Longitudinal parental perceptions of spinal fusion for neuromuscular spine deformity in patients with totally involved cerebral palsy

Journal of Pediatric Orthopaedics

Volumn 23, Issue 2, 2003, Pages 143-149

  Jones, Kevin B ^a,b   Sponseller, Paul D ^a,b   Shindle, Michael K ^a,b   McCarthy, Melissa L ^a,c  

^a JOHNS HOPKINS HOSPITAL   (United States)

^b JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^c DEPARTMENT OF PATHOLOGY   (United States)

Author keywords

Cerebral palsy; Neuromuscular spine deformity; Outcomes instruments

Indexed keywords

ABSENTEEISM; ADOLESCENT; ADULT; ARTICLE; CEREBRAL PALSY; CLINICAL ARTICLE; COMORBIDITY; CONTROLLED STUDY; FEMALE; HAPPINESS; HUMAN; MALE; MEDICAL RECORD; NEUROMUSCULAR DISEASE; OUTCOMES RESEARCH; PAIN; PARENT; PRIORITY JOURNAL; PROSPECTIVE STUDY; QUESTIONNAIRE; SATISFACTION; SCHOOL CHILD; SCOLIOSIS; SPINE FUSION; SPINE MALFORMATION;

ADOLESCENT; ADULT; CAREGIVERS; CEREBRAL PALSY; CHILD; FEMALE; HUMANS; LONGITUDINAL STUDIES; MALE; PARENTS; PATIENT SATISFACTION; PROSPECTIVE STUDIES; QUESTIONNAIRES; SCOLIOSIS; SPINAL FUSION; TREATMENT OUTCOME;

EID: 0037369858     PISSN: 02716798     EISSN: None     Source Type: Journal    
DOI: 10.1097/00004694-200303000-00002     Document Type: Article

References (35)

1. Balmer GA, MacEwen GD. The incidence and treatment of scoliosis in cerebral palsy. J Bone Joint Surg [Br] 1970;52:134-137.
2. Bell DF, Moseley CF, Koreska J. Unit rod segmental spinal instrumentation in the management of patients with progressive neuromuscular spinal deformity. Spine 1989;14:1301-1307.
3. Benson ER, Thomson JD, Smith BG, et al. Results and morbidity in a consecutive series of patients undergoing spinal fusion for neuromuscular scoliosis. Spine 1998;23:2308-2318.
4. Boachie-Adjei O, Lonstein, JE, Winter RB, et al. Management of neuromuscular spinal deformities with Luque segmental instrumentation. J Bone Joint Surg [Am] 1989;71:548-562.
5. Bonnett C, Brown JC, Perry J, et al. Evolution of treatment of paralytic scoliosis at Rancho Los Amigos hospital. J Bone Joint Surg [Am] 1975;57:206-215.
6. Bonnett C, Brown JC, Grow T. Thoracolumbar scoliosis in cerebral palsy: results of surgical treatment. J Bone Joint Surg [Am] 1976;58:328-336.
7. Broom MJ, Banta JV, Renshaw TS. Spinal fusion augmented by Luque-rod segmental instrumentation for neuromuscular scoliosis. J Bone Joint Surg [Am] 1989;71:32-44.
8. Cassidy C, Craig CL, Perry A, et al. A reassessment of spinal stabilization in severe cerebral palsy. J Pediatr Orthop 1994;14: 731-739.
9. Comstock CP, Leach J, Wenger DR. Scoliosis in total-body-involvement cerebral palsy: analysis of surgical treatment and patient and caregiver satisfaction. Spine 1998;23:1412-1425.
10. Daltroy LH, Liang MH, Fossel AH, et al. The POSNA pediatric musculoskeletal functional health questionnaire: report on reliability, validity, and sensitivity to change. Pediatric Outcomes Instrument Development Group. Pediatric Orthopaedic Society of North America. J Pediatr Orthop 1998;18:561-571.
11. Dias RC, Miller FM, Dabney K, et al. Surgical correction of spinal deformity using a unit rod in children with cerebral palsy. J Pediatr Orthop 1996;16:734-740.
12. Edebol-Tysk K. Epidemiology of spastic tetraplegic cerebral palsy in Sweden. I. Impairments and disabilities. Neuropediatrics 1989; 20:41-45.
13. Eyman RK, Grossman HJ, Chaney RH, et al. The life expectancy of profoundly handicapped people with mental retardation. N Engl J Med 1990;323:584-589.
14. Flagstad AE, Kollman S. Vital capacity and muscle study in one hundred cases of scoliosis. J Bone Joint Surg [Am] 1928;10:724-734.
15. Gau YL, Lonstein JE, Winter RB, et al. Luque-Galveston procedure for correction and stabilization of neuromuscular scoliosis and pelvic obliquity: a review of 68 patients. J Spinal Disord 1991;4: 399-410.
16. Goldberg MJ. Measuring outcomes in cerebral palsy. J Pediatr Orthop 1991;11:682-685.
17. Gucker T. Changes in vital capacity in scoliosis: preliminary report on effects of treatment. J Bone Joint Surg [Am] 1962;44:469-481.
18. Hibbs RA. A report of fifty-nine cases of scoliosis treated by the fusion operation. J Bone Joint Surg [Am] 1924;6:3-37.
19. Horstmann HM, Boyer B. Progression of scoliosis in cerebral-palsied patients after skeletal maturity. Dev Med Child Neurol 1984;26:261.
20. Kalen V, Conklin MM, Sherman FC. Untreated scoliosis in severe cerebral palsy. J Pediatr Orthop 1992;12:337-340.
21. Larsson EL, Aaro S, Ahlinder P, et al. Preoperative evaluation of activity and function in patients with paralytic scoliosis. Eur Spine J 1998;7:294-301.
22. Larsson EL, Aaro S, Oberg B. Activities and functional assessment 1 year after spinal fusion for paralytic scoliosis. Eur Spine J 1999; 8:100-109.
23. Lonstein JE, Akbarnia BA. Operative treatment of spinal deformities in patients with cerebral palsy or mental retardation. J Bone Joint Surg [Am] 1983;65:43-55.
24. Madigan RR, Wallace SL. Scoliosis in the institutionalized cerebral palsy population. Spine 1981;6:583-590.
25. Majd ME, Muldowny DS, Holt RT. Natural history of scoliosis in the institutionalized adult cerebral palsy population. Spine 1997; 22:1461-1466.
26. Makley JT, Herndon CH, Inkley S, et al. Pulmonary function in paralytic and nonparalytic scoliosis before and after treatment. A study of 63 cases. J Bone Joint Surg [Am] 1968;50:1379-1390.
27. Rinsky LA. Surgery of spinal deformity in cerebral palsy. Twelve years in the evolution of scoliosis management. Clin Orthop 1990; 253:100-109.
28. Rosenthal RK, Levine DB, McCarver CL. The occurrence of scoliosis in cerebral palsy. Dev Med Child Neurol 1974;16:664-667.
29. Saito N, Ebara S, Ohotsuka K, et al. Natural history of scoliosis in spastic cerebral palsy. Lancet 1998;351:1687-1692.
30. Sponseller PD, LaPorte DM, Hungerford MW, et al. Deep wound infections after neuromuscular scoliosis surgery. Spine 2000;25: 2461-2466.
31. Sponseller PD, Whiffen JR, Drummond DS. Interspinous process segmental spinal instrumentation for scoliosis in cerebral palsy. J Pediatr Orthop 1986;6:559-563.
32. Szöke G, Lipton G, Miller F, et al. Wound infection after spinal fusion in children with cerebral palsy. J Pediatr Orthop 1998;18: 727-733.
33. Thometz JG, Simon SR. Progression of scoliosis after skeletal maturity in institutionalized adults who have cerebral palsy. J Bone Joint Surg [Am] 1988;70:1290-1296.
34. Turner JA, Deyo RA, Loeser JD, et al. The importance of placebo effects in pain treatment and research. JAMA 1994;271:1609-1614.
35. Vitale MG, Levy DE, Moskowitz AJ, et al. Capturing quality of life in pediatric orthopaedics: two recent measures compared. J Pediatr Orthop 2001;21:629-635.