp. 648-651
-
-
van Diest, P.J.1
Savulescu, J.2
-
50
-
-
33646734115
-
-
Durham, NC: Duke University Press.
-
Waldby, C. and Mitchell, R. (2006) Tissue Economies: Blood, Organs, and Cell Lines in Late Capitalism. Durham, NC: Duke University Press.
-
(2006)
Tissue Economies: Blood, Organs, and Cell Lines in Late Capitalism
-
-
Waldby, C.1
Mitchell, R.2
-
51
-
-
84909439795
-
'Public consent' or 'scientific citizenship'? What counts as public participation in population-based DNA collections?
-
In Tutton, R. and Corrigan, O. (eds) London: Routledge.
-
Weldon, S. (2004) 'Public consent' or 'scientific citizenship'? What counts as public participation in population-based DNA collections? In Tutton, R. and Corrigan, O. (eds) Genetic Databases: Socio-ethical Issues in the Collection and Use of DNA. London: Routledge.
-
(2004)
Genetic Databases: Socio-ethical Issues in the Collection and Use of DNA
-
-
Weldon, S.1
-
52
-
-
0002935111
-
The triumph of autonomy in American bioethics: a sociological view
-
In DeVries, R. and Subedi, J. (eds) Englewood Cliffs, NJ: Prentice Hall.
-
Wolpe, P. (1998) The triumph of autonomy in American bioethics: a sociological view. In DeVries, R. and Subedi, J. (eds) Bioethics and Society: Constructing the Ethical Enterprise. Englewood Cliffs, NJ: Prentice Hall.
-
(1998)
Bioethics and Society: Constructing the Ethical Enterprise
-
-
Wolpe, P.1
|