Identification of the palliative phase in people with dementia: a variety of opinions between healthcare professionals

BMC Palliative Care

Volumn 14, Issue 1, 2015, Pages

  Van Riet Paap, Jasper ^a   Mariani, Elena ^b   Chattat, Rabih ^b   Koopmans, Raymond ^a,c   Kerhervé, Hélène ^d   Leppert, Wojciech ^e   Forycka, Maria ^e   Radbruch, Lukas ^f,g   Jaspers, Birgit ^f,g   Vissers, Kris ^a   Vernooij Dassen, Myrra ^a,h   Engels, Yvonne ^a  

^a RADBOUD UNIVERSITY MEDICAL CENTER   (Netherlands)

^b UNIVERSITY OF BOLOGNA   (Italy)

^c Verpleeghuis Joachim en Anna   (Netherlands)

^d Paris Descartes University   (France)

^e POZNAN UNIVERSITY OF MEDICAL SCIENCES   (Poland)

^f UNIVERSITY HOSPITAL BONN   (Germany)

^g Malteser Hospital Bonn/Rhein Sieg   (Germany)

^h Kalorama Foundation   (Netherlands)

Author keywords

Dementia; Europe; Long term care; Nursing home; Palliative care; Staff views

Indexed keywords

ARTICLE; CLINICAL DECISION MAKING; CLINICAL FEATURE; COMORBIDITY; CONSENSUS; DEMENTIA; DISEASE SEVERITY; FRANCE; GERMANY; HEALTH CARE NEED; HEALTH CARE PERSONNEL; HOSPITAL ADMISSION; HUMAN; ILLNESS TRAJECTORY; INTERMETHOD COMPARISON; ITALY; LONG TERM CARE; NETHERLANDS; NORWAY; NURSING HOME; PALLIATIVE THERAPY; POLAND; SYMPTOM; VIGNETTE; CLASSIFICATION; EUROPE; HEALTH PERSONNEL ATTITUDE; PATIENT CARE; PROCEDURES; PSYCHOLOGY;

ATTITUDE OF HEALTH PERSONNEL; CONSENSUS; DEMENTIA; EUROPE; HEALTH PERSONNEL; HUMANS; LONG-TERM CARE; PALLIATIVE CARE; PATIENT CARE;

EID: 84946132206     PISSN: None     EISSN: 1472684X     Source Type: Journal    
DOI: 10.1186/s12904-015-0053-8     Document Type: Article

References (26)

1. World Health Organization. Dementia: a public health priority. Geneva: World Health Organization; 2012.
2. Birch D, Stokoe D. Caring for people with end-stage dementia. Nurs Older People. 2010;22(2):31-6.
3. Hendriks SA, Smalbrugge M, Hertogh CM, van der Steen JT. Dying with dementia: symptoms, treatment, and quality of life in the last week of life. J Pain Symptom Manage. 2014;47(4):710-20.
4. Sachs GA, Shega JW, Cox-Hayley D. Barriers to excellent end-of-life care for patients with dementia. J Gen Intern Med. 2004;19(10):1057-63.
5. Ouldred E, Bryant C. Dementia care. Part 3: end-of-life care for people with advanced dementia. Br J Nurs. 2008;17(5):308-14.
6. Harris D. Forget me not: palliative care for people with dementia. Postgrad Med J. 2007;83(980):362-6.
7. Bekkema N, de Veer AJE, Albers G, Hertogh CMPM, Onwuteaka-Philipsen BD, Francke AL. Training needs of nurses and social workers in the end-of-life care for people with intellectual disabilities: a national survey. Nurse Educ Today. 2014;34(4):494-500.
8. Brown MA, Sampson EL, Jones L, Barron AM. Prognostic indicators of 6-month mortality in elderly people with advanced dementia: a systematic review. Palliat Med. 2013;27(5):389-400.
9. McCarthy M, Addington-Hall J, Altmann D. The experience of dying with dementia: a retrospective study. Int J Geriatr Psychiatry. 1997;12(3):404-9.
10. Volicer L, Seltzer B, Rheaume Y, Fabiszewski K, Herz L, Shapiro R, et al. Progression of Alzheimer-type dementia in institutionalized patients: a cross-sectional study. J Appl Gerontol. 1987;6(1):83-94.
11. Birch D, Draper J. A critical literature review exploring the challenges of delivering effective palliative care to older people with dementia. J Clin Nurs. 2008;17(9):1144-63.
12. van der Steen JT, Radbruch L, Hertogh CM, de Boer ME, Hughes JC, Larkin P, et al. White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the european association for palliative care. Palliat Med. 2013;28(3):197-209.
13. Piers R, Pautex S, Curiale V, Pfisterer M, Van Nes MC, Rexach L, et al. Palliative care for the geriatric patient in Europe. Survey describing the services, policies, legislation, and associations. Z Gerontol Geriatr. 2010;43(6):381-5.
14. Sandvik H. Criterion validity of responses to patient vignettes: an analysis based on management of female urinary incontinence. Fam Med. 1995;27(6):388-92.
15. Leucht CA, Bjorck JP, Klewicki LL, Goodman M. Patient impairment lexicon: a validation study. J Clin Psychol. 1999;55(12):1567-82.
16. Hughes R, Huby M. The application of vignettes in social and nursing research. J Adv Nurs. 2002;37(4):382-6.
17. Tiemeier H, de Vries WJ, van het Loo M, Kahan JP, Klazinga N, Grol R, et al. Guideline adherence rates and interprofessional variation in a vignette study of depression. Qual Saf Health Care. 2002;11(3):214-8.
18. Rutten GM, Harting J, Rutten ST, Bekkering GE, Kremers SP. Measuring physiotherapists' guideline adherence by means of clinical vignettes: a validation study. J Eval Clin Pract. 2006;12(5):491-500.
19. Johnson JK, Barach P, Vernooij-Dassen M. Conducting a multicentre and multinational qualitative study on patient transitions. BMJ Qual Saf. 2012;21 Suppl 1:i22-8.
20. Boeije H. A purposeful approach to the constant comparative method in the analysis of qualitative interviews. Quality & Quantity. 2002;36(4):391-409.
21. Mitchell SL, Teno JM, Kiely DK, Shaffer ML, Jones RN, Prigerson HG, et al. The clinical course of advanced dementia. N Engl J Med. 2009;361(16):1529-38.
22. Black BS, Fogarty LA, Phillips H, Finucane T, Loreck DJ, Baker A, et al. Surrogate decision makers' understanding of dementia patients' prior wishes for end-of-life care. J Aging Health. 2009;21(4):627-50.
23. Centeno C, José Pons J, Lynch T, Donea O, Rocafort J, Clark D. EAPC atlas of palliative care in Europe 2013 - cartographic edition. Milan. 2013.
24. Quill TE, Abernethy AP. Generalist plus specialist palliative care - creating a more sustainable model. N Engl J Med. 2013;368(13):1173-5.
25. Pastrana T, Junger S, Ostgathe C, Elsner F, Radbruch L. A matter of definition - key elements identified in a discourse analysis of definitions of palliative care. Palliat Med. 2008;22(3):222-32.
26. World Health Organization. Palliative Care. http://www.who.int/cancer/palliative/en/.