-
1
-
-
84955257931
-
-
The Association of Learned & Professional Society Publishers
-
The Association of Learned & Professional Society Publishers. (2014). ALPSP & STM believe data should be freely available. Retrieved from http://www.alpsp.org/Ebusiness/AboutALPSP/ALPSPStatements/Statementdetails.aspx?ID=55
-
(2014)
ALPSP & STM Believe Data Should Be Freely Available
-
-
-
2
-
-
84955292030
-
Views of ethical best pactices in sharing individual-level data from medical and public health research: A systematic scoping review
-
Bull S., Roberts N., Parker M., (2015). Views of ethical best pactices in sharing individual-level data from medical and public health research: A systematic scoping review. Journal of Empirical Research on Human Research Ethics, 10 (3), 225-238. doi: 10.1177/1556264615594767
-
(2015)
Journal of Empirical Research on Human Research Ethics
, vol.10
, Issue.3
, pp. 225-238
-
-
Bull, S.1
Roberts, N.2
Parker, M.3
-
3
-
-
84947766029
-
Perceived benefits, harms and views about how to share data responsibly: A qualitative study of experiences with and attitudes towards data-sharing among research staff and community representatives in Thailand
-
Cheah P., Tangseefa D., Somsaman A., Chunsuttiwat T., Nosten F., Day N., Parker M., (2015). Perceived benefits, harms and views about how to share data responsibly: A qualitative study of experiences with and attitudes towards data-sharing among research staff and community representatives in Thailand. Journal of Empirical Research on Human Research Ethics, 10 (3), 278-289. doi: 10.1177/1556264615592388
-
(2015)
Journal of Empirical Research on Human Research Ethics
, vol.10
, Issue.3
, pp. 278-289
-
-
Cheah, P.1
Tangseefa, D.2
Somsaman, A.3
Chunsuttiwat, T.4
Nosten, F.5
Day, N.6
Parker, M.7
-
5
-
-
84947811504
-
Developing ethical practices for public health research data sharing in South Africa: The views and experiences from a diverse sample of research stakeholders
-
Denny S. G., Silaigwana B., Wassenaar D., Bull S., Parker M., (2015). Developing ethical practices for public health research data sharing in South Africa: The views and experiences from a diverse sample of research stakeholders. Journal of Empirical Research on Human Research Ethics, 10 (3), 290-301. doi: 10.1177/1556264615592386
-
(2015)
Journal of Empirical Research on Human Research Ethics
, vol.10
, Issue.3
, pp. 290-301
-
-
Denny, S.G.1
Silaigwana, B.2
Wassenaar, D.3
Bull, S.4
Parker, M.5
-
6
-
-
33645540160
-
The health-care practices of Vietnamese-Canadian women: Cultural influences on breast and cervical cancer screening
-
Donnelly T. T., (2006). The health-care practices of Vietnamese-Canadian women: Cultural influences on breast and cervical cancer screening. Canadian Journal of Nursing Research, 38 (1), 82-101.
-
(2006)
Canadian Journal of Nursing Research
, vol.38
, Issue.1
, pp. 82-101
-
-
Donnelly, T.T.1
-
7
-
-
85024928314
-
-
European Federation of Pharmaceutical Industries and Associations & The Pharmaceutical Research and Manufacturers of America
-
European Federation of Pharmaceutical Industries and Associations & The Pharmaceutical Research and Manufacturers of America. (2014). Joint principles for responsible clinical trial data sharing. Retrieved from http://www.phrma.org/phrmapedia/responsible-clinical-trial-data-sharing
-
(2014)
Joint Principles for Responsible Clinical Trial Data Sharing
-
-
-
8
-
-
84869835629
-
The new BMJ policy on sharing data from drug and device trials
-
Godlee T., Groves T., (2012). The new BMJ policy on sharing data from drug and device trials. British Medical Journal, 345, e7888. doi: 10.1136/bmj.e7888
-
(2012)
British Medical Journal
, vol.345
, pp. e7888
-
-
Godlee, T.1
Groves, T.2
-
9
-
-
84856026510
-
Why we need easy access to all data from all clinical trials and how to accomplish it
-
Gøtzsche P. C., (2011). Why we need easy access to all data from all clinical trials and how to accomplish it. Trials, 12, 249. doi: 10.1186/1745-6215-12-249
-
(2011)
Trials
, vol.12
, pp. 249
-
-
Gøtzsche, P.C.1
-
10
-
-
84955283260
-
-
Ha Noi School of Public Health. Ha Noi, Vietnam: Ha Noi School of Public Health
-
Ha Noi School of Public Health. (2014). PhD of public health degree. Ha Noi, Vietnam: Ha Noi School of Public Health.
-
(2014)
PhD of Public Health Degree
-
-
-
11
-
-
84947725453
-
Sweat, skepticism and uncharted territory: A qualitative study of opinions on data sharing among public health researchers and research participants in Mumbai, India
-
Hate K., Meherally S., Shah More N., Jayaraman A., Bull S., Parker M., Osrin D., (2015). Sweat, skepticism and uncharted territory: A qualitative study of opinions on data sharing among public health researchers and research participants in Mumbai, India. Journal of Empirical Research on Human Research Ethics, 10 (3), 239-250. doi: 10.1177/1556264615592383
-
(2015)
Journal of Empirical Research on Human Research Ethics
, vol.10
, Issue.3
, pp. 239-250
-
-
Hate, K.1
Meherally, S.2
Shah More, N.3
Jayaraman, A.4
Bull, S.5
Parker, M.6
Osrin, D.7
-
12
-
-
84955263129
-
-
Ho Chi Minh City Department of Health. (4000-SYT-NVY)
-
Ho Chi Minh City Department of Health. (2011). Official instruction for management of scientific research (No. 4000-SYT-NVY). Retrieved from http://thuvienphapluat.vn/archive/Huong-dan-4000-SYT-NVY-huong-dan-quan-ly-hoat-dong-nghien-cuu-khoa-hoc-vb135174.aspx
-
(2011)
Official Instruction for Management of Scientific Research
-
-
-
14
-
-
84955241684
-
-
Human Genome Organisation
-
Human Genome Organisation. (1997). Report of the International Strategy Meeting on Human Genome Sequencing. Retrieved from http://dukespace.lib.duke.edu/dspace/bitstream/handle/10161/7733/1997%20Bermuda%20meeting%20report%20%26%20revised%20delegates%20list.pdf?sequence=1
-
(1997)
Report of the International Strategy Meeting on Human Genome Sequencing
-
-
-
15
-
-
84955289440
-
A call for action to strengthen health research capacity in low and middle income Countries
-
The Interacademy Medical Panel. (2013, 24). A call for action to strengthen health research capacity in low and middle income Countries. Retrieved from http://www.iamp-online.org/call-action-strengthen-health-research-capacity-low-and-middle-income-countries
-
(2013)
The Interacademy Medical Panel
, Issue.24
-
-
-
16
-
-
85044389225
-
Defining the role of authors and contributors
-
International Committee of Medical Journal Editors. (2013). Defining the role of authors and contributors. Retrieved from http://www.icmje.org/recommendations/browse/roles-and-responsibilities/defining-the-role-of-authors-and-contributors.html
-
(2013)
International Committee of Medical Journal Editors
-
-
-
17
-
-
84947812882
-
Involving research stakeholders in developing policy on sharing public health research data in Kenya: Views on fair process for informed consent, access oversight and community engagement
-
(2015). doi: 10.1177/1556264615592385
-
Jao I., Kombe F., Mwalukore S., Bull S., Parker M., Kamuya D., Molyneux S., Marsh V., (2015). Involving research stakeholders in developing policy on sharing public health research data in Kenya: Views on fair process for informed consent, access oversight and community engagement. Journal of Empirical Research on Human Research Ethics, 10 (3), 264-277. doi: 10.1177/1556264615592385
-
Journal of Empirical Research on Human Research Ethics
, vol.10
, Issue.3
, pp. 264-277
-
-
Jao, I.1
Kombe, F.2
Mwalukore, S.3
Bull, S.4
Parker, M.5
Kamuya, D.6
Molyneux, S.7
Marsh, V.8
-
18
-
-
80055055854
-
Ethics in practice: The state of the debate on promoting the social value of global health research in resource poor settings particularly Africa
-
Lairumbi G. M., Parker M., Fitzpatrick R., English M. C., (2011). Ethics in practice: The state of the debate on promoting the social value of global health research in resource poor settings particularly Africa. BMC Medical Ethics, 12, 22. doi: 10.1186/1472-6939-12-22
-
(2011)
BMC Medical Ethics
, vol.12
, pp. 22
-
-
Lairumbi, G.M.1
Parker, M.2
Fitzpatrick, R.3
English, M.C.4
-
19
-
-
77955660006
-
Public and biobank participant attitudes toward genetic research participation and data sharing
-
Lemke A. A., Wolf W. A., Hebert-Beirne J., Smitha M. E., (2010). Public and biobank participant attitudes toward genetic research participation and data sharing. Public Health Genomics, 13, 368-377. doi: 10.1159/000276767
-
(2010)
Public Health Genomics
, vol.13
, pp. 368-377
-
-
Lemke, A.A.1
Wolf, W.A.2
Hebert-Beirne, J.3
Smitha, M.E.4
-
20
-
-
84870402226
-
Systematic archiving and access to health research data: Rationale, current status and way forward
-
Manju R., Buckley B. S., (2012). Systematic archiving and access to health research data: Rationale, current status and way forward. Bulletin of the World Health Organization, 90, 932-939. doi: 10.2471/BLT.12.105908
-
(2012)
Bulletin of the World Health Organization
, vol.90
, pp. 932-939
-
-
Manju, R.1
Buckley, B.S.2
-
21
-
-
53149142519
-
Informed consent in the genomics era
-
Mascalzoni D., Hicks A., Pramstaller P., Wjst M., (2008). Informed consent in the genomics era. PLoS Medicine, 5 (9), e192. doi: 10.1371/journal.pmed.0050192
-
(2008)
PLoS Medicine
, vol.5
, Issue.9
, pp. e192
-
-
Mascalzoni, D.1
Hicks, A.2
Pramstaller, P.3
Wjst, M.4
-
22
-
-
84886256948
-
Preparing for responsible sharing of clinical trial data
-
Mello M. M., Francer J. K., Wilenzick M., (2013). Preparing for responsible sharing of clinical trial data. The New England Journal of Medicine, 369, 1651-1658. doi: 10.1056/NEJMhle1309073
-
(2013)
The New England Journal of Medicine
, vol.369
, pp. 1651-1658
-
-
Mello, M.M.1
Francer, J.K.2
Wilenzick, M.3
-
23
-
-
72249092345
-
Public perspectives on informed consent for biobanking
-
Murphy J., Scott J., Kaufman D., Geller G., LeRoy L., Hudson K., (2009). Public perspectives on informed consent for biobanking. American Journal of Public Health, 99, 2128-2134. doi: 10.2105/AJPH.2008.157099
-
(2009)
American Journal of Public Health
, vol.99
, pp. 2128-2134
-
-
Murphy, J.1
Scott, J.2
Kaufman, D.3
Geller, G.4
LeRoy, L.5
Hudson, K.6
-
25
-
-
84955302769
-
Policies: Availability of data, material and methods
-
Nature Journal. (2015). Policies: Availability of data, material and methods. Retrieved from http://www.nature.com/authors/policies/availability.html
-
(2015)
Nature Journal
-
-
-
26
-
-
84955313927
-
Sharing public health research data: Towards the development of ethical data-sharing practice in low- and middle-income settings
-
Parker M., Bull S., (2015). Sharing public health research data: Towards the development of ethical data-sharing practice in low- and middle-income settings. Journal of Empirical Research on Human Research Ethics, 10 (3), 217-224. doi: 10.1177/1556264615593494
-
(2015)
Journal of Empirical Research on Human Research Ethics
, vol.10
, Issue.3
, pp. 217-224
-
-
Parker, M.1
Bull, S.2
-
27
-
-
77953192506
-
Sharing health data: Good intentions are not enough
-
Pisani E., AbouZahr C., (2010). Sharing health data: good intentions are not enough. Bulletin of World Health Organization, 88, 462-466. doi: 10.2471/BLT.09.074393
-
(2010)
Bulletin of World Health Organization
, vol.88
, pp. 462-466
-
-
Pisani, E.1
AbouZahr, C.2
-
29
-
-
56749166123
-
Reporting bias in drug trials submitted to the Food and Drug Administration: Review of publication and presentation
-
Rising K., Bacchetti P., Bero L., (2008). Reporting bias in drug trials submitted to the Food and Drug Administration: Review of publication and presentation. PLoS Medicine, 5, e1000017. doi: 10.1371/journal.pmed.0050217
-
(2008)
PLoS Medicine
, vol.5
, pp. e1000017
-
-
Rising, K.1
Bacchetti, P.2
Bero, L.3
-
30
-
-
84857034424
-
Why shared data should not be acknowledged on the author byline
-
Rohlfing T., Poline J.-B., (2012). Why shared data should not be acknowledged on the author byline. NeuroImage, 59, 4189-4195. doi: 10.1016/j.neuroimage.2011.09.080
-
(2012)
NeuroImage
, vol.59
, pp. 4189-4195
-
-
Rohlfing, T.1
Poline, J.-B.2
-
33
-
-
79952456257
-
Qualitative data analysis: The framework approach
-
Smith J., Firth J., (2011). Qualitative data analysis: The framework approach. Nurse Researcher, 18 (2), 52-62.
-
(2011)
Nurse Researcher
, vol.18
, Issue.2
, pp. 52-62
-
-
Smith, J.1
Firth, J.2
-
34
-
-
33748660746
-
Patient safety requires a new way to publish clinical trials
-
e6. doi: 10.1371/journal.pctr.0010006
-
Smith R., Roberts I., (2006). Patient safety requires a new way to publish clinical trials. PLoS Clinical Trials, 1 (1), e6. doi: 10.1371/journal.pctr.0010006
-
(2006)
PLoS Clinical Trials
, vol.1
, Issue.1
-
-
Smith, R.1
Roberts, I.2
-
35
-
-
85047655341
-
Sharing health data: Developing country perspectives
-
Tangcharoensathien V., Boonperm J., Jongudomsuk P., (2010). Sharing health data: Developing country perspectives. Bulletin of World Health Organization, 88, 468-469. doi: 10.2471/BLT.10.079129
-
(2010)
Bulletin of World Health Organization
, vol.88
, pp. 468-469
-
-
Tangcharoensathien, V.1
Boonperm, J.2
Jongudomsuk, P.3
-
36
-
-
34548184227
-
A general inductive approach for analyzing qualitative evaluation data
-
Thomas D. R., (2006). A general inductive approach for analyzing qualitative evaluation data. American Journal of Evaluation, 27, 237-246. doi: 10.1177/1098214005283748
-
(2006)
American Journal of Evaluation
, vol.27
, pp. 237-246
-
-
Thomas, D.R.1
-
37
-
-
77955662068
-
Genomic research and wide data sharing: Views of prospective participants
-
Trinidad S. B., Fullerton S. M., Bares J. M., Jarvik G. P., Larson E. B., Burke W., (2010). Genomic research and wide data sharing: Views of prospective participants. Genetic Medicine Journal, 12, 486-495. doi: 10.1097/GIM.0b013e3181e38f9e
-
(2010)
Genetic Medicine Journal
, vol.12
, pp. 486-495
-
-
Trinidad, S.B.1
Fullerton, S.M.2
Bares, J.M.3
Jarvik, G.P.4
Larson, E.B.5
Burke, W.6
-
38
-
-
33745699139
-
Whose data set is it anyway? Sharing raw data from randomized trials
-
Vickers A. J., (2006). Whose data set is it anyway? Sharing raw data from randomized trials. Trials, 7, 15. doi: 10.1186/1745-6215-7-15
-
(2006)
Trials
, vol.7
, pp. 15
-
-
Vickers, A.J.1
-
40
-
-
84882012690
-
-
Vietnam Government. (50/2005/QH11)
-
Vietnam Government. (2005). Law on intellectual property rights (No. 50/2005/QH11). Retrieved from http://www.chinhphu.vn/portal/page/portal/chinhphu/hethongvanban?class-id=1&mode=detail&document-id=30015
-
(2005)
Law on Intellectual Property Rights
-
-
-
41
-
-
84955279768
-
-
Vietnam Government. (03/2007/QH12)
-
Vietnam Government. (2007). Law on prevention and control of infectious diseases (No. 03/2007/QH12). Retrieved from http://www.chinhphu.vn/portal/page/portal/chinhphu/hethongvanban?class-id=1&;-page=1&mode=detail&document-id=51257
-
(2007)
Law on Prevention and Control of Infectious Diseases
-
-
-
42
-
-
84955275020
-
-
Vietnam Ministry of Health. (14/2005/QD-BYT)
-
Vietnam Ministry of Health. (2005). Decision on protection of confidential information in the government health care sector (No. 14/2005/QD-BYT). Retrieved from http://thuvienphapluat.vn/archive/Quyet-dinh/Quyet-dinh-14-2005-QD-BYT-Quy-che-bao-ve-bi-mat-nha-nuoc-trong-nganh-y-te-vb53325t17.aspx
-
(2005)
Decision on Protection of Confidential Information in the Government Health Care Sector
-
-
-
44
-
-
84955269534
-
-
Vietnam Ministry of Health. (48/2010/TT-BYT)
-
Vietnam Ministry of Health. (2010). Regulation on information and reports on epidemic contagious diseases (No. 48/2010/TT-BYT). Retrieved from http://vanban.chinhphu.vn/portal/page/portal/chinhphu/hethongvanban?class-id=1&;mode=detail&document-id=99852
-
(2010)
Regulation on Information and Reports on Epidemic Contagious Diseases
-
-
-
45
-
-
84955265561
-
-
Vietnam Ministry of Health. (4445/QD-BYT)
-
Vietnam Ministry of Health. (2013). Regulation on speaking and providing information to the press (No. 4445/QD-BYT). Retrieved from http://www.vaac.gov.vn/Desktop.aspx/Van-ban-phap-quy/Bo-Y-te/999D588C8B3D433D8E47C71643033FD1/
-
(2013)
Regulation on Speaking and Providing Information to the Press
-
-
-
46
-
-
79952013247
-
-
Vietnam Ministry of Health & General Statistics Office of Vietnam. (ICPSR24387-v1). Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor]. doi: 10.3886/ICPSR24387.v1
-
Vietnam Ministry of Health & General Statistics Office of Vietnam. (2003). Survey and Assessment of Vietnamese Youth (SAVY) (ICPSR24387-v1). Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor]. doi: 10.3886/ICPSR24387.v1
-
(2003)
Survey and Assessment of Vietnamese Youth (SAVY)
-
-
-
47
-
-
79951549353
-
Sharing research data to improve public health
-
Walport M., Brest P., (2011). Sharing research data to improve public health. Lancet Journal 377, 537-539. doi: 10.1016/S0140-6736(10)62234-9
-
(2011)
Lancet Journal
, vol.377
, pp. 537-539
-
-
Walport, M.1
Brest, P.2
-
49
-
-
79952592086
-
-
Wellcome Trust
-
Wellcome Trust. (2010). Policy on data management and sharing. Retrieved from http://www.wellcome.ac.uk/about-us/policy/policy-and-position-statements/wtx035043.htm
-
(2010)
Policy on Data Management and Sharing
-
-
-
50
-
-
84955320532
-
International Presence of Research in Asia - Newsletter of International Cooperation Initiative, pp
-
Wertheim H., Barton S., Merson L., Thwaites G., (2014,). The Oxford University Clinical Research Unit in Vietnam: Past, present, and future. International Presence of Research in Asia-Newsletter of International Cooperation Initiative, pp. 33-35. Retrieved from http://www.kooperation-international.de/fileadmin/public/downloads/itb/info-14-07-31-SAG.pdf
-
(2014)
The Oxford University Clinical Research Unit in Vietnam: Past, Present, and Future
, pp. 33-35
-
-
Wertheim, H.1
Barton, S.2
Merson, L.3
Thwaites, G.4
|