Health-related quality of life in paediatric asthma: Childrens and parents perspectives

Psychology, Health and Medicine

Volumn 20, Issue 8, 2015, Pages 940-954

  Silva, Cláudia M ^a   Barros, Luísa ^b   Simões, Fátima ^a  

^a UNIVERSITY OF BEIRA INTERIOR   (Portugal)

^b UNIVERSITY OF LISBON   (Portugal)

Author keywords

asthma control; DISABKIDS 37; paediatric asthma; quality of life

Indexed keywords

ADOLESCENT; ASTHMA; CHILD; FEMALE; HUMAN; MALE; PARENT; PSYCHOLOGY; QUALITY OF LIFE;

ADOLESCENT; ASTHMA; CHILD; FEMALE; HUMANS; MALE; PARENTS; QUALITY OF LIFE;

EID: 84943579824     PISSN: 13548506     EISSN: None     Source Type: Journal    
DOI: 10.1080/13548506.2014.969745     Document Type: Article

References (50)

1. Abiodun, O.A. (2006). Parental psychopathology and self-rated quality of life in adolescents with epilepsy in Nigeria. Developmental Medicine and Child Neurology, 48, 600-603.
2. Annett, R.D., Bender, B.G., DuHamel, T.R., & Lapidus, J. (2003). Factors influencing parent reports on quality of life for children with asthma. Journal of Asthma, 40, 577-587. 10.1081/JAS-120019030
3. Annett, R.D., Turner, C., Brody, J.L., Sedillo, D., & Dalen, J. (2010). Using structural equation modeling to understand child and parent perceptions of asthma quality of life. Journal of Pediatric Psyc hology, 35, 870-882.
4. Baars, R.M., Zwinderman, A.H., Chaplin, J.E., Wit, J.M., Bullinger, M., Koopman, H.M., & The DISABKIDS Group. (2006). The European DISABKIDS health related quality of life (H RQL) instrument for children and adolescents with a chronic medical condition: psychometric properties of the cross-national asthma sample. In R.M. Baars (Ed.), Paediatric health related quality of life: A European perspective instrument develop ment, validation, and use in clinical practice (doctoral dissertation) (pp. 107-129). Leiden: Leiden University.
5. Bacharier, L.B., Boner, A., Carlsen, K.H., Eigenmann, P.A., Frischer, T., Götz, M., ⋯ The European Pedi atric Asthma Group. (2008). Diagnosis and treatment of asthma in childhood: A PRACTALL consensus report. Allergy, 63, 5-34. doi:10.1111/j.1398-9995.2007.01586.x
6. Bender, B., & Zhang, L. (2008). Negative affect, medication adherence, and asthma control in children. Journal of Allergy & Clinical Immunology, 122, 490-495.
7. Brown, E.S., Gan, V., Jeffress, J., Mullen-Gingrich, K., Khan, D.A., Wood, B.L., ⋯ Rush, A.J. (2006). Psychiatric symptomatology and disorders in caregivers of children with asthma. Pediatrics, 118, e1715-e1720.
8. Bullinger, M., Schmidt, S., Petersen, C., & The DISABKIDS Gro up. (2002). Assessing quality of life of children with chronic health conditions and disabilities: A European approach. International Journal of Rehabilitation Research, 25, 197-206.
9. Canavarro, M.C. (2007). Inv entário de sintomas psicopatológicos: Uma revisão crí tica dos estudos realizados em Portugal [Brief symptom inventory: A critical review of studies conducted in Portugal]. In M.R. Simões, C. Machado, M.M. Gonçalves, & L.S. Almeida (Eds.), Av aliação psicológica: Instrumentos validados para a população portuguesa (pp. 305-330). Coimbra: Quarteto Editora.
10. Carona, C., Bullinger, M., & Canavarro, M.C. (2011). Assessing paediatric health-related quality of life w ithin a cross-cultural perspective: Semantic and pilot validation study of the Portuguese versions of DISABKIDS-37. Vulnerable Children and Youth Studies, 6, 144-156.
11. Carona, C., Crespo, C., Silva, N., Lopes, A. F., Canavarro, M.C., & Bullinger, M. (2013). Examining a developmental approach to health-related quality of life assessment: Psychometric analysis of DISABKIDS generic module in a Portuguese sample. Vulnerable Children and Youth Studies, 8, 243-257. doi:10.1080/17450128.2012.736647
12. Chang, C. (2006). Treatment of asthma in children. In M.E. Gershwin & T.E. Albertson (Eds.), Bronchial asthma: A guide for practical understanding and treatment (Current clinical practice) (5th ed., pp. 65-111). Totowa, NJ: Humana Press.
13. Crespo, C., Carona, C., Silva, N., Canavarro, M.C., & Dattilio, F. (2011). Understanding the quality of life for parents and their children who have asthma: Family resources and challenges. Contemporary Family Therapy, 33, 179-196. doi:10.1007/s10591-011-9155-5
14. De Los Reyes, A., & Kazdin, A.E. (2005). Informant discrepancie s in the assessment of childhood psychopathology: A critical review, theoretical framework, and recommendations for further study. Psychological Bulletin, 131, 483-509.
15. Derogatis, L.R. (1982/1993). BSI: Brief symptom inventory (3rd ed.). Minneapolis, MN: National Computers Systems.
16. Direc ção-Geral da Saúde 2007). Manual de Boas Práticas na Asma [Manual of good practice in Asthma] Lisboa: Direcção-Geral da Saúde.
17. Doz, M., Chouaid, C., Com-Ruelle, L., Calvo, E., Brosa, M., Robert, J., ⋯ Detournay, B. (2013). The association between asthma control, health care costs, and quality of life in France and Spain. BMC Pulmonary Medicine , 13(15). Retrieved from http://www.medscape.com/viewarti cle/804230
18. Eiser, C., & Morse, R. (2001). Can parents rate their child's health-related quality of life? Results of a systematic review. Quality of Life Research, 10, 347-357.
19. Everhart, R.S., & Fiese, B.H. (2009). Asthma severity and child quality of life in pediatric asthma: A systematic review. Patient Education and Counseling, 75, 162-168. doi:10.1016/j.pec.2008.10.001
20. Ferro, M.A., Avison, W.R., Campbell, M.K., & Speechley, K.N. (2011). The impact of maternal depressive symptoms on health related quality of life in children with epil epsy: A prospective study of family environment as mediators and moderators. Epilepsia, 52, 316-325. doi:10.1111/j.1528-1167.2010.02769.x
21. Fiese, B., Winter, M., Anbar, R., How ell, K., & Poltrock, S. (2008). Family climate of routine asthma care: Associating perceived burden and mother-child interaction patterns to child wellbeing. Family Process, 47, 63-79.
22. Garma, S.I., Kell y, E.H., Daharsh, E.Z., & Vogel, L.C. (2011). Health-related quality of life after pediatric spinal cord injury. Journal of Pediatric Psychology, 36, 226-236.
23. Gaspar, A., Almeida, M.M., & Nu nes, C. (2006). Epidemiologia da asma grave [Epidemiology of severe asthma]. Revista Portuguesa de Imunoalergologia, 14, 27-41.
24. Global Initiative for Asthma. (2006). Global strategy for asthma management and prevention 2006. Retrieved from http://www.ginasthma.org/guidelines-2006-revision.html
25. Guilbert, T.W., Garris, C., Jhingran, P., Bonafede, M., Tomaszewski, K.J., Bonus, T., ⋯ Schatz, M. (2011). Asthma t hat is not well-controlled is associated with increased healthcare utilization and decreased quality of life. Journal of Asthma, 48, 126-132. doi:10.3109/02770903.2010.535879
26. Josie, K.L., Greenley, R.N., & Drotar, D. (2007). Cumulative risk and asthma outcomes in innercity African-American youth. Journal of Asthma, 44, 535-541.
27. Kolawole, M.S., Olayemi, A.F., Gregory, E.E., Abiodun, A.O., Daniel, O.O., & Bamidele, A.O. (2011). Health related quality of life and psychological variables among a sample of asthmatics in Ile-Ife South-Western Nigeria. Libyan Journal of Medicine, 6, 5846. Retrieved from http://www.readc ube.com/articles/10.3402/ljm.v6i0.5846?locale=en
28. Kumar, A., & Gershwin, M.E. (2006). Self-management in asthma. In M.E. Gershwin & T.E. Albertson (Eds.), Bronchial asthma: A guide for practical understanding and tre atment (Current clinical practice) (5th ed., pp. 343-356). NJ: Humana Press.
29. Laster, N., Holsey, C.N., Shendell, D.G., Mccarty, F.A., & Celano, M. (2009). Barriers to asthma management among urban families: Care giver and child perspectives. Journal of Asthma, 46, 731-739. doi:10.1080/02770900903082571
30. Meng, A., & McConnell, S. (2002). Decision-making in children with asthma and their parents. Journal of the American Academy of Nurse Practitioners, 14, 363-371.
31. Ortega, A.N., Goodwin, R.D., McQuaid, E.L., & Canino, G. (2004). Parental mental health, childhood psychiatric disorders, and asthma attacks in island Puerto Rican youth. Ambulatory Pediatrics, 4, 308-315.
32. Otsuki, M., Eakin, M.N., Arceneaux, L.L., Rand, C.S., Butz, A.M., & Riekert, K.A. (2010). Prospective relationship between maternal depressive symptoms and asthma morbidity among inner-city African American children. Journal of Pediatric Psychology, 35, 758-767. doi:10.1093/jpepsy/jsp091
33. Petsios, K., Priftis, K.N., Tsoumakas, C., Hatziagorou, E., Tsanakas, J.N., Galanis, P., ⋯ Matziou, V. (20 11). Level of parent-Asthmatic child agreement on health-related quality of life. Journal of Asthma, 48, 286-297. doi:10.3109/02770903.2011.555031
34. Price, M.R., Bratton, D.L., & Klinnert, M.D. (2002). Ca regiver negative affect is a primary determinant of caregiver report of pediatric asthma quality of life. Annals of Allergy, Asthma & Immunology, 89, 572-577.
35. Rajmil, L., López, A.R., López-Aguilá, S., & Alon so, J. (2013). Parent-child agreement on health-related quality of life (HRQOL): A longitudinal study. Health and Quality of Life Outcomes, 11, 101. doi:10.1186/1477-7525-11-101. Retrieved from http://www.hqlo.com/content/11 /1/101
36. Raymond, K.P., Fiese, B.H., Winter, M.A., Knestel, A., & Everhart, R.S. (2012). Helpful hints: Caregiver-generated asthma management strategies and their relation to pediatric asthma symptoms and quality o f life. Journal of Pediatric Psychology, 37, 414-423. doi:10.1093/jpepsy/jss001
37. Riley A.W.,Spiel G.,Coghill D.,Döpfner M.,Falissard B.,Lorenzo M.J. ⋯ ADORE Study Group 2006 Factors related to health-related quality of life (HRQL) among children with ADHD in Europe at entry into treatment. European Child and Adolescent Psychiatry 15 138-145.
38. Rydström, I., Dalheim-Englund, A., Holritz-Rasmussen, B., Möller, C., & Sandman, P. (2005). Asthma-Quality of life for Swedish children. Journal of Clinical Nursing, 14, 739-749.
39. Sawyer, M.G., Reynolds, K.E., Couper, J.J., French, D.J., Kennedy, D., Martin, J., ⋯ Baghurst, P.A. (2005). A two-year prospective study of the health-related quality of life of children with chronic illness? The parents? Perspective. Quality of Life Research, 14, 395-405.
40. Sawyer, M.G., Spurrier, N., Whaites, L., Kennedy, D., Martin, A.J., & Baghurst, P. (2001). The relationship between asthma severity, family functioning and the health-related quality of life of children with asthma.Quality of Life Research, 9, 1105-1115.
41. Silva, N.B. (2009). Qualidade de vida e saúde mental de crianças e adolescentes com epilepsia e dos seus cuidadores familiares: Estudo com a versão portuguesa do DISABKIDS-3 [Master monograph]. Coimbra: Universidade de Coimbra. Retrieved from https://estudogeral.sib.uc.pt/handle/10316/14508
42. Spieth, L.E., & Harris, C.V. (1996). Assessment of health-related quality of life in children and adolescents: An integrative review. Journal of Pediatric Psychology, 21, 175-193.
43. Sullivan, P.W., Smith, K.L., Ghushchyan, V.H., Globe, D.R., Lin, S., & Globe, G. (2013). Asthma in USA: Its impact on health-related quality of life. Journal of Asthma, 50, 891-899. doi:10.3109/02770903.2013.813035
44. Theunissen, N.C.M., Vogels, T.G.C., Koopman, H.M., Verrips, G.H.W., Zwinderman, K.A.W., Verloove-Vanhorick, S.P., & Wit, J.M. (1998). The proxy problem: Child report versus parent report in health-related quality of life research. Quality of Life Research, 7, 387-397.
45. Trollvik, A., & Severinsson, E. (2005). Influence of an asthma education program on parents with children suffering from asthma. Nursing and Health Sciences, 7, 157-163.
46. Upton, P., Lawford, J., & Eiser, C. (2008). Parent-child agreement across child health-related quality of life instruments: A review of the literature. Quality of Life Research, 17, 895-913. doi:10.1007/s11136-008-9350-5
47. van Gent, R., van Essen, L.E., Rovers, M.M., Kimpen, J.L., van der Ent, C.K., & de Meer, G. (2007). Quality of life in children with undiagnosed and diagnosed asthma. European Journal of Pediatrics, 166, 843-848. doi:10.1007/s00431-006-0358-y
48. Vila, G., Hayder, R., Bertrand, C., Falissard, B., de Blic, J., Mouren-Simeoni, M.C., & Scheinmann, P. (2003). Psychopathology and quality of life for adolescents w ith asthma and their parents. Psychosomatics, 44, 319-328.
49. Wilson, S.R., Rand, C.S., Cabana, M.D., Foggs, M.B., Halterman, J.S., Olson, L., ⋯ Taggart, V. (2012). Asthma outcomes: Quality of life.Journal of Allergy and Clinical Immunology, 129, S88-S123.
50. Yac-Küpeli, B., Aky üz, C., Küpeli, S., & Büyükpamukçu, M. (2012). Health-related quality of life in pediatric cancer survivors. Journal of Pediatric Hem atology/Oncology, 34, 194-199. doi:10.1097/MPH.0b013e3182467f5f