Concepts and understandings of dementia by 'gatekeepers' and minority ethnic 'service users'

Journal of Health Psychology

Volumn 8, Issue 5, 2003, Pages 645-655

  Forbat, Liz ^a  

^a OPEN UNIVERSITY   (United Kingdom)

Author keywords

Dementia; Ethnicity; Methodology; Reflexivity; Service access

Indexed keywords

CONCEPT FORMATION; DEMENTIA; ETHNIC GROUP; EXPERIENCE; FAMILY LIFE; HEALTH CARE ACCESS; HEALTH SERVICE; HUMAN; MEDICAL RESEARCH; NOMENCLATURE; PRIORITY JOURNAL; RACE DIFFERENCE; REVIEW; SOCIAL CARE;

CAREGIVERS; DEMENTIA; ETHNIC GROUPS; HEALTH SERVICES ACCESSIBILITY; HUMANS; MINORITY GROUPS; REFERRAL AND CONSULTATION;

EID: 0042691221     PISSN: 13591053     EISSN: None     Source Type: Journal    
DOI: 10.1177/13591053030085013     Document Type: Review

References (36)

1. Ahmad, W. (Ed.). (2000). Ethnicity, disability and chronic illness. Buckingham: Open University Press.
2. Audit Commission. (2000). Forget me not 2002: Mental health services for older people. London: Audit Commission.
3. Blakemore, K., & Boneham, M. (1994). Age, race and ethnicity. Buckingham: Open University Press.
4. Brechin, A., Barton, R., & Stein, J. (2003). Getting to grips with poor care. In K. Stalker (Ed.), Reconceptualising work with 'carers': New directions for policy and practice (pp. 160-176). London: Jessica Kingsley.
5. Brownlie, J. (1991). A hidden problem? Dementia amongst minority ethnic groups. Stirling, Scotland: University of Stirling.
6. Commission for Race Equality. (1997). Race, culture and community care: An agenda for action. London: Commission for Race Equality.
7. Commission for Race Equality. (1999). Ethnic minorities in Britain. London: Commission for Race Equality.
8. Connell, C. M., & Gibson, G. (1997). Racial, ethnic and cultural differences in dementia caregiving: Review and analysis. The Gerontologist, 37(3), 355-364.
9. Coyne, A. C., Reichman, W. E., & Berbig, L. J. (1993). The relationship between dementia and elder abuse. American Journal of Psychiatry, 150(4), 643-646.
10. Department of Health. (1998). They look after their own don't they? Inspection of community care services for black and ethnic minority older people. London: Department of Health/Social Services Inspectorate.
11. Department of Health. (2000). No secrets: Guidance on developing and implementing multi-agency policies and procedures to protect vulnerable adults from abuse. Government report. London: The Stationery Office.
12. Dilworth-Anderson, P., & Gibson, B. (1999). Ethnic minority perspectives on dementia, family caregiving and interventions. Generations, 23(3), 40-46.
13. Folstein, M. F., & Folstein, S. E. (1975). 'Mini mental state'. A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189-198.
14. Forbat, L. (2002). There is no word for dementia in Urdu: Researching minority ethnic family carers and dementia. Paper presented at the International Alzheimer's Congress, Barcelona, October.
15. Forbat, L. (2003). Relationship difficulties in dementia care: A discursive analysis of two women's accounts. Dementia: The International Journal of Social Research and Practice, 2(1), 67-84.
16. Fox, K., Levkoff, S., & Hinton, W. L. (1999). Take up the caregiver's burden: Stories of care for urban African American elders with dementia. Culture, Medicine and Psychiatry, 23(4), 501-529.
17. Frank, A. (1995). The wounded story-teller. Body, illness and ethics. London: University of Chicago Press.
18. Goffman, E. (1963). Stigma. Notes on the management of spoiled identity. London: Penguin.
19. Gunaratnam, Y. (1997). Breaking the silence: Black and ethnic minority carers and service provision. In J. Bornat, J. Johnson, C. Pereira, D. Pilgrim, & F. Williams (Eds.), Community care: A Reader (2nd edn, pp. 114-123). London: MacMillan.
20. Harding, N., & Palfrey, C. (1997). The social construction of dementia. Confused professionals? London: Jessica Kingsley.
21. Hinton, W. L., Fox, K., & Levkoff, S. (1999). Introduction: Exploring the relationships among aging, ethnicity, and family dementia caregiving. Culture, Medicine and Psychiatry, 23(4), 403-413.
22. Hinton, W., & Levkoff, S. (1999). Constructing Alzheimer's: Narratives of lost identities, confusion and loneliness in old age. Culture, Medicine and Psychiatry, 23(4), 453-475.
23. Janevic, M. R., & Connell, C. (2001). Racial, ethnic and cultural differences in the dementia caregiving experience: Recent findings. The Gerontologist, 41(3), 334-347.
24. Katbamna, S., Bhakta, P., & Parker, G. (2000). Perceptions of disability and care-giving relationships in South Asian communities. In W. Ahmad (Ed.), Ethnicity, disability and chronic illness (pp. 12-27). Buckingham: Open University Press.
25. Kitwood, T. (1998). Dementia reconsidered. Buckingham: Open University Press.
26. MacPherson, W. (1999). The Stephen Lawrence inquiry: Report of an inquiry. London: Home Office.
27. Manthorpe, J. (1994). Reading around: Dementia and ethnicity. Journal of dementia care, September/October, 22-23.
28. Marshall, M. (2001). The challenge of looking after people with dementia. British Medical Journal, 323, 410-411.
29. National Black Carers Network. (2002). We care too: A good practice guide for people working with black carers. London: Afiya Trust.
30. Race Relations (amendment) Act. (2000). London: The Stationery Office.
31. Rait, G., & Burns, A. (1996). Age, ethnicity and mental illness: A triple whammy. British Medical Journal, 313, 1347-1348.
32. Rait, G., Morley, M., Burns, A., Baldwin, R., Chew-Graham, C., & St Leger, A. (2000). Screening for cognitive impairment in older African Caribbeans. Psychological Medicine, 30(4), 957-963.
33. Sabat, S. (2001). The experience of Alzheimer's disease. Life through a tangled veil. London: Blackwell.
34. Shifflett, P. A., & Blieszner, R. (1988). Stigma and Alzheimer's disease: Behavioural consequences for support groups. Journal of Applied Gerontology, 7(2), 147-160.
35. Wills, G., Feldman, R., & Robinson, K. (2002). Dementia and past trauma. Caring for Jewish refugees from the Holocaust in a long-term residential setting. London: Otto Schiff Housing Association.
36. Wolfensberger, W. (1983). Social role valorization: A proposed new term for the principle of normalization. Mental Retardation, 21(6), 234-239.