Dementia and migration: Pakistani immigrants in the Norwegian welfare state

Ageing and Society

Volumn 35, Issue 8, 2015, Pages 1713-1738

  Næss, Anders ^a   Moen, Bjorg ^a  

^a NORWEGIAN SOCIAL RESEARCH NOVA   (Norway)

Author keywords

Dementia; intergenerational reciprocity; migration; normal ageing; Norwegian Pakistanis

Indexed keywords

AGING POPULATION; ASIAN IMMIGRANT; CULTURAL IDENTITY; CULTURAL INFLUENCE; ENVIRONMENTAL FACTOR; HEALTH CARE; MENTAL HEALTH; PUBLIC HEALTH; WELFARE PROVISION;

NORWAY;

EID: 84946476580     PISSN: 0144686X     EISSN: 14691779     Source Type: Journal    
DOI: 10.1017/S0144686X14000488     Document Type: Article

References (77)

1. All-Party Parliamentary Group on Dementia (APPG) 2013. Dementia Does Not Discriminate: The Experiences of Black, Asian and Minority Ethnic Communities. Alzheimer's Society and the House of Commons APPG, London.
2. All-Party Parliamentary Group on Dementia (APPG) 2012. Unlocking Diagnosis: The Key to Improving the Lives of People with Dementia. Alzheimer's Society and the House of Commons APPG, London.
3. Ayalon, L., Areán, P. A. 2004. Knowledge of Alzheimer's disease in four ethnic groups of older adults. International Journal of Geriatric Psychiatry, 19, 1, 51-7.
4. Bond, J. 1992. The politics of care-giving: the professionalization of informal care. Ageing & Society, 12, 1, 5-21.
5. Bowes, A., Wilkinson, H. 2003. We didn't know it would get that bad': South Asian experiences of dementia and the service response. Health & Social Care in the Community, 11, 5, 387-96.
6. Bradford, A., Kunik, M. E., Schulz, P., Williams, S. P., Singh, H. 2009. Missed and delayed diagnosis of dementia in primary care: prevalence and contributing factors. Alzheimer Disease & Associated Disorders, 23, 4, 306-14.
7. Brochmann, G., Kjeldstadli, K. 2008. A History of Immigration: The Case of Norway 900-2000. Univeristetsforlaget, Oslo.
8. Cohen, L. 1995. Toward an anthropology of senility: anger, weakness, and Alzheimer's in Banaras, India. Medical Anthropology Quarterly, 9, 2, 314-34.
9. Cohen, L. 2000. No Aging in India: Alzheimer's, Aging and Other Modern Things. University of California Press, Berkeley, California.
10. Cooper, C, Alec, R., Thana, B. S., Livingston, G. 2010. A systematic review and meta-analysis of ethnic differences in use of dementia treatment, care, and research. American Journal of Geriatric Psychiatry, 18, 3, 193-203.
11. Corbin, J., Strauss, A. (eds) 2008. Basics of Qualitative Research: Techniques and Procedures for Developing Grounded theory. Sage, Los Angeles.
12. Daatland, S. O.,Veenstra, M., Lima, I. A. 2009. Helse, familie og omsorg over livslopet [Health, family, and care across the lifespan]. Report Number 4, Norwegian Social Research (NOVA), Oslo.
13. Daker-White, G., Beattie, A.M., Gilliard, J., Means, R. 2002. Minority ethnic groups in dementia care: a review of service needs, service provision and models of good practice. Aging & Mental Health, 6, 2, 101-8.
14. D'Argemir, D. C. 1994. Gender relations and social change in Europe: on support and care. In Goddard, V. A, Llobeira, J. R and Shore, C. (eds), The Anthropology of Europe: Identities and Boundaries in Conflict. Berg, Oxford, 209-27.
15. Daugstad, G 2006. Ekteskapsmo;nstre i innvandrerbefolkningen: Hvem gifter innvandrere i Norge seg med?[Marriage Patterns in the Immigrant Population: Who Do Immigrants in Norway Marry?]. Statistics Norway, Oslo. Available online at http://www.ssb.no/samfunnsspeilet/utg/200604/06/index [Accessed 8 July 2013].
16. Dilworth-Anderson, P., Gibson, B. E. 2002. The cultural influence of values, norms, meanings, and perceptions in understanding dementia in ethnic minorities. Alzheimer's Disease & Associated Disorders, 16, 2, 56-63.
17. Downs, M. 2000. Ageing update: dementia in a socio-cultural context: an idea whose time has come. Ageing & Society, 20, 3, 369-75.
18. Dura, J. R., Stukenberg, K. W., Kiecolt-Glaser, J. K. 1991. Anxiety and depressive disorders in adult children caring for demented parents. Psychology and Aging, 6, 3, 467-73.
19. Eidheim, H. 1969. When ethnic identity is a social stigma. In Barth, F. (ed.), Ethnic Groups and Boundaries: The Social Organization of Culture Difference. Universitetsforlaget, Oslo, 39-57.
20. Elliott, K. S., Di Minno, M. 2006. Unruly grandmothers, ghosts and ancestors: Chinese elders and the importance of culture in dementia evaluations. Journal of Cross-cultural Gerontology, 21, 3/4, 1-57-77.
21. Esping-Andersen, G 1990. The Three Worlds of Welfare Capitalism. Princeton University Press, Princeton, New Jersey.
22. Forbat, L. 2003. Concepts and understandings of dementia by 'gatekeepers' and minority ethnic 'service users". Journal of Health Psychology, 8, 5, 645-55.
23. Glaser, B. G and Strauss, A. L. 1967. The Discovery of Grounded Theory: Strategies for Qualitative Research. Aldine de Gruyter, New York.
24. Gobo, G 2006. Sampling, representativeness and generalizability. In Seale, C, Gobo, G, Gubrium, J. F., Silverman, D. (eds), Qualitative Research Practice. Sage, London.
25. Godelier, M. 1999. The Enigma of the Gift. University of Chicago Press, Chicago.
26. Gubrium, J. F. 1986. Oldtimers and Alzheimer's: The Descriptive Organization of Senility. JAI Press, Greenwich, Connecticut.
27. Harding, N., Palfry, C. 1997. The Social Construction of Dementia: Confused Professionals?Jessica Kingsley, London.
28. Helman, C. G 2007. Culture, Health, and Illness. Hodder Arnold, London.
29. Henderson, J.N., Traphagan, J.W. 2005. Cultural factors in dementia: perspectives from the anthropology of aging. Alzheimer Disease & Associated Disorders, 19, 4, 272-4.
30. Hinton, L., Flores, Y., Franz, C, Hernandez, I., Mitteness, L. S. 2006. The borderlands of primary care: physician and family perspectives on 'troublesome' behaviors of people with dementia. In Cohen, L., Leibing, A. (eds), Thinking About Dementia: Culture, Loss, and the Anthropology of Senility. Rutgers University Press, New Brunswick, New Jersey.
31. Hinton, L., Franz, C., Friend, J. 2004. Pathways to dementia diagnosis: evidence for cross-ethnic differences. Alzheimer s Disease & Associated Disorders, 18, 3, 134-44.
32. Hinton, L., Franz, C. E., Yeo, G., Levkoff, S. E. 2005. Conceptions of dementia in a multiethnic sample of family caregivers. Journal of the American Geriatrics Society, 53, 8, 1405-10.
33. Hinton, L., Guo, Z., Hillygus, J., Levkoff, S. 2000. Working with culture: a qualitative analysis of barriers to the recruitment of Chinese-American family caregivers for dementia research. Journal of Cross-cultural Gerontology, 15, 2, 119-37.
34. Hunt, C. K 2003. Concepts in caregiver research. Journal ofNursing Scholarship, 35, 1, 27-32.
35. Iliffe, S., Manthorpe, J., Eden, A. 2003. Sooner or later? Issues in the early diagnosis of dementia in general practice: a qualitative study. Family Practice, 20, 4, 376-81.
36. Ingebretsen, R. 2010. Omsorg for eldre innvandrere [Care for elderly immigrants]. Report Number 15, Norwegian Social Research (NOVA), Oslo.
37. Izuhara, M. 2010. Ageing and Intergenerational Relations: Family Reciprocity from a Global Perspective. The Policy Press, Bristol, UK
38. Jang, Y, Kim, G., Chiriboga, D. 2010. Knowledge of Alzheimer's disease, feelings of shame, and awareness of services among Korean American elders. Journal of Aging & Health, 22, 4, 419-33.
39. Jutel, A. 2009. Sociology of diagnosis: a preliminary review. Sociology of Health and Illness, 31, 2, 278-99.
40. Khan, M. 2009. Tilbakeblikk; da pakistanerne kom til Norge Retrospection; When the Pakistanis Came to Norway]. Pax, Oslo.
41. Kitwood, T. 1993. Towards a theory of dementia care: the interpersonal process. Ageing & Society, 13, 1, 51-67.
42. Kitwood, T. 1997. Dementia Reconsidered: ThePerson ComesFirst. Open University Press, Buckingham, UK
43. Kleinman, A. 1981. Patients and Healers in the Context of Culture: An Exploration of the Borderland Between Anthropology, Medicine, and Psychiatry. University of California Press, Berkeley, California.
44. La Fontaine, J., Ahuja, J., Bradbury, N. M., Phillips, S., Oyebode, J. R 2007. Understanding dementia amongst people in minority ethnic and cultural groups. Journal of Advanced Nursing, 60, 6, 605-14.
45. Lien, I. L. 1997. Ordet som stempler djevlene. Holdninger blant pakistanere og nordmenn [The Word thatMarks theDevils. Attitudes Among Pakistanis and Norwegians]. Aventura, Oslo.
46. Liu, D., Hinton, L.,Tran, C, Hinton, D., Barker, J. C. 2008. Reexamining the relationships among dementia, stigma, and aging in immigrant Chinese and Vietnamese family caregivers. Journal of Cross-cultural Gerontology, 23, 3, 283-99.
47. Lock, M. 1993. Encounters with Aging: Mythologies of Menopause in Japan and North-America. University of California Press, Berkeley, California.
48. Lock, M. 2013. The epigenome and nature/nurture reunification: a challenge for anthropology. Medical Anthropology, 32, 4, 291-308.
49. Lock, M., Nguyen, V 2010. An Anthropology of Biomedicine. Wiley-Blackwell, Oxford.
50. Lyman, K A. 1986. Bringing the social back in: a critique of the biomedicalization of dementia. The Gerontologist, 29, 5, 597-605.
51. Mackenzie, J. 2006. Stigma and dementia: East European and South Asian family carers negotiating stigma in the UK. Dementia, 5, 2, 233-47.
52. Moen, B. 2009. Tilhorighetens balanse: Norsk-pakistanske kvinners hverdagsliv i transnasjonale familier [The balance of belonging: everyday life among Norwegian-Pakistani women in transnational families]. Report Number 13, PhD dissertation, Department of Anthropology, University of Oslo (UiO), Norwegian Social Research (NOVA), Oslo.
53. Moen, B. 2011. 'Det står i Koranen': Familieforpliktelser overfor eldre i pakistanske familier ['It says in the Qur'an': family obligations to elders in Pakistani families]. Norsk Antropologisk Tidsskrift, 22, 1, 37-48.
54. Moriarty, J., Sharif, N., Robinson, J. 2011. Black and Minority Ethnic People with Dementia and Their Access to Support and Services. Social Care Institute for Excellence, London.
55. Mukadam, N., Cooper, C., Livingston, G. 2011. A systematic review of ethnicity and pathways to care in dementia. International Journal of Geriatric Psychiatry, 26, 1, 12-20.
56. Næss, A., Vabø, M. 2014. Negotiating narratives of elderly care: the case of Pakistani migration to Norway. Ageing International, 39, 1, 13-32.
57. Nergård, T. B. 2008. Eldre innvandreres bruk av pleie-og omsorgstjenester: Rapport fra fem norske storbykommuner [Elderly immigrants' utilization of health-and care services: a report from five urban municipalities]. Report Number 10, Norwegian Social Research (NOVA), Oslo.
58. Norwegian Ministry of Health and Care Services, 2007. Dementia Plan 2015: Subplan of Care Plan 2015. Norwegian Ministry of Health and Care Services, Oslo.
59. Norwegian Ministry of Health and Care Services 2011. National Health-and Care Service Plan (2011-2015). White Paper Number 16 (2010-2011), Norwegian Ministry of Health and Care Services, Oslo.
60. Norwegian Ministry of Health and Care Services 2013. Future Care. White Paper Number 29 (2012-2013), Norwegian Ministry of Health and Care Services, Oslo.
61. Ory, M. G., Hoffman, R R., Yee, J. L., Tennstedt, S., Schultz, R. 1999. Prevalence and impact of caregiving: a detailed comparison between dementia and non-dementia caregivers. The Gerontologist, 39, 2, 177-85.
62. Pollitt, P. A. 1996. Dementia in old age: an anthropological perspective. Psychological Medicine, 26, 5, 1061-.4.
63. Purandare, N., Luthra, V, Swarbrick, C., Burns, A. 2007. Knowledge of dementia among South Asian (Indian) older people in Manchester, UK. International Journal of Geriatric Psychiatry, 22, 8, 777-81.
64. Riessman, C. K 2008. Narrative Methods for the Human Sciences. Sage, Los Angeles.
65. Sayed, H. R. Z., Ahlberg, N. L. 2006. What about the differences? A short review of the health system in Pakistan and its implications for immigrant health care in Norway. Norwegian Journal of Migration Research, 7, 2, 100-10.
66. Schiller, N. G., Basch, L., Blanc-Szanton, C. 1992. Transnationalism: a new analytic framework for understanding migration. In Schiller, N. G., Basch, L., Blanc-Szanton, C. (eds), Toward a Transnational Perspective on Migration: Race, Class, Ethnicity, and Nationalism Reconsidered. Annals of the New York Academy of Sciences Volume 6. , New York Academy of Sciences, New York, 1-24.
67. Seabrooke, V and Milne, A. 2009. Early intervention in dementia care in an Asian community. Quality in Ageing and Older Adults, 10, 4, 29-36.
68. Shaw, A. 2000. Kinship and Continuity: Pakistani Families in Britain. Routledge, London.
69. Shaw, A. 2005. British Pakistani elderly without children: an invisible minority. In Kreager, P., Shroeder-Butterfill, E. (eds), Ageing Without Children: European and Asian Perspectives on Elderly Access to Support Networks. Berghahn, Oxford, 198-222.
70. Statistics Norway 2009. Innvandrere i norske kommuner: Demografi, levekår og deltakelse i arbeidsstyrken [Immigrants in Norwegian municipalities: demography, living conditions, and partiticpation in the workforce]. Report Number 36, Statistics Norway, Oslo.
71. Statistics Norway 2013. Population Statistics. Available online at https://www.ssb.no/en/befolkning [Accessed 5 December 2013].
72. Titmuss, R. 1974. Social Policy. Allen & Unwin, London.
73. Victor, C.R., Martin, W., Zubair, M. 2012. Families and caring amongst older people in South Asian communities in the UK: a pilot study. European Journal of Social Work, 15, 1, 81-96.
74. Whitehouse, P.J., Haines, A. D., Lindstrom, H., Graham, J. E. 2005. Anthropological contributions to the understanding of age-related cognitive impairment. The Lancet Neurology, 4, 5, 320-6.
75. Whitehouse, P. J., Maurer, K., Ballenger, M. A. 2000. Concepts of Alzheimer's Disease: Biological, Clinical and Cultural Perspectives. Johns Hopkins University Press, London.
76. Whyte, S. R 2009. Health identities and subjectivities: the ethnographic challenge. Medical Anthropology Quarterly, 23, 1, 6-15.
77. Yeo, G., Gallagher-Thompson, D. (eds) 2006. Ethnicity and the Dementias. Taylor & Francis, Washington DC.