The autism inpatient collection: Methods and preliminary sample description

Molecular Autism

Volumn 6, Issue 1, 2015, Pages

  Siegel, Matthew ^a   Smith, Kahsi A ^a   Mazefsky, Carla ^e   Gabriels, Robin L ^c   Erickson, Craig ^b   Kaplan, Desmond ^d   Morrow, Eric M ^f,g,h   Wink, Logan ^b   Santangelo, Susan L ^a  

^a TUFTS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b UNIVERSITY OF CINCINNATI COLLEGE OF MEDICINE   (United States)

^c UNIVERSITY OF COLORADO SCHOOL OF MEDICINE   (United States)

^d UNIVERSITY OF MARYLAND SCHOOL OF MEDICINE   (United States)

^e UNIVERSITY OF PITTSBURGH SCHOOL OF MEDICINE   (United States)

^f BROWN UNIVERSITY   (United States)

^g E P BRADLEY HOSPITAL   (United States)

^h BROWN UNIVERSITY   (United States)

Author keywords

Autism spectrum disorder; Genetics; Inpatient; Intellectual disability; New data resource; Non verbal; Psychiatric; Self injury; Severe autism

Indexed keywords

ABERRANT BEHAVIOR CHECKLIST; ADAPTATION; ADOLESCENT; ADULT; AGE DISTRIBUTION; ARTICLE; AUTISM; AUTISM DIAGNOSTIC OBSERVATION SCHEDULE; AUTOMUTILATION; BEHAVIOR; BEHAVIOR DISORDER ASSESSMENT; CAUCASIAN; CHILD; CHILD PARENT RELATION; CLINICAL OBSERVATION; CLINICAL RESEARCH; COGNITION; COHORT ANALYSIS; COMMUNICATION SKILL; COMORBIDITY; CONTROLLED STUDY; DNA EXTRACTION; EMOTIONALITY; EXTERNALIZING BEHAVIOR; FEASIBILITY STUDY; FEMALE; HISPANIC; HUMAN; HUMAN CELL; INFORMATION PROCESSING; INTELLIGENCE QUOTIENT; IRRITABILITY; LYMPHOBLASTOID CELL LINE; MAJOR CLINICAL STUDY; MALE; MENTAL DISEASE; PARENTAL STRESS; PRIORITY JOURNAL; PSYCHIATRIC DEPARTMENT;

EID: 84946550510     PISSN: None     EISSN: 20402392     Source Type: Journal    
DOI: 10.1186/s13229-015-0054-8     Document Type: Article

References (35)

1. American Psychiatric Association. Diagnostic and statistical manual of mental disorders: DSM-5. Washington, D.C.: American Psychiatric Association; 2013.
2. Interagency Autism Coordinating Committee (IACC). The 2011 IACC Strategic Plan for Autism Spectrum Disorder Research. http://iacc.hhs.gov/strategic-plan/2011/index.shtml (2011). Accessed 10 April 2015.
3. Venter A, Lord C, Schopler E. A follow-up study of high-functioning autistic children. J Child Psychol Psychiatry. 1992;33:489-507.
4. Gotham K, Pickles A, Lord C. Trajectories of autism severity in children using standardized ADOS scores. Pediatrics. 2012;130:1278-84.
5. Grothe DR, Calis KA, Jacobsen L, Kumra S, DeVane CL, Rapoport JL, et al. Olanzapine pharmacokinetics in pediatric and adolescent inpatients with childhood-onset schizophrenia. J Clin Psychopharmacol. 2000;20:220-5.
6. Siegel M, Doyle K, Chemelski B, Payne D, Ellsworth B, Harmon J, et al. Specialized inpatient psychiatry units for children with autism and developmental disorders: a United States survey. J Autism Dev Disord. 2012;42:1863-9.
7. Fischbach GD, Lord C. The Simons Simplex Collection: a resource for identification of autism genetic risk factors. Neuron. 2010;68:192-5.
8. Siegel M, Gabriels RL. Psychiatric hospital treatment of children with autism and serious behavioral disturbance. Child Adolesc Psychiatr Clin N Am. 2014;23:125-42.
9. Siegel M, Milligan B, Chemelski B, Payne D, Ellsworth B, Harmon J, et al. Specialized inpatient psychiatry for serious behavioral disturbance in autism and intellectual disability. J Autism Dev Disord. 2014;44:3026-32.
10. Gabriels RL, Agnew JA, Beresford C, Morrow MA, Mesibov G, Wamboldt M. Improving psychiatric hospital care for pediatric patients with autism spectrum disorders and intellectual disabilities. Autism Res Treat. 2012;2012:685053.
11. Berument SK, Rutter M, Lord C, Pickles A, Bailey A. Autism screening questionnaire: diagnostic validity. Br J Psychiatry. 1999;175:444-51.
12. Johnson SB, Whitney G, McAuliffe M, Wang H, McCreedy E, Rozenblit L, et al. Using global unique identifiers to link autism collections. J Am Med Inform Assoc. 2010;17:689-95.
13. Lord C, Rutter M, Di Lavore PC, Risi S, Gotham K, Bishop SL. Autism and Diagnostic Observation Schedule, Second Edition (ADOS-2) Manual (Part I): Modules 1-4. Torrance, CA: Western Psychological Services; 2012.
14. Marshburn EC, Aman MG. Factor validity and norms for the Aberrant Behavior Checklist in a community sample of children with mental retardation. J Autism Dev Disord. 1992;22:357-73.
15. Bodfish JW, Symonds FW, Parker DE, Lewis MH. The Repetitive Behavior Scale. Western Carolina Center Research Reports. 1999.
16. Gadow KD, Sprafkin J. Child Symptom Inventory 4, Screening and Norms Manual. Stony Brook: Checkmate Plus; 2002.
17. Sparrow SS, Cicchetti DV, Balla DA. Vineland Adaptive Behavior Scales. 2nd ed. Circle Pines, MN: American Guidance Service; 2005.
18. Abidin RR. Parenting Stress Index, Fourth Edition Professional Manual. Lutz, FL: PAR; 2012.
19. Hastings RP, Brown T. Behavior problems of children with autism, parental self-efficacy, and mental health. Am J Ment Retard. 2002;107:222-32.
20. Mazefsky CA, Siegel M, Yu L, Gabriels R, Williams DL, Pierri J, et al. Development of a New Measure to Identify Fundamental Emotion Regulation Processes Across the ASD Spectrum: Application to the Autism Inpatient Collection. Abstract Accepted to the International Meeting for Autism Research 2015. Salt Lake City, Utah, USA.
21. Iwata BA, DeLeon IG, Roscoe EM. Reliability and validity of the functional analysis screening tool. J Appl Behav Anal. 2013;46:271-84.
22. Research Units on Pediatric Psychopharmacology Autism Network. Risperidone in children with autism and serious behavioral problems. N Engl J Med. 2002;347:314-21.
23. Centers for Disease Control and Prevention (CDC). Prevalence of autism spectrum disorders among children aged 8 years: Autism and Developmental Disabilities Monitoring Network, 11 sites, United States. Morb Mortal Wkly Rep Surveill Summ. 2010;2014(63):1-21.
24. Kirkovski M, Enticott PG, Fitzgerald PB. A review of the role of female gender in autism spectrum disorders. J Autism Dev Disord. 2013;43:2584-603.
25. Frazier TW, Georgiades S, Bishop SL, Hardan AY. Behavioral and cognitive characteristics of females and males with autism in the Simons Simplex Collection. J Am Acad Child Adolesc Psychiatry. 2014;53:329-40.
26. Centers for Disease Control and Prevention (CDC). Prevalence of autism spectrum disorders: Autism and Developmental Disabilities Monitoring Network, 14 sites, United States. Morb Mortal Wkly Rep Surveill Summ. 2008;2012(61):1-19.
27. Anderson DK, Lord C, Risi S, DiLavore PS, Shulman C, Thurm A, et al. Patterns of growth in verbal abilities among children with autism spectrum disorder. J Consult Clin Psychol. 2007;75:594-604.
28. Tager-Flusberg H, Kasari C. Minimally verbal school-aged children with autism spectrum disorder: the neglected end of the spectrum. Autism Res. 2013;6:468-78.
29. Arnold LE, Vitiello B, McDougle C, Scahill L, Shah B, Gonzalez NM, et al. Parent-defined target symptoms respond to risperidone in RUPP autism study: customer approach to clinical trials. J Am Acad Child Adolesc Psychiatry. 2003;42:1443-50.
30. Davis NO, Carter AS. Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: associations with child characteristics. J Autism Dev Disord. 2008;38:1278-91.
31. Owen R, Sikich L, Marcus RN, Corey-Lisle P, Manos G, McQuade RD, et al. Aripiprazole in the treatment of irritability in children and adolescents with autistic disorder. Pediatrics. 2012;124:1533-40.
32. Lecavalier L. Behavioral and emotional problems in young people with pervasive developmental disorders: relative prevalence, effects of subject characteristics, and empirical classification. J Autism Dev Disord. 2006;36:1101-14.
33. Doehring P, Reichow B, Palka T, Phillips C, Hagopian L. Behavioral approaches to managing severe problem behaviors in children with autism spectrum and related developmental disorders: a descriptive analysis. Child Adolesc Psychiatr Clin N Am. 2014;23:25-40.
34. Mazefsky CA, Herrington J, Siegel M, Scarpa A, Maddox BB, Scahill L, et al. The role of emotion regulation in autism spectrum disorder. J Am Acad Child Adolesc Psychiatry. 2013;52:679-88.
35. Buxbaum JD, Daly MJ, Devlin B, Lehner T, Roeder K, State MW. Autism sequencing consortium: the autism sequencing consortium: large-scale, high-throughput sequencing in autism spectrum disorders. Neuron. 2012;76:1052-6.