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Volumn 35, Issue 8, 2015, Pages 831-837

Helping families make difficult choices: Creation and implementation of a decision aid for neuromuscular scoliosis surgery

Author keywords

Decision aid; Neuromuscular scoliosis; Shared decision making

Indexed keywords

ADOLESCENT; ARTICLE; CHILD; CLINICAL ARTICLE; FAMILY ATTITUDE; FAMILY CONFLICT; FAMILY DECISION MAKING; FEMALE; HUMAN; MALE; NEUROSURGERY; ORTHOPEDIC SURGERY; PATIENT SATISFACTION; PRIORITY JOURNAL; SATISFACTION; SCOLIOSIS; ATTITUDE TO HEALTH; CONSUMER; DECISION MAKING; DECISION SUPPORT SYSTEM; HUMAN RELATION; PHYSICIAN ATTITUDE; PROCEDURES; PROSPECTIVE STUDY; PSYCHOLOGY; RISK;

EID: 84947067259     PISSN: 02716798     EISSN: 15392570     Source Type: Journal    
DOI: None     Document Type: Article
Times cited : (20)

References (28)
  • 1
    • 69349105352 scopus 로고    scopus 로고
    • Decision AIDS for people facing health treatment or screening decisions
    • Stacey D, Bennett CL, Barry ML, et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev. 2011;10:10.
    • (2011) Cochrane Database Syst Rev. , vol.10 , pp. 10
    • Stacey, D.1    Bennett, C.L.2    Barry, M.L.3
  • 3
    • 0031023489 scopus 로고    scopus 로고
    • Shared decision-making in the medical encounter: What does it mean? (or it takes at least two to tango)
    • Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Soc Sci Med. 1997;44:681-692.
    • (1997) Soc Sci Med. , vol.44 , pp. 681-692
    • Charles, C.1    Gafni, A.2    Whelan, T.3
  • 4
    • 77956311027 scopus 로고    scopus 로고
    • Bridging the gap between mothers and medicine: "new insights" from the NIH Consensus Conference on VBAC
    • Shorten A. Bridging the gap between mothers and medicine: "new insights" from the NIH Consensus Conference on VBAC. Birth. 2010;37:181-183.
    • (2010) Birth. , vol.37 , pp. 181-183
    • Shorten, A.1
  • 6
    • 84947088627 scopus 로고    scopus 로고
    • Accessed September 8, 2014
    • Patient Centered Outcomes Research Institute. Research we support. 2013. Available at: http://www.pcori.org/research-we-support/pcor/. Accessed September 8, 2014.
    • (2013)
  • 7
    • 79952283608 scopus 로고    scopus 로고
    • Adolescent and parent perceptions of patient-centered communication while managing type 1 diabetes
    • Croom A, Wiebe DJ, Berg CA, et al. Adolescent and parent perceptions of patient-centered communication while managing type 1 diabetes. J Pediatr Psychol. 2011;36:206-215.
    • (2011) J Pediatr Psychol. , vol.36 , pp. 206-215
    • Croom, A.1    Wiebe, D.J.2    Berg, C.A.3
  • 8
    • 84899646257 scopus 로고    scopus 로고
    • Interventions to support children's engagement in health-related decisions: A systematic review
    • Feenstra B, Boland L, Lawson ML, et al. Interventions to support children's engagement in health-related decisions: a systematic review. BMC Pediatr. 2014;14:109.
    • (2014) BMC Pediatr. , vol.14 , pp. 109
    • Feenstra, B.1    Boland, L.2    Lawson, M.L.3
  • 9
    • 77956353412 scopus 로고    scopus 로고
    • The promise of shared decision-making in paediatrics
    • Fiks AG, Jimenez ME. The promise of shared decision-making in paediatrics. Acta Paediatr. 2010;99:1464-1466.
    • (2010) Acta Paediatr. , vol.99 , pp. 1464-1466
    • Fiks, A.G.1    Jimenez, M.E.2
  • 10
    • 0032213154 scopus 로고    scopus 로고
    • Results and morbidity in a consecutive series of patients undergoing spinal fusion for neuromuscular scoliosis
    • Benson ER, Thomson JD, Smith BG, et al. Results and morbidity in a consecutive series of patients undergoing spinal fusion for neuromuscular scoliosis. Spine. 1998;23:2308-2318.
    • (1998) Spine. , vol.23 , pp. 2308-2318
    • Benson, E.R.1    Thomson, J.D.2    Smith, B.G.3
  • 11
    • 0033168308 scopus 로고    scopus 로고
    • Process measures and patient/parents evaluation of surgical management of spinal deformities in patients with progressive flaccid neuromuscular scoliosis (Duchenne's muscular dystrophy and spinal muscular atrophy)
    • Bridwell KH, Baldus C, Iffring TM, et al. Process measures and patient/parents evaluation of surgical management of spinal deformities in patients with progressive flaccid neuromuscular scoliosis (Duchenne's muscular dystrophy and spinal muscular atrophy). Spine. 1999;24:1300-1309.
    • (1999) Spine. , vol.24 , pp. 1300-1309
    • Bridwell, K.H.1    Baldus, C.2    Iffring, T.M.3
  • 12
    • 0032526645 scopus 로고    scopus 로고
    • Scoliosis in total-body-involvement cerebral palsy: Analysis of surgical treatment and patient and caregiver satisfaction
    • Comstock CP, Leach J, Wenger DR. Scoliosis in total-body-involvement cerebral palsy: analysis of surgical treatment and patient and caregiver satisfaction. Spine. 1998;23:1412-1425.
    • (1998) Spine. , vol.23 , pp. 1412-1425
    • Comstock, C.P.1    Leach, J.2    Wenger, D.R.3
  • 13
    • 26444446967 scopus 로고    scopus 로고
    • Long-term follow-up of functioning after spinal surgery in patients with neuromuscular scoliosis
    • Larsson E, Aaro S, Normelli H, et al. Long-term follow-up of functioning after spinal surgery in patients with neuromuscular scoliosis. Spine. 2005;30:2145-2152.
    • (2005) Spine. , vol.30 , pp. 2145-2152
    • Larsson, E.1    Aaro, S.2    Normelli, H.3
  • 14
    • 0020700154 scopus 로고
    • Operative treatment of spinal deformities in patients with cerebral palsy or mental retardation
    • Lonstein JE, Akbarnia BA. Operative treatment of spinal deformities in patients with cerebral palsy or mental retardation. J Bone Joint Surg Am. 1983;65:43-55.
    • (1983) J Bone Joint Surg Am. , vol.65 , pp. 43-55
    • Lonstein, J.E.1    Akbarnia, B.A.2
  • 16
    • 34249884211 scopus 로고    scopus 로고
    • Perioperative complications after surgical correction in neuromuscular scoliosis
    • Mohamad F, Parent S, Pawelek J, et al. Perioperative complications after surgical correction in neuromuscular scoliosis. J Pediatr Orthop. 2007;27:392-397.
    • (2007) J Pediatr Orthop. , vol.27 , pp. 392-397
    • Mohamad, F.1    Parent, S.2    Pawelek, J.3
  • 17
    • 35248844947 scopus 로고    scopus 로고
    • New strategies and decision making in the management of neuromuscular scoliosis
    • Sarwark J, Sarwahi V. New strategies and decision making in the management of neuromuscular scoliosis. Orthop Clin North Am. 2007;38:485-496.
    • (2007) Orthop Clin North Am. , vol.38 , pp. 485-496
    • Sarwark, J.1    Sarwahi, V.2
  • 18
    • 33748272120 scopus 로고    scopus 로고
    • Developing a quality criteria framework for patient decision AIDS: Online international Delphi consensus process
    • Elwyn G, O'Connor A, Stacey D, et al. Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. BMJ. 2006;333:417.
    • (2006) BMJ. , vol.333 , pp. 417
    • Elwyn, G.1    O'Connor, A.2    Stacey, D.3
  • 19
    • 84947088628 scopus 로고    scopus 로고
    • Accessed September 8, 2014
    • Nemours Children's Health System. Healthcare delivery science. Shared medical decision making in pediatrics. 2014. Available at: http://www.nemours.org/content/dam/nemours/wwwv2/filebox/research/Neuromuscular%20Scoliosis%20Decision%20Aid.PDF. Accessed September 8, 2014.
    • (2014)
  • 20
    • 0033581375 scopus 로고    scopus 로고
    • Decision AIDS for patients facing health treatment or screening decisions: A Cochrane Systematic Review
    • O'Connor A, Rostom A, Fiset V, et al. Decision aids for patients facing health treatment or screening decisions: a Cochrane Systematic Review. BMJ. 1999;319:731-734.
    • (1999) BMJ. , vol.319 , pp. 731-734
    • O'Connor, A.1    Rostom, A.2    Fiset, V.3
  • 21
    • 15544370295 scopus 로고    scopus 로고
    • Modifying unwarranted variations in health care: Shared decision making using patient decision AIDS
    • O'Connor AM, Llewellyn-Thomas HA, Flood AB. Modifying unwarranted variations in health care: shared decision making using patient decision aids. Health Aff. 2004(Suppl Web Exclusive): 63-72.
    • (2004) Health Aff. , pp. 63-72
    • O'Connor, A.M.1    Llewellyn-Thomas, H.A.2    Flood, A.B.3
  • 22
    • 77956505649 scopus 로고    scopus 로고
    • Are you SURE? Assessing patient decisional conflict with a 4-item screening test
    • Legare F, Kearing S, Clay K, et al. Are you SURE? Assessing patient decisional conflict with a 4-item screening test. Can Fam Physician. 2008;56:e308-e314.
    • (2008) Can Fam Physician. , vol.56 , pp. e308-e314
    • Legare, F.1    Kearing, S.2    Clay, K.3
  • 24
    • 0037369858 scopus 로고    scopus 로고
    • Longitudinal parental perceptions of spinal fusion for neuromuscular spine deformity in patients with totally involved cerebral palsy
    • Jones KB, Sponseller PD, Shindle MK, et al. Longitudinal parental perceptions of spinal fusion for neuromuscular spine deformity in patients with totally involved cerebral palsy. J Pediatr Orthop. 2003; 23:143-149.
    • (2003) J Pediatr Orthop. , vol.23 , pp. 143-149
    • Jones, K.B.1    Sponseller, P.D.2    Shindle, M.K.3
  • 26
    • 84947088629 scopus 로고    scopus 로고
    • [modified 2003]. 3 p Accessed December 15, 2014
    • [modified 2003]. 3 p. Available from: http://decisionaid.ohri.ca/docs/develop/User-Manuals/UM-Regret-Scale.pdf. Accessed December 15, 2014.
  • 28
    • 0035079946 scopus 로고    scopus 로고
    • Randomized trial of a patient decision aid for choice of surgical treatment for breast cancer
    • Goel V, Sawka CA, Thiel EC, et al. Randomized trial of a patient decision aid for choice of surgical treatment for breast cancer. Med Decis Making. 2001;21:1-6.
    • (2001) Med Decis Making. , vol.21 , pp. 1-6
    • Goel, V.1    Sawka, C.A.2    Thiel, E.C.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.