Nurses’ autonomy in end-of-life situations in intensive care units

Nursing Ethics

Volumn 22, Issue 7, 2015, Pages 803-814

  Paganini, Maria Cristina ^a,b   Bousso, Regina Szylit ^c  

^a FEDERAL UNIVERSITY OF PARANÁ   (Brazil)

^b University of Tuiuti do Paraná   (Brazil)

^c UNIVERSITY OF SÃO PAULO   (Brazil)

Author keywords

Decision making; end of life care; grounded theory; intensive care; life support systems; nurse; professional autonomy; qualitative research

Indexed keywords

BRAZIL; DECISION MAKING; HUMAN; INTENSIVE CARE NURSING; INTENSIVE CARE UNIT; NURSING STAFF; PROFESSIONAL PRACTICE; PSYCHOLOGY; QUALITATIVE RESEARCH; TERMINAL CARE;

BRAZIL; CRITICAL CARE NURSING; DECISION MAKING; HUMANS; INTENSIVE CARE UNITS; NURSING STAFF, HOSPITAL; PROFESSIONAL AUTONOMY; QUALITATIVE RESEARCH; TERMINAL CARE;

EID: 84946073038     PISSN: 09697330     EISSN: 14770989     Source Type: Journal    
DOI: 10.1177/0969733014547970     Document Type: Article

References (39)

1. L.EmanueleF.D.FerrisC.F.Von Gunten. The last hours of living: practical advice for clinicians, http://www.medscape.org/viewprogram/5808 (2010, accessed 12 December 2012).
2. R.ForeroG.McDonnellB.Gallego. A literature review on care at the end-of-life in the emergency department. Emerg Med Int, http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3303563/ (2012, accessed 21 December 2012).
3. N.DamghiJ.BelayachiB.Aggoug. Withholding and withdrawing life-sustaining therapy in a Moroccan Emergency Department: an observational study. BMC Emerg Med, http://www.biomedcentral.com/content/pdf/1471-227X-11-12.pdf (2011, accessed 12 August 2012).
4. V.Bach. Nursing roles in end-of-life decision making in critical care settings. West J Nurs Res2009; 31(4): 496–512.
5. V.T.S.MazaF.J.C.LasaosaA.P.Rico. End of life decision-making in critical care. An Esp Pediatr2002; 57(6): 511–517.
6. C.A.ZawistowskiM.A.De Vita. A descriptive study of children dying in the pediatric intensive care unit after withdrawal of life-sustaining treatment. Pediatr Crit Care Med2004; 5(3): 216–223.
7. J.M.Luce. End-of-life decision making in the intensive care unit. Am J Respir Crit Care Med2010; 182: 6–11.
8. R.R.FumisD.Deheinzelin. Respiratory support withdrawal in intensive care units: families, physicians and nurses views on two hypothetical clinical scenarios. Crit Care2010; 14(6): R235.
9. J.P.PivaM.Soares. End-of-life care in Brazilian ICUs is not just a legal issue: adequate training and knowledge are essential to improve care. Rev Bras Ter Intensiva2011; 23(4): 388–390, http://www.scielo.br/pdf/rbti/v23n4/en_a02v23n4.pdf (accessed 4 November 2011).
10. P.M.LagoC.NilsonJ.P.Piva. Nurses’ participation in the end-of-life process in two paediatric intensive care units in Brazil. Int J Palliat Nurs2011; 17(6): 264–270.
11. D.M.WestphalS.A.McKee. End-of-life decision making in the intensive care unit: physician and nurse perspectives. Am J Med Qual2009; 24(3): 222–228.
12. P.K.GazarianE.A.HennemanG.E.Chandler. Nurse decision making in the prearrest period. Clin Nurs Res2010; 19(1): 21–37.
13. R.LindG.F.LoremP.Nortvedt. Intensive care nurses’ involvement in end-of-life process—perspectives of relatives. Nurs Ethics2012; 19(5): 666–676.
14. M.I.Tamayo-VelazquezO.S.Simón-LordaM.Cruz-Piqueras. Euthanasia and physician-assisted suicide: knowledge, attitudes and experiences of nurses in Andalusia (Spain). Nurs Ethics2012; 19(5): 677–691.
15. T.Long-SutehallH.WillisR.Palmer. Negotiating dying: a grounded theory of how nurses shape withdrawal of treatment in hospital critical care units. Int J Nurs Stud2011; 48: 1466–1474.
16. M.CoombsT.Long-SutehallS.Shannon. International dialogue on end-of-life: challenges in the UK and USA. Nurs Crit Care2010; 15(5): 234–240.
17. National End of Life Care Programme—NSW Department of Health. Guidelines for end of life care and decision-making. London, http://www.cena.org.au/nsw/end_of_life_guidelines.pdf (2005, accessed 16 March 2011).
18. NIH State-of-the-Science Conference Statement on improving end-of-life care. NIH Consens State Sci Statements2004; 21(3): 1–28.
19. S.IzumiH.NagaeC.Sakurai. Defining end-of-life care from perspectives of nursing ethics. Nurs Ethics2012; 19(5): 608–618.
20. P.M.LagoJ.P.PivaD.Kipper. Life support limitation at three pediatric intensive care units in southern Brazil. J Pediatr2005; 81(2): 111–117.
21. R.MoritzP.M.LagoR.P.Souza. End-of-life and palliative care in intensive care units. Rev Bras Ter Intensiva2008; 20(4): 422–428.
22. D.KipperJ.PivaP.C.Garcia. Evolution of the medical practices and modes of death on pediatric intensive care in southern Brazil. Pediatr Crit Care Med2005; 6(3): 258–263.
23. K.OhnsorgH.R.G.LellerG.A.M.Widdershoven. “Ambivalence” at the end of life: how to understand patients’ wishes ethically. Nurs Ethics2012; 19(5): 629–641.
24. G.Dworkin. The theory and practice of autonomy. Cambridge: Cambridge University Press, 1988, p. 188.
25. M.KramerC.Schmalenberg. The practice of clinical autonomy in hospitals: 20,000 nurses tell their story. Crit Care Nurse2008; 28(6): 58–71, http://ccn.aacnjournals.org/content/28/6/58.full.pdf+html (accessed 5 August 2012).
26. M.SilénM.SvantessonG.Ahlström. Nurse’s conceptions of decision making concerning life-sustaining treatment. Nurs Ethics2008; 15(2): 160–173.
27. J.CorbinA.L.Strauss. Basics of qualitative research: grounded theory procedures and techniques. 3rd ed. London: Sage, 2008, p. 379.
28. R.D.MoritzS.M.Nassar. The attitude of health professionals concerning death. Rev Bras Ter Intensiva2004; 16(1): 14–21.
29. R.D.Moritz. Health professional facing death and dying. Bioetica2005; 13(2): 51–63.
30. M.CoombsJ.Addington-HallT.Long-Sutehall. Challenges in transitions: from intervention to end-of-life care in intensive care: a qualitative study. Int J Nurs Stud2011; 49: 519–527.
31. J.P.PivaP.C.R.GarciaP.M.Lago. Dilemmas and difficulties involving end of life decisions and palliative care in children. Rev Bras Ter Intensiva2011; 23(1): 78–86, http://www.scielo.br/scielo.php?script=sci_arttext&;pid=S0103-507X2011000100013 (accessed 5 August 2011).
32. M.Soares. End-of-life in Brazil: the long and winding road. Crit Care2011; 15: 110, http://ccforum.com/content/pdf/cc9962.pdf (accessed 3 June 2011).
33. J.B.HopkinsonC.E.HalletK.A.Luker. Everyday death: how do nurses cope with caring for dying people in hospital?Int J Nurs Stud2005; 42(2): 125–133.
34. E.InghelbrechtJ.BilsenF.Mortier. Nurses’ attitudes towards end-of-life decisions in medical practice: a nationwide study in Flanders, Belgium. Palliat Med2009; 23(7): 649–658.
35. J.PetersonM.A.JohnsonB.Halvorsen. What is it so stressful about caring for a dying patient? A qualitative study of nurses’ experiences. Int J Palliat Nurs2010; 16(4): 181–187.
36. M.MiyashitaY.NakaiT.Sasahara. Nursing autonomy plays an important role in nurses' attitudes toward caring for dying patients. Am J Hosp Palliat Care2007; 24(3): 202–210.
37. E.FerrandF.LemaireB.Regnier. Discrepancies between perceptions by physicians and nursing staff of intensive care unit end-of-life decisions. Am J Respir Crit Care Med2003; 167(10): 1310–1315.
38. Brazilian Federal Medical Council. Resolution CFM No. 1931/2009, http://www.portalmedico.org.br/novocodigo/integra.asp
39. E.FesticR.GrewalJ.T.Rabatin. End of life care in the intensive care unit: the perceived barriers, supports, and changes needed. Acta Med Acad2010; 39: 150–158.